Let's Talk About Sickle Cell

By Sickle Cell Podcast

Let's Talk about Sickle Cell is a podcast providing an opportunity for open, honest and educational conversations about sickle cell, with new episodes every fortnight on a Wednesday.

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FAQs about Let's Talk About Sickle Cell:

How many episodes does Let's Talk About Sickle Cell have?

The podcast currently has 20 episodes available.

Let's Talk About Sickle Cell episodes:

March 06, 2024 9. Let's Talk About Sickle Cell with Siliana Coelho
In this episode Jenica and Maya talk to young mum and content creator Siliana who shares her journey to motherhood with sickle cell. They touch on blood donation, crisis pain vs labour pain and navigating life as a mother living with sickle cell in this episode timed conveniently for UK Mothers Day.
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33min
February 21, 2024 8. Sickle Cell Hot Topic: Blood
In this episode we talk about all things to do with blood and sickke cell. We discuss the difference between blood transfusions and exchanges as well as when they may be used, the benefits, side effects and the need for more blood donors to support people living with sickle cell.

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42min
February 07, 2024 7. Let's Talk About Sickle Cell with Victoria Ekanoye
Actress and Singer Victoria Ekanoye shares her journey living with sickle cell SC and her dedication to using her voice and platform to raise awareness. She also shares her views on the lack of media attention and education surrounding the condition as well as tips on traveling and her musical influences.
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30min
January 24, 2024 6. Sickle Cell Hot Topic: Hydroxycarbamide aka Hydroxyurea
Hydroxy (and its various names) is a very effective drug that can help people living with sickle cell have fewer pain crisis, fewer acute complications and better health overall. Despite all the positive research and decades of its effective usage, many patients are still very skeptical about this medication. In this episode, Jen (who takes no drugs to manage her sickle cell) and Maya discuss the pros and cons of hydroxy from a patient and nurse specialist perspective and clear up some untruths. Listen to find out if Maya was able to change Jen’s perspective.
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58min
January 10, 2024 5. Let’s Talk About Sickle Cell with Florence Eshalomi MP
In this episode we continue to discuss the no one’s listening report and unavoidable deaths within sickle cell. Florence also shares her experience as a carer to her mother who lived with sickle cell.
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22min
December 27, 2023 4. Sickle Cell Hot Topic: Pregnancy
Jenica Leah and Maya Bloomberg discuss pregnancy in our latest episode, including whether being pregnant can mean those with sickle cell are higher risk of complications giving birth.
We debate C sections versus natural births the affects of hydroxy before and during pregnancy and more common questions pregnancy in sickle cell.
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30min
December 13, 2023 3. Let’s Talk About Sickle Cell with Jess Phillips MP
In this episode Jenica and Michael speak to Jess Phillips MP. Jess is a British politician serving as for MP for Birmingham Yardley since 2015. A member of the Labour Party, she was Shadow Minister for Domestic Violence and Safeguarding from 2020 to 2023 and an officer of the APPG at the time of this interview.
Jess is a passionate advocate for violence against women and in this episode we discuss some of the major issues and lack of care that women living with sickle cell experience.
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29min
November 29, 2023 2. Sickle Cell Hot Topic: Gene Editing
Jenica Leah and Maya Bloomberg discuss the latest in Gene Editing including what therapies are already on the market and those soon to be approved. They delve deeper into the mechanisms of the current gene-editing therapies, how they work, the positive results and also some of the risks involved. The discussion also sign-posts where people can go to see what new treatments are available for people living with sickle cell and/or thalassemia, and questions if gene-editing is the step in the right direction for a cure.
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25min
November 15, 2023 1. Let´s Talk About Sickle Cell with Pat McFadden MP
Welcome to the Let´s Talk About Sickle Cell podcast.
Jenica Leah will be hosting this series and in parts you will hear the voice of Michael Soyannwo, who is sadly no longer with us.
When we began recording this series, both hosts who have Sickle Cell, were on a mission to uncover some of the stories of those who also suffer, but also speak to the leaders, MP´s and change makers who are fighting for and supporting the cause.
Which brings us to our first guest, Pat McFadden, who was recently referred to as "the most powerful labour politician most people have never heard of" and he is a part of the Sickle Cell and Thalassaemia All Party Parliamentary Group.
He was chair of the group when we conducted this interview about the 'No One's Listening Report', following the un-necessary death of Evan Nathan Smith.
We explore the report in todays episode and look at the improvements we hope to see in sickle cell care as a result.
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48min
April 09, 2023 Trailer
Coming up on the Let's Talk About Sickle Cell Podcast....
Join Jenica Leah as she shares conversations about sickle cell with director Reggie Yates who has the sickle cell trait, actress Victoria Ekanoye who lives with sickle cell anaemia, Tionne 'T Boz' Watkins who also lives with sickle cell and others.
The Conversation starts here
@sicklecellpodcast
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3min

FAQs about Let's Talk About Sickle Cell:

How many episodes does Let's Talk About Sickle Cell have?

The podcast currently has 20 episodes available.