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Dr Khan's month in review. What happened in March for the podcast? What will federal cuts to CDC, NIH, FDA and RECOVER mean for long COVID patients? How can we participate in and celebrate holidays like Ramadan, given our physical limitations? Plus a new monthly segment that's more light-hearted called "What's Making Me Happy".

What's your rundown and what's making you happy?

Links

Michael Lewis' Essay on Heather Stone

The Residence

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In this episode of Long Covid MD, Dr. Zeest Khan shares audio from her recent Substack Live event. How can you tell if a medical appointment or treatment is helpful or if it's doing more harm than good? Dr Khan shares insights from her personal journey with Long COVID and answers questions from the group. Together, they discuss the complexities of navigating the healthcare system. Dr Khan emphasizes the importance of intentionality in medical appointments, the need for patient empowerment, and the significance of having a primary care provider as a home base. The conversation also covers the challenges of managing multiple appointments, the importance of clear communication with healthcare providers, and strategies for ensuring accurate medical documentation. 

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Summary

In this conversation, Dr Zeest Khan and occupational therapist Amy Mooney discuss sensory processing disorders, which seem to be triggered by a COVID infection. They discuss the implications for individuals with long COVID, and the importance of tailored occupational therapy approaches. They also explore how chronic illness affects sensory integration, the challenges faced by patients, and the need for medical recognition of sensory processing issues. Amy emphasizes the importance of listening to one's body and adapting therapy to individual needs, particularly for those with fatigue-related conditions.

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In this episode, Dr Zeest Khan is joined by Dr Jean Storm, a specialist in long-term care medicine and the medical director of Quality Insights, a healthcare quality improvement organization. Dr Storm worked as a physician in nursing homes during the height of the COVID-19 pandemic and now she's urging us to recognize the impact of long COVID in this population.

Dr Khan and Dr Storm discuss the needs of long-term care residents, how long COVID presents and how it is often overlooked. Dr Storm explains ways to advocate for loved ones in nursing homes and strategies to avoid severe COVID infections in long-term care. 

Links

Dr Storm's Podcast: Taking Healthcare by Storm

Function Calculator: Barthel Index for Activities of Daily Living

Resources for COVID-19 treatment, surveillance, and vaccinations in the long-term care population: https://covid.nymda.org

Articles

Nursing Home Staffing Levels and Resident Health Outcomes: Is the Role of the Physical Therapist Undervalued? 

Prevalence and Predictors of Persistence of COVID-19 Symptoms in Older Adults: A Single-Center Study

Audio engineering by True Media Solutions

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What do you do when you just want a break from being sick? In this month's episode of The Rundown, Dr Zeest Khan shares her ongoing journey with long COVID, discussing the frustrations and challenges she faces in recovery. She reflects on the medical treatments she has undergone, the importance of reliable information, and the emotional toll of navigating the complexities of this condition. 

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Read a summary of our conversation here, and sign up for my newsletter to receive summaries of each podcast episode and more at LongCovidMD.substack.com

Dr. Melanie Hoppers is a board-certified physician in both adult and pediatric medicine, and is a consultant at the Bateman-Horne Center. In this conversation, Dr Hoppers shares her extensive experience treating children with post-viral illnesses, particularly ME-CFS and long COVID. She discusses her personal journey as a parent of a child with ME-CFS, and the challenges her family faced in finding appropriate care - challenges that parents of long COVID kids continue to face today. Dr. Hoppers emphasizes the importance of pacing, parental advocacy, and the need for better medical education on these conditions. She also outlines treatment options and encourages parents to find joy and support in their journey.

Audio Engineering by True Media Solutions

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Summary

In this episode of Long Covid, MD, Dr. Zeest Khan shares personal updates from January, highlighting recent projects to educate other medical professionals on long COVID. She explains some of the ways long COVID impacts executive function and how she utilizes Speech and Language Pathology to improve cognition. She also reflects on the impact of social media on mental health and the need for community support among those affected by chronic illness. 

Long COVID Project ECHO presentation

Timer Cube 

Cognitive Rehab via Speech and Language Pathology

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In this episode of Long COVID, MD, Dr. Zeest Khan shares highlights from her recent Project ECHO webinar, sponsored by the University of Utah and the Bateman Horne Center. Drawing from her personal journey and clinical expertise, she introduces actionable strategies to manage the complex and often overwhelming nature of Long COVID.

Subscribe to Dr. Khan's newsletter at longcovidmd.substack.com.

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In this conversation, Stanford psychologist and behavioral sleep specialist Dr. Hylton Molzof joins Dr Khan to discuss the complexities of sleep. They focus particularly on insomnia in chronic illness, and the role of Cognitive Behavioral Therapy for Insomnia (CBTI). They discuss the physiological stages of sleep, the impact of chronic illness on sleep patterns, and practical strategies for managing sleep-related anxiety. Dr. Molzof emphasizes the importance of adapting CBTI techniques for individuals with chronic conditions, especially in the context of long COVID. The conversation also covers the significance of sleep evaluation and the nuances of sleep restriction as a treatment method.

Find printable worksheets and resources Dr Molzof has shared at https://substack.com/home/post/p-154561158?source=queue&autoPlay=false

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Happy 2025! In this special New Year’s episode of Long COVID MD, Dr. Zeest Khan reflects on an invaluable piece of wisdom from Mr. Rogers: “Look for the helpers.”

Navigating Long COVID is anything but straightforward, but this timeless advice serves as a guiding principle. Dr. Khan breaks it down into three actionable steps to help you identify the assistance you need, avoid detractors, and—perhaps the hardest part—learn to receive help with grace.

Resources and Links:

• Subscribe to Long COVID MD on Substack: longcovidmd.substack.com
• Featured episodes:
  • Don’t Sleep on Your Power: Senator Lindsey Port on Long COVID Advocacy
  • Building Solutions with the Long COVID Moonshot Initiative

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Subscribe to stay updated on new episodes and bonus content. Let us know your thoughts, questions, and New Year’s resolutions by emailing us or commenting on Substack!

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Subscribe for more at LongCovidMD.substack.com, and follow Dr Khan on X @doctor_zeest