This week, Dr Jessica Sandy explores the full landscape of healthcare transition (HCT) in X‑linked Hypophosphataemia (XLH). Drawing on clinician surveys, international consensus guidelines, and emerging Australian research, Dr Sandy highlights current challenges including lack of structured processes, limited resources, and the mental health burden and presents key recommendations such as early preparation, joint transition clinics, transition coordinators, holistic assessments, and XLH‑specific resources.

Topics discussed:

Links mentioned in this episode:

This podcast is hosted by ZenCast.fm

This week,Associate Professor Mihiri Silva, speaks about the impact of XLH on teeth and oral health care.

A/Prof Silva speaks on preventing and managing dental impacts:

Links mentioned in this episode:

This podcast is hosted by ZenCast.fm

This week, Sandy and Naomi speak with Advanced Exercise Physiologist and Co-Chair International Clinical Exercise Physiology Network, Luke Snabaitis, about exercise as medicine.....

Topics discussed:

Links mentioned in this episode:

This podcast is hosted by ZenCast.fm

This week, Naomi and Sandy speak with Suzanne, Royce, Angela, Georgia and Eli--three generations, each with unique experiences and perspectives on life with XLH—and life as part of an XLH family!

Topics discussed:

Links mentioned in this episode:

This podcast is hosted by ZenCast.fm

This week, XLH Australia President Sandy Bevc and XLH Australia Vice President Naomi Ford speak with their mothers about their experiences parenting a child with a rare condition.

Topics discussed:

Links mentioned in this episode:

This podcast is hosted by ZenCast.fm

This week, XLH Australia President Sandy Bevc and Vice President Naomi Ford are joined by Prakalp Sudhakar who is the founder and chair of XLH India.

Topics discussed:

Links mentioned in this episode:

This podcast is hosted by ZenCast.fm