By Matt Faler
The Mindful Inspiration Champion podcast is dedicated to providing inspiration to you to create mindful resources through a wealth of advocacy, knowledge, and community.
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The podcast currently has 70 episodes available.
Greg Grunberg is best known for his role as X-wing pilot Snap Wexley in “STAR WARS”, as well as “STAR TREK”, “A STAR IS BORN” and alongside Al Pacino in the Barry Levinson film ‘PATERNO.’ In addition to his many memorable series regular roles on shows “HEROES”, “CASTLE ROCK”, “LOST”, “ALIAS” and “FELICITY”.
But what a lot of folks don't know is Greg's son Jake lives with Epilepsy. Greg is a huge advocate for those with Epilepsy! Greg is also an advocate for those who are caregivers.
Currently Grunberg stars alongside Kevin Smith in the cult classic “MAX RELOAD & THE NETHER BLASTERS” as well as the much beloved “BIG ASS SPIDER”.
Greg has written pilots & films and co-wrote the graphic novel series “DREAM JUMPER” for Scholastic. Book 2 is available everywhere now.
Grunberg hosted and produced alongside Kevin Smith the pop-culture talk show “GEEKING OUT” for AMC and currently is a staple on the popular gameshow “25 WORDS OR LESS”.
He has a few podcasts “TALK ABOUT IT”, “VESTED INTEREST”, & “AN ACTOR, COMEDIAN & A MUSICIAN WALK INTO A BAR”. Currently he is shooting his popular YouTube series “THE CAREGIVER“ for the Epilepsy community.
As a drummer, Grunberg started his celebrity rock band “THE ACTION FIGURES“ (TheActionFiguresBand.com) with fellow actors Jesse Spencer, Adrian Pasdar, Jack Coleman, and Scott Grimes benefiting TalkAboutIt.org, his foundation to raise awareness for people with Epilepsy as his eldest son has the condition.
Grunberg has been voted one of the most interesting actors to follow on Twitter & IG.
My Guest - Greg Grunberg
Connect with Greg
Talk About it - https://talkaboutit.org/
Talk About it Podcast - https://talkaboutit.org/epilepsy/podcast
The Caregiver Series - http://www.thecaregiverseries.com
Connect with the Mindful Inspiration Champion
Website: https://www.themindfulchampion.com
Facebook: https://www.facebook.com/themindfulchampion
Instagram: https://www.instagram.com/mindfulchampion/
Follow My Daughter Aria
Facebook: https://www.facebook.com/ariasarmy
GoFundMe: https://gofund.me/5e2f5fb4
Tune In to the Mindful Inspiration Podcast
YouTube: https://www.youtube.com/channel/UCmQ0RoJXlPh9flty9Zds5Kg
Spotify: https://open.spotify.com/show/0nUrUnETqKQKGXJvLbkTck
Apple Podcasts: https://podcasts.apple.com/tw/podcast/mindful-inspiration-champion/id1566268734?l=en
Stitcher: https://www.stitcher.com/show/mindful-inspiration-champion
Google Podcasts: https://podcasts.google.com/feed/aHR0cHM6Ly9mZWVkcy5yZWRjaXJjbGUuY29tLzk0MzhiMzFiLWFhZDgtNDIwMC1iMmFjLWFjZDAxMjE4YWJmYg?hl=en
Mike comes from a career in public policy, international development and strategy. Previous roles have included establishing a new program at New America, a DC think tank, Budget & Planning at both the Gates Foundation & Emerson Collective, healthcare consulting at BCG, developing world university support for the World Bank Group, managing a refugee program for the International Catholic Migration Commission in Zimbabwe, and teaching math in Peace Corps Namibia.
Graglia has an MBA from Columbia where he was a Bronfman Fellow, an MA from Johns Hopkins School of Advanced International Studies where he was a Soros Fellow, and a BS in mathematics from Gonzaga University, S.J.
Graglia lives with his wife Ashley & two sons in Palo Alto, California.
About SRF
Michael Graglia’s son Tony was diagnosed with SYNGAP1 in 2018, he was 4. Together with his wife, Ashley Evans, he founded the SynGAP Research Fund, 501c3, to accelerate the science around SYNGAP1 in order to make sure there is a therapy developed in a time frame that matters for his son, and children like him. SRF expects to have granted over $3M to scientific labs by the end of 2022.
There are over 1,055 cases of Syngap globally, we are aware of ~330 cases in the USA. SYNGAP1 is a disease that has multiple symptoms.
Our children present with epilepsy, autism, intellectual disability, sleep disorder, & numerous other symptoms. SynGAP patients are disabled for life requiring huge investments from society & sacrifices from their families.
