LYME Voice

Key Takeaways: I am not my illness. It is ok to say “I’m not ok.”  Understanding the tole of being a caregiver for someone with chronic Lyme disease. Removing toxins from your home-Stink! Choosing the Lyme Stop treatment center. Creating boundaries that heal- It’s ok to say “NO.”  Premaking healthy foods. The power of coffee enemas and detoxing. Acupuncture Parasites-get them out. Stop the tornado of Lyme, then go after the cleanup. The healthy spouse-has to take over the bills, handle the outdoor chores, handle   the inside chores, deal with the rest of life. Unlearning Lyme when you are in remission is an entirely different game.  Dissociation from reality. Until some of the physical pain subsides, you can’t really deal with the emotional pains. When physical pain consumes your mind, you shove aside the energy attached to the emotions you feel moment by moment. Emotional Freedom Technique (EFT)- “It is hard to describe what it feels like to release something that you didn’t understand was there.”-Ashley Belanger That is one of the heartbreaking things about an illness that attacks your nervous system. In a sense, you disconnect from yourself in ways you weren’t even aware of.    Connect With My Guest: Sarah Schlichte Sanchez - [email protected]   Resources Mentioned: Stink! (The documentary)   Links Alkaline Anti-oxidant Water- http://www.lymewater.com/   Instructional videos on ionized alkaline water! Electrolyzed reduced water Envita Medical –Envita Medical Lyme Voice Facebook  The Lyme Voice Podcast- Lymevoice.com Lyme Documentary-Disappearing From Society, Life with chronic Lyme in 14 minutes…Documentary Little Bite, BIG TROUBLE, available on Amazon –Children’s book about Lyme disease Liv Lyme Summit https://livlymefoundation.org/  Download conf info HERE  Organic coffee!  https://www.ovaldogs.com

087 Together We Rise! With Suzanne Burden    About My Guest: The microphone gets turned on Sarah Schlichte Sanchez as Suzanne Burden  (our newest co-host) dives deep into the realities of living with chronic Lyme disease from a proactive and comedic perspective. Key Takeaways: Boots on the ground healing support group “Together we will rise” in Fort Wayne, IN. “This will not happen to another person on my watch”-Suzanne Burden This has become about justice for me. Finding yourself again after periods of extreme illness. Building resilience for yourself and your marriage Our faith taught us how to self-sacrifice.  Lyme forces a reckoning and tension into each conversation. I’m ok, with being in the process of transformation. As you come up against problems in treatment “Keep every option open.”  The POWER of colonics and juicing. Don’t be scared of juicing, you’ll develop a rhythm. You have to come to a place where you become  your own physician The “cost” is the courage to do it. EMDR What can you do for fun What can you do that is “normal” Create boundaries that enable healing. You never know what will be on the other side   Connect With My Guest: Sarah Schlichte Sanchez - [email protected] Resources Mentioned: Medical Medium   Links Alkaline Anti-oxidant Water- http://www.lymewater.com/   Instructional videos on ionized alkaline water! Electrolyzed reduced water Envita Medical –Envita Medical Lyme Voice Facebook  The Lyme Voice Podcast- Lymevoice.com Lyme Documentary-Disappearing From Society, Life with chronic Lyme in 14 minutes…Documentary Little Bite, BIG TROUBLE, available on Amazon –Children’s book about Lyme disease Liv Lyme Summit https://livlymefoundation.org/  Download conf info HERE  Organic coffee!  https://www.ovaldogs.com

