Lewy Body Roller Coaster

Welcome back to the podcast Sam and Tracie. Sam has LBD and shares his path to diagnosis. Tracie shares some great caregiver tips. Sam shares helpful uplifting ways he deals with his diagnosis and as Curry says...lives his best life.

A big shout out to all of our supporters!!

Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxo

Remember...We are doing this for all of us and we thank you from the bottom of our hearts.
Should you wish to bless us with your support for the podcast, you can  use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6
 
Thank you for listening. 
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.

Support the show

Welcome to the podcast Sam and Tracie. Sam has LBD and shares his path to diagnosis. Tracie shares some great caregiver tips. Sam shares helpful uplifting ways he deals with his diagnosis and as Curry says...lives his best life.

A big shout out to all of our supporters!!

Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxo

Remember...We are doing this for all of us and we thank you from the bottom of our hearts.
Should you wish to bless us with your support for the podcast, you can  use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6
 
Thank you for listening. 
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.

Support the show

Welcome  back Pat Snyder. Her husband John passed from LBD and since then she has been making short YouTube clips sharing helpful tips for us all. This week she shares with us how important it is to find the right doctor and then get the right medications while avoiding certain medicines at all cost.

Google Pat Snyder LBD YouTube and you will find her videos.

Should you wish to bless us with your support you can :

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6

We have listed all present and past Patreon and Go Fund Me supporters in the Announcements page of the Our Journey with Lewy Body Dementia and our Lewy Body Roller Coaster Podcast Pages.

We will still  give shout outs each week but, we posted supporters under Announcements on our Facebook pages.

Thank you for listening each week.
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at [email protected] 



LBD Serios: Medications:
https://connect.mayoclinic.org/blog/dementia-hub/newsfeed-post/lbd-video-series-medications/

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This week is another of our fireside chats where we share topics of discussion relating to LBD. First, we talk about how one can be down with Lewy symptoms for awhile and then bounce back. We all need to be thankful for that part of this crazy disease. We then shared some moving tips and suggestions caregivers shared with each other on how to cope while caring for a loved one with LBD.
We are in this together and need to lean on one another. If you don't belong to a support group or attend support meetings...we hope you join as the people in the groups truly understand what you are going through. A lot of Lewy Love to be had from those in the support groups.

A shout out to Dee Riechert, The Geraci family, Jeanette Clark, Marie Peterson, Krysty Herr, Tyler Wright. We cannot thank you all enough for helping us help others.

Should you wish to bless us with your support you can  use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6

Thank you for listening each week.
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at [email protected] 

Support the show

Welcome back Podcast Family! This week we share some helpful tips others have shared on things around LBD such as how to remove the adhesive for the  patches, tooth brushes, nose sprays to be aware of and medicines no one with LBD should use. Curry shares a little on how he is feeling and once again...we laugh as we try to get through an episode as we are clearly not tech savvy individuals but we love that you all are so patient with us each week as we "try" our best to get an episode off for every Wednesday but sometimes life and that dang Lewy shows up and causes some delay.

A shout out to all out supporters including Vickie Setterberg, Kristen Medica, Tiffany Hanna, Janice Prochaska, Kara Biller, Don Pinkos, Dee Richert, Marcia Treffman, The Geraci's and everyone else who has been with us from day one. 

We are doing this for all of us and we thank you from the bottom of our hearts.
Should you wish to bless us with your support you can  use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6

Thank you for listening each week.
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at [email protected] 

Support the show

Welcome Megan Ferguson-Koci  as she  shares her struggle getting diagnosed as a women in her 40’s and being told it’s just woman problems….sadly we have heard this from so many other women.
She shares her journey and how she is staying positive. We are so very thankful she has become an integral part of our Lewy family as she helps us with the zoom meetings while Podcast Linda needs time grieving  the loss of her husband.
We couldn’t do all we do without the help from those with LBD and their caregivers. So, thank you to everyone who has been helping with the meetings, the Fb support pages and the podcast.
We are all in this together. Xo

A shout out to all out supporters including Vickie Setterberg, Kristen Medica, Tiffany Hanna, Janice Prochaska, Kara Biller, Don Pinkos, Dee Richert, Marcia Treffman, The Geraci's and everyone else who has been with us from day one. 

We are doing this for all of us and we thank you from the bottom of our hearts.
Should you wish to bless us with your support you can  use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6

Thank you for listening each week.
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at [email protected] 

Support the show

This week, welcome Dr. Jason Cohen.
Dr. Cohen is a dementia specialist who answered many of our burning questions about LBD. We are sure some of our questions to him are some each of you would have asked. He said he would come on again, so if anyone has other questions to ask, please email them to us at [email protected]

Hearing his responses made us feel hope and he said everyone needs to share about their LBD experiences because the more we all share, tjhe more people will know what the disease is.