The patients are often on a range of medications for epilepsy, sleep & other symptoms.
The disease results from spontaneous (not inherited) mutations on the critical neurological gene, SYNGAP1. We all have two copies of every gene, one from each parent. As a result of the mutation causing one of those genes to be unable to make the associated protein our patients only have 50% of the necessary SynGAP protein. It is the lack of this protein that causes this disease and all their symptoms.
SRF has multiple programs to serve patients and their families:
* We have a patient ambassador program to support newly diagnosed families.
* We engage with scientists via grants, conferences and our Webinar series.
* We are rolling out a cutting edge medical records-based digital natural history study on September 1st, 2020 in partnership with Citizen.
* SRF has a Scientific Advisory Board that includes a number of leading scientists and leaders in the genetic epilepsy space.
SRF is governed by a board of twelve different families of affected individuals.
Connect with SYGNAP1 Research Fund
Website: https://www.syngapresearchfund.org/
Facebook: https://www.facebook.com/cureSYNGAP1
Instagram: https://www.instagram.com/curesyngap1/
Twitter: https://twitter.com/cureSYNGAP1
Youtube: https://www.youtube.com/c/CureSYNGAP1/featured
LinkedIn: https://www.linkedin.com/company/curesyngap1/
Amazon Smile: https://smile.amazon.com/?ref_=smi_ge_switch_cust
Tik Tok: https://www.tiktok.com/@curesyngap1?
Connect with the Mindful Inspiration Champion
Website: https://www.themindfulchampion.com
Facebook: https://www.facebook.com/themindfulchampion
Instagram: https://www.instagram.com/mindfulchampion/
Follow My Daughter Aria
Facebook: https://www.facebook.com/ariasarmy
GoFundMe: https://gofund.me/5e2f5fb4
Tune In to the Mindful Inspiration Podcast
YouTube: https://www.youtube.com/channel/UCmQ0RoJXlPh9flty9Zds5Kg
Spotify: https://open.spotify.com/show/0nUrUnETqKQKGXJvLbkTck
Apple Podcasts: https://podcasts.apple.com/tw/podcast/mindful-inspiration-champion/id1566268734?l=en
Stitcher: https://www.stitcher.com/show/mindful-inspiration-champion
Google Podcasts: https://podcasts.google.com/feed/aHR0cHM6Ly9mZWVkcy5yZWRjaXJjbGUuY29tLzk0MzhiMzFiLWFhZDgtNDIwMC1iMmFjLWFjZDAxMjE4YWJmYg?hl=en
Project Linus National Headquarters is located in Belton, Missouri. National President Patty Gregory and Vice President Mary Balagna direct and orchestrate the activities of Project Linus chapters located across the United States. Patty has been involved with the organization in the Kansas City area since April 2000 and Mary in Central Illinois since late 1998, as chapter coordinators and now as directors and officers. Mary also maintains a very busy chapter, donating an average of 350 blankets every month to local children. With chapters in all 50 states, Project Linus continues to grow. Blankets are collected locally and distributed to children in hospitals, shelters, social service agencies, or anywhere that a child might be in need of a big hug.
PATTY GREGORY
President/Chief Executive OfficerPatty has been an active participant and supporter of Project Linus for many years and has served as the Chapter Coordinator for the greater Kansas City area since April 2000. She brings additional skills from previous employment experiences in managerial and customer service positions as well as many years of leadership service in community organizations.
Patty was the recipient of the Victor Spies Foundation volunteer manager of the year award in 2003 and a Community Service award from Children’s Mercy Hospital in 2010. Before taking on this position, she owned and operated her own successful small business in the Kansas City area. She enjoys the avid support of her husband, John, in her new role. Patty is mom to Lindsey and Joseph and grandma to Brayden, Jaxon, and Aubrie.
Patty has currently been the President and CEO for 5 years. Her 5th year anniversary on the job was actually August 8th.
