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LongCovidMD.com

This podcast, like Long Covid, has a global reach. Whether we see one another or not, we are part of a new community. And this community, while struggling, is pretty amazing. Today I highlight the diverse location of listeners, to remind you that you are not alone in your struggle.  Did I give your town a shout-out? Did I miss it? 

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What happens when you go from running ultramarathons to having difficulty walking? Endurance runner Courtney Baker knows the answer too well. Courtney is an endurance athlete who has been navigating long COVID for three and a half years. In our conversation, she shares her experience before and after the pandemic, her ultimate diagnosis with long COVID, and the challenges she faces in managing her symptoms. She emphasizes the importance of finding a supportive community of people who understand what she's going through. Courtney also discusses the athlete mindset and how it can be both helpful and detrimental in approaching healing and recovery. She reflects on the importance of asking for help and finding balance while living with long COVID and shares her journey of learning to prioritize self-care and set boundaries. Courtney emphasizes the value of community and the support of loved ones in navigating the challenges of long COVID and encourages listeners to embrace acceptance and find joy in the midst of their struggles.

Reach Out To Courtney

Email: [email protected]

Facebook: https://www.facebook.com/courtney.lynne.baker/

Long Covid Support for Endurance Athletes

https://www.facebook.com/groups/longcovidsupportforenduranceathletes

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How has your personal identity been challenged by your Long Covid symptoms? I've spent a lot of time exploring this question and today I'm sharing what answers have come up for me.

Our identity is connected to the titles we hold, and those titles are attached to values and judgements.

I believe we don't have to lose ourselves when we have chronic illness, even if our world looks drastically different. 

How are you navigating challenges to your identity? Email me at [email protected]

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Or Email at [email protected]


In this conversation, Dr Zeest Khan discusses the characteristics of pseudoscience accounts on social media that claim to provide reliable information about Long Covid. She provides a checklist to help identify these unreliable sources, including triggering fear and anxiety, using all or none statements, selling products related to their claims, speaking outside their area of expertise, and using dense and complicated language. Zeest emphasizes the importance of verifying credentials and understanding the capacity in which the person is speaking. 

Sources:
Dr Andrea Love https://immunologic.substack.com/
How To Spot A Con Artist https://www.michigan.gov/reinventretirement/protection/investment-scams/how-to-spot-a-con-artist


Keywords

long COVID, pseudoscience, social media, reliable sources, checklist, fear and anxiety, all or none statements, selling products, expertise, credentials, complicated language

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I want to be back to my baseline immediately, and I'm getting impatient. But the impatience itself is draining me. How do you show yourself grace? How do you love yourself through your limitations? 

Send me your advice. Tell me what keeps you going. Email me at [email protected]

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Check out the new website LongCovidMD.com
Email me at [email protected]

On this installment of The Medicine Cabinet series, I tackle the use of Low-Dose Naltrexone (LDN) to treat Long Covid symptoms. Naltrexone is a fascinating drug that works one way at high doses and another way at low doses. In low doses, it can be a potent anti-inflammatory, and it may help reverse autoimmune conditions. 
There's a lot more to it. I explain how LDN works, who should consider it, and obstacles to access. I also share practical tips to dosing that will help you avoid, or at least understand, side effects. 

Links:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6313374/
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10862402/
https://www.physio-pedia.com/Glial_Cells

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How do we find community when we're energy-limited?  Long Covid Moonshot member Ezra Spier helps me answer this question. Ezra is an Oakland, California-based patient researcher, person with Long Covid, and creator of the website Long Covid Studies . He is a member of Long Covid Moonshot and the Patient-Led Research Collaborative. Outside of Long Covid advocacy, Ezra is an independent operations and technology consultant who helps organizations thrive through periods of growth.  

We talk about advocacy, leveraging our strengths, and birds!

Links:
Longcovidstudies.net
Longcovidmoonshot.com
The Spoonbill Club https://buttondown.email/edyong209/archive/the-eds-up-birding-for-long-haulers/

Find Ezra Spier
https://x.com/ahhrrr

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Many people have Long Covid. Hear their voices. Podcast listener and nurse practitioner KatherineMarie shares her story.

Would you like to share your story? Email me at [email protected]

Listen to KatherineMarie's podcast "Long Covid Real Talk"
https://podcasts.apple.com/us/podcast/real-talk-about-long-covid/id1740051506

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In all the years I practiced medicine, I didn't know much about fatigue-related conditions. While I was in the dark, researchers like Todd Davenport, Department Chair of Physical Therapy at the University of the Pacific, shed light on how fatigue affects patients with disease and even those who are healthy. In our interview, Todd shares how he and other physical therapists approach fatigue, how he saw Long Covid coming, and how to find a physical therapist who is right for you.

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Find Todd on X @sunsopeningband

Todd E. Davenport, PT, DPT, PhD, MPH
TODD DAVENPORT is Professor and Chair in the Department of Physical Therapy at University of the Pacific in Stockton, California. He earned his bachelor’s degrees in psychology and exercise science (sports medicine) from Willamette University in Salem, Oregon, Doctor of Physical Therapy degree from the University of Southern California in Los Angeles, California, Master of Public Health degree from the University of California at Berkeley, California, and Doctor of Philosophy in Health, Exercise, and Sport Sciences from the University of Portsmouth in the United Kingdom. Dr. Davenport is a scientific advisor to the Workwell Foundation and Chair of Long Covid Physio.

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In all the years I practiced medicine, I didn't know much about fatigue-related conditions. While I was in the dark, researchers like Todd Davenport, Department Chair of Physical Therapy at the University of the Pacific, shed light on how fatigue affects patients with disease and even those who are healthy. In our interview, Todd shares how he and other physical therapists approach fatigue, how he saw Long Covid coming, and how to find a physical therapist who is right for you.

Follow me on X @doctor_zeest

Find Todd on X @sunsopeningband

Todd E. Davenport, PT, DPT, PhD, MPH
Board Certified Clinical Specialist in Orthopaedic Physical Therapy
Professor & Chair University of the Pacific School of Health Sciences
Department of Physical Therapy

Links:

Workwell Foundation: https://workwellfoundation.org/
2-Day CPET: https://workwellfoundation.org/testing-for-disability/

Follow me on X @doctor_zeest