Gareth Landy is our first person on the podcast from Ireland.  Gareth was diagnosed with Klinefelter syndrome while trying to start a family with his wife who also has multiple sclerosis.  He goes in-depth about how he received the gut-wrenching news from the doctor and going through the long and expensive process of sperm extraction via Micro-TESE.  After hitting a dead-end, Gareth remained positive.  With the help of a sperm donor, Gareth and his wife went thru 3 rounds of IVF before falling pregnant with twins.  He is proud to be Living With XXY and would do it all over again if he had to. He has biked the entire length of Ireland to raise money for kids with cancer and has ran 3 full marathons.    https://livingwithxxy.org/ 

Greg Brimhall found out at the age of 15 when his family decided to switch primary care doctors. After finding out his parents told him not to say anything or talk about his condition.  Two years later at 17, he ignored his parent's suggestion and learned self-acceptance. As life went on Greg pushed himself to learn more and better understand his own condition.  Greg has a very good perspective about living with Klinefelter syndrome. You can find Greg on Instagram @titan_o_terrror  Our website is www.livingwithxxy.org

Brandon age 36 found out about his diagnosis at the time of his engagement at 32 years old.  He had a work-related accident that gave him a hernia.  After the ultrasound tech noticed he had smaller testicles, he went thru testing to find out he had XXY.  Brandon talks about how he just feels like any other guy out there and how XXY has not held him back from living life.  They talk about their quest to enjoy life and adopt children when and if that time comes for them.  Danae offers some insight from a spouse's perspective.  This is our first couple on the show and we look forward to having many more.   

Dan Mooney was diagnosed with Klinefelter syndrome at the age of 19 when he had a hernia and his doctors noticed his testicle size was really small. After diagnosis and due to lack of information Dan continued to live his life.  At the age of 38, he realized his testosterone was under 200 and started injections once a week in his legs.  Dan talks about how testosterone has helped him with his mental health and being able to build muscle.  He resides in Oregon where he is a full-time graphic designer and runs his own marketing company.

https://www.mooney-marketing.com/

Instagram: mooneyinredmond

In our final episode of season 1, Carson talks about her son LJ and everything she had to do to get her son early intervention. Which would eventually lead to a Klinefelter syndrome/47 XXY diagnosis.  Carson started to notice her son's gross motor skill delay at 4 months and at 10 months old he had the gross motor skills of a 5-month-old. LJ just reached a huge milestone at 18 months on the day of this podcast recording. Carson talks in-depth about advocacy, awareness, and the reason she is speaking up about LJ's diagnosis.  

Michael Palumbo is an electroacoustic music improviser, teacher, and developer. His current activities include teaching how to make music and art with code, “Exit Points,” a monthly online concert series that streams on Twitch, and building a VR-based music synthesizer and programming environment called “Mischmasch” going towards part of his Ph.D. He performs regularly as a soloist and in ensembles under the pseudonym Thispatcher.

www.palumbomichael.com/teaching

https://thispatcher.bandcamp.com (Tracks forthcoming)

IG @palumbalumbo

All of his code: www.github.com/michaelpalumbo

Other links mentioned:

Donor Conception Canada https://dccanada.org/

Here we have Brett Jones and his mother April Jones talking to us about what it was like for Brett to get diagnosed in High School with Klinefelter syndrome.  April knew something was up when Brett was in the first grade.  She fought over the years and never gave up.  At 17 Brett was diagnosed with Klinefelter syndrome and after his 1st and 2nd shot of testosterone, his mom says "I finally got to meet my son, he was smiling, laughing and learning to enjoy life".  After many years of struggles, Brett started a career in welding and is now part of the union working in a government nuclear facility.  

Richard who was diagnosed with Klinefelter syndrome at the age of 16 is now 71 years old living an incredible life in the Pacific Northwest.  Richard started his career as a teenager delivering newspapers and working the night shift of a cleanup crew.  After graduating from a university with a degree in business he worked his way up the corporate ladder to become a member of the board of directors of a large company as well as their CFO.  He quit at the age of 52 to enjoy his life and concentrate on his fondness of stock investing and consulting.    Richard is the oldest person living with Klinefelter syndrome that Ryan has met to this day.   Richard and his spouse enjoy reading and international travel in their spare time. Being an avid investor Richard is proficient with technology and building spreadsheets to manage investments.  You can support our nonprofit organization at www.Livingwithxxy.org

Cresta is the mother of Cole who is 2 years old and was diagnosed with Klinefelter syndrome thru a NIPT (noninvasive prenatal testing).  Cresta has some incredible things to share about her pregnancy and has decided to change her career path to become a genetic counselor.  She wants to be able to provide more accurate information for our community and also provide more helpful information for her son. This is a podcast you do not want to miss!  www.livingwithxxy.org

Angela and David Heyde were blessed with a son 14 months ago.  Angela was 42 years old when her son Adam was born. They talk about receiving their sons Klinefelter syndrome diagnosis through a NIPT or (Non-Invasive Prenatal Testing). When faced with overwhelming emotions and their doctor knowing nothing about Klinefelter syndrome, they went to google looking for answers, only to find negative and outdated information.  They talk about overcoming the challenges they were faced, and Adams's bright future.  www.livingwithxxy.org