Life: Is It Just Me?

Letrozole Conception - Birth & Death


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Part 2 - Therese has difficulty conceiving and turned to IVF to help. Her heart-wrenching pregnancy journey includes her taking a triple dose of letrozole without anyone knowing, her suffering from pre-eclampsia and her baby being born with Edwards' Syndrome (Trisomy 18). She talks about birth, death and her journey of recovery.

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the doctor that was with

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us when i delivered mira she told me

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that

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i am now going to be unprofessional and

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what she told me there it helped me to

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survive

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[Applause]

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[Music]

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welcome back then this is part two where

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we are

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speaking to teresa so a guest from

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sweden life is it just me it's a podcast

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where we talk about

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the big talking points in life do not

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whatever you do

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listen to this episode if you have not

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yet checked out part one because there

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is

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a whole backstory which you've got to

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hear first one is paul i'm joined by

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ryan as always hello ryan hi paul how

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are we doing today

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really really good and great to have you

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here and today is hello

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hello welcome back today yes

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you are telling us about your incredibly

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detailed and

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poignant and emotional story

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all about your journey of

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trying to conceive i guess and your

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journey between ibm

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took us on a rollercoaster last time wow

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and we're back for

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um i i had all the

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the emotions all of them every single

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one ticked them off like a bingo card

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emotional bingo we have to we're going

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to have to release that now it's a board

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game

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is it just me emotional that is that's a

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really good who can we team up with

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hasbro or someone like that

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hasbro has to say that mattel maybe one

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of the big ones to be honest i don't

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really care anybody will do

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take my rights take my money okay

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let's go back to business today you were

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telling us all about

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your time in hospital catches up and

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continue from where you got to please as

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best you can

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yeah well when we ended the last time

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i have just told you about

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having giving birth to my daughter and

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well my husband joaquim just told me it

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was a girl because we didn't know until

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the birth so now we were asked

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from my midwife emma uh if we had a name

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for her

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and yeah

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i was thinking about the name i have

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been carrying for

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many years and did i want to give that

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name to

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this beautiful girl or should i keep it

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and save it for

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for hopefully having another guy another

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girl

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and then i was no during the pre

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pregnancy i have been thinking about

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this baby as

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mira so i turned to my husband and i

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asked

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is it mira and he looked at me and said

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yes it is mira so

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that's when i turned back to emma and

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said

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this is mira and from there

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she got her name and

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after this we were offered

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to have a photograph come to take

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photographs

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of us and they did that for free

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because of everything and then they

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asked us if we would like to have a

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priest coming

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to have a baptized

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um and we said thank you to both

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uh of those um so the photograph came

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first

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and took some really beautiful pictures

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my favorite is one when i am talking to

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meera

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and i'm looking down at her and

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the picture captures a moment where mira

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is looking up at me

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and me down the tar this is

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my most precious picture i have of us

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and we also have this beautiful picture

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when

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joaquim is kind of ticking

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her hand to see if he can open her hand

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up

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and she does open her fingers and then

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she closes them

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on her on his fingertip this is also a

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really beautiful picture

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we have yeah it sounds beautiful it does

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yeah

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where did the choice of name mira come

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from

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i had a dream where me and my husband

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and his sister were going in the city

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for shop and shopping and we had a

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stroller

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and in this stroller we had this baby

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girl named mira

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and so i carried this name for

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maybe 10 years hoping to have a baby

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girl

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name his name

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and i finally had her get it

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how did you feel we spoke last time

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about

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the depths you went to in the journey

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and then of course being told

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not long before you were to give birth

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your baby was likely not going to

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have a long life expectancy in that

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moment with all that information in your

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head

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you still had mira to hold and to have

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pictures

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can you put that into words

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at first it was um horrible

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because i was holding my baby that was

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going to die

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but also when i calmed

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down and when i learned that she

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was still alive after birth i was so

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filled with love to this tiny tiny

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person

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lying there because during the pregnancy

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she had shown me her quirks she had a

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personality

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so to having this baby with this

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personality on my chest and bonding the

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guitar

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it was amazing uh

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it's hard to explain but

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with all the emotions the the sadness

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the grieving we had

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the anger the frustration to being there

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but

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not being able to take her home and

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also all this happiness to be there with

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her

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to hold her to see her to smell her

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and feel her and it's

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so wonderful to have those memories with

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me

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during all the pain we also have

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and i have struggled a lot with pain

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and i have been

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through a lot of therapy because of this

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and i have turned a lot of the pain to

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good emotions like love and happiness

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yeah good things so that's good

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that that sounds positive because it

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would be hard to

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er not hard to do that but very easy to

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go the other way

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no um and take a lot of negativity from

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that and

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anger almost i can imagine anger would

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have been the first place to go

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um after upset but it's it's nice to

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hear that you've got

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to a point now where you've kind of

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turned the page almost

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to to that positivity side of things and

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that you had all these positive

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experiences

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things that you wouldn't have been able

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to do had it had not happened

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so that's really good to hear that

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yes

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well um after this um

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mira had been alive for um like

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three or four hours so we were mowed

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to neonatal at that time so they could

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try to put a tube in her to feed her

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so we were mowed over there and

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when we came into our room we

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had there we changed

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so joaquin could hold her

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and he told me afterward that

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when it was confirmed that he was going

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to hold her

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he almost ripped his shirt in half to

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get it

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off him to then put the hospital chart

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on

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so he could have mira

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beneath the hospital chart in a good way

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yeah and

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then they tried to put the tube but

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it was really difficult and they wasn't

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they weren't able to do that

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and um during the time we had her there

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they tried three times one

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wiki joaquim one with me and the last

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time

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it was after midnight

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they put her on a table with a heating

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mattress to keep her warm when she

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wasn't playing with us

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and i took that time to go to the

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bathroom because

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i've been told from the doctors you need

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to go to the bathroom

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regular because after the epidural you

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won't feel the need

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and when i came out of the bathroom i

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felt a change in the atmosphere in the

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room

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and i was focused on getting a glass of

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water to take my

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medication at that time but i

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put the glass away and went

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up to joakim and the two nurses

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to see what was going on

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then joaquin told me it's time

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so after 11 hours alive

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she was now giving up

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so i went up there he woke him hugged me

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really hard

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and really close so i was standing there

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in a

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quite awkward situation position

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because i wanted to hug you joaquim but

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also i wanted to

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let mira know that i was there with her

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so i could put a hand on her

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and then the doctor came in and

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took this stethoscope and listened and

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said yeah i can only hear the heart now

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so it won't be long

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and at that point i felt the need to

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hold mira again

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because she was laying there on this

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table and it felt horrible to see her

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lying there without

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anyone holding her so i released myself

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from joaquin designer i want to hold her

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and i gently picked her up and got help

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to open up the shirt so i could put her

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skin to skin

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and i held her there close to my own

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heart

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even her own when her heart stopped

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beating

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and we were alone at the time uh

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the doctor said we will leave you

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to be alone this last moment with her

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so we were there alone and then they

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came in

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and the doctor confirmed that she was

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gone

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and yeah then we cleaned her

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and dressed her and they had this

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baby caskets i

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think it's super name

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where they put her in a cooling mattress

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so we could have her as long as we

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wanted

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because that's what i have learned

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you do in all sweden but also

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in america in uk and in countries

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where they know that it's important that

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when your baby dies that you have the

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baby

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until you're ready to leave

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the baby behind so to say

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it sounds really wrong to say it but

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that's the way

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the reality yeah

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so we don't think anybody anybody would

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be able to understand how you feel

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unless you've gone through that

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although your storytelling is so vivid

0:12:53.120,0:12:55.360

that

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i feel like we are going through it with

0:12:55.360,0:13:00.399

you um

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i know what you think it's yeah

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um i could feel myself choking up as you

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were speaking and i was

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i was like okay keep it together

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sorry sorry yeah no i was just going to

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say thank you for sharing again

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because i know we talked about last time

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it was almost a little bit like a

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therapy session um

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where we're sharing all these things

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together um but i kind of hope that

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that's how these come across

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when when we release them as a series

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i'm hoping that that's

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that's what it kind of does for people

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that

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they see that it's not just them and

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that

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other people are going through painful

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scenarios and

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things that are normal if that people

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think or perceive our normal everyday

0:13:44.399,0:13:48.000

things

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and from a unique perspective and

