BONUS EPISODE #10: My ME/CFS Clinic Appointment

Keywords: Long COVID, ME-CFS, medication, low dose naltrexone, GLP-1 agonist, health management, patient experience, community support

Summary: In this episode of Long COVID Real Talk, Katherine Marie discusses her recent appointment at the Stanford ME-CFS clinic, focusing on medication management, personal experiences with long COVID, and the importance of community support. She shares insights on her medication adjustments, including low dose naltrexone and GLP-1 agonists, and reflects on her lifestyle changes and interactions with listeners.

Takeaways:

• The importance of medication management in long COVID treatment.
• Adjusting dosages of low dose naltrexone can be challenging.
• Personal experiences with medications can vary widely among patients.
• Community support plays a crucial role in managing long COVID.
• Lifestyle adjustments, like cold water showers, can impact symptoms.
• Patient feedback is valuable for understanding treatment efficacy.
• Engaging with listeners fosters a sense of community.
• Anecdotal evidence is significant in the absence of large studies.
• Communication with healthcare providers is essential for effective treatment.
• Maintaining a balance between activity and rest is vital for recovery.

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Listen to our podcast here: www.longcovidrealtalk.com

https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdS

If you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! I LOVE hearing from you! :)

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DISCLAIMER:

The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site.

The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.

Keywords: Long COVID, health challenges, personal reflections, financial struggles, workers' compensation, family focus, mental health, cold water therapy, symptoms, recovery

Summary: In this episode of Long COVID Real Talk, Katherine Marie shares her personal journey with long COVID, discussing her health challenges, including urinary symptoms and the impact on her daily life. She reflects on her struggles with workers' compensation and the financial burdens that have arisen from her condition. Despite these challenges, she emphasizes the importance of focusing on her family and maintaining hope for the future.

Takeaways:

• Katherine is focusing on sharing her personal experiences rather than trying to help others.
• She has restarted cold water therapy as part of her routine.
• Katherine is experiencing painful urinary symptoms related to long COVID.
• She has seen a urologist, and tests have ruled out serious conditions.
• Katherine is navigating the complexities of workers' compensation.
• She feels embarrassed about her struggles with daily activities.
• Financial hardships are exacerbated by her long COVID condition.
• Katherine is taking medication that helps with inflammation and symptoms.
• She is trying to maintain a positive outlook for the future.
• Katherine emphasizes the importance of focusing on her daughter during this time.

Please share, subscribe, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟

Listen to our podcast here: www.longcovidrealtalk.com

https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdS

If you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! I LOVE hearing from you! :)

Email: [email protected]

Google Voice/Text: 1-650-382-2217

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DISCLAIMER:

The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site.

The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.

S5E21 What Stress Does To Your Recovery

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Listen to our podcast here: www.longcovidrealtalk.com

https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdS

If you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! I LOVE hearing from you! :)

Email: [email protected]

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DISCLAIMER:

The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site.

The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.

S5E20: A Surprise -- And Not The Good Kind

Keywords: Long COVID, workers' compensation, health challenges, disability retirement, mental health, personal stories, resilience, navigating bureaucracy, support systems, coping strategies

Summary: In this episode of Long COVID Real Talk, Katherine Marie shares her personal journey navigating the complexities of the workers' compensation system while dealing with long COVID. She discusses the challenges of returning to work, the emotional toll of bureaucratic processes, and the importance of maintaining a positive outlook despite the difficulties. Katherine emphasizes the need for support and understanding from others as she balances her health and responsibilities.

Takeaways:

• Katherine received a light duty job offer from HR.
• She feels frustrated with the workers' comp system.
• Maintaining a positive mindset is crucial for her.
• She is grateful for the support she has received.
• Katherine is concerned about the impact of returning to work.
• She emphasizes the importance of being honest about her health.
• Navigating bureaucracy can be emotionally taxing.
• Katherine reflects on the financial implications of her situation.
• She acknowledges the luck of having workers' comp benefits.
• Vulnerability and honesty help connect with others.

Please share, subscribe, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟

Listen to our podcast here: www.longcovidrealtalk.com

https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdS

If you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! I LOVE hearing from you! :)

Email: [email protected]

Google Voice/Text: 1-650-382-2217

YouTube: @LongCovidRealTalkPodcast

Facebook Group: https://www.facebook.com/groups/418306020831350

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DISCLAIMER:

The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site.

The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.

S5E19 When Getting Better Feels Worse

Keywords: Long COVID, recovery, mental health, family dynamics, acceptance, uncertainty, personal growth, therapy, chronic illness, self-care

Summary: In this episode of Long COVID Real Talk, Katherine Marie shares her personal journey of navigating the complexities of recovery from long COVID. She discusses the emotional challenges of wanting to return to normal life while managing the realities of her health. Katherine reflects on the impact of her illness on her family, the uncertainty of her recovery timeline, and the importance of self-care and flexibility in her thinking. Through her candid reflections, she aims to connect with others facing similar struggles and emphasizes the need for understanding and support in the long COVID community.

Takeaways:

• The beginning of recovery can be emotionally challenging.
• Anticipatory anxiety can hinder the desire to return to normalcy.
• Family dynamics are significantly affected by chronic illness.
• It's important to prioritize self-care during recovery.
• Uncertainty about recovery timelines can be distressing.
• Small improvements in health should be celebrated.
• Flexibility in thinking can ease the pressure of recovery expectations.
• Maintaining a balance between responsibilities and health is crucial.
• Therapy can provide valuable insights and coping strategies.
• Sharing experiences can foster connection and support within the community.

