Joseph Skewes and Bec Francis are the co-founders of Curalysis, a lived-experience-led digital health platform being built by people living with neurological conditions.. Joseph lives with MND, and Bec lives with refractory epilepsy.

Curalysis is built around a simple belief: people living with complex neurological conditions are already generating valuable day-to-day health data, but too much of it is fragmented, unstructured, or lost. The platform helps people track symptoms, function, interventions, and changes over time, with the aim of identifying patterns, improving personal insights, and building richer data to support better care, treatment, and research.

Joseph and Bec are currently fundraising to support the next stage of development, including ethics, compliance, and clinical trial preparation. They are also seeking a research collaborator institution to explore how Compass can support people with MND by improving the sequencing and personalisation of information and care navigation.

For more context, you can read about the Compass prototype here:
https://curalysis.com/blog/theres-no-map-for-this

You can also support or share the Curalysis GoFundMe campaign here:
https://www.gofundme.com/f/two-founders-two-diagnoses-one-platform-help-us-prove-it

The conversation covers Professor Dominic Rowe's work with MND, the Riverina research findings, the increase in MND mortality and its environmental factors, the controversy around placebo use, the importance of understanding the cause of MND, environmental factors and clustering, the significance of making MND a notifiable disease, and the funding and operations of the MND clinic.

The conversation delves into the challenges of healthcare delivery and funding, emphasizing the importance of clinical trials funding and the need for empathy over sympathy in patient care.

The conversation delves into the importance of family storytelling and the impact of active listening. Bill shares his personal journey, motivation, and the art of understanding people. The exploration of life stories, memories, and the legacy for future generations is highlighted, along with the impact of tough love and parenting. The reward of family storytelling and engaging future generations in storytelling is emphasized, along with insight dinners and personal stories.

The conversation covers Nicole's personal identity, professional journey, involvement in the MND community, participation in charity events, running marathons for MND, fundraising, coping with community involvement, and future marathon plans.

It also highlights the impact of MND on regional areas and offers advice for children of MND patients.

The conversation with Aaron Hintala revolves around the themes of hope, identity, the impact of MND diagnosis, faith, community support, and resilience. Aaron's unwavering hope and faith, along with the compassion and support from his community, have been instrumental in his journey with MND. His identity as a husband, father, and surfer has been redefined, and his resilience is evident in his ability to find alternative ways to continue enjoying the ocean despite physical limitations.

https://www.instagram.com/als_and_us?igsh=MWxjdGV5d2Z3dmR0cQ==

From breakfast radio to the front line of one of Australia’s most important medical fights.

In our latest podcast episode, we sit down with Matt Tilley — former radio star turned CEO of FightMND — to talk about a career pivot driven by purpose.

After years behind the microphone entertaining millions, Matt stepped into a very different role: helping lead the fight against Motor Neurone Disease and supporting the mission started by AFL legend Neale Daniher.

Rob Ferrari is a vibrant 61-year-old living with motor neurone disease. After his diagnosis in early 2024, Rob quickly shifted his focus from work to what matters most — time with his wife Marion, their three children, and close friends.

He shares how he’s adapting to the physical challenges of MND, staying active through swimming, and leaning on a strong support network, including family and his mates at Pennant Hills Golf Club.

This is a story of resilience, community, and finding joy in every day.

In this conversation, Rob and Sue Taylor share their experiences with motor neurone disease (MND) and the challenges they have faced together. Rob discusses his journey to diagnosis, the impact of MND on his life, and his involvement in the MND community.

Sue opens up about her own health struggles with cancer and the importance of support systems. Together, they emphasize the significance of finding joy amidst adversity, the value of humor, and the need for caregivers to seek help.

Their story is one of resilience, love, and a commitment to raising awareness for MND.

In this episode, Jean reflects on caring for her husband Greg, who died from MND in 2025. Jean and Jane discuss the physical and cognitive challenges of the disease, the need for clearer communication about cognitive changes, and the vital role of community support for people living with MND and their carers — including how to navigate life and identity after loss.

Hazmir, 42, was diagnosed with Motor Neurone Disease (MND) in February 2025, and only three months later his family rallied to raise $30,000 for Fight MND in his honour. Guided by a deep faith, he approaches his future with joy, hope, and unwavering determination. Since his diagnosis, Hazmir has become an active and passionate member of the MND community through his involvement in both LEN and LERAP. He has also written a book and is the focus of a documentary that captures his life, resilience, and impact since receiving his diagnosis.

He also has a You Tube channel "MND Hacked" a channel dedicated to outsmarting Motor Neurone Disease with cutting-edge technology. From eye-tracking gaming setups, robotic legs and voice-banking AI to smart home automation that defies physical limits—he explores the digital tools that keep us connected, creative, and in control. The body might glitch, but the mind is limitless. Let's hack the diagnosis".

https://youtube.com/@hazhacked?si=cIwBYxhTyEnIIBUW