By Mark
The transparency of our grief when shared helps others find their way through their own grief journey. I examine and share my grief to learn and understand me, Donna, love, and others. I, in a way,
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The podcast currently has 7 episodes available.
Home Hospice Donna Never Came Home
This is my first in a series on hospice. It will be part educational but mostly I will relate my experiences with Donna who entered hospice July 18, 2011. Though my eyes and experiences I hope others will see what hospice and palliative care brings to both the patient and the family. I believe in hospice and palliative care. It works because of the people involved. It gives both the dying and the living so much hope and sense of community and support. Because of hospice and especially those working and volunteering we are not alone when we most need support and care.
The overwhelming emotion when you first enter hospice is fear. Well not really fear just a blanket of sadness less about the place and more about how would this play out for how long and in what capacity. Perhaps though my eyes and reflection we identify a different emotion, one where we can find a safe place during this horrific sad time.
I’m not getting into the life after death debate but life after a loved one dies and the role hospice plays in this life altering event. The final week to ten days in hospice is pretty much a blur and mass of shitting images in my mind emotion that still choke me. During that time I was trying to keep myself busy. Again trying to will my way though this with activities around hospice and donna. I filled the day the night going to hospice to be with donna and start again the next day. Ground hog day in hell.
This is Part 2 of a two part interview with Alan Gross and Jane Townsend. Alan and Jane are two of the four founding partners at GrossTownsendFrankHoffman. GTFH was an agency I was lucky enough to work at for over five years during the mid to late eighties. Today it is Grey Healthcare. Its history and position in healthcare, medical, and pharmaceutical marketing, advertising, PR, and education cannot be over stated. This agency, the partners, and everyone who worked there were pioneers who explored and pushed the envelop for ourselves and an industry.
Besides being dear friends to this day they were the ones who taught me the most about strategies, marketing, advertising, and medical education. They also taught me and anyone who worked with them (never for) how to achieve integrity and honesty in business. They taught us how to go beyond your self imposed limits. They are smart, generous, hardworking, and visionary. We talk about what it was like 40 years ago and how it changed. What you see today in pharmaceutical marketing is not what it was.
I forgot to include a link to some history on Merck and Mevacor to better understand the genesis of direct to consumer advertising.
Part 1 of a two part interview with Alan Gross and Jane Townsend. Alan and Jane are two of the four founding partners at GrossTownsendFrankHoffman. GTFH was an agency I was lucky enough to work at for over five years during the mid to late eighties. Today it’s Grey Healthcare. Its history and position in healthcare, medical, and pharmaceutical marketing, advertising, PR, and education cannot be over stated. This agency, the partners, and everyone who worked there were pioneers who explored and pushed the envelop for ourselves and an industry.
Besides being dear friends to this day they were the ones who taught me the most about strategies, marketing, advertising, and medical education. They also taught me and anyone who worked with them (never for) how to achieve integrity and honesty in business. They taught us how to go beyond your self imposed limits. They are smart, generous, hardworking, and visionary. We talk about what it was like 40 years ago and how it changed. And it has changed. Perhaps not for the best.
Patrick O’Malley writing in the New York Times Opinionator section Couch addressed the topic of grief with his piece “Getting Grief Right”. That got my attention because I’ve been struggling to get my grief right as well. I talk about my path to getting it right and how it fits with O’Malley’s view and thoughts.
In the New York Times Opinionator section Couch Patrick O’Malley wrote “Getting Grief Right”. Patrick, got my attention.
Have you like me wondered, Do I have my grief right?” I have been hard at my grief work. Donna’s death, my daily experiences, years of postings, and podcasts allows me to speak up and out. Besides this is the internet and everyone gets to speak.
O’Malley is a psychotherapist. He tells the story of a woman who lost a a very young child. But his piece addresses the loss he suffered when his first child died ten years earlier. Both narratives, O’Malley’s and Mary’s, are entwined and related. O’Malley makes the point to this patient Mary who questioned if she was in denial or angry enough. Mary speaks about how her deep despair is and the sense of exhaustion from masking her true emotions. She felt stuck in grief and failing to find acceptance and closure. He told her that she was not depressed or stuck or wrong. She was just very sad, consumed by sorrow and not grieving wrong. The depth of her sadness was simply a measure of the love she had for her daughter.
He notes that the loss was now part of her lifes' narrative and the narrative of loss was to claim and cherish and not to push down or adapt. I have written and spoken about this and about the issue of facing loss and making it part of my life.
" The truth is that grief is as unique as a fingerprint, conforms to no timetable or societal expectation."This is the struggle I have felt. What is expected of me from me? Others? What are the expectations of those who have been there for me? I’ve been lucky in that many many have allowed me to be me and live my grief dictated by my own timetable and fingerprint. Or they have been too kind to tell me to grow the hell up.