0:13:48.000,0:13:51.839

knowing that they're not alone

0:13:49.440,0:13:53.600

and i'm hoping and i know paul feels the

0:13:51.839,0:13:57.440

same i'm not putting words in his mind

0:13:53.600,0:14:00.399

at all so that that is the

0:13:57.440,0:14:02.000

the kind of goal of this to to help

0:14:00.399,0:14:02.560

share these experiences with other

0:14:02.000,0:14:05.440

people

0:14:02.560,0:14:06.480

and to learn just share the learning i

0:14:05.440,0:14:09.279

guess and

0:14:06.480,0:14:09.920

learning that you're not alone out there

0:14:09.279,0:14:14.079

yeah

0:14:09.920,0:14:17.120

today yes you spoke about

0:14:14.079,0:14:19.279

being being with meter for his

0:14:17.120,0:14:21.040

until you were ready for as long as you

0:14:19.279,0:14:24.800

as you needed

0:14:21.040,0:14:26.000

yeah how do you come to that decision

0:14:24.800,0:14:28.560

how do you know

0:14:26.000,0:14:30.079

okay i'm ready how long how long did it

0:14:28.560,0:14:31.600

take did you

0:14:30.079,0:14:34.959

you and your husband reached that point

0:14:31.600,0:14:34.959

at the same time different times

0:14:35.279,0:14:41.600

um the truth is

0:14:38.399,0:14:46.079

neither of us was ready to leave

0:14:41.600,0:14:49.920

we did it anyway it's like when you

0:14:46.079,0:14:53.839

rip the bandage off it's like that

0:14:49.920,0:14:57.120

for us i could have stayed there for

0:14:53.839,0:14:58.399

a whole week longer and you're allowed

0:14:57.120,0:15:01.440

to do that and

0:14:58.399,0:15:03.360

here in sweden you are also allowed to

0:15:01.440,0:15:07.360

take the child home with you

0:15:03.360,0:15:10.959

if you want to okay um

0:15:07.360,0:15:11.600

that felt too weird for us to take her

0:15:10.959,0:15:14.639

home

0:15:11.600,0:15:18.320

when she wasn't alive so we

0:15:14.639,0:15:22.160

pretty early decided to not do that

0:15:18.320,0:15:26.959

um but we we slept the night

0:15:22.160,0:15:30.399

with her between us

0:15:26.959,0:15:33.279

and um the day after

0:15:30.399,0:15:33.839

we called our parents to let them know

0:15:33.279,0:15:37.600

that

0:15:33.839,0:15:39.360

she was gone and let them know that

0:15:37.600,0:15:41.519

if they wanted to come back to the

0:15:39.360,0:15:45.360

hospital to see her

0:15:41.519,0:15:47.199

and one last time they could do that

0:15:45.360,0:15:49.120

and my father was the only one who

0:15:47.199,0:15:52.720

didn't come back

0:15:49.120,0:15:56.000

and my mother and his parents came

0:15:52.720,0:15:59.759

yorking's parents um and

0:15:56.000,0:16:03.680

when they left um we had some lunch

0:15:59.759,0:16:06.839

and then i said to joaquin

0:16:03.680,0:16:10.560

maybe it's time to go and

0:16:06.839,0:16:14.079

and we didn't leave the hospital

0:16:10.560,0:16:17.839

because i had pre-campsia

0:16:14.079,0:16:20.639

so i needed to stay in the hospital

0:16:17.839,0:16:21.360

so they can monitor me and make sure

0:16:20.639,0:16:24.880

that

0:16:21.360,0:16:28.320

i got well before i was released and

0:16:24.880,0:16:33.600

could go home so when we

0:16:28.320,0:16:36.880

left meera in neonatal we went back to

0:16:33.600,0:16:40.800

the room where we got the news of

0:16:36.880,0:16:44.000

her not being able to survive and

0:16:40.800,0:16:44.000

at first i was

0:16:45.360,0:16:50.560

horrified that we were going back to

0:16:48.720,0:16:51.680

that room because i didn't want to go

0:16:50.560,0:16:54.800

back there

0:16:51.680,0:16:57.759

but as we talked about

0:16:54.800,0:16:58.959

therapy it was good to go back to that

0:16:57.759,0:17:02.399

room

0:16:58.959,0:17:04.720

because then the room wasn't

0:17:02.399,0:17:06.720

going to be this horrible room where we

0:17:04.720,0:17:09.760

got the horrible news

0:17:06.720,0:17:13.520

it was going to be a more neutral room

0:17:09.760,0:17:18.160

okay it's just a room it's not there

0:17:13.520,0:17:22.799

yeah so we spent another night there

0:17:18.160,0:17:26.480

and now it's sunday

0:17:22.799,0:17:29.600

and the doctor that was

0:17:26.480,0:17:33.600

with us when i delivered mira she came

0:17:29.600,0:17:37.039

into me and she just opened her arms

0:17:33.600,0:17:37.679

gave me this big hug and she told me

0:17:37.039,0:17:41.679

that

0:17:37.679,0:17:46.000

i am now going to be unprofessional

0:17:41.679,0:17:49.120

and what she told me there

0:17:46.000,0:17:52.160

it was she threw me a life

0:17:49.120,0:17:55.120

boy because i was drowning

0:17:52.160,0:17:57.679

but what she that she said to me it

0:17:55.120,0:18:01.200

helped me to survive

0:17:57.679,0:18:04.080

and she told me that 30 years ago

0:18:01.200,0:18:06.480

something like that she lost her first

0:18:04.080,0:18:06.480

baby

0:18:08.240,0:18:13.200

a baby boy and she wanted me to know

0:18:11.600,0:18:15.039

that

0:18:13.200,0:18:16.880

and she also wanted me to know that she

0:18:15.039,0:18:21.440

had children after

0:18:16.880,0:18:24.960

that baby boy and she wanted me to

0:18:21.440,0:18:29.039

keep that with me so i will

0:18:24.960,0:18:31.360

be able to move forward and to

0:18:29.039,0:18:32.320

think and have this thinking with me

0:18:31.360,0:18:36.480

that i

0:18:32.320,0:18:39.760

can have other children i can

0:18:36.480,0:18:42.960

go forward and try

0:18:39.760,0:18:46.240

more to have another child yeah and

0:18:42.960,0:18:49.200

that helped a lot

0:18:46.240,0:18:49.200

yeah sometimes these

0:18:49.280,0:18:52.480

almost unscripted moments yeah random

0:18:51.760,0:18:54.960

acts of

0:18:52.480,0:18:56.640

yeah unscripted moments like that where

0:18:54.960,0:18:59.440

i'm sure it would have been

0:18:56.640,0:19:01.360

a lot easier maybe not the right word

0:18:59.440,0:19:02.720

but as you say maybe more professional

0:19:01.360,0:19:05.760

to say nothing but

0:19:02.720,0:19:09.120

in times like that you often find that

0:19:05.760,0:19:11.360

the need to be professional almost

0:19:09.120,0:19:12.400

is superseded by the need to be a human

0:19:11.360,0:19:15.120

and to

0:19:12.400,0:19:16.799

to help someone else and as you say it's

0:19:15.120,0:19:18.320

helped you enormously to have had that

0:19:16.799,0:19:20.640

so thank goodness that

0:19:18.320,0:19:22.000

that she did so she made that choice to

0:19:20.640,0:19:25.520

humanize that moment

0:19:22.000,0:19:29.120

absolutely yeah yeah

0:19:25.520,0:19:32.799

because um another thing is that uh

0:19:29.120,0:19:36.240

here in sweden we have this organization

0:19:32.799,0:19:39.520

and infant organization

0:19:36.240,0:19:42.640

it's a pretty good translation and

0:19:39.520,0:19:46.640

so when meera died we had this bag

0:19:42.640,0:19:49.760

with information about them

0:19:46.640,0:19:50.480

and numbers and email addresses we could

0:19:49.760,0:19:53.520

reach out

0:19:50.480,0:19:56.880

to talk with other parents that

0:19:53.520,0:20:00.480

have lost children

0:19:56.880,0:20:01.520

so with that information about the

0:20:00.480,0:20:05.039

organization

0:20:01.520,0:20:08.480

and also the doctor's story

0:20:05.039,0:20:10.159

it helped us a lot to move forward from

0:20:08.480,0:20:13.280

that point

0:20:10.159,0:20:16.799

so when we went home

0:20:13.280,0:20:20.159

yeah we felt that the whole

0:20:16.799,0:20:20.720

whole world was standing still so going

0:20:20.159,0:20:23.520

out

0:20:20.720,0:20:24.880

from the hospital it felt so weird

0:20:23.520,0:20:27.280

because

0:20:24.880,0:20:28.080

people were moving around they were

0:20:27.280,0:20:31.760

talking

0:20:28.080,0:20:31.760

like nothing had happened yeah

0:20:32.080,0:20:35.120

like did these people not know what

0:20:33.760,0:20:36.880

you'd been through did they not

0:20:35.120,0:20:38.400

understand

0:20:36.880,0:20:39.919

how dare they get on with their lives

0:20:38.400,0:20:42.159

like okay like

0:20:39.919,0:20:43.840

yeah you just get that because you've

0:20:42.159,0:20:44.600

been through ever that moment and it's

0:20:43.840,0:20:47.200

been so

0:20:44.600,0:20:49.200

life-hiring for you that everybody

0:20:47.200,0:20:49.760

should understand how you feel in that

0:20:49.200,0:20:53.679

moment

0:20:49.760,0:20:56.799

yeah yeah so i was so angry

0:20:53.679,0:20:59.360

at the people i could see because

0:20:56.799,0:21:00.080

i wanted to scream why why are you

0:20:59.360,0:21:02.960

continue

0:21:00.080,0:21:05.360

with your life why don't you stop and

0:21:02.960,0:21:08.159

think for a moment how

0:21:05.360,0:21:08.960

everything can just shatter in a moment

0:21:08.159,0:21:13.120

yeah

0:21:08.960,0:21:13.120

yeah so but we kept

0:21:13.840,0:21:18.080

everything inside and i went to the

0:21:17.360,0:21:21.360

pharmacy

0:21:18.080,0:21:25.679

to get some painkillers

0:21:21.360,0:21:29.120

and other things i needed and

0:21:25.679,0:21:30.000

i was asked for what do you need the

0:21:29.120,0:21:33.919

painkillers and

0:21:30.000,0:21:36.880

i was yeah i have just given birth

0:21:33.919,0:21:39.039

and she asked well are you going to

0:21:36.880,0:21:42.159

breastfeed

0:21:39.039,0:21:43.679

no i am not going to breastfeed

0:21:42.159,0:21:45.120

you'd think there would be some kind of

0:21:43.679,0:21:46.480

letter that you could give to a

0:21:45.120,0:21:48.480

pharmacist in that moment

0:21:46.480,0:21:49.840

to say i don't really want to talk about

0:21:48.480,0:21:52.159

this yes

0:21:49.840,0:21:52.880

here's what's happened just give me the

0:21:52.159,0:21:56.159

things i need

0:21:52.880,0:21:57.679

please yeah like yeah it seems

0:21:56.159,0:21:59.520

i know it's not insensitive they need to

0:21:57.679,0:22:01.200

ask these questions but

0:21:59.520,0:22:02.799

you would like to feel some kind of

0:22:01.200,0:22:04.400

protocol

0:22:02.799,0:22:06.400

where you hand over a certain color

0:22:04.400,0:22:08.159

piece of paper or you have to you like

0:22:06.400,0:22:10.080

even a sticker on your nose you know

0:22:08.159,0:22:12.240

something that says

0:22:10.080,0:22:13.600

discreet enough to avoid something

