Life's a Polyp Foundation

Jenny talks with 5 other FAP advocates about their advocacy efforts for FAP range from ages 9 to 60s, what led them into advocacy, and how it's impacted their lives.

Advocates featured with Jenny: Kevin Myers, Michael Caprio, Rebecca and Ryan Baker, Ann Lamphere

Michael Caprio's FAP Experience Book A Bump in the Road: My Medical Journey over Potholes, Detours and the Bridge to Gratitudehttps://a.co/d/0aAgefYI

Ann Lamphere's Rare Disease Children's Book:

Pebbles' Golden Stripes: A Story of Uniqueness, Friendship, and Rare Disease Dayhttps://a.co/d/0677lJ3c

Jenny's FAP Children's Book

Life's a Polyp: with Zeke and Katie https://a.co/d/02eetaHy

Life's a Polyp Foundation is a nonprofit 501(c)3 that works to empower individuals living with Familial Adenomatous Polyposis through education, advocacy, and community building, ensuring every patient has the tools to navigate their health with confidence and support research for new treatment options.

Through this we aim to create a world where a rare disease diagnosis is met with immediate support and specialized resources, ultimately funding the research necessary to improve the quality of life for future generations.

A Daughter's Love Podcast is housed under Life's a Polyp Foundation. In it, Jenny and Amy heal grief through storytelling and exploring cancer, caregiving, and more.

Find more at www.LifesaPolyp.org and @LifesaPolyp across Social Media Platforms

#LifesaPolyp #FamilialAdenomatousPolyposis #RareDisease #ShortBowelSyndrome #FamilialPolyposis #Coloncancer #ColorectalCancer #HereditaryCancer #AttenuatedFAP #FAP #AFAP #Nonprofit #Podcast #Chronicillness #Cancer #Panel #Advocacy

Jenny shares what she learned in a CBT-CP Seminar for improving quality of life with chronic pain.

Jenny shares how her understanding of her mom changes when she became a caregiver to her mother and what the last years were like.

Jenny shares about her experience developing and living with Post Concussion Syndrome

Jenny shares an in-depth view of how we can use our hardships to build our resiliency from our own inner strength.

Jenny shares her sponsored review and her family's reviews of the Comyftemp Weighted Heated Vest.

Jenny shares 3 self-care habits that one can start today to for beginning a self-care routine for the betterment of physical and mental well-being.

Jenny discusses ways of changing perspective for well-being betterment.

La Mémoire Noire or The Dark Memory is a letter series written to Jenny's first surgeon. The man who caused everything ultimately in my life to reach this point today. I was to have 2 surgeries beginning at the age of 9 and his surgical errors altered the course of my life. Ultimately, I instead would require 7 surgeries and experience repeated life-threatening complications resulting in medical PTSD, suicidal and homicidal ideation. This is trauma I am still trying to heal from nearly 30 years later that has touched every aspect of my life and how I react, view, and process the world. As part of my therapeutic efforts to heal, I am writing this series to him. It is my raw, unedited thoughts and feelings towards this man and all that transpired following my first surgery that he performed. It will be a series that is periodically updated as I process each letter, my trauma, and continue inching towards healing embodying full love and forgiveness for myself and others.

Jenny shares in her latest blog post what the last two years have been like for her and through it all, why she says she’s living her best life