Progressive loss of motor function is an ongoing concern in spinal muscular atrophy (SMA), given the relentlessly degenerative nature of the disease. In this episode, host Diana Castro, MD, is joined by Crystal Proud, MD, Director of Neuromuscular Medicine at Children’s Hospital of The King’s Daughters in Norfolk, Virginia. They discuss the importance of optimizing long-term motor function, particularly as individuals living with SMA transition from childhood to adulthood. Actions today impact outcomes tomorrow.

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In this episode, host Diana Castro, MD, leads a discussion with three adults living with spinal muscular atrophy (SMA). Listen in as Andrew, Lyza, and Doug share their firsthand experience on how SMA not only impacts their daily lives, but their future goals. They shed light on the nuances of progressive muscle weakness and loss of motor function, and the need for more in SMA to help maintain their independence.

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Treating neurologists see snapshots of their patients’ lives. But caregivers to those living with spinal muscular atrophy (SMA) see the impact of progressive muscle weakness day in and day out. In this episode, host Diana Castro, MD, speaks with Amy, mother to 16-year-old Mckenna; Kevin, father to 10-year-old Bear; and Soraya, a professional caregiver to 23-year-old Lyza, about the remaining unmet needs in SMA, and their hopes for more.

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In this episode, host Diana Castro, MD, discusses the interdependence between specialties in multidisciplinary care for spinal muscular atrophy (SMA). She is joined by Timothy Estilow, OTR/L, an occupational therapist, and Jason Howard, MD, a pediatric orthopedic surgeon, to discuss how they and their colleagues work together to pursue the best outcomes, including issues relating to muscle strength, for those living with SMA.

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New research approaches in spinal muscular atrophy (SMA) are now targeting muscle. In this episode, host Diana Castro, MD, discusses myostatin—a new potential target in SMA. She is joined by Jena Krueger, MD, a pediatric neurologist, and Leslie Cortes, PhD, and Adam Fogel, PhD, researchers from Scholar Rock, to talk about what myostatin is, why it matters in muscle, and why it’s such an important focus for future developments in SMA.

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In this episode, host Diana Castro, MD, of the Neurology & Neuromuscular Care Center discusses the role of physical therapists in the care of patients with spinal muscular atrophy (SMA). She is joined by Jacqueline Montes and Ralph Rodriguez-Torres, physical therapists and colleagues at Columbia University, for their perspectives on how progressive muscle weakness impacts people living with SMA. 

Learn more at www.LifeTakesMuscle.com