Meet the Founders of AlzAuthors! In episode 73, my co-host, Don Priess, and I had the unique pleasure of speaking with the three co-founders of AlzAuthors.com. In 2016, our guests, Marianne Sciucco, Jean Lee, and Vicki Tapia, founded the non-profit AlzAuthors.com, a global community of over 300 writers who are writing all about dementia from their personal experience. This ever-growing global community is united in an effort to light the way for others, with a vision of lifting the silence and stigma surrounding Alzheimer’s and other dementias through the sharing of personal stories.  

If you're writing your own story or are thinking about it, this is a must see/hear episode! Regardless, you will be enriched by this dynamic trio who are truly Caregiver Crusaders!

You can find out more about AlzAuthors on their Website  and their podcast, Untangling Alzheimer's and Dementia.

#writers #writer #podcast #experience #love #art #medical #nurse #community

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If someone you love experienced neglect in a nursing home…Then you know how desperately the system needs to change.  History has shown us that It takes people power to change anything worthwhile. That’s why we we’re launching something that’s never been done before. On September 27, communities across the country are coming together for the first-ever National Long-Term Care Reform Day.This is a peaceful national walk for dignity, accountability, and change in long-term care.We’r

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No Country For Old People; a Nursing Home Exposé is STREAMING NOW on Amazon Prime (https://www.amazon.com/gp/video/detail/B0F7D1RR5X/ref=atv_dp_share_cu_r)

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Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT (Respect, Oversight, Advocacy, Reform) for quality long term care! Visit the ROAR 4 LTC Website for more information and consider participating in the inaugural National National Long-Term Care Day, Sunday, September 27th The 1st ever ROAR 2026 National Walk for Long-Term Care Reform! Found out more here: https://www.roar4ltc.org/roar-2026-walk

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Anthony "Tony" Copeland-Parker  is back for a record 3rd time on Love Conquers Alz... and Don and I are thrilled. Tony and his, partner Cat, have a unique and inspiring story  that has been unfolding before our eyes  and this new chapter is as heartening as ever. 
For those who may not be familiar with Tony andhis partner, Cat, here's a little background to get you up to speed. (I'm killing it with the running puns!)  Tony and Cat were in there 50s going their merry way,  when they were presented two life-changing pieces of news...at the same time. Tony was told he needed a heart valve replacement and Cat had early-onset Alzheimer’s.  But both being endurance athletes, their reaction to this news was, let's say, unique. They retired, sold their home, & became nomads, running marathons & half-marathons - literally over the world.
Their book, Running All over the World, Our Race Against Early Onset Alzheimer’s, is  an engaging travelogue with a heart.  Don't let the word "Alzheimer's" give you the wrong impression! It's filled with fun, humor, heart, and adventure. It's chock-full of interesting facts and detailed travel advice. And if you ever thought about running a marathon, but just can't seem to check that off your list, you'll experience the thrill of the finish…blister-free! The book is an account of their 5+ years of flying, running, walking, sailing, & sightseeing from Atlanta to Antarctica and back again.
Now that Cat's Alzheimer's has progressed and she can no longer run marathons, she and Tony have embarked on a new chapter in their unique and awe-inspiring story.  Enjoy this episode!
Love,
Susie

SPECIAL GIVEAWAY! The first 5 people to leave a comment at RunningwithCat.com  will receive an ebook version of  Tony's book and one signed copy! Leave a comment and  then let me know you did at  [email protected]. Good luck!

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If someone you love experienced neglect in a nursing home…Then you know how desperately the system needs to change.  History has shown us that It takes people power to change anything worthwhile. That’s why we we’re launching something that’s never been done before. On September 27, communities across the country are coming together for the first-ever National Long-Term Care Reform Day.This is a peaceful national walk for dignity, accountability, and change in long-term care.We’r

Support the show

No Country For Old People; a Nursing Home Exposé is STREAMING NOW on Amazon Prime (https://www.amazon.com/gp/video/detail/B0F7D1RR5X/ref=atv_dp_share_cu_r)

 Visit the No Country For Old People Website for more information.

