Or Email at [email protected]


In this conversation, Dr Zeest Khan discusses the characteristics of pseudoscience accounts on social media that claim to provide reliable information about Long Covid. She provides a checklist to help identify these unreliable sources, including triggering fear and anxiety, using all or none statements, selling products related to their claims, speaking outside their area of expertise, and using dense and complicated language. Zeest emphasizes the importance of verifying credentials and understanding the capacity in which the person is speaking. 

Sources:
Dr Andrea Love https://immunologic.substack.com/
How To Spot A Con Artist https://www.michigan.gov/reinventretirement/protection/investment-scams/how-to-spot-a-con-artist


Keywords

long COVID, pseudoscience, social media, reliable sources, checklist, fear and anxiety, all or none statements, selling products, expertise, credentials, complicated language

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

I want to be back to my baseline immediately, and I'm getting impatient. But the impatience itself is draining me. How do you show yourself grace? How do you love yourself through your limitations? 

Send me your advice. Tell me what keeps you going. Email me at [email protected]

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

Check out the new website LongCovidMD.com
Email me at [email protected]

On this installment of The Medicine Cabinet series, I tackle the use of Low-Dose Naltrexone (LDN) to treat Long Covid symptoms. Naltrexone is a fascinating drug that works one way at high doses and another way at low doses. In low doses, it can be a potent anti-inflammatory, and it may help reverse autoimmune conditions. 
There's a lot more to it. I explain how LDN works, who should consider it, and obstacles to access. I also share practical tips to dosing that will help you avoid, or at least understand, side effects. 

Links:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6313374/
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10862402/
https://www.physio-pedia.com/Glial_Cells

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

How do we find community when we're energy-limited?  Long Covid Moonshot member Ezra Spier helps me answer this question. Ezra is an Oakland, California-based patient researcher, person with Long Covid, and creator of the website Long Covid Studies . He is a member of Long Covid Moonshot and the Patient-Led Research Collaborative. Outside of Long Covid advocacy, Ezra is an independent operations and technology consultant who helps organizations thrive through periods of growth.  

We talk about advocacy, leveraging our strengths, and birds!

Links:
Longcovidstudies.net
Longcovidmoonshot.com
The Spoonbill Club https://buttondown.email/edyong209/archive/the-eds-up-birding-for-long-haulers/

Find Ezra Spier
https://x.com/ahhrrr

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

Many people have Long Covid. Hear their voices. Podcast listener and nurse practitioner KatherineMarie shares her story.

Would you like to share your story? Email me at [email protected]

Listen to KatherineMarie's podcast "Long Covid Real Talk"
https://podcasts.apple.com/us/podcast/real-talk-about-long-covid/id1740051506

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

In all the years I practiced medicine, I didn't know much about fatigue-related conditions. While I was in the dark, researchers like Todd Davenport, Department Chair of Physical Therapy at the University of the Pacific, shed light on how fatigue affects patients with disease and even those who are healthy. In our interview, Todd shares how he and other physical therapists approach fatigue, how he saw Long Covid coming, and how to find a physical therapist who is right for you.

Follow me on X @doctor_zeest

Find Todd on X @sunsopeningband

Todd E. Davenport, PT, DPT, PhD, MPH
TODD DAVENPORT is Professor and Chair in the Department of Physical Therapy at University of the Pacific in Stockton, California. He earned his bachelor’s degrees in psychology and exercise science (sports medicine) from Willamette University in Salem, Oregon, Doctor of Physical Therapy degree from the University of Southern California in Los Angeles, California, Master of Public Health degree from the University of California at Berkeley, California, and Doctor of Philosophy in Health, Exercise, and Sport Sciences from the University of Portsmouth in the United Kingdom. Dr. Davenport is a scientific advisor to the Workwell Foundation and Chair of Long Covid Physio.

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

In all the years I practiced medicine, I didn't know much about fatigue-related conditions. While I was in the dark, researchers like Todd Davenport, Department Chair of Physical Therapy at the University of the Pacific, shed light on how fatigue affects patients with disease and even those who are healthy. In our interview, Todd shares how he and other physical therapists approach fatigue, how he saw Long Covid coming, and how to find a physical therapist who is right for you.

Follow me on X @doctor_zeest

Find Todd on X @sunsopeningband

Todd E. Davenport, PT, DPT, PhD, MPH
Board Certified Clinical Specialist in Orthopaedic Physical Therapy
Professor & Chair University of the Pacific School of Health Sciences
Department of Physical Therapy

Links:

Workwell Foundation: https://workwellfoundation.org/
2-Day CPET: https://workwellfoundation.org/testing-for-disability/

Follow me on X @doctor_zeest

The incomparable science journalist David Tuller (https://crowdfund.berkeley.edu/project/42302) shares how he dissects and reports on medical research. He made a name for himself contesting the methods used in the PACE trial, a study that claimed to support the use of cognitive behavioral therapy (CBT) and exercise as a treatment for ME/CFS, but has now been debunked. He sees similarities between the approach to ME and now Long Covid. I ask David about the legacy of the PACE trial today, and how we can we trust what we read in scientific journals.

David is an independent science journalist and holds a fellowship at UC Berkeley Center for Global Public Health. His position is entirely funded by donations from the public. Consider supporting his work here:  https://crowdfund.berkeley.edu/project/42302

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

Welcome to The Medicine Cabinet, a series of episodes where I pull out a pill bottle and explain why it might be used in Long Covid.

Today we're covering the Paxlovid and Molnupiravir, the two antivirals currently FDA approved to treat acute covid infections, and sometimes Long Covid. They are very different drugs, with very different side effect profiles...and they're not for everyone. Learn the basics on the very first episode of the The Medicine Cabinet.

What's in your medicine cabinet? What drug or supplement do you want to learn more about? Email me at [email protected]

*The contents of this podcast are for educational purposes only and do not constitute medical advice. Talk to your medical professional before starting any new treatment.*

Links:
Molnupiravir https://www.covid19treatmentguidelines.nih.gov/therapies/antivirals-including-antibody-products/molnupiravir/
Paxlovid https://www.fda.gov/media/158165/download

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee

Season 2 is here! It's also episode #13 so for something spooky, let's talk about getting reinfected with the virus that changed your life forever. Today I discuss how my recent reinfection felt, how reinfection affected my Long Covid symptoms, and how I responded. I'll share how antivirals work, who they work best for, and who shouldn't take them. We'll also peruse the existing literature on reinfection and Long Covid. 

How did reinfection affect you? Email me at [email protected]

Links:
https://www.fda.gov/media/158165/download
https://www.pfizer.com/science/coronavirus/severe-covid
https://www.covid19treatmentguidelines.nih.gov/therapies/antivirals-including-antibody-products/molnupiravir/

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10454552/
https://www.longcovid.org/images/Documents/Reinfections_in_Long_Covid_Survey_Report_by_Long_Covid_Support_and_Long_Covid_Kids_080922.pdf

Support the show

Subscribe for free written summaries of each episode, resources, and more.  LongCovidMD.substack.com/subscribe

Support by donating at BuyMeACoffee