This week, XLH Australia President Sandy Bevc and XLH Australia Vice President Naomi Ford speak with their mothers about their experiences parenting a child with a rare condition.
Topics discussed:
<ol>
<li>The journey to diagnosis</li>
<li>Parenting a child with a rare disease</li>
<li>Navigating healthcare and advocacy</li>
</ol>
Links mentioned in this episode:
www.xlhaustralia.com
<hr>
This podcast is hosted by <a href="https://wwww.zencast.fm">ZenCast.fm</a>

This week, XLH Australia President Sandy Bevc and XLH Australia Vice President Naomi Ford speak with their mothers about their experiences parenting a child with a rare condition. Topics discussed: The journey to diagnosis Parenting a child with a rare disease Navigating healthcare and advocacy Links mentioned in this episode: www.xlhaustralia.com This podcast is hosted by ZenCast.fm

This week, XLH Australia President Sandy Bevc and XLH Australia Vice President Naomi Ford speak with their mothers about their experiences parenting a child with a rare condition.
Topics discussed:
<ol>
<li>The journey to diagnosis</li>
<li>Parenting a child with a rare disease</li>
<li>Navigating healthcare and advocacy</li>
</ol>
Links mentioned in this episode:
www.xlhaustralia.com

This podcast is hosted by <a href="https://wwww.zencast.fm" rel="noopener noreferrer">ZenCast.fm</a>

Living with XLH: Parenting a child with a rare disease

Living with XLH explores the challenges and issues of navigating through a diagnosis of the rare, life-long condition, X-linked Hypophosphatemia (XLH). You'll hear from paediatric and adult XLH specialists, as well as from people living with XLH on their different patient perspectives from children, teenagers and adults, plus their family members.

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Living with XLH: Parenting a child with a rare disease

Living with XLH: Parenting a child with a rare disease