Please watch. Review. Share.

Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT (Respect, Oversight, Advocacy, Reform) for quality long term care! Visit the ROAR 4 LTC Website for more information and consider participating in the inaugural National National Long-Term Care Day, Sunday, September 27th The 1st ever ROAR 2026 National Walk for Long-Term Care Reform! Found out more here: https://www.roar4ltc.org/roar-2026-walk

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In episode 71, Don and I thoroughly enjoyed talking to  Gail Weatherill, RN BSN CAEd, AKA the Dementia Nurse.  Gail is a practicing RN for 43 years, a board-certified Alzheimer's Educator, a fearless advocate, and the author of The Caregiver's Guide to Dementia: Practical Advice for Caring for Yourself and Your Loved One.

 Gail became a family caregiver herself when a beloved client with no family moved in with her and her family for her last few years of life. She understands the demands of 24/7 care of a loved one with dementia. She now works to compensate for our health "care" system's failure to support caregivers in meeting those demands.

 Gail recently shared her irreverent approach to the American health care machine  in a dynamic interview for our documentary, NO COUNTRY FOR OLD PEOPLE.  It's no wonder she has  become an effective and sought out advocate for those in deepest need. Her advocacy led to her participation in the Nurses Take DC movement for safe staffing ratios in our hospitals and long-term care facilities.  

Through her writing, speaking, and coaching, Gail lives to educate dementia caregivers "one heart at a time".  She maintains a closed caregiver support group on Facebook, a group that has grown to 50,000 members from over 100 countries. The need is global and great. As Gail makes her way through her fortieth year of nursing practice, she will tell you she is just getting started.  YOU'RE GOING TO LOVE HER!

 When she's not busy rabble-rousing for health care causes, Gail can be found reading, sewing fidget quilts, and missing her two daughters whom she says live entirely too far from their mother. She shares her home in Charlottesville, VA with a cat named Baby Silas who lets her use the laptop when he's not busy warming his belly on it.

Enjoy!
xox Susie

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If someone you love experienced neglect in a nursing home…Then you know how desperately the system needs to change.  History has shown us that It takes people power to change anything worthwhile. That’s why we we’re launching something that’s never been done before. On September 27, communities across the country are coming together for the first-ever National Long-Term Care Reform Day.This is a peaceful national walk for dignity, accountability, and change in long-term care.We’r

Support the show

No Country For Old People; a Nursing Home Exposé is STREAMING NOW on Amazon Prime (https://www.amazon.com/gp/video/detail/B0F7D1RR5X/ref=atv_dp_share_cu_r)

 Visit the No Country For Old People Website for more information.

Please watch. Review. Share.

Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT (Respect, Oversight, Advocacy, Reform) for quality long term care! Visit the ROAR 4 LTC Website for more information and consider participating in the inaugural National National Long-Term Care Day, Sunday, September 27th The 1st ever ROAR 2026 National Walk for Long-Term Care Reform! Found out more here: https://www.roar4ltc.org/roar-2026-walk

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For our 70th episode, we spoke with the very irrepressible Ellen Belk, a domestic educator and Silver Living strategist, with a refreshing "call it as she sees it" style that leaves a lasting impression on anyone who works with. 

Ellen is the company founder of the K.I.M. Academy (Keep In Mind) -  An online Dementia Education platform to serve both professionals & families with on-demand, interactive learning-sessions for adult learners. 

Ellen has an impressive 20+years of operational experience in Senior housing as a holistic Dementia expert, author, trainer, and influencer. She brings a unique blend of proficiency in operations, sales, team building, resident experience, and innovation to her clients. 

Ellen is on a mission to elevate the collective (global) Dementia IQ  by dispelling the myths,  elevating the truth, and highlighting the LIVES that are still lived after a dementia diagnosis.
 