In my stubborn selfishness I have embraced the 'this is my grief and I will do what I want with it'. But I fear it is time to move beyond it find a place to park it within my life. O’Malley offers insight into this goal.
He notes there are three chapters of loss.
Chapter 1 is the attachment: what is the strength of the bond with with the person who was lost. O'Malley says the size of the grief corresponds to the depth of the love. I agree because I know it first hand. I began grieving when Donna was diagnosed. And though out her treatment and till her passing we were connected unlike any time previously. It was unique, emotional, powerful, and real. I would say this is the reason or the strength of that connection may drive my inability to release and not place what is and was into the context of my new world. That bond of 30 years and the intensity of her final two years are stronger then I have understood previously. And those bonds are divers for my current writings, podcasting, book, and memories.
Chapter 2 O’Malley writes is the death event itself where we begin to question our sanity. How we may shut down the natural pain in order to survive. I wonder out loud as I read my musings if I to am insane. Am I truly in control. Is this a run away locomotive that has me caught in its cow catcher? In my defense an hour following Donna’s passing I was calling friends and family to tell them the news. A dear friend who I have know for 30+ years said to me “What I do know about loss is that you cannot hide from it or shut it down or run from it. It’s pull will be there drawing you back in and driving your reactions and emotions. Face it embrace it take it on and go with it” I believe I have done that and have come to understanding and embracing the loss. I am not holding my grief as a Jedi light saber to slay the Sith Lords. It is a comforter. It is my path.
Chapter 3 O’mally calls the long road after the last casserole dish is picked up when the outside world stops grieving with you. His patient said she wanted to show friends she was on the fact track to closure. What was needed he says is acceptance of the the sadness and loss. I read these words and for me I think about my forever scars of my loss. Just scars friends not mortal wounds. See “The Bookends of My Grief Reading List”
I am not sure I ever really tried to achieve closure or even consider it. Closure is a myth. Closure is indifference. Closure is denial said pretty. Even though a medical professional blew smoke up my ass and said I’ve adapted to the loss. As if.
My Chapter 3 is about the plumbing the depths of the loss and the grief. I'm looking at it perhaps under the pretense that I want to help others. That remains a valid goal to accomplish. A way to find a place. At the same time, I worry or realize that I am wearing my welcome thin on this whole dead wife suffering spouse drams. There are a few out there who note that my embracing this loss is annoying the shit out of them and how selfish I am not to consider them or others by being caught up in my world. And that is not an inditement of them as much as its a look in the mirror for me. But it is my journey not anyone else’s.
I just read an interview of David G Hallman who lost his partner to AIDS. Hallman wrote August Farewell about the last 16 days of a 33 year romance and Searching for Gilead. Hallman makes the following point Hellman speaking about and sharing too much on his loss and love says he fears that he may have "skidded into an emotional exhibitionism". So clear and on point… perhaps I have done that.
I feel I'm delusional to believe anyone finds some comfort or help in my sharing. That thought drives my sense that I’m in middle of vanity project about Donna, loss, and grief. My time should be playing shuffleboard. Hope is at the extreme edges of our lives. I hope others find knowledge in what I share. The few comments that do leave are mostly polite and kind. (Addendum: This was posted prior to joining Hot Young Widows Club filled with grief warriors.) Others commenters read between the lines and see pain in what I write. Still others see it as a confessional witnessing my lack of growth, refusing to heal, or not meeting their needs. Still others have moved on. I am pretty annoying at times and dead wife sad widower perhaps has lived its life. But death is an expanding market and every couple I see I know one of they will feel the pain of grief.
The challenge now is to file these random musings within my personal context and shield it from harming others. Park it, feel it, and shut the frack up about it. Perhaps in the darkness before dawn when I am listening to my internal clock ticking off the minutes and breaths till sunrise I’ll hear what I feel and smile "I know the truth". I made my truth. Then up and make coffee.
This too shall pass because I say so on my terms.
But in case there is one out there who is looking for some knowledge about grief or loss. I will say this. Embrace it accept it do not shy away from your loss and grief. Let it be part of you let it be your own measure of who you are for the time being until it naturally takes its place in your new world. Do not manage it and don’t let it manage you. Listen to it talk to it dance with it. It will run it’s course.
Create a narrative a story and place in the world where the memories and grief exist. To get grief right. Own it live it be proud that you can find it’s meaning and place in your world your life your context. Grief is not a prison of the heart or poison to the soul. It is a journey to find meaning and a place to reside in a new world. The loss has created a new world for you. Do not feel guilt for surviving a loss.
Nina In The Sun
This is an older podcast from a previous site. The truth be known it still works. These early podcasts are with a Hospice Social Worker I met Carolyn. We both share a common belief that hospice and end-of-life are critical for both those who are dying and their loved ones.
The podcast currently has 7 episodes available.