LymeMIND is designed to enable a systems medicine approach to identify novel biomarkers and new therapeutic opportunities. Through our network of collaborators, we are able to interrogate the complex biology of samples collected from Lyme-affected individuals using molecular profiling technologies and applying advanced statistical and machine learning approaches to move rapidly from “Big Data” to knowledge and improved understanding of the disease.   About My Guest: Patricia Savi Glowe is the Director of Operations for the Institute for Next Generation Healthcare (INGH) in the Icahn School of Medicine Mount Sinai, and the Director of Strategy & Operations for the Precision Health Enterprise (PHE) in the Mount Sinai Health System. She leads the organization and development of research programs and directs operational efforts supporting the entirety of INGH, PHE, and associated centers. She joined Mount Sinai's Department of Genetics and Genomic Sciences in January 2013 and began her current work with Dr. Dudley in Fall 2014.     Key Takeaways: Join LYME Mind for a FREE Facebook Live event on October 19th Bringing together patients and researchers within the Lyme community. Interactive booth helps patients tell their stories. Treating pregnant women who are battling Lyme disease. Exploring the genetic possibilities and immune exposures that could play a part in Post-treatment Lyme disease. How Lyme is being handled from a public healthcare standpoint in comparison to AIDS and tuberculosis. Several artists will be on display as they give VOICE to the healing energy that comes through art and music. The Cohen Foundation. What will Lyme disease look like in the year 2040? Genome and immunology will be changing with precision medicine.   Connect With My Guest: To learn more about the Institute for Next Generation Healthcare please visit nextgenhealthcare.org Jessica Donaldson @ [email protected] Savi Glowe — [email protected]     Resources Mentioned: Cohen Foundation  Conference homepage: http://www.lymemind.org/ Free registration: http://www.lymemind.org/register-now Schedule: http://www.lymemind.org/2019-agenda Social media: Facebook Twitter Instagram   Links: Alkaline Anti-oxidant Water- http://www.lymewater.com/  Instructional videos on ionized alkaline water! Electrolyzed reduced water Envita Medical –Envita Medical Lyme Voice Facebook The Lyme Voice Podcast- Lymevoice.com Lyme Documentary-Disappearing From Society, Life with chronic Lyme in 14 minutes…Documentary Little Bite, BIG TROUBLE, available on Amazon –Children’s book about Lyme disease Liv Lyme Summit https://livlymefoundation.org/  Download conf info HERE Organic coffee!  https://www.ovaldogs.com

Title: Learning To Draw Strength From Within!   About My Guest: The microphone gets turned on Sarah Schlichte Sanchez as Jessica Donaldson (our newest co-host) dives deep into the realities of living with chronic Lyme disease from a proactive and comedic perspective.   Key Takeaways: The Gerson Therapy Choosing to follow a pathway towards healing “We’re not faking being sick. We are faking being well.” Compartmentalizing the trauma-survival techniques Depersonalization-a state in which one's thoughts and feelings seem unreal or not to belong to oneself, or in which one loses all sense of identity. Healing is a set of choices, finding a protocol and that suites your intuition Most of the treatments that you will need to implement have a very high “suck-factor” associated with them.  Understand that your lifestyle will need to change to promote your health. Conscientiously meeting your own needs is a skill that must be developed Shame-When you can’t get better, there is a lot of shame. The Lyme-Pit of Despair Creating space in my life Setting aside time each day to draw strength from within instead of leaning on an external source.  Suffering leads you to a place where you learn to draw strength from within.  Dependency on others because of illness leads you to a place where you become very self-reliant. Contemplation, evaluation I’m unwilling to accept the status quo in any area of my life. The suckity-suck bandwagon of figuring out a path towards wellness. When the inner timelines in your life get destroyed-how do you transition. Doing the next right one thing-use the strength you have to do one right thing. Emotional pathways formed in trauma require a remodel of your psyche. Our brains have no way of knowing the difference between the emotions of an experience and the actual memory. Every battle begins in the mind. Identify limiting beliefs and then give yourself grace and freedom to be human. “A no-joke journey that takes you to your core”-Sarah Learning to trust your body again means understanding what brings you joy. “I’m freakin’ Wonderwoman” When you are sitting in bed, those are not lost days. So much momentum doesn’t come through hoping and wishing, it comes through direct actions. 100 bad days made 100 great stories. 100 great stories make me interesting at parties….and I’m not scared of you anymore.   Connect With My Guest: Sarah Schlichte Sanchez - [email protected] Jessica Donaldson [email protected]   Resources Mentioned: Supernatural by Dr. Joe Despenza-Click Here   Links Alkaline Anti-oxidant Water- http://www.lymewater.com/   Instructional videos on ionized alkaline water! Electrolyzed reduced water Envita Medical –Envita Medical Lyme Voice Facebook  The Lyme Voice Podcast- Lymevoice.com Lyme Documentary-Disappearing From Society, Life with chronic Lyme in 14 minutes…Documentary Little Bite, BIG TROUBLE, available on Amazon –Children’s book about Lyme disease Liv Lyme Summit https://livlymefoundation.org/  Download conf info HERE  Organic coffee!  https://www.ovaldogs.com

