By Life After ECT
3
33 ratings
The podcast currently has 36 episodes available.
Does Electroconvulsive Therapy have a place in 21st century evidence-based medicine?
Dr. John Read is Professor of Clinical Psychology at the University of East London. He has published over 180 research papers and in 2022 was listed in Stanford University's register of the top 2% most cited
He has published six reviews of the ECT research literature (including four in peer-reviewed journals) and made multiple commentaries on the research.
His most recent peer-reviewed review of the ECT literature was a 40-page paper, in 2019, written with Professor Irving Kirsch, Associate Director of Placebo Studies at Harvard Medical School.
He is also the lead researcher on two independent audits of the administration and monitoring of ECT in England's Health Service and co-author of three studies of the accuracy of information provided to ECT patients and their families.
https://www.uel.ac.uk/about-uel/staff/john-read
His latest research:
https://lifeafterect.com/participate-in-groundbreaking-research-share-your-experience-with-electroconvulsive-therapy-in-the-sectaff-survey/
This presentation was in colaboration with
https://www.nlb.ie/campaigns/mental-health
Full presentation: https://www.youtube.com/watch?v=MY5CTuMbW2w&t=2s
David Russell is an involuntarily committed patient at the Minnesota Mayo Clinic, who has been subjected to forced electroshock therapy (ECT) against his will.
His case has drawn significant attention and advocacy efforts fromMindFreedom International, an organization focused on human rights in mental health care.
Read David’s full story here:https://mindfreedom.org/front-page/david-russell/
Show Notes https://docs.google.com/document/d/1k2m7mZle83Snh_owlJ3B5NbrrkM6mqvg3FV3Z_HGSG8/edit?usp=sharing
Welcome to the Life After ECT podcast!
In this episode, we discuss:
- The reality of forced ECT still happening today.
- MindFreedom International's Shield Program, which helps protect against unwanted psychiatric treatment.
- The importance of psychiatric advance directives to formally assert your treatment preferences.
Learn how these resources can help you or a loved one, and how you can get involved in advocating for human rights in mental health care.
Disclaimers
Life After ECT Inc. is not directly affilated with Mindfreedom International -- we believe they are an invaluble human rights resource and want to make those at risk of forced treatment aware of the support they offer.
About Life After ECT Inc.
Life After ECT Inc. is a 501 (c)(3) charitble organazation dedicated to improving the lives of those harmed by electroconvulsive therapy through education, advocacy and research. Learn more about what we do and how you can support our work: Looking to a Brighter Future for Those Harmed by ECT
Show Notes
https://docs.google.com/document/d/1FAbX1qa0Z7UQz8vN47dx22ZPHyE1x5ZanWqsiJ73cBo/edit?usp=sharinghttps://docs.google.com/document/d/1FAbX1qa0Z7UQz8vN47dx22ZPHyE1x5ZanWqsiJ73cBo/edit?usp=sharing
Thank you for tuning into the Life After ECT Podcast.
Life After ECT Inc. 501(c)(3) nonprofit organazation focused on improving the quality of life for those injured by ECT.
Learn more about what we do and how you can support our work: Looking to a Brighter Future for Those Harmed by ECT
Show Notes: https://docs.google.com/document/d/1LrUHhroyOX66T7FUQ0iytyfNoCzmqKN91PQ0LfiKeBI/edit?usp=sharing
Disenfranchised grief: the unseen pain of those disabled by
Resources mentioned in the episode:
Linda Andre Testimony - Vermont House Bill H12, Informed consent to electroconvulsive therapy, 1999
Testimony date: 2000
Links to Linda's Work
If you can, please consider supporting Linda's son's GoFund me to cover funeral expenses and preserve her library of research. Fundraiser by Alandra Markman : Linda Andre's Legacy (gofundme.com) ( https://www.gofundme.com/f/linda-andre )
Linda Andre Testimony - Vermont House Bill H12, Informed consent to electroconvulsive therapy, 1999
Testimony date: 2000
Links to Linda's Work
If you can, please consider supporting Linda's son's GoFund me to cover funeral expenses and preserve her library of research. Fundraiser by Alandra Markman : Linda Andre's Legacy (gofundme.com) ( https://www.gofundme.com/f/linda-andre )
An Interview with Linda Andre by Philip Bennet, recorded several years ago (the recording date was not included in the file). In it they discuss her book, Doctors of Deception, What they Don't Want You to Know About Shock Treatment.
Our community has recently suffered a great loss. Linda Andre, author of one of the most important books on ECT ever written, passed away this month. Linda was my hero. I first came across her work while desperately searching the Internet for answers when ECT damaged my brain and my doctors refused to believe me. Reading her presentation "Electroconvulsive Therapy as a Head Injury" changed my life.
Her work showed me that ECT can cause permanent brain damage and those affected by ECT are routinely denied testing and rehabilitation, as was the case with me. Linda showed me the hope of recovery through the stories of people who found a way to recover when doctors couldn't help them.
There is so much I want to say about Linda, but after ECT, the right words are always so hard to find. Until I can write a full tribute post I wanted to do something so I recorded a small tribute to ger along with her second inteview with Philip Bennet. In it they sumarize key points from her book.
Find links and resources and tributes to Linda Andre in the show notes.
Many harmed by electroconvulsive therapy (ECT) want to protect themselves from forced ECT in the future.
One way to do this is by creating a psychiatric advanced directive (PAD), which is a document that outlines their wishes regarding psychiatric treatment.
Content warnings: In this episode I briefly discuss forced treatment, unmodified ECT, and the limits of advanced directives. Be sure to practice self care if any of these topics are disressing to you.
Learn more about psychiactric advanced directives, forced and unmodified ECT in the show notes.
The podcast currently has 36 episodes available.