A candid conversation with Amy about discovering lipedema after weight loss, navigating confusing providers, and finally finding the right care that led to life-changing surgery and symptom relief.

She shares the emotional impact of diagnosis, struggles with chronic dieting and eating disorders, lessons in body positivity for her daughters, and the importance of community and accessible treatment.

In this episode of Lipedema Stories, hosts Lisa, Janine, and Janae talk with Angela about how she discovered lipedema after breast cancer treatment, her path to diagnosis, and the life-changing surgeries and manual lymphatic drainage (MLD) that followed. They discuss the role of fibrosis, conservative treatments, compression, and the emotional impact of living with lipedema.

Angela shares practical recovery experiences, how surgery improved symptoms like GERD and mobility, and how reclaiming her body allowed her to return to work and life activities. The conversation blends medical insights, advocacy for better physician awareness, and candid personal moments — including the simple joy of finally being able to "eat the damn cake."

This episode opens with a brief research moment on the origins of Lipedema and then follows Emily’s personal journey: discovering her diagnosis via social media, years of misdiagnosis and struggle, and finally receiving a stage 4 diagnosis.

Emily describes the emotional aftermath, the relief and grief, her surgical recovery and physical improvements, the deep support from her husband, and the healing power of community as she adjusts to a new normal.

In this episode of Lipedema Stories, hosts Janine and Lisa welcome their friend Diana to share her path to a formal lipedema diagnosis after years of unexplained leg and back pain, heavy ankles, and frustrating weight changes.

They discuss recent research linking Ehlers-Danlos and lipedema, Diana’s daily walking routine that helps with pain, the limits of conservative care, insurance barriers, and her multi-stage surgical plan to regain mobility. The conversation also touches on family genetics, body image, and emotional resilience.

In this episode of Lipoedema Stories Podcast, the hosts discuss recent research linking lipedema and fibromyalgia and welcome 25-year-old Annalise to share her personal journey.

Annalise describes early symptoms, failed weight-loss attempts despite intense training, conservative care like compression, MLD and pump therapy, challenges with insurance, and her decision to pursue surgery with compassionate providers.

The conversation highlights emotional relief at receiving a diagnosis, practical tips for self-care, and a message of hope and community for others living with lipedema.

Join Lisa, Janine and Jenae as we get to know Lauri and hear her Lipedema story.  Lauri shares how she first noticed her symptoms in her teenage years and how she's sought treatment into her 70's.  Lauri shares the struggles and the strengths she's had through Lipedema and shares some funny stories along the way.

In this episode the lippy lymph ladies present a research moment suggesting radiographic evidence of lymphatic involvement in all women with lipedema, then Teresa shares her personal journey from misdiagnosis to multiple surgeries and meaningful symptom relief.

The conversation covers conservative care, insurance advocacy (SPDs, ERISA, single-case agreements), appeals tips, post-op improvements in pain and mobility, and practical emotional support for patients and their families.

Join Lisa, Janine and Jenae as we share our own stories with Lipedema and Lymphedema.  

Welcome to "Lipedema Stories," a podcast dedicated to exploring the personal journeys of women living with lipedema. Join hosts Lisa, Janine, and Janae, also known as the Lippy Lymph Ladies, as they introduce themselves and reveal the motivation behind the podcast. As trained MLD therapists, these women have a wealth of experience in supporting those with lipedema and lymphedema, shedding light on both surgical and non-surgical treatments.

In this premiere episode, the hosts share their backgrounds and motivations, offering listeners a glimpse into their lives and experiences. They discuss the challenges faced by lipedema patients, including the lengthy journey to diagnosis and the emotional toll of the condition. The Lippy Lymph Ladies encourage the sharing of lipoedema stories, emphasizing the importance of community and connection in managing this lifelong condition.

Listeners are invited to join the conversation, share their stories, and engage with the hosts through email and social media. Tune in to hear more about the realities of lipoedema, the latest research, and the support available within the community.