Rare Diseases, Real Stories

Jack's story: Hereditary spastic paraplegia type 4


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Seven-year-old Jack Laidlaw, the oldest of three boys, is upbeat and friendly to everyone he meets, according to his parents, Anna and Richard Laidlaw. But Jack faces challenges due to a rare disorder he cannot yet comprehend. His parents are determined to remain hopeful and create a better future for him despite his diagnosis of hereditary spastic paraplegia type 4 (SPG4).

🎧 Listen and subscribe to all episodes of Rare Diseases, Real Storie: umassmed.edu/rarediseasesrealstories

đź’ś Learn more about the Laidlaw family and their efforts to support SPG4 research.

BluGenes

SPG4 research and treatment for Jack

Additional information about Jack

đź’ś To learn more about hereditary spastic paraplegia, patient advocacy and research, visit the following resources:

UMass Chan Medical School

Boston Children's Hospital, Spastic Paraplegia – Centers of Excellence Research Network

Cure SPG4 Foundation

Spastic Paraplegia Foundation, Inc.

Mauray Koduri Foundation

The Lilly Blair Foundation

đź”— Share Jack's story using the following hashtags: #RareDiseasesRealStories, #RareDiseases, #podcast

Interested in learning more about gene therapy research? Email us at: [email protected]

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Rare Diseases, Real StoriesBy UMass Chan Medical School

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