Long Covid Hope Podcast

In this episode, Sarah is joined by Mary Ladd, the creator and joint-publisher of The Long Covid Reader, a living history from the stories, essays, and poems of 45 long haulers. Mary describes her Long Covid experience and how her prior advocacy work as a breast cancer survivor gave her the idea for The Long Covid Reader. We discuss how it was developed and the community effort that brought it to reality. This episode is punctuated by extracts of the audio edition of The Long Covid Reader.

Did you know that the full video episode is available for our Patreon Members? Patreon members receive the full episode without any ads a whole week in advance, alongside many other member benefits including the Long Covid Hope Support monthly Zoom call. Check it out: ⁠https://www.patreon.com/c/LongCovidHope⁠

This episode is also infused with Reiki from Sarah. If you are interested and would like to accept the healing, simply state out loud that you welcome the healing energy. If not, never mind!

Links:

Long Covid Reader Website: https://www.maryladd.com/

Long Covid Reader on Amazon: https://www.amazon.com/Long-COVID-Reader-Writing-Haulers/dp/1735655384/

Long Covid Reader on YT Interview: https://www.youtube.com/watch?v=UZD2FcgOItA&ab_channel=GreenAppleBooks

Long Covid Reader on NPR: https://www.kqed.org/news/11968196/new-book-chronicles-life-of-those-living-with-long-covid

Disclaimer: please note that Sarah or any of the guests speaking on this podcast are not health professionals and this does not constitute medical advice. Always speak to your doctor before starting any new treatment or exercise programme.

In this episode, we speak with Lucy, a disability and mental health advocate, working in the charity sector. Lucy caught Covid in April 2020 and developed Long Covid with Chronic Fatigue Syndrome, which lasted nearly 3 years. She was house-bound for much of that time, couldn’t work for almost a year, and experienced multiple relapses. Now she is fully recovered and has been symptom-free for more than a year and back to working full time and renovating her house!

Did you know that the full video episode is available for our Patreon Members? Patreon members receive the full episode without any ads a whole week in advance, alongside many other member benefits including the Long Covid Hope Support monthly Zoom call. Check it out: ⁠https://www.patreon.com/c/LongCovidHope⁠

This episode is also infused with Reiki from Sarah. If you are interested and would like to accept the healing, simply state out loud that you welcome the healing energy. If not, never mind!

Long Covid SOS - Message in a Bottle: https://www.longcovidsos.org/film

Disclaimer: please note that Sarah or any of the guests speaking on this podcast are not health professionals and this does not constitute medical advice. Always speak to your doctor before starting any new treatment or exercise programme.

In this episode, Sarah is joined by Sita, known online as Mama Sita, a tireless and outspoken advocate and support of Long Haulers, and a founding member of the Long Covid Moonshot Movement. Sita developed Covid and Long Covid in the Summer of 2021, and describes how her condition developed rapidly into Dysautonomia, Mast Cell Activation (MCAS), exercise intolerance and more. Sita describes her process through her recovery journey and explains how reframing her perspective on her condition using radical acceptance and gratitude has been helpful to her. We discuss how the Long Covid Moonshot movement began and her experience advocating in Washington, and the advocacy landscape more generally. This is a great episode, check it out!

Did you know that the full video episode is available for our Patreon Members? Patreon members receive the full episode without any ads a whole week in advance, alongside many other member benefits including the Long Covid Hope Support monthly Zoom call. Check it out: ⁠https://www.patreon.com/c/LongCovidHope⁠

This episode is also infused with Reiki from Sarah. If you are interested and would like to accept the healing, simply state out loud that you welcome the healing energy. If not, never mind!

Links:

Sita on Instagram: https://www.instagram.com/mamasitaa__/

Long Covid Moonshot website: ⁠https://longcovidmoonshot.com/

Op-Ed in Nature by Lisa McCorkell & Michael J. Peluso: https://www.nature.com/articles/d41586-023-03225-w
NYT Article, 'Could Long Covid be the Senate's Bi-Partisan Cause?': https://www.nytimes.com/2024/02/18/opinion/long-covid-research-funding.html

Disclaimer: please note that Sarah or any of the guests speaking on this podcast are not health professionals and this does not constitute medical advice. Always speak to your doctor before starting any new treatment or exercise programme.

In this episode, Sarah speaks with Chris, known online as Chris GeoCK, who is a Geoscientist, cyclist and adventurer, side-lined by Covid in December 2021. Chris shares his story of how he got from very severe POTS symptoms along side many other LC symptoms, to the place where he feels 85-90% recovered (and continuing to improve - check out his recent Twitter posts for his cycling exploits!). We have a very wide ranging and information-rich conversation where Chris shares his experience with HBOT, the Nicotine Test experimental therapy and the Mind-Body connection. Chris actually credits "lose any fear or concern for his symptoms" as the biggest help in his recovery to date.