0:22:12.240,0:22:15.200

different enough that nobody would know

0:22:13.600,0:22:18.320

what it was but they would know

0:22:15.200,0:22:19.600

right okay right let's let's let's be a

0:22:18.320,0:22:22.640

bit more

0:22:19.600,0:22:26.640

kit gloves here yeah sensitive

0:22:22.640,0:22:29.360

yeah yeah so yeah it was kind of

0:22:26.640,0:22:29.679

a miracle that i didn't break down there

0:22:29.360,0:22:32.400

and

0:22:29.679,0:22:33.600

start crying but i was like yeah um i'm

0:22:32.400,0:22:37.120

not going to breastfeed

0:22:33.600,0:22:40.320

just give me the stuff so i can go home

0:22:37.120,0:22:43.440

um we did one thing that was

0:22:40.320,0:22:46.240

very difficult to do before we went home

0:22:43.440,0:22:46.720

we went to a shopping center and we

0:22:46.240,0:22:50.320

bought

0:22:46.720,0:22:53.360

some frames uh for the pictures

0:22:50.320,0:22:57.039

the pictures yeah so we could put them

0:22:53.360,0:23:00.320

in there as soon as we printed the

0:22:57.039,0:23:02.880

the pictures we had ourselves and

0:23:00.320,0:23:03.679

when the photographs were coming we

0:23:02.880,0:23:06.720

could

0:23:03.679,0:23:10.000

put them also in frames so we did that

0:23:06.720,0:23:11.919

and then we went home and we all still

0:23:10.000,0:23:14.240

were kim's parents to meet the stars so

0:23:11.919,0:23:16.159

we didn't have to go home to this empty

0:23:14.240,0:23:18.880

silent home

0:23:16.159,0:23:19.520

and we are so thankful for them meeting

0:23:18.880,0:23:23.440

us star

0:23:19.520,0:23:26.640

being there when we went home

0:23:23.440,0:23:30.960

and yeah we

0:23:26.640,0:23:34.799

held a funeral uh a month later

0:23:30.960,0:23:35.440

and when we when i gave birth to mira it

0:23:34.799,0:23:37.760

wasn't

0:23:35.440,0:23:39.440

that much snow it was a little snow but

0:23:37.760,0:23:43.440

not much

0:23:39.440,0:23:46.960

and then there came a snowstorm

0:23:43.440,0:23:48.840

so it was a lot of snow the day we had

0:23:46.960,0:23:51.840

the funeral

0:23:48.840,0:23:55.039

and this day joaquin

0:23:51.840,0:23:58.960

and i shared our first yoke

0:23:55.039,0:24:02.080

uh after her or that

0:23:58.960,0:24:05.440

sort of healing for us to be able to

0:24:02.080,0:24:08.880

laugh again and it was a

0:24:05.440,0:24:12.960

very beautiful day and the

0:24:08.880,0:24:16.400

sun shined for a moment and

0:24:12.960,0:24:20.480

the snow was glittering it was a totally

0:24:16.400,0:24:23.279

white winter wonderland so beautiful

0:24:20.480,0:24:24.159

and then you walk inside i think mira

0:24:23.279,0:24:26.720

loves snow

0:24:24.159,0:24:28.960

because she has sent the snow here from

0:24:26.720,0:24:32.000

herron

0:24:28.960,0:24:35.679

and i answered well either that she

0:24:32.000,0:24:40.320

knows no or she hates snows

0:24:35.679,0:24:40.320

how the snow in heaven she sent it to us

0:24:42.159,0:24:48.720

so yeah it was a good moment

0:24:45.360,0:24:53.039

to make the first yoke

0:24:48.720,0:24:56.960

so we could start heal properly

0:24:53.039,0:24:56.960

yeah it sounds like

0:24:57.039,0:25:00.320

like we said before that's such a an

0:24:59.520,0:25:03.279

emotional

0:25:00.320,0:25:04.640

roller coaster for for of course you and

0:25:03.279,0:25:06.720

your family and for for

0:25:04.640,0:25:07.840

us carrying out this interview and for

0:25:06.720,0:25:10.720

you listening and

0:25:07.840,0:25:12.840

you speak about starting to heal um how

0:25:10.720,0:25:15.200

much time has passed

0:25:12.840,0:25:17.440

since the experience you just told us

0:25:15.200,0:25:17.440

about

0:25:18.320,0:25:26.400

in march it will be

0:25:22.000,0:25:29.679

three years since the funeral okay

0:25:26.400,0:25:31.520

do you feel i

0:25:29.679,0:25:34.000

imagine it's very difficult to quantify

0:25:31.520,0:25:36.799

something like this but

0:25:34.000,0:25:38.240

when you think back to how you felt then

0:25:36.799,0:25:40.559

perhaps on the day of the funeral the

0:25:38.240,0:25:42.559

day you just described compared to

0:25:40.559,0:25:44.159

how you feel now what's the what's the

0:25:42.559,0:25:45.279

journey been like what's the healing

0:25:44.159,0:25:48.720

process if that's that's

0:25:45.279,0:25:54.480

the correct term been like for you both

0:25:48.720,0:25:54.480

it's been uh horrible from time to time

0:25:54.799,0:26:01.039

as i told you um the last time i am a

0:25:57.919,0:26:04.400

preschool teacher so

0:26:01.039,0:26:05.360

i work with kids that are as young as

0:26:04.400,0:26:08.720

one year old

0:26:05.360,0:26:12.159

and the oldest are five-year-olds

0:26:08.720,0:26:12.159

and i develop

0:26:12.640,0:26:18.799

how do you say developed yeah thank you

0:26:16.320,0:26:24.080

no problem don't ask me to say again

0:26:18.799,0:26:27.279

better my swedish

0:26:24.080,0:26:28.400

well uh i want to go into that now let's

0:26:27.279,0:26:32.320

let's not go there

0:26:28.400,0:26:32.320

let's stick to english you developed

0:26:33.039,0:26:41.440

and i got ptsd

0:26:37.039,0:26:44.559

post-traumatic stress disorder

0:26:41.440,0:26:46.960

and because of that i was working with

0:26:44.559,0:26:46.960

kids

0:26:47.520,0:26:51.120

again i can only imagine how difficult

0:26:49.520,0:26:53.520

that must be

0:26:51.120,0:26:55.440

to see children on a day-to-day break

0:26:53.520,0:26:59.760

basis especially in the age group

0:26:55.440,0:27:02.400

that your daughter would be in um

0:26:59.760,0:27:04.240

i mean i did your employers kind of

0:27:02.400,0:27:05.679

understand

0:27:04.240,0:27:08.240

what you were going through did you had

0:27:05.679,0:27:10.080

you shared that with them or

0:27:08.240,0:27:11.440

because to me obviously having had this

0:27:10.080,0:27:13.520

conversation with you it seems

0:27:11.440,0:27:15.520

obvious that that would be a difficult

0:27:13.520,0:27:17.840

thing but would they

0:27:15.520,0:27:18.640

did they show you some kind of empathy

0:27:17.840,0:27:22.640

or

0:27:18.640,0:27:25.919

or the understanding about the situation

0:27:22.640,0:27:29.120

well this is a story

0:27:25.919,0:27:32.320

a part of my story that

0:27:29.120,0:27:35.600

gets me really upset and angry because

0:27:32.320,0:27:38.159

at first i was given a lot of um

0:27:35.600,0:27:38.159

empathy

0:27:39.360,0:27:46.799

well they were understanding thank you

0:27:42.960,0:27:49.919

and they did understand that i was

0:27:46.799,0:27:53.039

grieving and i was sad and

0:27:49.919,0:27:55.360

i asked the first thing i asked was

0:27:53.039,0:27:56.480

please don't make me go back to the

0:27:55.360,0:27:59.679

preschool

0:27:56.480,0:28:02.159

i could do anything else but please

0:27:59.679,0:28:02.880

i don't want to go back there i can't do

0:28:02.159,0:28:06.480

that

0:28:02.880,0:28:10.000

any any other job i'll make tea just

0:28:06.480,0:28:11.919

please don't send me back there yeah i i

0:28:10.000,0:28:13.039

i mean i i didn't go through it but i

0:28:11.919,0:28:15.520

feel like i've been through it with you

0:28:13.039,0:28:19.279

and i understand

0:28:15.520,0:28:23.120

you think they would understand yeah um

0:28:19.279,0:28:26.640

but the doctors and my boss

0:28:23.120,0:28:29.919

my parents like everyone

0:28:26.640,0:28:30.960

uh told me you need to go back there

0:28:29.919,0:28:34.159

because

0:28:30.960,0:28:37.440

you know the kids you know the parents

0:28:34.159,0:28:39.120

and you have the safety with your

0:28:37.440,0:28:42.559

co-workers

0:28:39.120,0:28:45.039

and i was yeah i don't care about that

0:28:42.559,0:28:45.760

i don't care about knowing everything

0:28:45.039,0:28:49.120

there

0:28:45.760,0:28:53.919

i don't want to go back there but

0:28:49.120,0:28:58.000

i was kind of forced to go back there

0:28:53.919,0:29:01.919

and at first i was

0:28:58.000,0:29:06.000

just working 20 hours a week

0:29:01.919,0:29:09.919

and and i was supposed to do that

0:29:06.000,0:29:13.279

to summer so i started to work in may

0:29:09.919,0:29:16.640

2nd of may and

0:29:13.279,0:29:19.679

i didn't go every day some days

0:29:16.640,0:29:21.760

i couldn't get up from bed i

0:29:19.679,0:29:22.960

got up from bed i went to the bathroom

0:29:21.760,0:29:25.520

and then i just

0:29:22.960,0:29:26.720

go back to bed and later i couldn't do

0:29:25.520,0:29:30.000

anything

0:29:26.720,0:29:33.120

some days i started to drive to work

0:29:30.000,0:29:35.600

because that's also the one thing i

0:29:33.120,0:29:37.520

have to drive to my work there is no

0:29:35.600,0:29:40.799

other way for me to get there

0:29:37.520,0:29:44.159

so driving was also difficult

0:29:40.799,0:29:44.640

so some days i started driving and then

0:29:44.159,0:29:47.039

i was

0:29:44.640,0:29:48.559

no i'm turned back i'm not going to work

0:29:47.039,0:29:51.279

today

0:29:48.559,0:29:52.240

and i had days that i could go to work

0:29:51.279,0:29:55.840

and be there

0:29:52.240,0:29:58.960

and being with the children and

0:29:55.840,0:30:03.760

going home after four hours

0:29:58.960,0:30:03.760

five hours and feel okay

0:30:03.840,0:30:12.000

and then i start to feel this

0:30:07.760,0:30:16.640

weird emotion that something is wrong

0:30:12.000,0:30:20.000

i don't i can't be close to the kids

0:30:16.640,0:30:22.880

the thing with young children is that

0:30:20.000,0:30:24.000

when they feel safe with you they want

0:30:22.880,0:30:26.559

to be

0:30:24.000,0:30:28.000

close to you when they like you so the

0:30:26.559,0:30:30.880

kids they wanted to sit

0:30:28.000,0:30:31.919

next to me they wanted to sit in my lap

0:30:30.880,0:30:35.039

they wanted to hug

0:30:31.919,0:30:36.000

me and stuff like that normally

0:30:35.039,0:30:38.080

something that would be

0:30:36.000,0:30:39.120

endearing and something that would make

0:30:38.080,0:30:41.600

you

0:30:39.120,0:30:42.559

would also almost make your heart warm

0:30:41.600,0:30:46.480

um

0:30:42.559,0:30:48.960

it's not causing you pain yeah yeah

0:30:46.480,0:30:50.240

