Just Talking Podcast

Lydia Beier joins me for a conversation about living with depression and bipolar disorder, the challenges and opportunities that come with battling mental health stigma, and the value of starting a conversation to make a difference in people's lives.

Keep up with Lydia at beinglydia.com and chronicillnessbloggers.com.

Run Time - 26:58

Send your feedback to [email protected].

Jen Loving joins me for a conversation about raising multiple children with diabetes, navigating a hemophilia diagnosis, exhibiting self care through creative hair styles, and the positive impact you can make on the world by sharing your story.

Follow Jen on Twitter at @jloveblueshoe and thelovingchronicles.blogspot.com.

Run Time - 31:29

Send your feedback to [email protected].

This week I'm joined by Peggy Stephens for a conversation about inflammatory breast cancer, the challenge of rapidly understanding urgent treatment options, working with the Inflammatory Breast Cancer Foundation, and creating strong and effective advocacy and awareness campaigns for IBC.

Learn more about the Inflammatory Breast Cancer Foundation at eraseibc.org.

Erase IBC was featured in the Fall 2018 issue of Breast Cancer Wellness Magazine, read the feature at breastcancerwellness.org.

Run Time - 34:05

Send your feedback to [email protected].

Angela Cohen joins me this week to talk about her life with multiple chronic conditions, finding time for self care, defining a unique voice in patient advocacy, and the importance of empathy and shared experiences.

Follow Angela on Twitter @angelee828.

Run Time - 41:47

Send your feedback to [email protected].

Carin Anderson joins me this week for a conversation about aortic disease, navigating a complicated world of terminology and treatment options and outcomes, growing a small outreach initiative into a widely respected and recognized nonprofit organization, and the complexity of invisible illness and disability.

Learn more about Aortic Hope at aortichope.org and follow Chrisa on Twitter @AorticHope.

Run Time - 36:10

Send your feedback to [email protected].

This week I'm joined by Chrisa Hickey for a conversation about childhood mental illness, fighting mental health stigma, navigating the Special Education system, sibling issues, and parental self-care. Trigger Warning: Suicide.

Learn more about Chrisa's story and advocacy efforts at themindstorm.net and follow Chrisa on Twitter @Chrisa_Hickey.

Run Time - 33:32

Send your feedback to [email protected].

Becky Brandt joins me this week for a conversation about central pain syndrome, battling stigma, creating an online resource for world in the Central Pain Nerve Center, and carving a unique path in patient advocacy on behalf of people living with central pain syndrome.

Learn more about central pain nerve syndrome at centralpainnervecenter.com and follow Becky on Twitter @bbhomebody.

Run Time - 31:12

Send your feedback to [email protected].

This week I'm joined by Michele Hillman for a conversation about her son's multiple misdiagnosis adventures, understanding the impact of strabismus eye surgery for a 22-month old child, gaining an appreciation for how vision impacts development, the value of vision therapy, and channeling a path for empathy and patient advocacy through story-sharing.

Michele's advocacy efforts are best followed on her Facebook page. Learn more about vision therapy at covd.org.

Run Time - 43:41

Send your feedback to [email protected].

Kathy Young joins me for a lively discussion about her life with multiple sclerosis, finding her voice in patient advocacy through her blog and podcast, and advocating for patient advocates to get fairly compensated for their time.

Learn more about Kathy's advocacy efforts fumsnow.com and Patients Getting Paid.

Run Time - 36:37

Send your feedback to [email protected].

This week I'm joined by Kelly Crabb for a conversation about her life with Crohn's Disease, finding her voice as a patient advocate, her stamina as a runner, and her community through the Purple Project.

Follow Kelly's advocacy efforts on Twitter @girlsgotguts and Facebook @kellyontherun.

Run Time - 35:03

Send your feedback to [email protected].