Did you know that the full video episode is available for our Patreon Members? Patreon members receive the full episode without any ads a whole week in advance, alongside many other member benefits including the Long Covid Hope Support monthly Zoom call. Check it out: https://www.patreon.com/c/LongCovidHope

Trigger warnings: suicide ideation, medical gaslighting

This episode is also infused with Reiki from Sarah. If you are interested and would like to accept the healing, simply state out loud that you welcome the healing energy. If not, never mind!

Links:

Chris on Twitter/X: https://x.com/GeoEduOne
Long Covid Physio - https://longcovid.physio
Workwell Foundation - https://workwellfoundation.org
Bateman Horne Center - https://batemanhornecenter.org
Gez Medinger - https://www.youtube.com/@RUNDMC1
Long Covid Podcast - https://www.longcovidpodcast.com
Canadian Consensus Criteria for ME/CFS - https://me-pedia.org/wiki/Canadian_Consensus_Criteria
Fiona Lowenstein’s Article - https://www.theguardian.com/commentisfree/2021/jun/21/long-covid-recovery-coronavirus
Jared Younger - https://www.youtube.com/watch?v=ZWWM6duVScE
Alex Howard's books:
https://www.amazon.co.uk/Why-Me-Journey-Health-Happiness/dp/1901447170
https://www.amazon.co.uk/Decode-Your-Fatigue-Clinically-Transform/dp/1788174593
Raelen Agle on Youtube - https://www.youtube.com/c/RaelanAgle
CFS Recovery on Youtube - https://www.youtube.com/channel/UCh610cYKG5yfXlTT8Se97Vg
The Nicotine Test links (experimental, approach with caution!): https://linktr.ee/thenicotinetest

Return to Sport Guidance (BMJ): https://bjsm.bmj.com/content/54/19/1174

Disclaimer: please note that Sarah or any of the guests speaking on this podcast are not health professionals and this does not constitute medical advice. Always speak to your doctor before starting any new treatment or exercise programme.

In this episode, Sarah speaks with Julia Claire Taylor, a professional opera singer living in New York City. Julia caught Covid and developed Long Covid in 2022, and we talk through her personal experience with Long Covid and how, fortunately for her, Julia has had access to a wealth of healthcare resources in New York, including the leading Mount Sinai Long Covid Clinic. Julia shares that while she is still on the recovery journey from Long Covid, there is plenty for her to be hopeful about!

This episode is also infused with Reiki from Sarah. If you are interested and would like to accept the healing, simply state out loud that you welcome the healing energy. If not, never mind!

Links:

Julia's website: https://www.juliaclairetaylor.com/story

Mount Sinai LC Clinic info: https://www.mountsinai.org/about/covid19/center-post-covid-care

Dr David Putrino 'Long Covid: What Can you Do?' video: https://www.youtube.com/watch?v=DUVa4jK-qho&ab_channel=TheLongCovidClinic%3AWhatYouCANDo

Disclaimer: please note that Sarah or any of the guests speaking on this podcast are not health professionals and this does not constitute medical advice. Always speak to your doctor before starting any new treatment or exercise programme.

In this episode, Sarah speaks with AK Davidson about her full recovery from Long Covid and about her wonderful poetry collection: Poetry for Life and Other Chronic Conditions: Short Poems from Long Covid. Anna shares about her Long Covid experience including Chronic Fatigue Syndrome, heart issues, and breathing difficulties. She shares about how brain retraining assisted in her recovery, and Sarah does ask some clarifying questions around the Lightning Process. Anna reads some poems from her book, which Sarah found to be uplifting and thought provoking in equal measure. Highly recommended! Enjoy!
This ad-free video is also infused with Reiki from Sarah. If you are interested and would like to accept the healing, simply state out loud that you welcome the healing energy. If not, never mind!
Links:
Anna's author website: https://therightword.co.uk/
Link to buy the book from all retailers: https://books2read.com/poetryforlife
Anna's Poetry account on Instagram: https://www.instagram.com/mondayispoetry/
Disclaimer: please note that Sarah or any of the guests speaking on this podcast are not health professionals and this does not constitute medical advice. Always speak to your doctor before starting any new treatment or exercise programme.

Let's start Season 3 with a bang with a very exciting guest!

In this episode, we have the wonderful and brilliant Dr Raven Baxter, aka Raven the Science Maven joining the Long Covid Hope Podcast. Raven talks about her full recovery from Long Covid, how it took a lot longer to cognitively than previously discussed and what she used to get herself back to where she was pre-Covid.