so i started to realize that i was when

0:30:48.960,0:30:54.000

the kids were

0:30:50.240,0:30:57.039

sitting next to me i was scooping away i

0:30:54.000,0:31:00.080

didn't want them to touch me

0:30:57.039,0:31:03.440

and yeah it

0:31:00.080,0:31:07.200

became emotions that

0:31:03.440,0:31:10.399

became voices in my head is in such

0:31:07.200,0:31:13.919

a way and it

0:31:10.399,0:31:16.960

turned to this day that we were

0:31:13.919,0:31:20.960

it was summer now and

0:31:16.960,0:31:24.799

we were outside a really warm day

0:31:20.960,0:31:28.480

and i heard a a

0:31:24.799,0:31:31.760

a young boy he was one one years old

0:31:28.480,0:31:32.880

so he has started preschool and his

0:31:31.760,0:31:35.679

teacher had

0:31:32.880,0:31:36.480

laid him in a stroller to sleep and he

0:31:35.679,0:31:39.840

woke up and

0:31:36.480,0:31:42.880

he was crying at first i tried to

0:31:39.840,0:31:45.039

get contact with the other teachers

0:31:42.880,0:31:46.240

around me and to let them know that he

0:31:45.039,0:31:49.679

was crying

0:31:46.240,0:31:51.519

and no one was hearing so i went back to

0:31:49.679,0:31:53.840

the stroller and tried to

0:31:51.519,0:31:54.880

suit him again sleeping without picking

0:31:53.840,0:31:59.760

me up

0:31:54.880,0:32:02.960

and it didn't work so i picked him up

0:31:59.760,0:32:06.159

and i went to uh this big stone

0:32:02.960,0:32:09.519

that i could sit down on and

0:32:06.159,0:32:13.200

had him in his my lap and this child

0:32:09.519,0:32:16.799

he didn't know me because i was in an

0:32:13.200,0:32:16.799

other department

0:32:18.159,0:32:22.240

but it was like he felt safe with me

0:32:21.440,0:32:26.880

because he was

0:32:22.240,0:32:31.200

relaxing in my lap and that was when i

0:32:26.880,0:32:34.240

knew that i can't do this anymore

0:32:31.200,0:32:36.480

because in this moment i got scared of

0:32:34.240,0:32:40.559

myself

0:32:36.480,0:32:43.039

my emotions got into voices

0:32:40.559,0:32:43.600

and those voices told me to pick this

0:32:43.039,0:32:47.760

child

0:32:43.600,0:32:51.120

up and throw him into a tree

0:32:47.760,0:32:55.279

standing two meters from me okay okay

0:32:51.120,0:32:57.760

and this was so scary i have never been

0:32:55.279,0:33:00.960

that scared in my life about myself

0:32:57.760,0:33:00.960

about my actions

0:33:02.000,0:33:05.840

i was able to put him back into the

0:33:04.960,0:33:08.000

stroller

0:33:05.840,0:33:09.360

i went to the other teacher and said you

0:33:08.000,0:33:13.519

need to take care of him

0:33:09.360,0:33:17.360

i need to go in i can't be here anymore

0:33:13.519,0:33:19.919

so i went inside and i was

0:33:17.360,0:33:20.880

lucky in that way i didn't break down

0:33:19.919,0:33:23.679

until i got

0:33:20.880,0:33:24.080

into this room where we have our break

0:33:23.679,0:33:27.840

and break

0:33:24.080,0:33:30.880

times and there i just broke down

0:33:27.840,0:33:34.080

and i was he knew that i can't i can't

0:33:30.880,0:33:35.760

do this anymore i can't come back here

0:33:34.080,0:33:37.279

so i called my boss and told her

0:33:35.760,0:33:40.799

everything and said that

0:33:37.279,0:33:43.760

this can't go on anymore and she said no

0:33:40.799,0:33:46.159

no of course not and we had a meeting

0:33:43.760,0:33:50.320

and she said you need professional help

0:33:46.159,0:33:53.279

yeah i do that yeah i

0:33:50.320,0:33:53.679

called my insurance company and asked

0:33:53.279,0:33:59.120

them

0:33:53.679,0:34:01.679

to get in touch with a psychologist

0:33:59.120,0:34:03.679

up until that point we had gone to a

0:34:01.679,0:34:06.799

therapist at a hospital

0:34:03.679,0:34:10.000

but i needed more help because

0:34:06.799,0:34:13.280

of the ptsd and my

0:34:10.000,0:34:16.480

reactions with the kids

0:34:13.280,0:34:20.800

so i was home again

0:34:16.480,0:34:24.159

full time i went to the psychologist

0:34:20.800,0:34:27.280

who told me that yeah you have ptsd

0:34:24.159,0:34:30.639

and she gave me help

0:34:27.280,0:34:34.240

to handle that

0:34:30.639,0:34:37.119

and also to handle

0:34:34.240,0:34:38.079

all those emotions that had turned into

0:34:37.119,0:34:41.280

negative

0:34:38.079,0:34:43.919

emotions from the birth

0:34:41.280,0:34:44.720

so she helped me turn them into positive

0:34:43.919,0:34:49.280

emotions

0:34:44.720,0:34:52.720

and that was really great because

0:34:49.280,0:34:55.599

now i can remember

0:34:52.720,0:34:56.240

the time with mira with love and happy

0:34:55.599,0:34:59.520

thoughts

0:34:56.240,0:35:02.560

instead of all this anger and

0:34:59.520,0:35:05.359

sadness so she was really helpful

0:35:02.560,0:35:08.240

uh and she i she's told me that i was

0:35:05.359,0:35:11.040

the first person she helped with

0:35:08.240,0:35:12.800

the loss of a child but she helped a lot

0:35:11.040,0:35:15.359

of people with ptsd

0:35:12.800,0:35:17.359

so she was really good that's really

0:35:15.359,0:35:19.520

good and i imagine

0:35:17.359,0:35:21.359

should you may not be the last person

0:35:19.520,0:35:23.280

that she has to help with such a

0:35:21.359,0:35:24.720

situation so it will have been useful

0:35:23.280,0:35:26.160

for her as well to

0:35:24.720,0:35:27.680

i've had the experience of helping you

0:35:26.160,0:35:28.960

which will hopefully turn going to help

0:35:27.680,0:35:30.480

others so

0:35:28.960,0:35:32.000

yeah i'm really glad you'll be able to

0:35:30.480,0:35:33.520

get that help it does sound the

0:35:32.000,0:35:34.640

experience you spoke about picking up

0:35:33.520,0:35:37.760

the child

0:35:34.640,0:35:40.800

and having that thought must have been

0:35:37.760,0:35:41.599

terrifying you said yourself i'm just

0:35:40.800,0:35:43.359

glad that

0:35:41.599,0:35:45.359

obviously you didn't carry through i

0:35:43.359,0:35:48.160

mean that as easily as possible

0:35:45.359,0:35:50.079

in that moment that moment of insanity

0:35:48.160,0:35:51.200

you could have

0:35:50.079,0:35:54.160

you could have followed through with

0:35:51.200,0:35:56.880

that thought process and um

0:35:54.160,0:35:57.760

i mean thank goodness he didn't but i

0:35:56.880,0:36:00.640

can imagine

0:35:57.760,0:36:02.240

for your own uh your own experience and

0:36:00.640,0:36:03.920

that's exactly why you had to walk away

0:36:02.240,0:36:04.880

because you had frightened yourself in

0:36:03.920,0:36:07.839

that moment

0:36:04.880,0:36:08.480

yeah and again your storytelling is so

0:36:07.839,0:36:11.440

good

0:36:08.480,0:36:11.760

that thank you it feels like we're with

0:36:11.440,0:36:15.680

you

0:36:11.760,0:36:17.599

in every step of this and um

0:36:15.680,0:36:19.760

that's a testament to you as well but

0:36:17.599,0:36:19.760

the

0:36:20.640,0:36:24.000

the psychologist has clearly helped you

0:36:22.400,0:36:27.040

with that and

0:36:24.000,0:36:28.320

and it's just such it's such a positive

0:36:27.040,0:36:28.720

thing we talked about this just before

0:36:28.320,0:36:31.599

we

0:36:28.720,0:36:32.640

um in this in this episode that um

0:36:31.599,0:36:34.240

you've been able to switch that

0:36:32.640,0:36:37.280

negativity into positivity

0:36:34.240,0:36:38.480

is just a it's like it's a gift and i

0:36:37.280,0:36:40.240

think

0:36:38.480,0:36:41.760

it's it's incredible really what

0:36:40.240,0:36:44.000

psychology can do

0:36:41.760,0:36:46.000

yeah is that something you've you have

0:36:44.000,0:36:49.280

to consciously do

0:36:46.000,0:36:50.800

do you have to consciously think of a

0:36:49.280,0:36:51.760

positive or is that something that's

0:36:50.800,0:36:54.160

come about

0:36:51.760,0:36:56.720

as a result of the work you've done and

0:36:54.160,0:36:59.599

now it happens naturally

0:36:56.720,0:37:00.160

today it happens naturally thanks for

0:36:59.599,0:37:03.520

the help

0:37:00.160,0:37:06.079

i got from the psychologist and

0:37:03.520,0:37:08.480

during all the therapy sessions i had

0:37:06.079,0:37:12.880

been through uh

0:37:08.480,0:37:15.359

talks talk about this it really helps

0:37:12.880,0:37:16.880

it helps me to come to the place where i

0:37:15.359,0:37:21.200

am today

0:37:16.880,0:37:23.599

okay what is your work situation

0:37:21.200,0:37:24.480

like now you spoke about feeling the

0:37:23.599,0:37:29.040

need to

0:37:24.480,0:37:32.320

to leave your job yeah um

0:37:29.040,0:37:35.599

when i left my work i didn't

0:37:32.320,0:37:38.880

leave in that way that i wouldn't

0:37:35.599,0:37:43.440

never come back i got this

0:37:38.880,0:37:47.119

unpaid vacation to try another work

0:37:43.440,0:37:50.240

so i did that for a couple of months

0:37:47.119,0:37:53.280

um so i was sitting in a office uh

0:37:50.240,0:37:55.839

talking on the phone emailing helping

0:37:53.280,0:37:56.560

customers with their problems uh online

0:37:55.839,0:38:00.320

shopping

0:37:56.560,0:38:03.440

wow or a wife completely different

0:38:00.320,0:38:07.040

yeah clearly what you needed at the time

0:38:03.440,0:38:08.000

yeah it was good for me to do that a

0:38:07.040,0:38:10.560

couple of months

0:38:08.000,0:38:12.240

because i was getting help from the

0:38:10.560,0:38:15.680

psychologist

0:38:12.240,0:38:16.240

during that time and when i had a free

0:38:15.680,0:38:19.440

time

0:38:16.240,0:38:22.560

i went back to the preschool to visit

0:38:19.440,0:38:25.839

to see how it felt when

0:38:22.560,0:38:28.320

i got all the help and i started

0:38:25.839,0:38:29.200

to miss the children i started to miss

0:38:28.320,0:38:33.040

being there

0:38:29.200,0:38:36.400

in the preschool seeing their smiles and

0:38:33.040,0:38:39.200

hearing them calling my name when i come

0:38:36.400,0:38:43.920

to work and stuff like that

0:38:39.200,0:38:47.119

so finally in december 2018

0:38:43.920,0:38:50.960

almost a year after lucy mira i

0:38:47.119,0:38:55.760

went back and it didn't

0:38:50.960,0:38:58.320

go as well as i hoped so

0:38:55.760,0:38:59.440

a couple of months later i said no

0:38:58.320,0:39:03.440

[Music]

