Lymphoma Voices

John’s lymphoma story begins almost 50 years ago in the shipyards of Newcastle and a diagnosis of Hodgkin lymphoma that was kept from him. In a twist of fate, his daughter also received a blood cancer diagnosis. In this podcast John talks about his emotional lymphoma experience which led him to a career as a lymphoma clinical nurse specialist and more recently an author. He talks also about what helped him through some dark times and how he feels about being one of the longest cancer survivors. 

Lymphoma Voices is a series of podcasts for people living with lymphoma, and their family and friends. In each podcast, we are in conversation with an expert in their field, or someone who has been personally affected by lymphoma, who shares their thoughts and experiences. 
 
 Lymphoma Action is the only charity in the UK dedicated to supporting people affected by lymphoma. We are here to make sure that everyone affected by the condition receives the best possible information, support, treatment and care. Our services include a Freephone helpline, support group network, Buddy Service, medical information, conferences for those affected by lymphoma, and education and training for healthcare professionals. We would like to thank all of our incredible supporters whose generous donations enable us to offer all our essential support services free of charge. As an organisation we do not receive any government or NHS funding and so every penny received is truly valued. From everyone at Lymphoma Action and on behalf of those affected by lymphoma, thank you. For further information visit: www.lymphoma-action.org.uk
 

In this podcast Professor George Mikhaeel, Consultant Clinical Oncologist at Guys and St Thomas’ NHS Foundations Trust, explains what radiotherapy therapy is and when it is used in the treatment of lymphoma. He explains the three steps involved – an initial consultation and consent, the planning phase and then treatment.  Although radiotherapy was available before chemotherapy, there have been enormous advances in this form of treatment and Professor Mikhaeel explains how and when it offers a really targeted approach to treatment. 

Lymphoma Voices is a series of podcasts for people living with lymphoma, and their family and friends. In each podcast, we are in conversation with an expert in their field, or someone who has been personally affected by lymphoma, who shares their thoughts and experiences.
 
 Lymphoma Action is the only charity in the UK dedicated to supporting people affected by lymphoma. We are here to make sure that everyone affected by the condition receives the best possible information, support, treatment and care. Our services include a Freephone helpline, support group network, Buddy Service, medical information, conferences for those affected by lymphoma, and education and training for healthcare professionals. We would like to thank all of our incredible supporters whose generous donations enable us to offer all our essential support services free of charge. As an organisation we do not receive any government or NHS funding and so every penny received is truly valued. From everyone at Lymphoma Action and on behalf of those affected by lymphoma, thank you. For further information visit: www.lymphoma-action.org.uk
 

Lou was diagnosed with follicular lymphoma in 2017. In this podcast, she talks about how living with a low-grade non-Hodgkin lymphoma can be challenging; wondering when and if you will need treatment again, the impact of living with lymphoma on her mental health, and the value of information and support at the right time.

Lymphoma Voices is a series of podcasts for people living with lymphoma, and their family and friends. In each podcast, we are in conversation with an expert in their field, or someone who has been personally affected by lymphoma, who shares their thoughts and experiences.
 
 Lymphoma Action is the only charity in the UK dedicated to supporting people affected by lymphoma. We are here to make sure that everyone affected by the condition receives the best possible information, support, treatment and care. Our services include a Freephone helpline, support group network, Buddy Service, medical information, conferences for those affected by lymphoma, and education and training for healthcare professionals. We would like to thank all of our incredible supporters whose generous donations enable us to offer all our essential support services free of charge. As an organisation we do not receive any government or NHS funding and so every penny received is truly valued. From everyone at Lymphoma Action and on behalf of those affected by lymphoma, thank you. For further information visit: www.lymphoma-action.org.uk
 

Angie and John talk to Anne about the role of stem cell transplants in the treatment of lymphoma, when they are used, and the important differences between allogeneic (donor) and autologous (self) transplants, and the challenges in deciding between these two different treatment options. This podcast includes discussions around this often very difficult subject, and contains information on side effects and treatment outcomes that may be potentially distressing.

 Lymphoma Voices is a series of podcasts for people living with lymphoma, and their family and friends. In each podcast, we are in conversation with an expert in their field, or someone who has been personally affected by lymphoma, who shares their thoughts and experiences.
 
 Lymphoma Action is the only charity in the UK dedicated to supporting people affected by lymphoma. We are here to make sure that everyone affected by the condition receives the best possible information, support, treatment and care. Our services include a Freephone helpline, support group network, Buddy Service, medical information, conferences for those affected by lymphoma, and education and training for healthcare professionals. We would like to thank all of our incredible supporters whose generous donations enable us to offer all our essential support services free of charge. As an organisation we do not receive any government or NHS funding and so every penny received is truly valued. From everyone at Lymphoma Action and on behalf of those affected by lymphoma, thank you. For further information visit: www.lymphoma-action.org.uk
 

 Lyle was diagnosed with Hodgkin lymphoma in 2021, at the age of 19. In this podcast, Lyle and his mum Julie talk about their shared experience of lymphoma, from diagnosis to treatment and beyond, and how their experience inspired them to fundraise for Lymphoma Action.

 Lymphoma Voices is a series of podcasts for people living with lymphoma, and their family and friends. In each podcast, we are in conversation with an expert in their field, or someone who has been personally affected by lymphoma, who shares their thoughts and experiences. 
 
 Lymphoma Action is the only charity in the UK dedicated to supporting people affected by lymphoma. We are here to make sure that everyone affected by the condition receives the best possible information, support, treatment and care. Our services include a Freephone helpline, support group network, Buddy Service, medical information, conferences for those affected by lymphoma, and education and training for healthcare professionals. We would like to thank all of our incredible supporters whose generous donations enable us to offer all our essential support services free of charge. As an organisation we do not receive any government or NHS funding and so every penny received is truly valued. From everyone at Lymphoma Action and on behalf of those affected by lymphoma, thank you. For further information visit: www.lymphoma-action.org.uk
 

Manil Subesinghe, talks to us about the vital role radiology plays in the diagnosis and management of lymphoma. This podcast gives an insight into this key role in guiding treatment and decision-making, reviewing treatment outcomes, and in overall supporting individuals with lymphoma.

Two of our volunteers Penny and Mark join Carly, Volunteering Development Manager, to share life as a Lymphoma Action volunteer and how their volunteering makes a difference for people affected by lymphoma and their own personal experience of lymphoma.

Shortly after 28-year-old Nia had moved to the UK from the USA, she discovered a lump in her neck. Here she talks about her diagnosis of Hodgkin lymphoma, how healthcare differs in the UK compared with the USA, chemotherapy, radiotherapy and ways she coped with treatment. 

Katie was diagnosed with Waldenström’s macroglobulinaemia (WM) - a type of lymphoma. When she was being considered for treatment for her lymphoma, she was offered the opportunity to join a clinical trial. In this podcast, Katie describes her diagnosis, her treatment journey, and the decisions behind accepting treatment through a clinical trial.

Advanced Nurse Practitioner Charlotte Bloodworth explains what relapsing in lymphoma means, strategies for treating and managing relapse, and support strategies for coping with concerns around relapse.