As a rising Brand Ambassador, Ellen is a trusted voice seeking to share information about technology products and other services benefitting aging consumers within her circle-of-influence and network. Therefore, she’s an asset to those innovator cohort groups who understand the need for influencer marketing strategies to reach Boomer consumers and ‘silver citizens’.

Ellen is simply not satisfied with the status quo. If you tell her, “This is the way it’s always been done”, she'll be the first voice to share an alternative solution.  Her motto: Together we are stronger. Be the change. We couldn't agree more!

Enjoy!
xoxo Susie and Don

Follow Ellen Belk on LinkedIn, YouTube, Pinterest
Contact: [email protected]

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If someone you love experienced neglect in a nursing home…Then you know how desperately the system needs to change.  History has shown us that It takes people power to change anything worthwhile. That’s why we we’re launching something that’s never been done before. On September 27, communities across the country are coming together for the first-ever National Long-Term Care Reform Day.This is a peaceful national walk for dignity, accountability, and change in long-term care.We’r

Support the show

No Country For Old People; a Nursing Home Exposé is STREAMING NOW on Amazon Prime (https://www.amazon.com/gp/video/detail/B0F7D1RR5X/ref=atv_dp_share_cu_r)

 Visit the No Country For Old People Website for more information.

Please watch. Review. Share.

Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT (Respect, Oversight, Advocacy, Reform) for quality long term care! Visit the ROAR 4 LTC Website for more information and consider participating in the inaugural National National Long-Term Care Day, Sunday, September 27th The 1st ever ROAR 2026 National Walk for Long-Term Care Reform! Found out more here: https://www.roar4ltc.org/roar-2026-walk

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In Episode 69, Love Conquers Alz hosts, Susie Singer Carter and Don Priess, cover a wide range of timely topics with the extremely accomplished mother, wife, educator, and physician, DR. MIRIAM ZYLBERGLAIT LISIGURSKI. Dr. Z is a triple Board-Certified Physician in Internal Medicine, Geriatrics, and Obesity Medicine with extensive clinical and academic experience. 

Dr. Z is also a well-being advocate with a strong focus on burnout, mental health, and leadership development.  Dr. Z discusses how her advocacy led her to author, “The 3G Cycle of Life. The Secrets for Achieving Joy, Meaning, and Well-being,” in which she asks readers to imagine life as a sequence of cycles instead of a unidirectional line, where each cycle consists of basic three components: Goal, Grit, and Growth, as well as catalysts that may facilitate or hinder your progress throughout life. Dr. Z provides a broad vision of how to use each component of the 3G Cycle in your favor, even during the most challenging circumstances, to avoid the negative consequences of chronic stress and burnout. The book includes more than thirty experts' personal and professional experiences, evidence-based data, and Dr. Z's insights and stories.

 Dr. Z also candidly discusses the current phenomenon of “doctor burnout”.  She blames it on a Healthcare system that does not allow doctors to practice the way that they want to. Dr. Z says there is a very big gap between what many doctors think medicine should be and what they are doing every day.

 Originally from Peru, Dr. Z has two awesome sons, a caring husband, and and is a caregiver for her mother who was recently diagnosed with dementia. Her dream is to help others achieve lives full of joy, meaning, and well-being.

PURCHASE DR. Z'S BOOK HERE
FOLLOW DR. Z HERE

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If someone you love experienced neglect in a nursing home…Then you know how desperately the system needs to change.  History has shown us that It takes people power to change anything worthwhile. That’s why we we’re launching something that’s never been done before. On September 27, communities across the country are coming together for the first-ever National Long-Term Care Reform Day.This is a peaceful national walk for dignity, accountability, and change in long-term care.We’r

Support the show

No Country For Old People; a Nursing Home Exposé is STREAMING NOW on Amazon Prime (https://www.amazon.com/gp/video/detail/B0F7D1RR5X/ref=atv_dp_share_cu_r)

 Visit the No Country For Old People Website for more information.

Please watch. Review. Share.

Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT (Respect, Oversight, Advocacy, Reform) for quality long term care! Visit the ROAR 4 LTC Website for more information and consider participating in the inaugural National National Long-Term Care Day, Sunday, September 27th The 1st ever ROAR 2026 National Walk for Long-Term Care Reform! Found out more here: https://www.roar4ltc.org/roar-2026-walk

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In Episode 68,  Love Conquers Alz hosts, Susie Singer Carter and Don Priess have a fascinating conversation with  Dr. Buffy Lloyd-Krejci, one of the foremost authorities on infection prevention and control in nursing homes and long-term care facilities. Dr. Buffy (as she likes to be called) is a frequent contributor and interview source for national and trade press concerning infection prevention and control and mitigation.

 Dr Buffy is  also the  author of Broken: How the Global Pandemic uncovered a nursing home industry in need of repair and the heroic staff fighting for change. In BROKEN, Dr. Buffy Lloyd-Krejci exposes an industry in dire need of a massive policy overhaul. Her book chronicles her "boots on the ground" experience visiting 200 nursing homes across the country as the pandemic brought these deadly problems into stark relief. Through interviews with patients, healthcare workers, advocate groups, and regulatory agencies, she reveals the critical flaws in a system that was set up to fail—and her bold vision for change.

Dr. Buffy  states that  "Our elderly loved ones deserve to live out their final days with dignity and respect, not to be left alone to die in a broken system. But even before the COVID-19 pandemic, infectious diseases ran rampant in US nursing homes. Between one and three million infections resulted in 380,000 deaths among nursing home residents each year. That’s over 1,000 people per day. All because the nursing home industry has been struggling with Infection Prevention and Control practices (IPC) for decades."

Dr. Buffy's practice, IPCWell, is headquartered in the Phoenix metropolitan area and is devoted to mitigating infectious diseases and inappropriate antibiotic prescribing in all healthcare settings to reduce adverse events, infections, antibiotic resistance, re-admissions, and death. Dr. Buffy consults with health care facilities across the United States and internationally (Doctors Without Borders).

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If someone you love experienced neglect in a nursing home…Then you know how desperately the system needs to change.  History has shown us that It takes people power to change anything worthwhile. That’s why we we’re launching something that’s never been done before. On September 27, communities across the country are coming together for the first-ever National Long-Term Care Reform Day.This is a peaceful national walk for dignity, accountability, and change in long-term care.We’r

Support the show

No Country For Old People; a Nursing Home Exposé is STREAMING NOW on Amazon Prime (https://www.amazon.com/gp/video/detail/B0F7D1RR5X/ref=atv_dp_share_cu_r)

 Visit the No Country For Old People Website for more information.

Please watch. Review. Share.

Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT (Respect, Oversight, Advocacy, Reform) for quality long term care! Visit the ROAR 4 LTC Website for more information and consider participating in the inaugural National National Long-Term Care Day, Sunday, September 27th The 1st ever ROAR 2026 National Walk for Long-Term Care Reform! Found out more here: https://www.roar4ltc.org/roar-2026-walk

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In Episode 67, Don Priess and I have a candid - and inspiring - conversation with our first guest of the year, Mary S. Daniel, a Board-Certified Patient Advocate  whose mantra is "boldly advocate for your loved ones". 

Leading by example, Mary showed us just what that looks like when she took a job as a dishwasher at the facility where her husband, Steve (diagnosed with Alzheimer’s disease in 2013 ), lived after being separated for 114 days during the lockdown due to COVID-19. 

The conversation delves into some of the very real challenges caregivers face navigating our ageist, ableist, and broken healthcare system that became glaringly apparent during the Covid era.  A fierce advocate, Mary shares the  incredible steps she took to make sure she kept a watchful eye and consistent connection with her husband, Steve, despite the seemingly impossible roadblocks.