0:38:59.440,0:39:05.839

yeah this preschool is no good for me

0:39:03.440,0:39:07.680

if i'm going to continue my work as a

0:39:05.839,0:39:11.680

preschool teacher i need to change

0:39:07.680,0:39:11.680

preschool and

0:39:11.760,0:39:15.760

what was it that was causing that

0:39:13.440,0:39:16.400

feeling is it just the familiarity of

0:39:15.760,0:39:18.400

the staff

0:39:16.400,0:39:20.240

or the place or what was it that was

0:39:18.400,0:39:23.440

making you want to move on

0:39:20.240,0:39:26.480

it was the parents of the children

0:39:23.440,0:39:29.920

and the preschool itself

0:39:26.480,0:39:32.720

the environment there

0:39:29.920,0:39:33.280

it was those parts meeting the parents

0:39:32.720,0:39:38.000

that

0:39:33.280,0:39:41.280

knew all about mira it was really hard

0:39:38.000,0:39:46.320

we told them to not talk with me about

0:39:41.280,0:39:49.040

my loss but there's some ebook

0:39:46.320,0:39:49.599

this is true i imagine some of the some

0:39:49.040,0:39:52.400

of the cheap

0:39:49.599,0:39:53.520

things they're helping they think oh

0:39:52.400,0:39:56.560

yeah

0:39:53.520,0:39:58.240

yeah absolutely they can do but

0:39:56.560,0:40:00.880

i imagine some of the children as well

0:39:58.240,0:40:03.599

may have well i've seen you

0:40:00.880,0:40:05.680

become more and more pregnant and then

0:40:03.599,0:40:11.040

suddenly you're not pregnant and maybe

0:40:05.680,0:40:14.160

they didn't have the the ability to

0:40:11.040,0:40:18.000

to question that i'm not sure

0:40:14.160,0:40:21.520

the wonderful thing with children is

0:40:18.000,0:40:24.800

they take everything so

0:40:21.520,0:40:28.720

clearly in a way it's

0:40:24.800,0:40:31.040

kind of black or white

0:40:28.720,0:40:32.560

when you tell something they believe in

0:40:31.040,0:40:35.760

it

0:40:32.560,0:40:39.200

so the kids were wonderful

0:40:35.760,0:40:43.119

i have this moment when

0:40:39.200,0:40:46.560

we are sitting and eating lunch

0:40:43.119,0:40:49.920

and there is a parent death

0:40:46.560,0:40:53.760

in the preschool that also tries

0:40:49.920,0:40:55.040

for kids and she just learns that she's

0:40:53.760,0:40:57.280

going to have twins

0:40:55.040,0:40:58.880

and then she lose them really early in

0:40:57.280,0:41:02.160

the pregnancy

0:40:58.880,0:41:05.760

and her daughter and she said

0:41:02.160,0:41:10.960

in this lunch time my mother

0:41:05.760,0:41:13.200

lost her baby and this girl she didn't

0:41:10.960,0:41:15.280

know about me and losing my kids she was

0:41:13.200,0:41:18.400

too young for that at the time

0:41:15.280,0:41:21.599

but i had this other boy and he

0:41:18.400,0:41:22.480

turned five that year so he knew about

0:41:21.599,0:41:26.319

me

0:41:22.480,0:41:30.000

so he listened to this girl and then he

0:41:26.319,0:41:33.440

looked at me and he said do you think

0:41:30.000,0:41:36.240

the famous author of the lindgren

0:41:33.440,0:41:36.560

that wrote people long striking if you

0:41:36.240,0:41:40.640

know

0:41:36.560,0:41:45.040

those books those are really famous uh

0:41:40.640,0:41:48.560

in sweden uh so and where i work

0:41:45.040,0:41:49.280

she is her birthplace so we read her

0:41:48.560,0:41:52.400

books

0:41:49.280,0:41:55.599

very much so pipi longstocking

0:41:52.400,0:41:56.720

if you ever agree them i'm aware of pepe

0:41:55.599,0:42:00.560

longstocking

0:41:56.720,0:42:03.839

yeah good well

0:42:00.560,0:42:05.200

the boy he asked me do you think that

0:42:03.839,0:42:09.520

astrid lindgren

0:42:05.200,0:42:12.880

is taking care of your baby in heaven

0:42:09.520,0:42:13.839

and i almost put down crying because

0:42:12.880,0:42:17.119

that was

0:42:13.839,0:42:20.079

such a beautiful thing to say

0:42:17.119,0:42:21.280

and that's the thing with kids they say

0:42:20.079,0:42:23.200

those things

0:42:21.280,0:42:24.720

they have these thoughts and they just

0:42:23.200,0:42:27.200

say them and

0:42:24.720,0:42:28.319

it's beautiful so the kids are not the

0:42:27.200,0:42:32.720

problem for me

0:42:28.319,0:42:36.160

okay not that this time it's the parents

0:42:32.720,0:42:38.720

and the environment the word

0:42:36.160,0:42:40.160

purity springs to mind with something

0:42:38.720,0:42:41.680

like that

0:42:40.160,0:42:44.079

like you said before it's it's almost

0:42:41.680,0:42:47.760

black and white and

0:42:44.079,0:42:51.920

yeah it just it just seems like such a

0:42:47.760,0:42:55.040

pure and innocent and yeah

0:42:51.920,0:42:58.400

you know instinctual i'm not sure

0:42:55.040,0:42:59.359

thing to say thank goodness it was said

0:42:58.400,0:43:03.280

as well because

0:42:59.359,0:43:07.119

i imagine it it did you some good

0:43:03.280,0:43:11.520

it did um

0:43:07.119,0:43:14.800

to have those natural questions that's

0:43:11.520,0:43:17.200

pure and innocent like you say um it's

0:43:14.800,0:43:21.040

so nice to have them

0:43:17.200,0:43:24.240

because all adults

0:43:21.040,0:43:26.960

they are like either oh no we can't

0:43:24.240,0:43:28.560

talk about this it's dangerous no no no

0:43:26.960,0:43:30.240

no

0:43:28.560,0:43:32.079

you're not supposed to talk about

0:43:30.240,0:43:34.800

infertility and you're not

0:43:32.079,0:43:36.640

absolutely not supposed to talk about

0:43:34.800,0:43:40.000

losing child

0:43:36.640,0:43:43.720

children it's nothing you can talk

0:43:40.000,0:43:46.640

about and i want to show that

0:43:43.720,0:43:49.359

absolutely talk about those things you

0:43:46.640,0:43:52.240

need to talk about them

0:43:49.359,0:43:55.359

because it's so common why do you think

0:43:52.240,0:43:58.560

that is that there's such a

0:43:55.359,0:43:58.560

a stigma such a

0:43:59.200,0:44:02.960

a desire not to have those conversations

0:44:02.240,0:44:06.319

that are

0:44:02.960,0:44:06.319

so real and so powerful

0:44:07.200,0:44:11.200

i think it's uh because

0:44:11.280,0:44:17.520

like 50 years ago when

0:44:14.960,0:44:18.160

you didn't uh you weren't able to have

0:44:17.520,0:44:21.280

kids

0:44:18.160,0:44:23.760

you adopt okay because that's the

0:44:21.280,0:44:24.640

was the way to have children if you

0:44:23.760,0:44:28.160

couldn't have them

0:44:24.640,0:44:32.480

on your own and and

0:44:28.160,0:44:35.119

if you look if you did lose a child

0:44:32.480,0:44:36.960

the hospital hospital told you the

0:44:35.119,0:44:40.640

doctors or the midwives or

0:44:36.960,0:44:40.640

whoever you met they told you to

0:44:40.720,0:44:44.880

just go home and start making another

0:44:43.520,0:44:48.240

child

0:44:44.880,0:44:49.760

forget about the child so people didn't

0:44:48.240,0:44:52.800

talk about it

0:44:49.760,0:44:55.839

it wasn't in sweden it wasn't until the

0:44:52.800,0:44:57.520

80s until you really started talking

0:44:55.839,0:45:01.040

about it

0:44:57.520,0:45:03.760

and as i told you the last time

0:45:01.040,0:45:05.280

my parents have the experience of losing

0:45:03.760,0:45:08.560

twins

0:45:05.280,0:45:10.480

and my father has

0:45:08.560,0:45:11.599

almost never talked about it but my

0:45:10.480,0:45:15.040

mother has

0:45:11.599,0:45:15.760

talked about it a couple of times so i

0:45:15.040,0:45:18.800

grew up

0:45:15.760,0:45:19.520

no knowing that i have the older

0:45:18.800,0:45:23.520

siblings

0:45:19.520,0:45:27.680

in heaven and i knew about them

0:45:23.520,0:45:29.680

but not much more than that because

0:45:27.680,0:45:32.000

my mother was supposed to just move

0:45:29.680,0:45:35.200

forward forget about twins and

0:45:32.000,0:45:36.160

have other children sure i think there's

0:45:35.200,0:45:38.640

examples of

0:45:36.160,0:45:40.480

um especially in britain we're seen as

0:45:38.640,0:45:42.720

quite a stuffy nation

0:45:40.480,0:45:43.520

uh we don't talk about sex we don't talk

0:45:42.720,0:45:46.079

about

0:45:43.520,0:45:46.880

death we don't talk about like feelings

0:45:46.079,0:45:49.280

feelings

0:45:46.880,0:45:50.160

or yeah we just kind of um the

0:45:49.280,0:45:52.960

