Living with XLH

By XLH Australia Inc.

Living with XLH explores the challenges and issues of navigating through a diagnosis of the rare, life-long condition, X-linked Hypophosphatemia (XLH). You'll hear from paediatric and adult XLH specia... more

· Medicine

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FAQs about Living with XLH:

How many episodes does Living with XLH have?

The podcast currently has 4 episodes available.

Living with XLH episodes:

March 28, 2025Living with XLH - Movement as Medicine
This week, Sandy and Naomi speak with Advanced Exercise Physiologist and Co-Chair International Clinical Exercise Physiology Network, Luke Snabaitis, about exercise as medicine.....
Topics discussed:
Benefits of movement
Guidelines for exercise
Movement for pain management
Maintaining muscle and connective tissue
Links mentioned in this episode:
www.xlhaustralia.com
www.xlhnetwork.org
This podcast is hosted by ZenCast.fm
...more
1h 2min
December 22, 2024Living with XLH: Three generations
This week, Naomi and Sandy speak with Suzanne, Royce, Angela, Georgia and Eli--three generations, each with unique experiences and perspectives on life with XLH—and life as part of an XLH family!
Topics discussed:
Growing up with XLH
Parenting a child with XLH
A child's perspective
Links mentioned in this episode:
www.xlhaustralia.com
This podcast is hosted by ZenCast.fm
...more
23min
November 23, 2024Living with XLH: Parenting a child with a rare disease
This week, XLH Australia President Sandy Bevc and XLH Australia Vice President Naomi Ford speak with their mothers about their experiences parenting a child with a rare condition.
Topics discussed:
The journey to diagnosis
Parenting a child with a rare disease
Navigating healthcare and advocacy
Links mentioned in this episode:
www.xlhaustralia.com
This podcast is hosted by ZenCast.fm
...more
38min
October 21, 2024Living with XLH: Experiences from XLH India
This week, XLH Australia President Sandy Bevc and Vice President Naomi Ford are joined by Prakalp Sudhakar who is the founder and chair of XLH India.
Topics discussed:
XLH journey as a spontaneous case
Living healthy
XLH India
Links mentioned in this episode:
http://xlhaustralia.com
http://xlhindia.org
This podcast is hosted by ZenCast.fm
...more
19min

FAQs about Living with XLH:

How many episodes does Living with XLH have?

The podcast currently has 4 episodes available.