Mary founded the Facebook group "Caregivers for Compromise – because isolation kills too!" which has over 14,000 members and chapters in every state. Her grassroots effort got the attention of Florida Governor Ron DeSantis who named Mary to the Florida Task Force on the Safe and Limited Re-Opening of Long-Term Care Facilities. The recommendations of the Task Force were accepted by the Governor on September 1, 2020 and Essential Caregivers were allowed back in facilities to see their loved ones.

On December 21, 2022, Mary announced that her beloved husband Steve, passed away peacefully that morning. One of her next posts simply said, "Now What?" Mary answers that question and much more in this "must listen"conversation.

 #healthcare #covid #Alzheimers #grieving #caregiving #carepartner #endalz #dementia #dementiacare #caregiver 

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If someone you love experienced neglect in a nursing home…Then you know how desperately the system needs to change.  History has shown us that It takes people power to change anything worthwhile. That’s why we we’re launching something that’s never been done before. On September 27, communities across the country are coming together for the first-ever National Long-Term Care Reform Day.This is a peaceful national walk for dignity, accountability, and change in long-term care.We’r

Support the show

No Country For Old People; a Nursing Home Exposé is STREAMING NOW on Amazon Prime (https://www.amazon.com/gp/video/detail/B0F7D1RR5X/ref=atv_dp_share_cu_r)

 Visit the No Country For Old People Website for more information.

Please watch. Review. Share.

Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT (Respect, Oversight, Advocacy, Reform) for quality long term care! Visit the ROAR 4 LTC Website for more information and consider participating in the inaugural National National Long-Term Care Day, Sunday, September 27th The 1st ever ROAR 2026 National Walk for Long-Term Care Reform! Found out more here: https://www.roar4ltc.org/roar-2026-walk

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In Episode 66, Hosts Susie Singer Carter and Don Priess have a fantastic meeting of the minds with their guest from the UK, Dr. Kellyn Lee, as she breaks down her new approach to dementia care – Material Citizenship - which focuses on the important role and function of everyday - personal - physical objects & tasks make a HUGE positive impact  in the caring process.

Dr. Lee is the founder of WISER Health & Social Care Ltd and The Dementia Care Hub - supporting people living-well with dementia, both at home and in formal care settings. 

Dr. Lee is an accomplished academic with a BPS Chartered Psychologist and over 11 years-experience in “research in aging” and dementia. She has lectured in psychological research methods & fundamentals in older persons’ complex care, Chairs the Innovation and Impact Board for the Institute of Health & Social Care Management,  and is the former Co-Director of the Doctoral Training Centre for Dementia Care at the University of Southampton. 

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If someone you love experienced neglect in a nursing home…Then you know how desperately the system needs to change.  History has shown us that It takes people power to change anything worthwhile. That’s why we we’re launching something that’s never been done before. On September 27, communities across the country are coming together for the first-ever National Long-Term Care Reform Day.This is a peaceful national walk for dignity, accountability, and change in long-term care.We’r

Support the show

No Country For Old People; a Nursing Home Exposé is STREAMING NOW on Amazon Prime (https://www.amazon.com/gp/video/detail/B0F7D1RR5X/ref=atv_dp_share_cu_r)

 Visit the No Country For Old People Website for more information.

Please watch. Review. Share.

Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT (Respect, Oversight, Advocacy, Reform) for quality long term care! Visit the ROAR 4 LTC Website for more information and consider participating in the inaugural National National Long-Term Care Day, Sunday, September 27th The 1st ever ROAR 2026 National Walk for Long-Term Care Reform! Found out more here: https://www.roar4ltc.org/roar-2026-walk