traditional

0:45:50.160,0:45:53.359

view on that is keep it to yourself um

0:45:52.960,0:45:55.119

and

0:45:53.359,0:45:57.680

moan about it on facebook it seems to be

0:45:55.119,0:46:00.720

yeah stiff upper lip i think

0:45:57.680,0:46:04.240

that's difficult um

0:46:00.720,0:46:09.119

i assume it's come from

0:46:04.240,0:46:10.160

a social grace or like a set of social

0:46:09.119,0:46:13.440

rules that

0:46:10.160,0:46:16.640

came at that time that a better date now

0:46:13.440,0:46:17.200

and yep and obviously we've moved on a

0:46:16.640,0:46:21.359

lot even

0:46:17.200,0:46:24.880

even in even the last 10 years

0:46:21.359,0:46:26.720

like a lot has changed in psychology and

0:46:24.880,0:46:28.640

how we feel like we should treat even

0:46:26.720,0:46:30.720

children i can in britain at the moment

0:46:28.640,0:46:32.480

it's it's there's uh

0:46:30.720,0:46:34.480

you shouldn't uh hit your child you know

0:46:32.480,0:46:38.160

there shouldn't be any spanking or

0:46:34.480,0:46:40.720

smacking of the child um for

0:46:38.160,0:46:41.680

uh you know for like like a corporal

0:46:40.720,0:46:43.359

punishment thing

0:46:41.680,0:46:44.480

it's just been made illegal in scotland

0:46:43.359,0:46:45.839

yeah it's been a made illegal in

0:46:44.480,0:46:50.560

scotland

0:46:45.839,0:46:53.040

um so like they're moving forward in

0:46:50.560,0:46:54.839

in ways that probably even 10 years ago

0:46:53.040,0:46:58.000

people would have been like

0:46:54.839,0:47:00.640

what so i think as

0:46:58.000,0:47:02.800

as we move forward as as obviously

0:47:00.640,0:47:05.359

sweden as well as a different nation but

0:47:02.800,0:47:07.119

as as communities move forward and

0:47:05.359,0:47:08.880

people are more open about talking about

0:47:07.119,0:47:10.240

things and hopefully because of things

0:47:08.880,0:47:12.880

like what we're doing here where we're

0:47:10.240,0:47:14.960

having this open dialogue about

0:47:12.880,0:47:16.400

things that most people find difficult

0:47:14.960,0:47:18.160

to talk about or have

0:47:16.400,0:47:19.520

avoided talking about for whatever

0:47:18.160,0:47:22.640

reason whether it be

0:47:19.520,0:47:24.079

a stigma or because of some

0:47:22.640,0:47:25.839

other reason that's stopping them from

0:47:24.079,0:47:27.839

wanting to talk

0:47:25.839,0:47:29.520

um i'm not saying that this is going to

0:47:27.839,0:47:30.319

change our podcast is going to change

0:47:29.520,0:47:32.800

the world

0:47:30.319,0:47:34.400

at night but the fact the fact that

0:47:32.800,0:47:36.000

we're willing to do this

0:47:34.400,0:47:38.319

i think is a step forward in the right

0:47:36.000,0:47:40.720

direction and shows

0:47:38.319,0:47:41.760

that people do want to chat people do

0:47:40.720,0:47:43.440

want to talk

0:47:41.760,0:47:45.440

and we're starting to break down those

0:47:43.440,0:47:46.640

social barriers that caused us not to in

0:47:45.440,0:47:49.920

the first place

0:47:46.640,0:47:51.920

which are probably victorian rules or

0:47:49.920,0:47:53.359

something that's come from like a

0:47:51.920,0:47:55.680

historic

0:47:53.359,0:47:57.040

reason where we where we were scared to

0:47:55.680,0:47:59.760

talk and now

0:47:57.040,0:48:01.040

we're kind of promoted to talk it's it's

0:47:59.760,0:48:02.720

almost like a different revolution like

0:48:01.040,0:48:06.240

it's the talking revolution

0:48:02.720,0:48:08.079

it does feel like it's changed in two

0:48:06.240,0:48:09.680

words that way in fact almost now people

0:48:08.079,0:48:12.640

are too

0:48:09.680,0:48:15.200

open um it's going the wrong way cancel

0:48:12.640,0:48:16.960

the podcast

0:48:15.200,0:48:20.079

but seeing things like um tick tock

0:48:16.960,0:48:22.480

becoming like really prominent in in

0:48:20.079,0:48:23.440

in social media and people talking about

0:48:22.480,0:48:26.720

all of their

0:48:23.440,0:48:28.000

their personal lives on social media and

0:48:26.720,0:48:29.920

like social media has got a lot to

0:48:28.000,0:48:31.440

answer for i think in this setting where

0:48:29.920,0:48:33.040

it's in context

0:48:31.440,0:48:34.720

and people can understand and see the

0:48:33.040,0:48:37.280

whole story um

0:48:34.720,0:48:38.000

i think this is much more healthy than

0:48:37.280,0:48:41.520

like somebody

0:48:38.000,0:48:42.960

putting up a single sentence post on a

0:48:41.520,0:48:44.960

social media thing

0:48:42.960,0:48:46.400

looking for people to ask questions and

0:48:44.960,0:48:48.240

then letting little pieces of

0:48:46.400,0:48:50.079

information out one at a time

0:48:48.240,0:48:52.720

do you understand what i mean like this

0:48:50.079,0:48:53.760

is this feels like it's more natural and

0:48:52.720,0:48:56.880

more organic

0:48:53.760,0:48:58.480

and i hope that that

0:48:56.880,0:48:59.920

we continue in that trend that we're

0:48:58.480,0:49:03.040

open to talk to people

0:48:59.920,0:49:04.559

about things that once

0:49:03.040,0:49:06.079

they didn't want to talk about yeah and

0:49:04.559,0:49:07.920

it sounds like that you're saying that's

0:49:06.079,0:49:11.839

exactly what happened so

0:49:07.920,0:49:12.480

yeah but um your dads might want to talk

0:49:11.839,0:49:14.559

a bit more

0:49:12.480,0:49:15.520

in the future but i think that is a

0:49:14.559,0:49:17.040

generational

0:49:15.520,0:49:19.920

element to it ryan as you said i was

0:49:17.040,0:49:23.599

wondering teres

0:49:19.920,0:49:24.079

is it easier to talk to strangers like

0:49:23.599,0:49:27.280

us

0:49:24.079,0:49:30.319

than it is to people that you know

0:49:27.280,0:49:31.680

yeah it is why

0:49:30.319,0:49:34.000

i think i know the answer but what

0:49:31.680,0:49:37.200

you're going to say

0:49:34.000,0:49:40.559

well um we can take

0:49:37.200,0:49:44.319

my side of the family and since

0:49:40.559,0:49:46.079

my older sister did gave birth to her

0:49:44.319,0:49:49.440

baby

0:49:46.079,0:49:53.280

the week before neil was born

0:49:49.440,0:49:57.520

it's like my family focus

0:49:53.280,0:50:02.079

on that girl and

0:49:57.520,0:50:05.520

yeah they they ask us uh how it's going

0:50:02.079,0:50:08.400

i am am i pregnant again or

0:50:05.520,0:50:08.960

things like that questions that i have

0:50:08.400,0:50:11.200

told them

0:50:08.960,0:50:14.400

please don't ask because we will tell

0:50:11.200,0:50:17.920

you when we have something to tell you

0:50:14.400,0:50:21.520

uh so yeah they they don't ask us

0:50:17.920,0:50:23.440

anymore how we are coping have you been

0:50:21.520,0:50:26.480

to the memorial

0:50:23.440,0:50:30.000

ground or things like that

0:50:26.480,0:50:34.160

and so open up and

0:50:30.000,0:50:37.839

talk with you it's much easier because

0:50:34.160,0:50:41.200

you are not afraid to ask me questions

0:50:37.839,0:50:43.520

and that feels good it feels good to

0:50:41.200,0:50:45.599

get those questions and to answer them

0:50:43.520,0:50:48.800

and telling my story

0:50:45.599,0:50:52.240

and also the most important

0:50:48.800,0:50:55.839

if my story helps someone else

0:50:52.240,0:50:58.079

i have to share my story absolutely

0:50:55.839,0:50:59.520

i have a need to share my story to help

0:50:58.079,0:51:00.800

others

0:50:59.520,0:51:02.400

i think there's almost an element of

0:51:00.800,0:51:03.760

this that goes against ryan i don't know

0:51:02.400,0:51:04.559

if you agree it goes against our

0:51:03.760,0:51:07.839

britishness

0:51:04.559,0:51:09.520

where it almost feels

0:51:07.839,0:51:11.200

unnatural it's maybe too strong a word

0:51:09.520,0:51:14.240

but

0:51:11.200,0:51:15.760

as it's awkward it can be difficult to

0:51:14.240,0:51:18.880

ask those questions because

0:51:15.760,0:51:22.400

unless you know someone

0:51:18.880,0:51:24.400

as comfortable talking about this

0:51:22.400,0:51:26.240

like we know you are you you approached

0:51:24.400,0:51:27.359

us when we put the caller and said i

0:51:26.240,0:51:28.400

really want to do this as there are a