LymeNado- The Tornado that is Lyme disease treatment About My Guest:   Trying to recover from chronic Lyme disease is similar to having a tornado randomly touch down, creating havoc on some or all parts of your life. Aaron and Sarah discuss the emotional ups and downs of life with Lyme disease and what it takes to get through months and years of treatment.  Key Takeaways: Join us next week at the Liv Lyme Summit Sept 21-22, 2019 A butt-bug story The feelings of unworthiness “Lies like to hide”-Aaron  Pulling out the emotional weeds that take root while operating in survival mode AGT’s Benicio Bryant https://www.youtube.com/watch?v=RanEWUsONsw Hiding the emotional scars of chronic illness Letting go...of shame, unworthiness, anything that holds you back from healing.  Understanding the neuropathways of trauma Choosing to continue to “LIVE” within the tornado-like chaos  Losing my voice The ping-ponging effect of working through emotional trauma Acceptance “Forgive yourself for being a horrible human being.”  Growing through the trauma   Connect With My Guest: Sarah Schlichte Sanchez - [email protected] Aaron Sanchez- [email protected] Resources Mentioned: Heal the Documentary- Amazon link  “Every time we confront death in life, we confront a dragon.” -The Hero Within-Carol S. Pearson   Links Alkaline Anti-oxidant Water- http://www.lymewater.com/   Instructional Videos on Eltrlized reduced water! Electrolyzed reduced water Envita Medical –Envita Medical Lyme Voice Facebook  The Lyme Voice Podcast- Lymevoice.com Lyme Documentary-Disappearing From Society, Life with chronic Lyme in 14 minutes…Documentary Little Bite, BIG TROUBLE, available on Amazon –Children’s book about Lyme disease Liv Lyme Summit https://livlymefoundation.org/  Download conf info HERE  Organic coffee!  https://www.ovaldogs.com

Are you worthy of having good health? Is your self-worth, self-esteem and your own sense of worthiness tied up in your health and the actions you will take.   About My Guest: Adrienne Nolan-Smith is a board-certified patient advocate, speaker and the founder of WellBe, a media company and lifestyle brand focused on bridging the large gap between the healthcare system and the wellness movement. Her mission is to help people prevent and reverse chronic health issues naturally.    From her 20-year journey through the conventional healthcare system as a patient, caretaker and then technology professional working with hospitals, Adrienne has seen how empowering patients through integrative health and wellness is key to preventing and reversing the chronic disease crisis. WellBe is her greatest passion and her life’s work. Key Takeaways: An antidote for suicide-Find something that you care about deeply, that moves you forward and keeps you alive! Your health is really a journey. Accepting the longevity-Reversing chronic health issues requires lots of effort over many months and usually years. I’m determined to heal because I’ve seen people who do heal, so I’m willing to do the hard work.  There are no quick fixes. Victim mentality- “I’m not going to feel like a victim because I can’t have gluten. I’m gonna find other things I can enjoy” Why is this happening to me? If the voices in your head are negative, you are sending negative energy to all your organs 70%-80% of your overall wellness can be contributed to your daily habits.  Childhood trauma can impact your ability to fight off infections. Reduce the toxic burden on your body by being aware of what is in your beauty products, household cleaners, food, etc. Each choice you make encourages health or encourages illness. Social determinants of health WORTHINESS-Feeling worthy of good health is a foundation for healing any aspect of your life. You are worthy of having good health. You are worthy of having your needs met. You are worthy! You can know everything about “living healthy” (I’m not worth spending money on, I’m not worth going to the salon)   Connect With My Guest:   https://getwellbe.com/ Podcast   Resources Mentioned: Heal the Documentary- Amazon link   Links Alkaline Anti-oxidant Water- http://www.lymewater.com/   Instructional Videos on Eltrlized reduced water! Electrolyzed reduced water Envita Medical –Envita Medical Lyme Voice Facebook  The Lyme Voice Podcast- Lymevoice.com Lyme Documentary-Disappearing From Society, Life with chronic Lyme in 14 minutes…Documentary Little Bite, BIG TROUBLE, available on Amazon –Children’s book about Lyme disease Liv Lyme Summit https://livlymefoundation.org/  Download conf info HERE  Organic coffee!  https://www.ovaldogs.com

