Aimee Powell is a patient advocate working with patients with paraganglioma/pheochromocytoma, rare neuroendocrine tumors. She is the founder of the Pheo Para Project and past Executive Director of the Pheo Para Alliance, and currently sits on the board of directors for the SDH-Deficient Cancer Research Advocates. Aimee currently lives in the Greater Los Angeles area.
A paraganglioma is a rare neuroendocrine neoplasm that may develop at various body sites. When the same type of tumor is found in the adrenal gland, they are referred to as a pheochromocytoma. They are rare tumors, with an overall estimated incidence of 1/300,000. Unlike other types of cancer, there is no test that determines benign fr...