My Guest - Patty Gregory - Project Linus
Connection with Project Linus:
Website: https://www.projectlinus.org/
Facebook: https://www.facebook.com/projectlinus
Instagram: https://www.instagram.com/project.linus.official
YouTube: https://www.youtube.com/user/ProjectLinusHQ
Connect with the Mindful Inspiration Champion
Website: https://www.themindfulchampion.com
Facebook: https://www.facebook.com/themindfulchampion
Instagram: https://www.instagram.com/mindfulchampion/
Follow My Daughter Aria
Facebook: https://www.facebook.com/ariasarmy
GoFundMe: https://gofund.me/5e2f5fb4
Tune In to the Mindful Inspiration Podcast
YouTube: https://www.youtube.com/channel/UCmQ0RoJXlPh9flty9Zds5Kg
Spotify: https://open.spotify.com/show/0nUrUnETqKQKGXJvLbkTck
Apple Podcasts: https://podcasts.apple.com/tw/podcast/mindful-inspiration-champion/id1566268734?l=en
Stitcher: https://www.stitcher.com/show/mindful-inspiration-champion
Google Podcasts: https://podcasts.google.com/feed/aHR0cHM6Ly9mZWVkcy5yZWRjaXJjbGUuY29tLzk0MzhiMzFiLWFhZDgtNDIwMC1iMmFjLWFjZDAxMjE4YWJmYg?hl=en
CHAP brings the Healing Power of Art to children and families facing medical challenges.
At CHAP, children are known for their creativity and ingenuity — not by their disease, diagnosis or disability.
Our innovative and inclusive healing arts programs are provided free of charge to children, teens and families affected by pediatric illness, disability or special need. CHAP provides Oregon’s only in-and-out of hospital interactive healing arts program for children facing any medical issue.
CELEBRATING 15 YEARS + 75,000 HEALING ART EXPERIENCES!
Faye Pendergrass, lives in a world where there is no separation between art and life, believing everyone is creative and it’s just a matter of finding one’s “voice.” Graduating from the University of Oregon’s Arts Administration program, Faye has created and developed award-winning art programs, festivals, art auctions, and activities reaching “kids of all ages.”
Working in a variety of roles for Oregon arts since 1985, Faye wholeheartedly says that working at CHAP is her favorite job to date. She goes home every day with a smile in her heart and glitter sparkling somewhere!
My Guest - Faye Pendergrass - Children's Healing Art Project Portland
Connect with CHAP PDX
Website: https://chappdx.org/
Facebook: https://www.facebook.com/ChildrensHealingArtProject
YouTube: https://www.youtube.com/channel/UC1IHV5LRD_vQwRMWYfwebhQ
Instagram: https://www.instagram.com/chappdx/
Connect with the Mindful Inspiration Champion
Website: https://www.themindfulchampion.com
Facebook: https://www.facebook.com/themindfulchampion
Instagram: https://www.instagram.com/mindfulchampion/
Follow My Daughter Aria
Facebook: https://www.facebook.com/ariasarmy
GoFundMe: https://gofund.me/5e2f5fb4
Tune In to the Mindful Inspiration Podcast
YouTube: https://www.youtube.com/channel/UCmQ0RoJXlPh9flty9Zds5Kg
Spotify: https://open.spotify.com/show/0nUrUnETqKQKGXJvLbkTck
Apple Podcasts: https://podcasts.apple.com/tw/podcast/mindful-inspiration-champion/id1566268734?l=en
Stitcher: https://www.stitcher.com/show/mindful-inspiration-champion
Google Podcasts: https://podcasts.google.com/feed/aHR0cHM6Ly9mZWVkcy5yZWRjaXJjbGUuY29tLzk0MzhiMzFiLWFhZDgtNDIwMC1iMmFjLWFjZDAxMjE4YWJmYg?hl=en
To support individuals and families affected by GATAD2B-associated neurodevelopmental disorder (GAND), to increase awareness, and to work toward research and treatment opportunities to enrich the lives of those with this rare genetic condition.
HHFG desires to help GAND families better understand this disorder and connect with other GAND families online, in their local areas when able, and at the biennial GAND Gathering & Scientific Conference.
HHFG aims to raise awareness of GAND among the general population as well as medical and support professionals. Most doctors, therapists, and teachers have never seen a case of GAND and have not likely even heard of it.
HHFG seeks to increase research and treatment opportunities for the GAND community through establishing a patient registry and by facilitating and potentially funding worthwhile studies.
Tammy Ruh, is currently a registered dental hygienist of 12 years. She is also a travel agent who specializes in working with special needs families. At 2 years of age, Tammy’s son was diagnosed in 2016 with a pathogenic variant in the GATAD2B gene.
Since then, Tammy has been an active member of the GAND community & currently serves as Vice President, striving to connect with families and support Helping Hands for GAND in various ways.
She has a passion for helping improve the lives of not only those with GAND, but all those affected by a disability. She lives in Wisconsin with her husband Donovan and 2 children (Hudson & Madison).