About My Guest:  Kyle J. Willis is a 26-year-old Nationally Published Fitness Model and Chronic Lyme Disease warrior. In 2011, Kyle was infected with Lyme Disease, a tick-borne illness, in his hometown of Londonderry, New Hampshire. After undergoing 3.5 years of high-dose antibiotic treatment, Kyle made the decision to get off of all medicine and began his healing journey through fitness and nutrition.    Despite suffering from neurological and cardiac complications, Kyle puts his faith in God and continues onward in the Fitness Industry, landing on the cover of Men’s Fitness Magazine and frequently featured in Muscle and Fitness Magazine.   Kyle currently resides in Huntington Beach, California, where you can find him spending time with his wife Madison, working out at Equinox, reading in local coffee shops, and playing golf.    Key Takeaways: Life with Lyme is like living in the “Upsidedown” of Stranger Things.  Having Lyme disease throughout college felt like learning to live with a 200lb weight. Ah-ha moment “If anything is going to change in my life, (no one is going to tie my shoes for me) I’m the one who has to take action”   ”It was so easy for me to look around and want to be a victim.”   Listen to what your body is saying. If you feel good in CA weather, honor your body and what it is telling you. Your Environment is HUGE, make your environment work for you and not against you. Nature can heal your heart.   Lyme and chronic illness is a tremendous weight. And when that weight gets removed, you can make exponential gains.   Start small-taking small steps towards your health will empower you down the road to take action in new ways. Do NOT put your hope in a human being. A battle of the mind-Persistence and Resistance are a must. Life inevitably will be difficult, it’s super beautiful, but everyone has to face death, illness, loss, and adversity. Everyone has something to teach you   “Battling Lyme disease was, and is, and I think always will be,  a messy process.”   Chronic illness brings you to a place where you have to start asking yourself the deeper questions, what am I doing here? I'm not here just to suffer and die? Who am I and who do I want to be? Then...Write up an actionable plan. START with what you have and begin to create your life. Writing up actionable plans-START with what you have https://www.youtube.com/watch?v=T3OONZ-HGQA&feature=youtu.be You can suppress it, (the losses of chronic Lyme)  or press into it, and I found that the more you press in, the more juice you are going to get out of it. Give yourself permission to have the freedom and find who you truly are.    Connect With My Guest: [email protected]   Resources Mentioned: The Road Less Traveled by M. Scott Peck MD The Hero Within by Carol S. Pearson   Links Alkaline Anti-oxidant Water- http://www.lymewater.com/ Envita Medical –Envita Medical Lyme Voice Facebook  The Lyme Voice Podcast- Lymevoice.com Lyme Documentary-Disappearing From Society, Life with chronic Lyme in 14 minutes…Documentary Little Bite, BIG TROUBLE, available on Amazon –Children’s book about Lyme disease   LivLyme Summit  https://livlymefoundation.org/conference/

About My Guest:   My guest today is Tami Moore, NHP (Natural Holistic Practitioner) Certified Natural Health Provider, natural lifestyle blogger, and Lyme disease survivor. Moore's wellness coaching is helping men and women to reverse, heal and overcome chronic disease and imbalances using natural therapies that make sense for their lifestyles and bodies. If your symptoms feel like a mystery, you’re not alone! My Lyme disease symptoms fooled countless doctors, but with natural health there is hope.   Key Takeaways:   Managing your mind, body connection while going through trauma is KEY. Regaining your health BEFORE pregnancy. Stay focused on your reason for fighting, knowing your BIG WHY is a vital aspect to endurance. "This disease is controlling me, but I'm going to get it to the point where I'm controlling the disease." Create a health team-Lyme doctors, Naturopathic physicians, Integrative medicine doctors. How to keep your heart hopeful during the sick years. How to heal the heart after recovery. Understanding that your mental health impacts your physical health, so you have to work on both simultaneously. Get control of your mind, so that you can maintain your body. This episode of Lyme Voice goes over how to do that if you need suggestions on how to harness and empower your mindset...https://lymevoice.com/060-recovering-from-lyme-disease-starts-with-mindset/ Determine to do things that make you happy (at whatever level you are at.) Keep moving-Yin yoga is a great way to restore the body. Mitigate the loses that will happen-Divorce, loss of work, bankruptcy. Ask yourself "Is this going to be a positive choice for my health" (careers might need to be changed, toxic people might need to be removed from your life) Craft an environment that supports your health goals   Connect With My Guest: Naturally With Tami-https://naturallywithtami.com/   Resources Mentioned: Tami's blog post "Healing The Heart"https://naturallywithtami.com/how-to-heal-a-broken-heart/ Links Kangen Water- http://www.lymewater.com/ Envita Medical –Envita Medical Lyme Voice Facebook  The Lyme Voice Podcast- Lymevoice.com Lyme Documentary-Disappearing From Society, Life with chronic Lyme in 14 minutes…Documentary Little Bite, BIG TROUBLE, available on Amazon –Children’s book about Lyme disease

