Living With Cystic Fibrosis

Learning, Leading, Listening: Julie Eichenberg of BreatheStrong CF


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“Being a CF aunt has shaped so much of my life. Now I get the opportunity to turn that love and connection into helping even more people at Breathe Strong CF." 

Julie Dunn Eichenberg didn’t just find the cystic fibrosis community, she’s been part of it for more than 30 years as a proud CF aunt.

That personal connection is what makes this next chapter so meaningful.

Julie recently stepped into the role of Executive Director at BreatheStrong CF, where the focus is on helping people with cystic fibrosis live stronger, healthier lives through exercise, education, and empowerment. And while she brings decades of experience in leadership, fundraising, and relationship-building, she’s honest about getting used to the role.

She’s learning. Listening. Figuring out the day-to-day. And really taking the time to understand how she can best serve the community in this new position.

Before this, Julie spent 20 years at Turner Broadcasting System (now part of Warner Bros. Discovery), and later held leadership roles at Florida State University and Fan Data Insights. But no matter where her career took her, the CF community was always part of her life.

She’s also been deeply involved with the Cystic Fibrosis Foundation, serving as Chair of the Georgia Chapter and contributing at the national level.

We talk about what it feels like to step into a leadership role that’s so personal. The excitement, the pressure, and the responsibility that comes with it. Julie shares what she’s learning, what’s surprised her, and why her connection as a CF aunt continues to guide every decision she makes.

Because for Julie, this isn’t just a job,  it’s personal.

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Living With Cystic FibrosisBy Laura Bonnell

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