My Guest - Tammy Ruh - Vice President - Helping Hands for GAND
Connect with Helping Hands for GAND
Website: https://www.gatad2b.org/
Facebook: https://www.facebook.com/GATAD2B
YouTube: https://www.youtube.com/channel/UCYL5WGB45CtqtyFhpc_yvkg
Instagram: https://www.instagram.com/gatad2b/
Connect with the Mindful Inspiration Champion
Website: https://www.themindfulchampion.com
Facebook: https://www.facebook.com/themindfulchampion
Instagram: https://www.instagram.com/mindfulchampion/
Follow My Daughter Aria
Facebook: https://www.facebook.com/ariasarmy
GoFundMe: https://gofund.me/5e2f5fb4
Tune In to the Mindful Inspiration Podcast
YouTube: https://www.youtube.com/channel/UCmQ0RoJXlPh9flty9Zds5Kg
Spotify: https://open.spotify.com/show/0nUrUnETqKQKGXJvLbkTck
Apple Podcasts: https://podcasts.apple.com/tw/podcast/mindful-inspiration-champion/id1566268734?l=en
Stitcher: https://www.stitcher.com/show/mindful-inspiration-champion
Google Podcasts: https://podcasts.google.com/feed/aHR0cHM6Ly9mZWVkcy5yZWRjaXJjbGUuY29tLzk0MzhiMzFiLWFhZDgtNDIwMC1iMmFjLWFjZDAxMjE4YWJmYg?hl=en
The first part of the lives of Joe and Helen Hesketh were previously viewed here on Mindful Inspiration Champion.
A life style of being different began in high school in how they first met. Joe and Helen have now been married for 67 years and their story has some interesting twists and turns including parenting eight children.
Tune in and hear how life was in the 1950s during their four and a half years of dating days. There was humor in the first date. A hurtful Christmas present that can now be laughed at and being left alone with no transportation after everyone had left a friend’s wedding reception are only a few of the experiences.
A Priest once told them that they were each such independent people that he wondered why they were still together and also wondered how they could live together and still be happy and so joyful.
Their relationship story has have been featured on national and local television shows, radio news broadcasts and in numerous national and local publications. One headline read "Helen and Joe Hesketh, an unusual couple" , another read "Helen and Joe Hesketh, RSVP's Inimitable Volunteer Couple". Someone once tagged them as "Couple Power" and they adopted that as their logo.
My Guests - Joe & Helen Hesketh
Connect with the Mindful Inspiration Champion
Website: https://www.themindfulchampion.com
Facebook: https://www.facebook.com/themindfulchampion
Instagram: https://www.instagram.com/mindfulchampion/
Follow My Daughter Aria
Facebook: https://www.facebook.com/ariasarmy
GoFundMe: https://gofund.me/5e2f5fb4
Tune In to the Mindful Inspiration Podcast
YouTube: https://www.youtube.com/channel/UCmQ0RoJXlPh9flty9Zds5Kg
Spotify: https://open.spotify.com/show/0nUrUnETqKQKGXJvLbkTck
Apple Podcasts: https://podcasts.apple.com/tw/podcast/mindful-inspiration-champion/id1566268734?l=en
Stitcher: https://www.stitcher.com/show/mindful-inspiration-champion
Google Podcasts: https://podcasts.google.com/feed/aHR0cHM6Ly9mZWVkcy5yZWRjaXJjbGUuY29tLzk0MzhiMzFiLWFhZDgtNDIwMC1iMmFjLWFjZDAxMjE4YWJmYg?hl=en
We’re a tiny cape company with a super BIG mission
We’re out to change how the world sees the unique challenges that some kids face, and reveal the superpowers behind every difference. Where some see adversity, we see the Extraordinary.
The mission always comes first
TinySuperheroes is a socially conscious company that puts mission and community first. As a social enterprise, we’re committed to making a difference as part of our day-to-day operation.Our business is based on a pay-it-forward model. Here’s what that looks like for us:When you nominate a TinySuperhero or Sidekick for a cape, we make a personalized crowd-funding tool, and ask you to share it. $50 funds the cape, and any money raised over that helps other TinySuperheroes on the waitlist get a cape. Every person nominated gets a cape – no matter what. As of right now, about 30% of people will raise funds, but they raise enough to support 100% of the Squad!The Monthly Missions are a favorite of the TSH Squad. Free for every Super and Sidekick, Missions are primarily funded by Birthday Campaigns. Every $10 raised during a Birthday Campaign pays for a Monthly Mission for one Super or Sidekick.
Hi. I’m Robyn Rosenberger
In 2012, while making a few special capes as gifts for family and friends, I was reading about the journey of a sweet girl named Brenna who was born with a rare, severe skin condition. Seeing the courage and strength of Brenna and her family, I had an AHA moment—Brenna was a superhero! And she needed a cape!We sent Brenna her own cape, and within a few months, what began as a small hobby in our home in St. Louis, MO, grew into a movement. We began sending capes to kids all over the world to help empower them to see how truly powerful and courageous they are. Today, our Squad includes over 80,000 kids and their families across the globe.TinySuperheroes starts with a cape, but the journey doesn’t end there. We’re growing a community that lifts each other up and makes every TinySuperhero in the world feel strong, able, and proud of the qualities that make them Extraordinary. On behalf of the entire Squad, I hope you decide to join us.