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In episode 65, Love Conquers Alz hosts, Susie SInger Carter and Don Priess dive deep into the world of Palliative and Hospice Care with their guest, Anne Kenny MD, Professor of Medicine with specialty training and board certification in Geriatric Medicine, and Palliative and Hospice care.
   Dr. Kenny has found immense joy in her work with individuals and their families managing issues related to the diagnosis of dementia. Her experience in partnering in the care of these families touched close to home when her own mother was diagnosed with dementia. Dr. Kenny’s shares her expertise and experience in
inpatient and outpatient Palliative and Hospice care which were called on when
her mother reached the final stages of living with dementia.
   The Kenny family worked together for their mother’s graceful exit from this planet Dr. Kenny has been a practicing physician for nearly 30 years and has been recognized by her peers as a “Top Doc” in Geriatric Medicine. She has been honored with a Brookdale National Fellow and the prestigious Paul Beeson Physician Faculty Scholar awards.
   In addition to her clinical practice, Dr. Kenny lectures to both healthcare professionals and the public on aging related issues such as osteoporosis, exercise, nutrition, hormone therapy, death and dying, and frailty. She is an educator of medicine and research skills. She taught and mentored clinical and research skills to all levels of trainees including medical students, post-graduate residents and fellows, and early faculty members. She has been active investigator participating in clinical research focusing on various aspects of aging. She has over 100 scientific publications
and presentations focused on improving the care and functioning of older adults.

You can connect with Dr. Kenny here:
WEBSITE
TWITTER
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FACEBOOK

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If someone you love experienced neglect in a nursing home…Then you know how desperately the system needs to change.  History has shown us that It takes people power to change anything worthwhile. That’s why we we’re launching something that’s never been done before. On September 27, communities across the country are coming together for the first-ever National Long-Term Care Reform Day.This is a peaceful national walk for dignity, accountability, and change in long-term care.We’r

Support the show

No Country For Old People; a Nursing Home Exposé is STREAMING NOW on Amazon Prime (https://www.amazon.com/gp/video/detail/B0F7D1RR5X/ref=atv_dp_share_cu_r)

 Visit the No Country For Old People Website for more information.

Please watch. Review. Share.

Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT (Respect, Oversight, Advocacy, Reform) for quality long term care! Visit the ROAR 4 LTC Website for more information and consider participating in the inaugural National National Long-Term Care Day, Sunday, September 27th The 1st ever ROAR 2026 National Walk for Long-Term Care Reform! Found out more here: https://www.roar4ltc.org/roar-2026-walk

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In EPISODE 64,  Co-Hosts Susie Singer Carter and Don Priess chat with Dr. Brittany Lamb, an ER Physician, Dementia Family Caregiver, Educator and Advocate.

 In medicine, there is a saying, "You don't know, what you don't know." Dr. Lamb is on a mission to inform Dementia Caregivers so they can make competent medical decisions on their person's behalf through anticipation and planning. Her enlightening services include such matters as advanced directives, planning for medical emergencies, how to talk to your family and determining goals of care just to name a few. So if you are someone's power of attorney, health care proxy, surrogate or default decision maker, Dr. Lamb can help create a plan to help you make informed future medical decisions and focus on spending quality time with your loved one now.

Dr. Lamb openly discusses the challenges and stress doctors and healthcare workers face working within the current healthcare system. You don't want to miss this episode.

You can connect with Dr. Brittany Lamb here:
Facebook Group 
Online Group Program
Phone Consultations
LinkedIn
Instagram
Facebook

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If someone you love experienced neglect in a nursing home…Then you know how desperately the system needs to change.  History has shown us that It takes people power to change anything worthwhile. That’s why we we’re launching something that’s never been done before. On September 27, communities across the country are coming together for the first-ever National Long-Term Care Reform Day.This is a peaceful national walk for dignity, accountability, and change in long-term care.We’r

Support the show

No Country For Old People; a Nursing Home Exposé is STREAMING NOW on Amazon Prime (https://www.amazon.com/gp/video/detail/B0F7D1RR5X/ref=atv_dp_share_cu_r)

 Visit the No Country For Old People Website for more information.

Please watch. Review. Share.

Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT (Respect, Oversight, Advocacy, Reform) for quality long term care! Visit the ROAR 4 LTC Website for more information and consider participating in the inaugural National National Long-Term Care Day, Sunday, September 27th The 1st ever ROAR 2026 National Walk for Long-Term Care Reform! Found out more here: https://www.roar4ltc.org/roar-2026-walk

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