Today's show features Jackie Renfrow and her mother, Wilodene Gist. These women have suffered losses to Long QT Syndrome including both of Jackie’s children. Tune in to hear how the cause of their deaths was finally diagnosed correctly and why they are such staunch advocates willing to talk with our Host, Michael Liben, about how this tragedy has affected their lives.Become a supporter of this podcast: https://www.spreaker.com/podcast/bereaved-but-still-me--2108929/support.

Losing Loved Ones to a Misdiagnosis

"Bereaved But Still Me" is a podcast for the bereaved community that was formerly known as "Heart to Heart with Michael." As we entered Season 5, we decided to rebrand our podcast to make it easier for the bereaved community to find us. We are happy to announce that "Heart to Heart with Michael," was nominated for a 2020 WEGO Health Award. "Heart to Heart with Michael" was a finalist in the Health Podcast category. This was a great honor for our podcast."Bereaved But Still Me" is a product of the Hearts Unite the Globe Network of Podcasts. Our Host is Michael Liben, our Producer is Nancy Taylor Jensen, and our Executive Producer is Anna Jaworski. Our monthly program has been designed to empower, educate, and support the bereaved community. New episodes are broadcast every 1st Thursday of the month.For more information about the "Bereaved But Still Me," please check out our website: www.heartsunitetheglobe.org and look at the "Bereaved But Still Me" tab.Become a supporter of this podcast: https://www.spreaker.com/podcast/bereaved-but-still-me--2108929/support.

Health & Fitness

Join us in this episode as our host Michael Liben opens up about the complexities of explaining death to his children and welcomes the insights of James Robinson who did likewise with his little ones. Together, they'll explore James' son Nadav's impactful life, marked by a congenital heart defect, and the unwavering spirit it revealed. His story, though filled with vulnerability, is a testament to the remarkable endurance of love and the human soul.Parenting children with special medical needs is unique, often requiring parents to balance transparency with the preservation of childhood innocence. In this heartfelt exchange, between bereaved fathers Michael and James, they recount the promises made to their children to be forthright in the face of life-altering medical conditions. Discover how their children surprised them with their remarkable adaptability, and how the definition of 'normal' was reshaped within the walls of a home where love and medical care were intertwined.They conclude this episode by traversing the path of healing that unfolds in the wake of profound loss. James shares his family's transformative road trip across America, an exploration of grief and remembrance following Nadav's passing. This moving experience culminates in the creation of "More Than We Expected: Five Years with a Remarkable Child," a memoir by James that seeks to offer comfort and connection to those on similar journeys. Through these stories, we honor the legacies of our loved ones and the infinite capacity of the human heart to heal and embrace resilience.To Order James' book, use this link: https://www.amazon.com/More-Than-We-Expected-Remarkable/dp/1637588224Or you can visit his website here: https://morethanamemoir.com/Links to “Bereaved But Still Me” Social Media and Podcast Pages:Apple Podcasts: https://podcasts.apple.com/us/podcast/bereaved-but-still-me/id1333229173Facebook: https://www.facebook.com/HugPodcastNetworkYouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5ZwWebsite: https://www.hug-podcastnetwork.com/Become a Patron: https://www.hug-podcastnetwork.com/patreon.html ORhttps://www.spreaker.com/podcast/bereaved-but-still-me--2108929/support

A Parent’s Tale of Grief, Special Needs and the Healing Power of Writing

How can a person suffering tremendous loss get unstuck in grief? Have you ever felt as though you’re wearing cement boots of grief? How can we move forward in our grief?Join us in this fascinating episode with Toni Alexander. As a bereaved person herself, Toni Alexander attacks the grief process from within. As an author, she looks on grief from a more philosophical perspective. As a teacher, she has brought her lessons from loss forward to help guide others on their grief journey.Toni is no stranger to grief. She has lost both of her parents and a spouse. The death of her mother hit her particularly hard and inspired her book, Mom’s Dying? Encouragement for the Journey, and Embracing Life Changes: Praising Through Pain where she interviewed other people who had experienced losses to assist them with loss through suicide, illness, and other life-altering events. She is here today to give us guidance on how to navigate the difficult experiences of getting unstuck in grief and how to help us move forward in our grief.For More Information:Mom’s Dying? Encouragement for the Journey: https://tinyurl.com/MomsDying-AntoinetteMBakerMoving Forward: Taking Time to Love Yourself: https://www.amazon.com/MOVING-FORWARD-Taking-Time-Yourself-ebook/dp/B0973ZLJG8?ref_=ast_author_mpbLinks to “Bereaved But Still Me” Social Media and Podcast Pages:Apple Podcasts: https://podcasts.apple.com/us/podcast/bereaved-but-still-me/id1333229173Spreaker: https://www.spreaker.com/show/heart-to-heart-with-michaelFacebook: https://www.facebook.com/HugPodcastNetworkYouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5ZwWebsite: https://www.hug-podcastnetwork.com/Become a Patron: https://www.hug-podcastnetwork.com/patreon.htmlOrhttps://www.spreaker.com/podcast/bereaved-but-still-me--2108929/support