My Guest - Robin Rosenberger - Founder: Tiny Super Heroes
Connect with Tiny Super Heroes
Website: https://tinysuperheroes.com/
Facebook: https://www.facebook.com/TinySuperheroes
YouTube: https://www.youtube.com/c/TinySuperheroes/videos
Instagram: https://www.instagram.com/tinysuperheroes/
Connect with the Mindful Inspiration Champion
Website: https://www.themindfulchampion.com
Facebook: https://www.facebook.com/themindfulchampion
Instagram: https://www.instagram.com/mindfulchampion/
Follow My Daughter Aria
Facebook: https://www.facebook.com/ariasarmy
GoFundMe: https://gofund.me/5e2f5fb4
Tune In to the Mindful Inspiration Podcast
YouTube: https://www.youtube.com/channel/UCmQ0RoJXlPh9flty9Zds5Kg
Spotify: https://open.spotify.com/show/0nUrUnETqKQKGXJvLbkTck
Apple Podcasts: https://podcasts.apple.com/tw/podcast/mindful-inspiration-champion/id1566268734?l=en
Stitcher: https://www.stitcher.com/show/mindful-inspiration-champion
Google Podcasts: https://podcasts.google.com/feed/aHR0cHM6Ly9mZWVkcy5yZWRjaXJjbGUuY29tLzk0MzhiMzFiLWFhZDgtNDIwMC1iMmFjLWFjZDAxMjE4YWJmYg?hl=en
Providing a caring, safe, spiritual and FUN camp experience for children whose lives are affected by HIV/AIDS
Founded in 1999, Camp Starlight is a week-long sleep-away summer camp for children in Oregon and Washington whose lives are affected by HIV/AIDS. Some of our campers are HIV+ themselves, while others have someone in their immediate family – a parent, a sibling, a care-taker – who is infected. Camp Starlight creates an environment of fun, friendship and support for these children to cast aside their shared worries and fears around HIV and to just be kids for a week.
“I feel good. I feel great, warm and not alone in a world that has been touched by HIV. I always have somebody my age or older to talk to. Those are my friends at camp.”
— camper, age 8
Campers enjoy the attention of a one-to-one ratio with an all-volunteer staff of counselors, activity specialists and medical personnel. Activities at Camp Starlight include swimming, hiking, arts and crafts, archery, music, talent shows, sports, games, campfires and more. Our children come to camp at no charge to their families. We supply healthy meals, swimsuits, towels, new and used clothing, shampoo – making sure every child has what he or she needs to feel at home and cared for while they are at camp. Our aim is to create a place where these children are given the space to be themselves and continue to discover who they are and who they want to be; a place where they can make friendships with both kids and adults that can last a lifetime; a place that makes a difference in their lives.
My Guest, Spike Huntington-Klein is an actor, artist, activist, and stay-at-home dad, living in Seattle with his husband and daughter. He is also the Program Director for Camp Starlight, a non-profit organization serving kids infected and affected by HIV/AIDS.
Camp Starlight
Website: http://camp-starlight.org/
Facebook: https://www.facebook.com/Camp-Starlight-377572642340385
YouTube: https://www.youtube.com/channel/UCeJxHhYAX1q4-UK_zmWrIqw
Connect with the Mindful Inspiration Champion
Website: https://www.themindfulchampion.com
Facebook: https://www.facebook.com/themindfulchampion
Instagram: https://www.instagram.com/mindfulchampion/
Follow My Daughter Aria
Facebook: https://www.facebook.com/ariasarmy
GoFundMe: https://gofund.me/5e2f5fb4
Tune In to the Mindful Inspiration Podcast
Spotify: https://open.spotify.com/show/0nUrUnETqKQKGXJvLbkTck
Apple Podcasts: https://podcasts.apple.com/tw/podcast/mindful-inspiration-champion/id1566268734?l=en
Stitcher: https://www.stitcher.com/show/mindful-inspiration-champion
Google Podcasts: https://podcasts.google.com/feed/aHR0cHM6Ly9mZWVkcy5yZWRjaXJjbGUuY29tLzk0MzhiMzFiLWFhZDgtNDIwMC1iMmFjLWFjZDAxMjE4YWJmYg?hl=en
The podcast currently has 70 episodes available.