0:51:27.359,0:51:30.000

few others

0:51:28.400,0:51:31.520

yeah that but if it's again if it's

0:51:30.000,0:51:33.440

someone you know

0:51:31.520,0:51:34.800

unless you have a very good relationship

0:51:33.440,0:51:37.359

with them there's always that worry at

0:51:34.800,0:51:39.359

least in my mind that

0:51:37.359,0:51:41.119

this might open up the expression we

0:51:39.359,0:51:42.640

would use as a can of worms it might

0:51:41.119,0:51:44.400

start something that maybe

0:51:42.640,0:51:46.079

i might be ill-equipped to handle the

0:51:44.400,0:51:47.359

person who's been affected might be

0:51:46.079,0:51:50.480

ill-equipped to handle

0:51:47.359,0:51:51.359

and i wonder if that's a lot of the the

0:51:50.480,0:51:53.440

reason behind

0:51:51.359,0:51:54.720

people not having this conversation is

0:51:53.440,0:51:57.280

genuine fear of

0:51:54.720,0:51:59.440

what's going to happen it's consequences

0:51:57.280,0:52:01.520

i would say it's to do with consequences

0:51:59.440,0:52:03.440

you're scared of damaging a relationship

0:52:01.520,0:52:04.800

you're a lot more scared of

0:52:03.440,0:52:06.800

especially if you got to see somebody

0:52:04.800,0:52:09.200

regularly it's probably easier to speak

0:52:06.800,0:52:11.200

to people you're more estranged with

0:52:09.200,0:52:13.359

even in your own family than would be to

0:52:11.200,0:52:15.040

speak to somebody you see every day

0:52:13.359,0:52:16.960

just for the reason that you have to see

0:52:15.040,0:52:18.640

that person again look them in the eyes

0:52:16.960,0:52:21.280

and if you've made a mistake and asking

0:52:18.640,0:52:24.880

something that's offensive or

0:52:21.280,0:52:27.200

not or just really really deep

0:52:24.880,0:52:28.319

um to a point that they now know that

0:52:27.200,0:52:30.720

you know that

0:52:28.319,0:52:32.160

um it's sometimes difficult it's a shame

0:52:30.720,0:52:35.440

thing i think it's shame

0:52:32.160,0:52:36.720

that's built in to that getting that

0:52:35.440,0:52:39.440

stiff upper lip here

0:52:36.720,0:52:41.520

definitely in britain anyway oh yeah um

0:52:39.440,0:52:44.559

but

0:52:41.520,0:52:46.000

again hopefully um people become more

0:52:44.559,0:52:47.680

open and honest to each other because

0:52:46.000,0:52:49.440

you just if you can if we can be more

0:52:47.680,0:52:50.800

honest with each other about what we are

0:52:49.440,0:52:52.640

actually thinking

0:52:50.800,0:52:54.000

and rather than people making

0:52:52.640,0:52:54.880

assumptions all the time of how you

0:52:54.000,0:52:56.800

might react

0:52:54.880,0:52:57.920

then hopefully we can talk to people

0:52:56.800,0:52:59.839

closer to us

0:52:57.920,0:53:01.440

in a more open fashion paul and i have

0:52:59.839,0:53:02.720

got quite a good working relationship

0:53:01.440,0:53:04.800

that way that

0:53:02.720,0:53:06.559

if we speak about something we'll be

0:53:04.800,0:53:08.079

open and honest about it and not try

0:53:06.559,0:53:10.400

and not be worried about offending each

0:53:08.079,0:53:12.960

other um

0:53:10.400,0:53:15.040

and but yet like we still have this

0:53:12.960,0:53:16.800

probably still i don't know if you think

0:53:15.040,0:53:18.480

the simple but you've just chatting

0:53:16.800,0:53:20.880

sometimes do you think that sometimes we

0:53:18.480,0:53:23.680

you would we reword something

0:53:20.880,0:53:24.800

to make sure that oh yeah oh yeah yeah

0:53:23.680,0:53:27.200

yeah just

0:53:24.800,0:53:28.640

yeah i think it's almost the case of

0:53:27.200,0:53:31.040

knowing your audience

0:53:28.640,0:53:32.079

there's there's things i would say to

0:53:31.040,0:53:35.920

someone that

0:53:32.079,0:53:37.520

i wouldn't say to someone else because

0:53:35.920,0:53:40.079

i would worry about how they might take

0:53:37.520,0:53:41.520

it and that's not

0:53:40.079,0:53:43.680

you know that's that's some sort of

0:53:41.520,0:53:44.319

everyday normal conversations if that's

0:53:43.680,0:53:46.640

the right way of

0:53:44.319,0:53:48.400

saying it whereas with something as when

0:53:46.640,0:53:49.359

you when you magnify the stakes i

0:53:48.400,0:53:50.480

suppose if that's the right way we're

0:53:49.359,0:53:52.079

putting when you're talking about

0:53:50.480,0:53:54.559

something as

0:53:52.079,0:53:56.720

emotive as everything you've been saying

0:53:54.559,0:53:58.640

to us tonight to this

0:53:56.720,0:54:00.480

then yeah as it's it's no wonder i don't

0:53:58.640,0:54:04.960

blame people for

0:54:00.480,0:54:04.960

for avoiding do you terrorists do you

0:54:05.680,0:54:09.520

does it annoy you does it frustrate you

0:54:07.920,0:54:12.000

that people

0:54:09.520,0:54:14.000

you your closest members of your family

0:54:12.000,0:54:16.720

don't ask you these questions or

0:54:14.000,0:54:17.760

do you know deep down that they want to

0:54:16.720,0:54:20.960

but they can't or

0:54:17.760,0:54:24.720

where are you in your head with that

0:54:20.960,0:54:28.160

i am pretty annoyed okay

0:54:24.720,0:54:31.359

my mother-in-law she goes to

0:54:28.160,0:54:36.480

the memorial ground on a regular basis

0:54:31.359,0:54:39.200

to put flowers and to visit mira

0:54:36.480,0:54:40.240

my older sister she hasn't even been

0:54:39.200,0:54:42.880

there

0:54:40.240,0:54:44.400

and that is really frustrating because i

0:54:42.880,0:54:47.599

asked her to

0:54:44.400,0:54:49.280

please let me know when you're going our

0:54:47.599,0:54:51.920

direction

0:54:49.280,0:54:53.440

so we can go there and i can let you see

0:54:51.920,0:54:56.400

where she is

0:54:53.440,0:54:57.599

but she it's been almost three years now

0:54:56.400,0:55:01.280

and she hasn't

0:54:57.599,0:55:02.640

said that how what do you say can we go

0:55:01.280,0:55:05.520

there now

0:55:02.640,0:55:06.160

will you show me so that's uh

0:55:05.520,0:55:10.880

frustrating

0:55:06.160,0:55:10.880

for me because uh i don't want to

0:55:11.280,0:55:18.799

tell her this um every now and then

0:55:14.720,0:55:21.839

yeah so it feels wrong to do that

0:55:18.799,0:55:23.440

yeah i i feel that it must it must come

0:55:21.839,0:55:25.359

from her

0:55:23.440,0:55:27.680

could could it be that she's she's not

0:55:25.359,0:55:30.079

ready yet she's

0:55:27.680,0:55:31.359

she's not emotionally in a place where

0:55:30.079,0:55:35.040

she can i don't know i've obviously

0:55:31.359,0:55:39.119

never met her i don't know

0:55:35.040,0:55:42.960

uh some things we can talk about

0:55:39.119,0:55:47.200

and some things we can't talk about so

0:55:42.960,0:55:50.240

um i chose to not ask her about this

0:55:47.200,0:55:54.480

i choose to let her come to me when

0:55:50.240,0:55:57.440

she's ready and i hope that i have

0:55:54.480,0:55:58.400

spoken openly enough to let her know

0:55:57.440,0:56:01.520

that

0:55:58.400,0:56:04.799

she can come with any questions you have

0:56:01.520,0:56:08.720

because i want to talk about amira and

0:56:04.799,0:56:10.319

uh about this and i i am sure that she

0:56:08.720,0:56:13.040

knows that

0:56:10.319,0:56:14.480

and i am sure that the rest of my family

0:56:13.040,0:56:17.200

knows that

0:56:14.480,0:56:18.000

it might be a denial thing um obviously

0:56:17.200,0:56:22.079

i haven't met

0:56:18.000,0:56:24.880

your sister either um but really yeah

0:56:22.079,0:56:26.079

well i might have i don't know if that's

0:56:24.880,0:56:29.200

good of course

0:56:26.079,0:56:30.880

who knows um not consciously have met

0:56:29.200,0:56:34.559

your sister

0:56:30.880,0:56:36.240

i'm not aware of it um but i do know how

0:56:34.559,0:56:39.040

i've dealt with things in the past

0:56:36.240,0:56:41.440

um i spoke briefly about my mum and her

0:56:39.040,0:56:44.319

situation than the last time we spoke

0:56:41.440,0:56:45.440

um and i don't generally talk to my mom

0:56:44.319,0:56:47.440

about it

0:56:45.440,0:56:48.630

and it's listening to you i'm kind of

0:56:47.440,0:56:50.240

like maybe i should

0:56:48.630,0:56:53.200

[Music]