We talk about so many important issues, such as Raven's recent new job at Mount Sinai using her skills to help other long haulers as a health communicator, as well as the inequalities facing people of colour in healthcare.

Unfortunately, Raven was reinfected during this episode, but insisted on still appearing (and despite Sarah's many offers of rescheduling!) She is now back to full health, thankfully!

This episode is also infused with Reiki from Sarah. If you are interested and would like to accept the healing, simply state out loud that you welcome the healing energy. If not, never mind!

Links:
Dr Raven the Science Maven Website: https://thesciencemaven.com/
Dianna Cowern LiveStream (Physics Girl): https://www.youtube.com/watch?v=v8HWt9g4L0k
The Science of Life with Dr Raven Baxter podcast: https://open.spotify.com/show/5RHjAg8y7Jnr1Q7BadWCar
Dr Raven on Youtube: https://www.youtube.com/raventhesciencemaven

Elevate app: https://www.youtube.com/watch?v=DUVa4jK-qho&ab_channel=TheLongCovidClinic%3AWhatYouCANDo

Disclaimer: please note that Sarah or any of the guests speaking on this podcast are not health professionals and this does not constitute medical advice. Always speak to your doctor before starting any new treatment or exercise programme.

Season 3 is finally here!! Welcome to Season 3 of the Long Covid Hope Podcast, the podcast that shares the more hopeful stories of those with Long Covid.

In this episode, Sarah the Long Haul Yogi and your Host of the Pod welcomes you back to the show and introduces Season 3 and the guests that will be appearing. Sarah shares the events that have unfolded since Season 2 which have made her hopeful for long haulers, as well as how things have been going personally with her own reinfection and re-recovery.

If this podcast is important to you, please consider supporting the show by becoming a Patreon member. Not only do you receive great things like the full video of each episode and no advertising, there are many member benefits available - as well as the biggest benefit of all - helping Sarah in her quest towards weekly episodes year-round. Check out the Patreon for more info: https://www.patreon.com/LongCovidHope

This episode is infused with Reiki from Sarah. If you are interested and would like to accept the healing, simply state out loud that you welcome the healing energy. If not, never mind!

Links:

Long Covid Hope Podcast Patreon Page: https://www.patreon.com/LongCovidHope

Sarah the Long Haul Yogi's weekly Zoom yoga class: www.learnitlive.com/longhaulyogi

Sarah the Long Haul Yogi's OnDemand Yoga and Reiki: longhaulyogi.subkit.com

Bernie Sanders bill 'The Long covid moonshot act' - $10 billion in funding for research over 10 years: https://www.covidhealth.com/article/sen-bernie-sanders-introduces-10-billion-long-covid-moonshot-legislation-support-research-healthcare-education
Long Covid Moonshot: https://longcovidmoonshot.com/

Unite to Fight Conference 2024: https://unitetofight2024.world/.

Unite to Fight Sessions on Youtube: https://www.youtube.com/@UniteToFight2024
Not Recovered Banner Campaign: https://www.notrecovereduk.org
Chimi Sweeney of the Black Long Covid Experience - the Teal Reveal Prom Celebration event. Black and Unbelieved Film: https://www.chimereladawn.com/about
Renegade research / Nicotine Test: https://linktr.ee/thenicotinetest
Disclaimer: please note that Sarah or any of the guests speaking on this podcast are not health professionals and this does not constitute medical advice. Always speak to your doctor before starting any new treatment or exercise programme.

Season 3 is coming! In advance of Season 3, we are going to be updating you on how some of the Long Haulers from our favourite episodes are now faring.

So here's an update from Theresa from Season 1, about what her life is like nearly two years since her recovery and we last spoke with her. Theresa explains how her life is different from it was before she was sick, and how she is embracing restful practices over the 'publish or perish' toxic culture within academia.

Theresa Levitt, Elixir book: https://www.hup.harvard.edu/books/9780674250895

Disclaimer: please note that Sarah or any of the guests speaking on this podcast are not health professionals and this does not constitute medical advice. Always speak to your doctor before starting any new treatment or exercise programme.

Season 3 is coming! In advance of Season 3, we are going to be updating you on how some of the Long Haulers from our favourite episodes are now faring.

So here's an update from Jackie of Season 2, about her life is now one year since her full recovery from Long Covid. We discuss the difficulties of processing recovery and post-recovery identity, her return to signicant exercising, and what she is doing now she is recovered work-wise.

Long Covid Breathing with Jackie and Vikki: www.longcovidbreathing.com

Long Covid Podcast: longcovidpodcast.com

Disclaimer: please note that Sarah or any of the guests speaking on this podcast are not health professionals and this does not constitute medical advice. Always speak to your doctor before starting any new treatment or exercise programme.