Living with Crohn's Disease

In this episode, Joe updates everyone on the test results of his MRI and colonoscopy.   Will there be surgery?  He also shares his experience with skin cancer surgery and how he is handling it. 

#crohns #ibd #crohnsdisease #colitis #crohnswarrior #ibdwarrior #ostomy #crohnsawareness #ulcerativecolitis #ibdawareness #ileostomy #crohnsfighter  #crohnsandcolitis  #chronicillness #invisibleillness #autoimmunedisease #inflammatoryboweldisease #ibs #spoonie #stoma #remission #crohnssucks #colitiswarrior #entyvio #colitisawareness #infusion #staystrong #bhfyp #crohnslife #livingwithcrohns #purplestong #colonscopy #skincancer #skincancersurgery #skyrizi

In episode 21, Joe give an update on his recovery and how he is trying to take positive steps.  He talks about his walks at different distances each day and talks about his tests that are coming up for him.  Joe also gives advice on how to talk to doctors when you are in the hospital and seeing different doctors every week.  He shares one thing he is having problems with mentally throughout this whole process.

#crohns #ibd #crohnsdisease #colitis #crohnswarrior #ibdwarrior #ostomy #crohnsawareness #ulcerativecolitis #ibdawareness #ileostomy #crohnsfighter  #crohnsandcolitis  #chronicillness #invisibleillness #autoimmunedisease #inflammatoryboweldisease #ibs #spoonie #stoma #remission #crohnssucks #colitiswarrior #entyvio #colitisawareness #infusion #staystrong #bhfyp #crohnslife #livingwithcrohns #purplestong #colonscopy

Since July 21, Joe has been in the hospital with bleeding bowel movements.  But they haven't found where it was coming from for a long time.  The doctors going through all different kinds of situations to treat what is going on because they can't pinpoint where it was coming from and surgery being the last option.  Joe shares his story of what he went through that has ended up being 101 days in the hospital and 68 blood transfusions this year....so far.

#crohns #ibd #crohnsdisease #colitis #crohnswarrior #ibdwarrior #ostomy #crohnsawareness #ulcerativecolitis #ibdawareness #ileostomy #crohnsfighter  #crohnsandcolitis  #chronicillness #invisibleillness #autoimmunedisease #inflammatoryboweldisease #ibs #spoonie #stoma #remission #crohnssucks #colitiswarrior #entyvio #colitisawareness #infusion #staystrong #bhfyp #crohnslife #livingwithcrohns #purplestong #colonscopy

Joe talks about how it feels to go through a flare up and going to the Emergency room.  He also talks about what to take with you when going to the hospital because it might night be just a one day visit.  Joe talks about prepping and being ready and have a list of what to take with you.

Any questions or comments contact Joe:  [email protected]

#crohns #ibd #crohnsdisease #colitis #crohnswarrior #ibdwarrior #ostomy #crohnsawareness #ulcerativecolitis #ibdawareness #ileostomy #crohnsfighter  #crohnsandcolitis  #chronicillness #invisibleillness #autoimmunedisease #inflammatoryboweldisease #ibs #spoonie #stoma #remission #crohnssucks #colitiswarrior #entyvio #colitisawareness #infusion #staystrong #bhfyp #crohnslife #livingwithcrohns #purplestong #colonscopy#ostomybag #jpbulb #fistulas #bloodtransfusions #iron #ironinfusions

Joe talks about how he has been doing for the last month from walking to hoping not to see blood when he empty his ostomy bag.  He talks about having another blood transfusion (#75 and #76 for the year) and what is coming up next for him with tests and doctors.  He hopes to one day travel and talk at Crohn's conventions, to give a patients point of view and not just doctors.  Have a happy holiday everyone!!

Any questions or comments you can email Joe:   [email protected]

#crohns #ibd #crohnsdisease #colitis #crohnswarrior #ibdwarrior #ostomy #crohnsawareness #ulcerativecolitis #ibdawareness #ileostomy #crohnsfighter  #crohnsandcolitis  #chronicillness #invisibleillness #autoimmunedisease #inflammatoryboweldisease #ibs #spoonie #stoma #remission #crohnssucks #colitiswarrior #entyvio #colitisawareness #infusion #staystrong #bhfyp #crohnslife #livingwithcrohns #purplestong #colonscopy#ostomybag #jpbulb #fistulas #bloodtransfusions #iron #ironinfusions

Joe is reposting his first episode to help people on what it is like to go through all the tests and being diagnosed with Crohn's.  He shows what it was like for him learning about this disease and how it could effect everyday life.  Leading up to his first surgery.  

