Lupus Podcast – Lupus and Family

 

1.      Explaining lupus to others

A network of friends and neighbours can give the same kind of valuable support as family members: lending a helping hand with chores and errands, offering a sympathetic ear or a comforting shoulder. But in order to give support, friends need to have some understanding of the nature of lupus. 

·         A good way to start to explain lupus is to make clear what lupus is not

·         You can then talk about what lupus is

2.      Ten things you must sure you to tell your friends about lupus

3.      Develop A Speech to explain lupus

4.      Make adjustments as a family

5.      Take time for yourself

6.      Find the support you need

Tools You can use to explain lupus top family and friends

·      The Spoon Theory

https://youtu.be/PCm4FUpJ72M

·      Lupus Basics Video

https://youtu.be/cGQG0bi806I

·      Your Lupus Speech Worksheet

https://www.lupus.org/sites/default/files/public/Doc%20%20PDF/NRCL/Create_your_about_lupus_speech.pdf

·      Lupus symptom images for fridge

https://images.app.goo.gl/BXb9wKGyfTM186WA9

https://images.app.goo.gl/X4wGjHbtHbKbZK3e9

https://images.app.goo.gl/dB5tL5MHRsaHtrvR9

https://images.app.goo.gl/h5CQQwBPTrr9G5hK6

Resources

https://www.lupus.org/resources/explaining-lupus-to-others

https://www.lupus.org/sites/default/files/public/Doc%20%20PDF/NRCL/Create_your_about_lupus_speech.pdf

https://www.lupus.org/resources/ten-things-to-tell-your-friends-about-lupus

https://www.lupus.org/resources/coping-with-lupus-guide