Mindful Inspiration Champion

Living with GAND - Ep. 70


Listen Later

To support individuals and families affected by GATAD2B-associated neurodevelopmental disorder (GAND), to increase awareness, and to work toward research and treatment opportunities to enrich the lives of those with this rare genetic condition.

HHFG desires to help GAND families better understand this disorder and connect with other GAND families online, in their local areas when able, and at the biennial GAND Gathering & Scientific Conference.

HHFG aims to raise awareness of GAND among the general population as well as medical and support professionals. Most doctors, therapists, and teachers have never seen a case of GAND and have not likely even heard of it.

HHFG seeks to increase research and treatment opportunities for the GAND community through establishing a patient registry and by facilitating and potentially funding worthwhile studies.

Tammy Ruh, is currently a registered dental hygienist of 12 years.  She is also a travel agent who specializes in working with special needs families. At 2 years of age, Tammy’s son was diagnosed in 2016 with a pathogenic variant in the GATAD2B gene. 

Since then, Tammy has been an active member of the GAND community & currently serves as Vice President, striving to connect with families and support Helping Hands for GAND in various ways.

She has a passion for helping improve the lives of not only those with GAND, but all those affected by a disability. She lives in Wisconsin with her husband Donovan and 2 children (Hudson & Madison).


My Guest - Tammy Ruh - Vice President - Helping Hands for GAND


Connect with Helping Hands for GAND

Website: https://www.gatad2b.org/

Facebook: https://www.facebook.com/GATAD2B

YouTube: https://www.youtube.com/channel/UCYL5WGB45CtqtyFhpc_yvkg

Instagram: https://www.instagram.com/gatad2b/


Connect with the Mindful Inspiration Champion

Website: https://www.themindfulchampion.com

Facebook: https://www.facebook.com/themindfulchampion

Instagram: https://www.instagram.com/mindfulchampion/


Follow My Daughter Aria

Facebook: https://www.facebook.com/ariasarmy

GoFundMe: https://gofund.me/5e2f5fb4


Tune In to the Mindful Inspiration Podcast

YouTube: https://www.youtube.com/channel/UCmQ0RoJXlPh9flty9Zds5Kg

Spotify: https://open.spotify.com/show/0nUrUnETqKQKGXJvLbkTck

Apple Podcasts: https://podcasts.apple.com/tw/podcast/mindful-inspiration-champion/id1566268734?l=en

Stitcher: https://www.stitcher.com/show/mindful-inspiration-champion

Google Podcasts: https://podcasts.google.com/feed/aHR0cHM6Ly9mZWVkcy5yZWRjaXJjbGUuY29tLzk0MzhiMzFiLWFhZDgtNDIwMC1iMmFjLWFjZDAxMjE4YWJmYg?hl=en

...more
View all episodesView all episodes
Download on the App Store

Mindful Inspiration ChampionBy Matt Faler