Welcome Back Podcaast Family!
This week, we share our thoughts on whether there are stages of LBD. There are so many different sites that speak of anywhere from 3-7 stages. We give our two cents on stages and then discuss what it was like for Podcast Linda with the Brain Foundation and Lewy research.

We are doing this for all of us and we thank you from the bottom of our hearts.
Should you wish to bless us with your support for the podcast, you can  use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6
 
Thank you for listening. 
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at [email protected] 

Support the show

This week we continue part 2 as Curry shares how he is feeling and discussed the new hallucinations he is having and how he is feeling overall including not remembering visitors. We also discuss compulsive behaviors people with LBD may have as this was a big discussion during one of the zoom meetings.

Should you wish to bless us with your support you can  use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6

We have listed all present and past Patreon and Go Fund Me supporters in the Announcements page of the Our Journey with Lewy Body Dementia and our Lewy Body Roller Coaster Podcast Pages.

We will still  give shout outs each week but, we posted supporters under Announcements on our Facebook pages.

Thank you for listening each week.
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at [email protected] 

Support the show

This week Curry shares how he is feeling and discussed the new hallucinations he is having and how he is feeling overall including not remembering visitors. We also discuss compulsive behaviors people with LBD may have as this was a big discussion during one of the zoom meetings.

Should you wish to bless us with your support you can  use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6

We have listed all present and past Patreon and Go Fund Me supporters in the Announcements page of the Our Journey with Lewy Body Dementia and our Lewy Body Roller Coaster Podcast Pages.

We will still  give shout outs each week but, we posted supporters under Announcements on our Facebook pages.

Thank you for listening each week.
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at [email protected] 

Support the show

Hello Everyone! Thank you for your patience. 

Curry shares this week how he has been on a decline for the last few months and shares, in details, how Lewy is affecting him right now. We have a  special appearance from his wife Linda as she helped him describe his current symptoms.

Should you wish to bless us with your support you can  use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6

We have listed all present and past Patreon and Go Fund Me supporters in the Announcements page of the Our Journey with Lewy Body Dementia and our Lewy Body Roller Coaster Podcast Pages.

We will still  give shout outs each week but, we posted supporters under Announcements on our Facebook pages.

Thank you for listening each week.
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at [email protected] 

Support the show

This week, Curry shares with us his and his wife Linda's experience going to a funeral home to plan their funerals in advance so their children did not have to later on. He shares how he felt during the process and why he wanted to share with our listeners and members of our Facebook pages.

"I would hate to have left Linda to decide all that in a day or two," Curry confesses, his voice carrying the weight of nine years living with LBD. During a recent period when his symptoms have intensified—increased confusion, slurred speech, and devastating sleep disruptions—he still prioritized this difficult task. The contrast is striking: even as Curry struggles with Lewy's daily challenges, he's thinking ahead to ease his wife's future burden.
Should you wish to bless us with your support you can  use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6

We have listed all present and past Patreon and Go Fund Me supporters in the Announcements page of the Our Journey with Lewy Body Dementia and our Lewy Body Roller Coaster Podcast Pages.

We will still  give shout outs each week but, we posted supporters under Announcements on our Facebook pages.

Thank you for listening each week.
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at [email protected] 

Support the show

This week is part three of a three part series. We decided to ask participants form one of our weekly zoom support meting if we could record the meeting and share with you all so you can hear how a meeting goes, what people share and how they share suggestions with one another for certain symptoms. We hope you can hear the love the people in this group have for one another. We all need to lean on one another on this Lewy journey but also keep laughter in your life.

Listen in as Curry, Tom and Dorie, Ray, Dan and Effie, Liz and Sharon share their LBD experiences..A shout out to all of our supporters! We couldn't do this without all of ya'll. xo

Should you wish to bless us with your support you can  use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6

We have listed all present and past Patreon and Go Fund Me supporters in the Announcements page of the Our Journey with Lewy Body Dementia and our Lewy Body Roller Coaster Podcast Pages.

We will still  give shout outs each week but, we posted supporters under Announcements on our Facebook pages.

Thank you for listening each week.
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at [email protected] 

Support the show

This week is part two of a three part series. We decided to ask participants form one of our weekly zoom support meting if we could record the meeting and share with you all so you can hear how a meeting goes, what people share and how they share suggestions with one another for certain symptoms. We hope you can hear the love the people in this group have for one another. We all need to lean on one another on this Lewy journey but also keep laughter in your life.

Listen in as Curry, Tom and Dorie, Ray, Dan and Effie, Liz and Sharon share their LBD experiences..A shout out to all of our supporters! We couldn't do this without all of ya'll. xo

ZoomA shout out to all of our supporters! We couldn't do this without all of ya'll. xo

Should you wish to bless us with your support you can  use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6

We have listed all present and past Patreon and Go Fund Me supporters in the Announcements page of the Our Journey with Lewy Body Dementia and our Lewy Body Roller Coaster Podcast Pages.

We will still  give shout outs each week but, we posted supporters under Announcements on our Facebook pages.

Thank you for listening each week.
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at [email protected] 

Support the show

This week is part one of a three part series. We decided to ask participants form one of our weekly zoom support meting if we could record the meeting and share with you all so you can hear how a meeting goes, what people share and how they share suggestions with one another for certain symptoms. We hope you can hear the love the people in this group have for one another. We all need to lean on one another on this Lewy journey but also keep laughter in your life.

Listen in as Curry, Tom and Dorie, Ray, Dan and Effie, Liz and Sharon share their LBD experiences..A shout out to all of our supporters! We couldn't do this without all of ya'll. xo

Should you wish to bless us with your support you can  use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6

We have listed all present and past Patreon and Go Fund Me supporters in the Announcements page of the Our Journey with Lewy Body Dementia and our Lewy Body Roller Coaster Podcast Pages.

We will still  give shout outs each week but, we posted supporters under Announcements on our Facebook pages.

Thank you for listening each week.
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at [email protected] 

Support the show

The conversation takes a surprising turn as they detail a series of household disasters that would test anyone's resilience. A massive 90-foot tree fell onto their house during the night, damaging their electrical system during one of the coldest nights of the season. Combined with plumbing failures affecting both their kitchen and laundry facilities, they find themselves navigating a perfect storm of home maintenance crises while simultaneously managing LBD symptoms. Their matter-of-fact approach to these challenges reveals the extraordinary resilience required when facing dementia alongside life's ordinary problems.

A shout out to all of our supporters! We couldn't do this without all of ya'll. xo

Should you wish to bless us with your support you can  use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6

We have listed all present and past Patreon and Go Fund Me supporters in the Announcements page of the Our Journey with Lewy Body Dementia and our Lewy Body Roller Coaster Podcast Pages.

We will still  give shout outs each week but, we posted supporters under Announcements on our Facebook pages.

Thank you for listening each week.
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at [email protected] 

Support the show

Welcome Vangie Jones, a hospice nurse for 20 years as she shares with us all we need to know about hospice including the myth that it is only for the final days or weeks. This will be a three part recording since we had so many questions for Vangie that we all want to know

A shout out to all our supporters including Tom Lawson, Dee C,  Sue, Jane Wakeman,Vickie Setterberg, Kristen Medica, Tiffany Hanna, Janice Prochaska, Kara Biller, Don Pinkos, Dee Richert, Marcia Treffman, and the Geraci's and everyone else who has been with us from day one. 

We are doing this for all of us and we thank you from the bottom of our hearts.
Should you wish to bless us with your support you can  use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6
 
Thank you for listening each week.
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at [email protected] 

Support the show