The FND Podcast

Maggies Corner| Back home In Melbourne | the fnd podcast with detty


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On this episode Maggie is back in Melbourne and out of quarantine. We talk about her travel experience coming back home  and all things fnd.  Follow Maggie on Instagram @Maggie.Chapman and her creatively on @maggiesa.creative

To listen to our song playlist  started by our lovely Maggie on Spotify click on the link below I have already added Get Happy by Ella Fitzgerald.  

https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=IyN0V1ENQdi1_6W6MrNjAA

FND Merchandise to support FND Australia Support services by Chucky from @friendswithfnd

https://imprintmerch.com.au/collections/lets-have-the-chat

from masks to bags hoodies and tshirts check them out!

LINKS AND INFORMATION TO CHECK OUT:

Listenable podcast: amazing podcast to listen to ! Here are some more to also listen to in regards to disability and travelling too 

https://www.travelwithoutlimits.com.au/podcasts-about-disability-and-travel/

If you are looking to travel here are some links to consider but please do your research on what each of your airlines offer for example heres what Qantas offers https://www.qantas.com/au/en/travel-info/specific-needs.html 

Here’s some other Links on travelling with disabilities 

https://www.smartraveller.gov.au/before-you-go/health/disability

https://www.flightcentre.com.au/flights/planning-your-flight/disabilities

https://www.scopeaust.org.au/blog/disability-advice/tips-for-travelling-with-a-disability/
 

Tip of the tongue

https://www.verywellmind.com/lethologica-tip-of-the-tongue-phenomenon-4154947

Example of the 5 second game 

https://youtu.be/tffTbQMErQk

AMPLIFYING:
Julian Gavino (he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representation. Follow him on Instagram  @thedisabledhippie 

HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

https://www.neurosymptoms.org/

Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there. 

FND ORGANISATIONS:

https://www.fndaus.org.au/

FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

https://fndaus.org.au/

https://www.fndaction.org.uk/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

http://fnddimensions.org/

A really helpful article and explanation of what FND is: '

https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ

Other podcasts/ blogs / vlogs to follow:

itsmeitsmeitsfnd

https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1

Bed Life and Beyond by Rach also a lovely FNDer 

https://pandoralocksmith.wordpress.com/about/

John McLeans Fnd Journey

https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0

Lmtd Life with FND

https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos

FNDer amplified: Meg Jacks

follow on Instagram @ Meg.jacks_

TicTok: @megjacks

The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND. 
 


 

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The FND PodcastBy Odettecreates