When Jonathan Penner’s wife Stacy Title was diagnosed with ALS, their life changed with shocking speed. He joins Vanessa to talk about caregiving, survival, and the hard-won wisdom of staying present even when everything is getting worse. 

Connect to resources through Compassionate Care ALS (CCALS). You can also read the Vulture article about Stacy’s fight to make one final movie: Walking Time Bomb.

To connect with the team, find us on ⁠Instagram⁠ and ⁠Youtube⁠, or shoot us an email at [email protected]. We want to hear from you! 

Lily Houston Smith is our senior producer; music by Mark McAdam and Amber Devereux.