Lymphedema Podcast

Jennifer Jagielski, CWCMS Sr Clinical Education ManagerMedi USALymphedema / Wound Care

Medi USA is back on the podcast with a great interview on product selection. As a CLT it took me a very long time to feel comfortable recommending products, and I still struggle to confidently do so 6 years into this specialty.

Jennifer does such a great job explaining

1) Fabric options from Medi USA. 2) Compression dosing. 3) Texture and tissue considerations.

Give the episode a listen, take notes, and reach out to your local Medi rep for some samples or product demonstrations.

Photo by K. Mitch Hodge on Unsplash

As April comes to an end so does the series of grief on the spectrum. Thank you to Marshall Lyles for being a wonderful guest! He had a concussion and injured ankle BUT STILL he pushed through and dropped so much wisdom and insight for all of us.

As he mentions in the interview, Guest House by Rumi

Patient grief has many faces, stages, and ranges. The one thing that remains true is you are not alone on this journey. Even during your darkest days, loneliest hours, and lowest valleys you have a community of people who care for you, are rooting for your success, and want to help you pull through. Please reach out to me if you would like to talk or be put in contact with others who can help support you with friendship and understanding.

To continue this months series on grief, I want to encourage you to listen to episode 99 featuring Jen Bell. This interview reflects on statements made in episode 99 and overall it is a fantastic resource for anyone in a relationship with someone who has a chronic illness.

One comment Marshall made in this interview was something along the lines of “when we are imaging our forever with someone we usually don’t think “and I can’t wait to become their case manager”” This really struck me and has been in the back of my mind since. If you are currently in a relationship with someone who has lymphedema or you have lymphedema and are looking for a partner this episode will be encouraging to you.

Like, subscribe, and share if you enjoyed this interview.

Continuing the series on grief this month, listen to this powerful episode for parents!

Please like and subscribe to Lymphedema Podcast on the website or on your favorite app! Share this episode with any family you think could benefit from the message.

This episode is dedicated to John Jones, Luann Jacobs, LaTonya Lomax, Michael Birmingham, Carol Rhoden, and the many other patients over the years who have a permanent place in my heart.

In October/November when I was preparing to shut the podcast down for the season, I was so burnt out. Life had caught up with me and I was desperate for a break, so I put the show on pause to reflect and prepare content that I wanted to talk about.

Grief was one of the first topics I thought of. In the lymphedema community many people are grieving, each in their own way, and for their own personal reasons. Never did I expect to be in a season of grief when sharing this series, but life has a way of aligning messages when you really need them.

Allie was (I HATE using past tense now when talking about her) and will continue to be a shining light for the lymphedema community! Many people have shared personal stories of her kindness and humor—I encourage you to visit the blog and learn from her fashion posts.

This series begins with the CLT perspective on grief. My esteemed guest is Marshall Lyles LPC-S, LMFT-S, RPT-S, EMDRIA Approved Consultant, and he was the best guest! Fun, heart felt, professional, and insightful!! If you would like to learn more about him check out his website (linked to his name above)

Trish wearing compression

This is your warning to not play this episode with your in laws or kids around, it’s not *too graphic but unless you want to define vagina for your kids or blush next to your father in law…take my word and listen in your ear-buds or when alone.

Trish has 12 years of experience as a labor & delivery Nurse who was diagnosed with Primary Lymphedema before she was pregnant. This episode covers the pregnancy journey and how she planned ahead to manage her lymphedema. There will be a postpartum episode released after April.

Ehlers-Danlos Syndrome This is the underlying health condition that Trish describes in the interview.

Be sure to like and subscribe to Lymphedema Podcast so you never miss a show! Especially if you want to hear Trish’ postpartum story.

For better or for worse, in sickness and in health, til death do us part…those are the marriage vows most people are familiar with. But what about “for the few days a year I don’t feel overtaken with swelling and depression, in a sickness not many doctors understand and health that isn’t promised to last, til death do us part?

This episode is going to be a favorite of mine for a long time to come. Kelly Bell is well respected and known in the lymphedema patient advocacy community. He goes by the veteran fighting lymphedema because he is a retired Coast Guard who has been battling lymphedema more than 15 years. To Kelly I say: thank you for your service to our country and to this community. We are better for knowing you.

