Patient advocate and founder of the Patient Voice Initiative, Jessica Bean, discusses some topics that are central to many rare diseases, not just rare cancers, clinical trials, compassionate access, and patient advocacy.

Jessica Bean, advocating for Australian patients

Radio Rare is a podcast where we share the stories of those in and around the rare and less common cancer community. 

Being diagnosed with a rare cancer doesn’t mean you’re alone. Radio Rare will dive into the human stories of the rare cancer experience, the innovation and the advocacy.

Addressing the feeling of isolation experienced by so many, we look to create a close community of those affected by rare and less common cancers.

Produced by Rare Cancers Australia

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Radio Rare is a podcast where we share the stories of those in and around the rare and less common cancer community. Being diagnosed with a rare cancer doesn’t mean you’re alone. Radio Rare will dive into the human stories of the rare cancer experience, the innovation and the advocacy. Addressing the feeling of isolation experienced by so many, we look to create a close community of those affected by rare and less common cancers. Produced by Rare Cancers Australia

Radio Rare is a podcast where we share the stories of those in and around the rare and less common cancer community. 

Being diagnosed with a rare cancer doesn’t mean you’re alone.&nbsp;Radio Rare will dive into the human stories of the rare cancer experience,&nbsp;the innovation and the advocacy.

Addressing the feeling of isolation experienced by so many, we look to create a close community of those affected by rare and less common cancers.

Produced by Rare Cancers Australia

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Jessica Bean, advocating for Australian patients

Jessica Bean, advocating for Australian patients

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