Toni Alexander: Taking Small Steps Through Grief's Passage of Time

Returning guest, Phil Proctor, is a man who needs no introduction. An actor, voice actor, writer, producer, comedian, podcaster and founding member of the Firesign Theatre quartet. Phil has been in the entertainment industry for 50 years, and In this episode, he talks with host, Michael Liben about the love of his life -- his soulmate, Melinda Peterson, who died suddenly after more than thirty years of marriage. In this episode, Phil discusses his love, his loss and how he found, in his words, laugh after death.Links to “Bereaved But Still Me” Social Media and Podcast Pages:Apple Podcasts: https://podcasts.apple.com/us/podcast/bereaved-but-still-me/id1333229173Spreaker: https://www.spreaker.com/show/heart-to-heart-with-michaelFacebook: https://www.facebook.com/HugPodcastNetworkYouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5ZwWebsite: https://www.hug-podcastnetwork.com/Patreon: https://www.patreon.com/hearttoheart Become a supporter of this podcast: https://www.spreaker.com/podcast/bereaved-but-still-me--2108929/support.

Melinda's Encore: Phil Proctor's Tribute to Life, Love, and Laughter

Erica Messer talks with Bereaved But Still Me host Michael Liben about pet loss and how she wasn’t able to find resources to help her cope with her grief. After losing her beloved cat, Wolfgang, she discovered a need for pet-loss resources. With her mother’s encouragement, she started Wolfie’s Wish, a company providing resources for those who are grieving the loss of a pet.Erica’s website: https://wolfieswish.com/Links to “Bereaved But Still Me” Social Media and Podcast Pages:Apple Podcasts: https://podcasts.apple.com/us/podcast/bereaved-but-still-me/id1333229173Spreaker: https://www.spreaker.com/show/heart-to-heart-with-michaelFacebook: https://www.facebook.com/HugPodcastNetworkYouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5ZwWebsite: https://www.hug-podcastnetwork.com/Patreon: https://www.patreon.com/hearttoheartBecome a supporter of this podcast: https://www.spreaker.com/podcast/bereaved-but-still-me--2108929/support.

Companion Pet Loss - From Grief to Inspiration with Erica Messer

Have you ever wondered how the human heart manages to bear the unbearable? How it picks up the shattered pieces and eventually finds its way to healing? Our guest for today's episode, Roy Martin, opens up about a tragic event that forever changed his life - the loss of his beloved daughter, Tawny, to a drunk driver. Join us as Roy paints a vivid image of Tawny's life, her vivacious spirit, and the sobering reality of her sudden demise. This heartrending narration not only brings to light the devastating aftermath of drunk driving, but also underscores the priceless value of each moment spent with loved ones.As we continue our discussion, we shift our focus towards the labyrinth of grief and the process of recovery. We delve into the heartache, guilt, and regret that ensued in the wake of Tawny's demise, and the impact it had on Roy's family, particularly his son, Noah. Amidst deep sorrow, however, blooms a ray of hope. Roy shares how, with time, they found a way to remember Tawny without being submerged in grief. This conversation sheds light on the unique ways people deal with loss and offers valuable insights into navigating your own path to healing. This episode is a testament to the resilience of the human spirit and the power of love that persists, even in the face of overwhelming sorrow.Links to “Bereaved But Still Me” Social Media and Podcast Pages:Apple Podcasts: https://podcasts.apple.com/us/podcast/bereaved-but-still-me/id1333229173Spreaker: https://www.spreaker.com/show/heart-to-heart-with-michaelFacebook: https://www.facebook.com/HugPodcastNetworkYouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5ZwWebsite: https://www.hug-podcastnetwork.com/Become a supporter of this podcast: https://www.spreaker.com/podcast/bereaved-but-still-me--2108929/support.

Losing Loved Ones to a Misdiagnosis

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