#crohns #ibd #crohnsdisease #colitis #crohnswarrior #ibdwarrior #ostomy #crohnsawareness #ulcerativecolitis #ibdawareness #ileostomy #crohnsfighter  #crohnsandcolitis  #chronicillness #invisibleillness #autoimmunedisease #inflammatoryboweldisease #ibs #spoonie #stoma #remission #crohnssucks #colitiswarrior #entyvio #colitisawareness #infusion #staystrong #bhfyp #crohnslife #livingwithcrohns #purplestong #colonscopy#ostomybag #jpbulb #fistulas #bloodtransfusions #iron #ironinfusions

Joe talks about his road to recovery after some time in the hospital.  He talks about ways he stays positive and tries to be happy about the little things.

#crohns #ibd #crohnsdisease #colitis #crohnswarrior #ibdwarrior #ostomy #crohnsawareness #ulcerativecolitis #ibdawareness #ileostomy #crohnsfighter  #crohnsandcolitis  #chronicillness #invisibleillness #autoimmunedisease #inflammatoryboweldisease #ibs #spoonie #stoma #remission #crohnssucks #colitiswarrior #entyvio #colitisawareness #infusion #staystrong #bhfyp #crohnslife #livingwithcrohns #purplestong #colonscopy#ostomybag #jpbulb #fistulas #bloodtransfusions #iron #ironinfusions

Joe talks about his life with the ostomy bag and how seeing blood in the bag 5 nights in a row scared him to where he tried everything not to go back to the ER.  He came up with solutions on how he dealt with it and tries to stay on top of things, to prevent it from going further than 3-5 hours long.  

#crohns #ibd #crohnsdisease #colitis #crohnswarrior #ibdwarrior #ostomy #crohnsawareness #ulcerativecolitis #ibdawareness #ileostomy #crohnsfighter  #crohnsandcolitis  #chronicillness #invisibleillness #autoimmunedisease #inflammatoryboweldisease #ibs #spoonie #stoma #remission #crohnssucks #colitiswarrior #entyvio #colitisawareness #infusion #staystrong #bhfyp #crohnslife #livingwithcrohns #purplestong #colonscopy#ostomybag #jpbulb #fistulas #bloodtransfusions #iron #ironinfusions

Joe talks about his visits to the hospital after seeing blood is his ostomy bag and how scary it was for him.  He also talks about all the different doctors that see him in the hospital and how to communicate with them and yet making sure that the Crohn's doctor and/or surgeon is still in charge of everything going on and not just the doctor's who show up at your bedside.  Communication with nurses and doctors are very important and Joe discusses how to make sure you know what is going on and who is the leader of your care.  108 days in the hospital and 74 blood transfusions this year.

#crohns #ibd #crohnsdisease #colitis #crohnswarrior #ibdwarrior #ostomy #crohnsawareness #ulcerativecolitis #ibdawareness #ileostomy #crohnsfighter  #crohnsandcolitis  #chronicillness #invisibleillness #autoimmunedisease #inflammatoryboweldisease #ibs #spoonie #stoma #remission #crohnssucks #colitiswarrior #entyvio #colitisawareness #infusion #staystrong #bhfyp #crohnslife #livingwithcrohns #purplestong #colonscopy

Since July 21, Joe has been in the hospital with bleeding bowel movements.  But they haven't found where it was coming from for a long time.  The doctors going through all different kinds of situations to treat what is going on because they can't pinpoint where it was coming from and surgery being the last option.  Joe shares his story of what he went through that has ended up being 101 days in the hospital and 68 blood transfusions this year....so far.

#crohns #ibd #crohnsdisease #colitis #crohnswarrior #ibdwarrior #ostomy #crohnsawareness #ulcerativecolitis #ibdawareness #ileostomy #crohnsfighter  #crohnsandcolitis  #chronicillness #invisibleillness #autoimmunedisease #inflammatoryboweldisease #ibs #spoonie #stoma #remission #crohnssucks #colitiswarrior #entyvio #colitisawareness #infusion #staystrong #bhfyp #crohnslife #livingwithcrohns #purplestong #colonscopy