Please share, subscribe, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟

Listen to our podcast here: www.longcovidrealtalk.com

https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdS

If you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! I LOVE hearing from you! :)

Email: [email protected]

Google Voice/Text: 1-650-382-2217

YouTube: @LongCovidRealTalkPodcast

Facebook Group: https://www.facebook.com/groups/418306020831350

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Discord: katherinemarielongcovidrealtalk

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DISCLAIMER:

The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site.

The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.

BONUS EPISODE #9: My Urology Appointment

Keywords: hematuria, urinary symptoms, cancer screening, long COVID, urology, health awareness, bladder health, colonoscopy, health journey, patient experience

Summary:In this episode of Long COVID Real Talk, Katherine Marie shares her recent experiences with urinary symptoms, including hematuria and urgency. She discusses her urology appointment, the importance of cancer screenings, and how these symptoms may relate to long COVID. Katherine emphasizes the need for awareness and timely medical consultations when experiencing concerning symptoms, and she expresses relief at receiving a clean bill of health after her tests.

Takeaways:

• Katherine experienced hematuria and urgency in urination.
• She underwent a urinalysis and cystoscopy to rule out cancer.
• The importance of timely medical consultation for concerning symptoms.
• Blood in urine can be a sign of serious conditions like cancer.
• Long COVID can cause urinary symptoms, including frequency and urgency.
• Katherine had a previous colonoscopy due to blood in stool.
• She emphasizes the need for awareness regarding health symptoms.
• The urology team was thorough and explained the procedures well.
• Katherine felt relieved after her tests showed no cancer.
• She is grateful for the support during her health journey.

Please share, subscribe, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟

Listen to our podcast here: www.longcovidrealtalk.com

https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdS

If you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! I LOVE hearing from you! :)

Email: [email protected]

Google Voice/Text: 1-650-382-2217

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Discord: katherinemarielongcovidrealtalk

Discord group: https://discord.gg/aNbKfPHf

DISCLAIMER:

The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site.

The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.

S5E18: "Hype or Hope: GLP-1 Agonists & Long COVID?"

Keywords: GLP-1, Long Covid, ZepBound, Monjaro, Ozempic, weight loss, brain fog, inflammation, immune regulation, healthcare

Summary: In this episode of Long Covid Real Talk, Katherine Marie discusses her experience with GLP-1 agonists, particularly ZepBound, and their potential benefits for individuals suffering from long COVID. She shares her personal journey, the science behind GLP-1s, and the importance of consulting healthcare providers before starting any new medication. Katherine emphasizes the need for more research and encourages listeners to stay informed and proactive about their health.

Takeaways:

• I started ZepBound, which is a medication.
• More long haulers are reporting improvements in fog, inflammation, and mood.
• GLP-1s reduce systemic inflammation and cytokines.
• This isn't for everyone; some people have seen no benefit.
• Not everyone tolerates these drugs; side effects can occur.
• ZepBound was actually going to be cheaper for me than WeGoovy.
• Get it prescribed to you and monitored by a healthcare provider.
• I'm very excited to continue using ZepBound and my weight loss journey.
• GLP-1s may offer a powerful new clue in treating long COVID.
• We deserve answers about our health.

Please share, subscribe, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟

Listen to our podcast here: www.longcovidrealtalk.com

https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdS

If you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! I LOVE hearing from you! :)

Email: [email protected]

Google Voice/Text: 1-650-382-2217

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DISCLAIMER:

The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site.

The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.

S5E17: "Medical Gaslighting & Long COVID"

Keywords: medical gaslighting, gaslighting, Long COVID, chronic illness, BIPOC, LGBTQIA, mental health

Please share, subscribe, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟

Listen to our podcast here: www.longcovidrealtalk.com

https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdS

If you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! I LOVE hearing from you! :)

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DISCLAIMER:

The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site.

The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.

S5E16: "Lonely, Isolated, Invisible -- Coping with Loneliness in Long COVID & Chronic Illness"

Keywords: loneliness, isolation, invisible, lonely, Long COVID, chronic illness

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Listen to our podcast here: www.longcovidrealtalk.com

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If you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! I LOVE hearing from you! :)

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DISCLAIMER:

The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site.

The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.

S5E15: "Which Came First? Depression in Chronic Illness vs. Depression Causing Chronic Illness"

Keywords: long COVID, depression, chronic illness, mental health, medical care, trauma-informed therapy, patient advocacy, integrated care, emotional suffering, physical symptoms

Summary: In this episode of Long COVID Real Talk, Katherine Marie discusses the intricate relationship between chronic illness and depression. She explores how depression can arise as a response to chronic illness and how it can also precede or contribute to chronic conditions. Katherine emphasizes the importance of recognizing both physical and emotional suffering, advocating for integrated care, and validating patients' experiences to improve outcomes in the medical system.

Takeaways:

• Depression and chronic illness often go hand in hand.
• The direction of depression matters in chronic illness.
• Situational or reactive depression is a normal response to chronic suffering.
• Long-term untreated depression can increase inflammation and disrupt recovery.
• Mental health and physical health are deeply connected.
• Validation and community support are crucial for those suffering.
• Integrated care is essential for treating chronic illness and mental health.
• Patients should be heard and their stories validated.
• Misdiagnosis can lead to devastating consequences for patients.
• Understanding the relationship between depression and chronic illness can guide recovery.

Please share, subscribe, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟

Listen to our podcast here: www.longcovidrealtalk.com

https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdS

If you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! I LOVE hearing from you! :)

Email: [email protected]

Google Voice/Text: 1-650-382-2217

YouTube: @LongCovidRealTalkPodcast

Facebook Group: https://www.facebook.com/groups/418306020831350

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Snapchat: @lcrealtalk

Discord: katherinemarielongcovidrealtalk

Discord group: https://discord.gg/aNbKfPHf

DISCLAIMER:

The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site.

The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.