0:56:50.240,0:56:54.799

but because of how it makes me feel

0:56:53.200,0:56:57.839

because i feel sad about it

0:56:54.799,0:56:58.880

so i'm i'm just like i'd rather not talk

0:56:57.839,0:57:01.920

about it

0:56:58.880,0:57:04.160

easier not to um and then obviously i

0:57:01.920,0:57:06.000

i wonder if i'm risking upsetting her

0:57:04.160,0:57:07.839

and then that would in turn upset me

0:57:06.000,0:57:11.599

even more because

0:57:07.839,0:57:12.000

i i've not only have i upset myself but

0:57:11.599,0:57:14.480

i've now

0:57:12.000,0:57:15.599

upset somebody else with that question

0:57:14.480,0:57:18.720

about

0:57:15.599,0:57:20.960

you know yeah so um it's a minefield

0:57:18.720,0:57:22.880

well that's been well over a decade and

0:57:20.960,0:57:24.960

that's still the relationship of that

0:57:22.880,0:57:26.000

that's that conversational thing and

0:57:24.960,0:57:29.599

then here i am speaking

0:57:26.000,0:57:31.839

to you openly about all these things so

0:57:29.599,0:57:33.119

um i think i've just proven everything

0:57:31.839,0:57:35.359

we just talked about in the last 15

0:57:33.119,0:57:35.359

minutes

0:57:38.640,0:57:46.640

what you could do is um ask her

0:57:43.200,0:57:50.079

if it's okay uh to

0:57:46.640,0:57:52.160

bring this up with her and

0:57:50.079,0:57:54.480

tell her that if she doesn't want to

0:57:52.160,0:57:58.160

talk about it it's okay and she can

0:57:54.480,0:58:00.720

tell you yeah and ask her that

0:57:58.160,0:58:01.440

when you're ready will you let me know

0:58:00.720,0:58:04.000

more

0:58:01.440,0:58:05.920

would you like to talk with me about

0:58:04.000,0:58:08.160

this because uh

0:58:05.920,0:58:10.160

um if you want to talk with me about

0:58:08.160,0:58:12.720

this then i am here to listen

0:58:10.160,0:58:13.839

uh to you because i think that you would

0:58:12.720,0:58:15.760

love that

0:58:13.839,0:58:17.680

yeah my mom's quite spiritual and the

0:58:15.760,0:58:20.000

fact that she

0:58:17.680,0:58:21.599

she believes that she is obviously

0:58:20.000,0:58:23.200

looking down and she's with us all the

0:58:21.599,0:58:26.319

time that kind of thing

0:58:23.200,0:58:27.760

and um she's quite open about speaking

0:58:26.319,0:58:29.760

about these things

0:58:27.760,0:58:32.000

i think it's probably me i think i'm the

0:58:29.760,0:58:33.839

problem

0:58:32.000,0:58:35.920

she would happily probably speak about

0:58:33.839,0:58:38.000

these things and my fear would probably

0:58:35.920,0:58:40.720

just disappear if i opened up a bit more

0:58:38.000,0:58:40.720

about it with her

0:58:40.960,0:58:45.119

but also i was quite involved at the

0:58:42.880,0:58:46.799

time and i'm almost like i have the

0:58:45.119,0:58:50.400

information

0:58:46.799,0:58:51.200

i know how that was and what happened i

0:58:50.400,0:58:52.720

just

0:58:51.200,0:58:54.000

so i don't feel like i i almost feel

0:58:52.720,0:58:56.319

like i don't need to ask her these

0:58:54.000,0:58:59.359

questions because i know the answers

0:58:56.319,0:59:01.760

um but again that's not helping the

0:58:59.359,0:59:03.440

the two-way flow of conversation is it

0:59:01.760,0:59:05.839

this but maybe that's what your sister's

0:59:03.440,0:59:09.200

doing maybe she's like i know the answer

0:59:05.839,0:59:10.640

so i don't want to ask the question and

0:59:09.200,0:59:12.319

again i have not met your sister so i

0:59:10.640,0:59:13.280

don't know if that's true not

0:59:12.319,0:59:16.839

consciously

0:59:13.280,0:59:19.839

not conscious or unconsciously maybe

0:59:16.839,0:59:19.839

unconsciously

0:59:21.440,0:59:26.640

um yeah i do i see the difficulty

0:59:24.720,0:59:29.680

because i've i've experienced it

0:59:26.640,0:59:30.400

um as probably the same kind of level as

0:59:29.680,0:59:34.000

your sister

0:59:30.400,0:59:34.880

is experiencing it and so i wonder if

0:59:34.000,0:59:38.400

that's

0:59:34.880,0:59:38.960

if it's just that fear of just opening

0:59:38.400,0:59:42.319

that all

0:59:38.960,0:59:44.079

the wounds up again or people are

0:59:42.319,0:59:46.240

involved in their own lives quite

0:59:44.079,0:59:47.280

selfishly as well like they've got their

0:59:46.240,0:59:50.799

own stuff going on

0:59:47.280,0:59:52.480

and sometimes it's easier just not to

0:59:50.799,0:59:55.040

ask the question

0:59:52.480,0:59:55.760

i'm not saying that's right in any way

0:59:55.040,0:59:58.559

but

0:59:55.760,0:59:58.559

sometimes it is

0:59:58.960,1:00:03.680

what do you think well i have to say

1:00:01.920,1:00:07.440

thank you because uh

1:00:03.680,1:00:10.720

now i have this uh other view of this

1:00:07.440,1:00:11.760

maybe i should ask my sister would you

1:00:10.720,1:00:14.960

like to

1:00:11.760,1:00:16.799

come with us uh maybe in summer when

1:00:14.960,1:00:19.200

it's warm and the nice weather and

1:00:16.799,1:00:21.119

all that make it a positive experience

1:00:19.200,1:00:22.559

for her rather than making her feel like

1:00:21.119,1:00:26.000

it's a negative thing

1:00:22.559,1:00:27.280

an obligation almost yeah if she feels

1:00:26.000,1:00:28.400

like it's an obligation she might not

1:00:27.280,1:00:30.319

want to do it but if

1:00:28.400,1:00:32.079

she if you're including her as part of

1:00:30.319,1:00:35.200

maybe a celebration of

1:00:32.079,1:00:37.680

mira's existence yeah um i

1:00:35.200,1:00:38.799

i don't know what the answer is i'm just

1:00:37.680,1:00:40.799

i can only tell you

1:00:38.799,1:00:43.599

how it has been for me obviously my

1:00:40.799,1:00:45.359

mom's 5000 miles away so i can't

1:00:43.599,1:00:46.799

just jump over there and give her a hug

1:00:45.359,1:00:48.480

and hope that

1:00:46.799,1:00:50.640

we can chat about this stuff so it's

1:00:48.480,1:00:53.680

more like this you know screen to screen

1:00:50.640,1:00:54.640

sure um and

1:00:53.680,1:00:56.000

i feel like if i'm going to have that

1:00:54.640,1:00:57.440

conversation i'd like to be there in

1:00:56.000,1:01:00.480

person yeah and

1:00:57.440,1:01:03.599

um yeah and also where

1:01:00.480,1:01:06.799

um the kind of

1:01:03.599,1:01:08.839

the burial ground or the place that my

1:01:06.799,1:01:11.200

sister is

1:01:08.839,1:01:11.680

is quite far away from where my mom

1:01:11.200,1:01:14.799

lives

1:01:11.680,1:01:15.200

she's in florida and where she she had

1:01:14.799,1:01:18.319

that

1:01:15.200,1:01:22.839

that cemetery is upstate new york

1:01:18.319,1:01:25.760

so it's the other end of america so it's

1:01:22.839,1:01:26.319

literally like thousands of miles away

1:01:25.760,1:01:28.720

from her

1:01:26.319,1:01:30.079

so she's as far away from that place as

1:01:28.720,1:01:33.359

i am yeah

1:01:30.079,1:01:35.680

amazingly amazingly yeah yeah

1:01:33.359,1:01:36.960

so she's it's not like she can just nip

1:01:35.680,1:01:40.160

in the car and go out and

1:01:36.960,1:01:41.440

and visit the gravesite either so it

1:01:40.160,1:01:43.599

it's

1:01:41.440,1:01:44.640

it's it's a it's a strange one in that

1:01:43.599,1:01:46.880

respect

1:01:44.640,1:01:48.079

but i i hope me sharing with you has

1:01:46.880,1:01:52.880

helped

1:01:48.079,1:01:55.520

in some way i don't know sounds like as

1:01:52.880,1:01:56.559

yeah i i have to say thank you for

1:01:55.520,1:02:00.000

sharing that uh

1:01:56.559,1:02:03.680

from your perspective me too

1:02:00.000,1:02:07.119

it's really comfortable to hear that

1:02:03.680,1:02:09.520

side because it helps me now i think i

1:02:07.119,1:02:09.520

feel that

1:02:10.079,1:02:13.440

yeah because i would hate that like just

1:02:11.920,1:02:16.559

hearing how you feel like you you're

1:02:13.440,1:02:18.160

saying you were you were annoyed almost

1:02:16.559,1:02:20.160

i hope my mom's not annoyed with me for

1:02:18.160,1:02:20.960

not having that conversation does make

1:02:20.160,1:02:22.400

you reflect

1:02:20.960,1:02:24.319

conversations like this of course it

1:02:22.400,1:02:24.640

does yeah and that i love that we do

1:02:24.319,1:02:27.440

this

1:02:24.640,1:02:28.240

and that we are doing this and again

1:02:27.440,1:02:30.960

that you've

1:02:28.240,1:02:31.839

you've come on here uh to to share your

 

 

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Life: Is It Just Me?By Paul Hope & Ryan Rocks