In this episode, Aaron and Sarah talk about the primary treatments used at Envita Medical for treating neurological Lyme disease. Sarah went to treatment in 2013 for late-stage neurological Lyme disease and Envita saved her life. After being reinfected in 2018 she returned and did a second round of treatment in 2019.    Segment 1 FIGHTING is a mindset! ~Patient Care Coordinators are a vital link between you and all your physicians. They keep tabs on you throughout your entire visit, make sure you are getting to your outside appointments. So many times throughout my years of battling chronic Lyme I would wish that someone could be in charge of me, give me advice, or help me make decisions, that is what the Patient Care Coordinators do for you, it is fantastic. Click here to see more https://www.envita.com/about   ~NMD's-Naturopathic Medical Doctor (integrative) Most of the physicians at Envita are Naturopathic Medical Doctors which is my favorite type of physician because they problem-solve with a wide variety of natural modalities.   ~PTSD-I definitely battled PTSD while out at treatment for the 2nd time. It was prepared for the reality that I was leaving my family for 10 weeks and would be living in a hotel. I was even prepared for the intense Mon-Fri treatment schedule, but the emotional weight of being back at treatment, having my life once again be put on hold was and still is immense. I'm honestly still trying to figure it out.   Segment 2-HEALING always consists of choices ~Housing while at Envita Medical If you fully implement all the protocols (outside) then you should in some way be prepared for it to be all-encompassing...and yet totally boring at the same time ~Ozone therapy ~Bemer PEMF Mat ~Hydrogen Peroxide IV-is an antiviral therapy that is especially helpful for Lyme patients due to co-viral infections. Envita uses a unique formula that is able to pass through the blood-brain barrier ~DMPS Chelation removes heavy metals from the body. Improves your ability to fight infection ~Glutathione push -IRAD is the neurological repair program that completely changed my life back in 2013. This time it didn't disappoint, after the 4th treatment I just felt like I could think on another level, I had a more executive function. The possible benefits of IRAD can be: Deeper delivery of the antibiotics Penetration into the central nervous system via insulin Helps infections that impact the nervous system Detoxifies the liver Immune Modulator Potentiates the antibiotics to kill the infection For more info on treating late-stage neurological Lyme disease or Lyme disease complex, https://www.envita.com/conditions/lyme-disease   ~Ketamine can help with resetting the neurological system, wiping it clean so that the synapsis connections can connect properly, it can be helpful with tremors, insomnia, depression, addiction. ARTICLE LINKS  Ketamine for chronic pain: risks and benefits Effects of intravenous ketamine in a patient with post-treatment Lyme disease syndrome   ~Exosome treatment-Exosomes are a subtype of membrane vesicle released from the endocytic compartment of live cells. They play an important role in endogenous cell-to-cell communication. Previously shown to be capable of traversing biological barriers and to naturally transport functional nucleic acids between cells, they potentially represent a novel and exciting drug delivery vehicle for the field of gene therapy. Existing delivery vehicles are limited by concerns regarding their safety, toxicity, and efficacy. In contrast, exosomes, as a natural cell-derived nanocarrier, are immunologically inert if purified from a compatible cell source and possess an intrinsic ability to cross biological barriers. Already utilized in a number of clinical trials, exosomes appear to be well-tolerated, even following repeat administration ARTICLE LINKS  Exosomes and the Emerging Field of Exosome-Based Gene Therapy       Segment 3-LIVE ~Environment is HUGE   ~Support system is HUGE (if you don't have this, if you are surrounded by toxic people who can't or won't support you, find new people, start there) This is not your fault but it is your responsibility. Links Kangen Water- http://www.lymewater.com/ Envita Medical –Envita Medical Lyme Voice Facebook  The Lyme Voice Podcast- Lymevoice.com Lyme Documentary-Disappearing From Society, Life with chronic Lyme in 14 minutes…Documentary Little Bite, BIG TROUBLE, available on Amazon –Children’s book about Lyme disease

Aaron Sanchez gives a candid look at his struggles. As he discusses Chronic Illness and How it affects the caretaker in illness. In his case, he is also is a Father and Husband. Join him as he discusses a topic that has not been addressed nearly as much as the disease or patients struggles have. This is a very important part of the path to health!  This is such a huge disease, we must have help in order to heal. We need all the help we can get!  Sarah's Go Fund Me Page    News report     Links Kangen Water- http://www.lymewater.com/   Envita Medical -Envita Medical Lyme Voice Facebook Little Bite Big Trouble    The Lyme Voice Podcast- Lymevoice.com Lyme Documentary-Disappearing From Society, Life with chronic Lyme in 14 minutes…Documentary Little Bite, BIG TROUBLE, available on Amazon -Children’s book about Lyme disease Little Bite Big Trouble