Remember...We are doing this for all of us and we thank you from the bottom of our hearts.
Should you wish to bless us with your support for the podcast, you can  use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6
 
Thank you for listening. 
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at [email protected] 

Support the show

This week we welcome six individuals who attend at least one of our support group zoom meetings.  We wanted them to share with you all the power of attending a support group. Our hope is you hear from these amazing people and feel more comfortable joining in one of the meetings we hold each wee
Naomi from Ireland mentions Lewy Love. That's what you will get when you attend one of our support meetings- people who get what you are going through and understand and never, ever judge. Enjoy meeting these individuals who are members of our Lewy Family.
I, for one, am thankful for each of them and their friendships. and k now Curry feels the same way.

A shout out to our new and some past Patreon and Go Fund Me Supporters

Toby Gorelick and Deb and Paul Lannom and Laura Michel, Pia Benard, Marcia Treffman
We couldn't do this podcast without all of you who support us!

Should you wish to bless us with your support you can :

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6

We have listed all present and past Patreon and Go Fund Me supporters in the Announcements page of the Our Journey with Lewy Body Dementia and our Lewy Body Roller Coaster Podcast Pages.

We will still  give shout outs each week but, we posted supporters under Announcements on our Facebook pages.

Thank you for listening each week.
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at [email protected] 

Support the show

We are back after a much needed break to handle many personal issues. Thank you all for your continued patience. Just as LBD is a roller coaster ride, so has been our lives been the last few months.

A big shout out to all of our supporters. We couldn't do all this without your help and support. xo

This episode, we do a quick recap of how this all got started..the podcast, our 5 support groups, 2 Facebook support pages and now  a LBD awareness documentary.

We share with you all what we have been involved in over the past year or so that many of you may not be aware of.  We have been working with a film crew on  a documentary about those with LBD and their caregivers. Since that the film is close to completion, we thought now is the perfect time to share more details with y'all.

Welcome this week,  the producer and director of the documentary we have been working on titled  Facing the Wind. -Tony Heriza and Diedre Fishel.
The four of us share more details about the film and what it was like to be a part of this project.

Please consider watching the documentary trailer ( link below) and clink on the donate button  to help get the film completion over the finish line. No amount is too small.
Go to: Facingthewindfilm.com or click on link below.

https://facingthewindfilm.com/

We are doing this for all of us and we thank you from the bottom of our hearts.
Should you wish to bless us with your support for the podcast, you can  use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6
 
Thank you for listening. 
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at [email protected] 

Support the show

Podcast Linda is taking 2 weeks off for her birthday…so enjoy the replay of Lewy Terms Defined part 2 with  Dr. Sara .
Just a reminder- we are not giving medical advice, merely sharing our experiences.

This week, Sara returns to help us talk about the many terms you may hear that relate to some aspect of Lewy Body Dementia. When you listen, you will hear the technical definition of the terms and then hear examples from personal experiences which helps us have a better understanding for each terms discussed. There were so many terms many of you sent me to discuss that we needed to break her recording into 2 parts. This is definitely our most educational episode and one you won't want to miss and hear.

Should you wish to bless us with your support you can go to:
Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6

Patron Shout Out

A very special shout out to Miriam and Matthew Geraci  and Phyllis Banks for being super monthly patrons 

• Bronze

Amy
Sarah Szypula
Matthew Szypula
Andrew Szypula
Polina Dineva
Ginger Gillmore
Tedd Winkler
Ryan Samuel
Gillian Thompson

• Silver Patrons                                         

Bonnie Ziegler-Weber                                  
Mark Youlden                                                     
 Lisa DeRosa
Karen Klink    
Rita McCord       
Kathy Deschenaeau  
                                                    

•  Gold Patrons

Sharon Welch
Nancy Guerro
Phyllis Banks
Cindy     
 Marcia Treffman
Jay MacLean
Sheila Furey
Chris Oaks
Lenny Asuncion
Pat Crawford
Belinda Ray
Cherie Lawrence
Linda Bolbecker
Daisy Best
Sara Langer
Larry Herig
Brian and Amy Dougherty       Platinum Patrons

Darlene Passmore-Armstrong
Thomas Connelly
Pat Crawford
Tere Wisell
Robin Lavaron
Alisa Mahoney
Albert Ferraro and Family
Norma Loeb

Super Patrons.           Miriam and Matthew Geraci

Go Fund Me Shout Outs

Lisa DeRoa
Laketta Mitchell
Lori Krag
Heather and Lewis Grossit
Geri Sera
Janeen Obis
Deb Summers
Wendy Cogan
Susan Lavoice
LJean Howell
Marcia Treffman
Tedde Hope Hamilton
Geri Sera
Melinda Farmer
Michaele Couch
Pia Bedard
Russell Lebovitz
Nancy Guerro
Taylor Swantek

Thank you for listening each week.
Join our Lewy Body Roller Coaster Podcast Facebook page.
If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at [email protected]

Support the show