His loving wife is also a veteran fighting lymphedema, she is a retired Coastie and has dedicated much of her time to helping Kelly find a diagnosis and treatment. Please take some time to listen to the full episode, you won’t regret it. Jen is such an inspiration to me and her wisdom for you is endless. To Jen, thank you for your service to our country and thank you for showing me what true love and dedication looks like.

Medical device manufacturer medi® USA announced the launch of the new circaid® profile foam sleeve for lymphedema management at-home. The circaid profile foam sleeve is an alternative or supplement to nighttime and home-care bandaging applications that applies gradient compression to the effected limb or limbs.

Engineered with first-use foam for hygenic confidence and brrr® cooling fabric proven to keep patients cooler, the circaid profile allows wearers to manage their own therapy comfortably at home. The foam creates a massaging effect and promotes continuous airflow, and with an anatomic fit, the sleeve provides full limb coverage. Included standard is an energy oversleeve available in four color choices that provides added compression for maximum effect, an EZ-on system that easily applies the sleeve and the profile anchor system to help keep the compressive oversleeve in place.

“The profile showcases medi’s commitment to quality and passion for originality and innovation. From the project start, there was an all hands-on deck approach and shared enthusiasm to breathe new life into a familiar concept,“ said Moses Lipshaw, Director of Research & Development at medi USA. “With simplified donning, cooling comfort, long-lasting compression and premium features, patients will benefit from a new standard in padded night care.“

The brrr® Triple Chill Effect included in the circaid profile foam sleeve has three unique cooling effects  – cooling minerals, rapid drying and active wicking – that continually enhance comfort and reduce the temperature of the skin.

The circaid profile foam sleeve offers the widest ready-to-wear size range in the market with 16 sizes and 2 lengths, and it has a 30-day fit guarantee. For easy ordering, the profile uses the same size chart as the mediven® harmony and comfort arm sleeves. Along with the ready-to-wear option, it is also available in custom-made sizing and includes a 1-year the New You guarantee for a one-time, free reduction alteration to reward patients who succeed in their treatment plan.

The new circaid profile joins a full range of compression products offered by medi in their circaid inelastic compression line, inspired by nature. medi creates compression products that fit every patient for all stages of venous and lymphatic conditions. (https://www.mediusa.com/lymphedema-maintenance-simplified-with-new-foam-sleeve/)

Custom-order-formDownload

Lymphology-Upper-ExtremityDownload

P0843-Rev-A_circaid-profile-brochure_FINALDownload

I hope you enjoyed last weeks interview with Allison on Medical Trauma. As we learned, medical trauma is experienced and perceived differently from person to person. Listen to part 2 to learn: action steps toward helping a child (or adult) who may be suicidal, how parents and caregivers can be affected by medical trauma, and a summary of part 1 & 2.

Visit last weeks post for links for the book and website resource mentioned in the podcast.

Remember to like and subscribe Lymphedema Podcast so you never miss a new show.

Leave a review on your favorite podcast app to the website to help others find Lymphedema Podcast.

Clinically, Medical trauma is defined as a set of psychological and physiological responses to pain, injury, serious illness, medical procedures and frightening treatment experiences.1

Medical trauma can be viewed as an acute onset of a disrupted physiological system in which the ongoing threat is internal (i.e., the body) and may be long-term or permanent (e.g., cancer treatment).2 This differs from an external trauma (e.g., car accident) where once the event ends, the external threat ends.

My guest today is a medical trauma specialist.

Allison is a Licensed Professional Counselor Supervisor, a Registered Play Therapist Supervisor, and an Approved EMDR Consultant. Her previous background was in education of the deaf. She currently has a private practice in Texas, specializing in trauma as well as other types of trauma, working with adults, parents, and children.  She became interested in specializing in medical trauma during her own experience with a life changing medical issue which involved healing from past traumas as well as her on-going medical trauma as part of her physical treatment plan. Her practice now focuses primarily in training new therapists to be able to understand how client’s real experiences of pain and medical issues can be worsened by past traumas as well as how they are affected by medical treatments, and how getting healing for the psychological trauma can impact the body’s ability to handle the physical issues. 

Join us for part 1 of our conversation here on the website or wherever pods are cast! If you feel you are experiencing medical trauma, please reach out to someone for help

Links from the show:

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Pediatric article:

https://jamanetwork.com/journals/jamapediatrics/fullarticle/10.1001/jamapediatrics.2015.2206