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Welcome to Mark In The Park — a podcast about life, not just Parkinson’s. Hosted by Mark Milow, aka MarkInThePark21, this is a space where honesty meets optimism, and everyday moments matter just as much as the big ones.
This week we have Steve and Kitty Hoden. Steve is 12 years in from his diagnosis with Parkinson’s Disease. Kitty is Steve’s Care Partner and number 1 supporter! You will love this episode!
Bio-
Steve served several years as a pastor, and a helper of people. Kitty spent 40+ years as a registered nurse! Together, they make one incredibly wonderful married couple and a dynamic duo!
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Want to know more about Parkinson’s Disease? You will find great resources at the Parkinson’s Foundation website or by calling their hotline below:
1-800-4PD-INFO (1-800-473-4636)
www.parkinson.org
If you have a question or suggestion for the podcast, or would like me to speak at an event, you can reach me at [email protected] . You can also check out my website www.markinthepark21.com or my LinkedIN page www.linkedin.com/in/markmilow
Thank you for listening! Please Like, Subscribe and tell a friend if you enjoyed the show!
Music by James Wigley 👏
Special thanks to my BFF Nikki ❤️
And to the one who helped me find light in the darkness, I will always be thankful!
#Parkinsons #Tenacity #YOPD #Inspiration #Resilience #Hope #Fun #WPC #DadJoke
Welcome to Mark In The Park — a podcast about life, not just Parkinson’s. Hosted by Mark Milow, aka MarkInThePark21, this is a space where honesty meets optimism, and everyday moments matter just as much as the big ones.
This week we have Parkinson’s advocate, personal trainer and podcaster Vicky Rees-Davies! We talk candidly about divorce and Parkinson's, finding joy despite Parkinson's, and difficulties with unseen symptoms. You will love this episode!
Vicky’s Bio-
Vicky is a qualified personal trainer, communications professional, and Parkinson’s advocate who discovered her true purpose after her own diagnosis. Combining her marketing and stakeholder engagement background with lived experience, she now specializes in strength training and Parkinson’s-specific movement, offering 1:1 coaching and championing greater inclusion and awareness. Through her work—whether coaching clients, speaking publicly, or co-hosting “Shaking It Up”—Vicky is passionate about helping others feel stronger, more confident, and supported, building strength from the inside out.
You can connect with Darryn through these platforms:
@The_Fitness_Mum on Instagram
Listen to Vicky’s podcast here:
https://shakingitupwithparkinsonspodcast.com/
* * * * * * * * * * * * * * * * *
Want to know more about Parkinson’s Disease? You will find great resources at the Parkinson’s Foundation website or by calling their hotline below:
1-800-4PD-INFO (1-800-473-4636)
www.parkinson.org
If you have a question or suggestion for the podcast, or would like me to speak at an event, you can reach me at [email protected] . You can also check out my website www.markinthepark21.com or my LinkedIN page www.linkedin.com/in/markmilow
Thank you for listening! Please Like, Subscribe and tell a friend if you enjoyed the show!
Music by James Wigley 👏
Special thanks to my BFF Nikki ❤️
And to the one who helped me find light in the darkness, I will always be thankful!
#Parkinsons #Tenacity #YOPD #Inspiration #Resilience #Hope #Fun #WPC #DadJoke
Welcome to Mark In The Park — a podcast about life, not just Parkinson’s. Hosted by Mark Milow, aka MarkInThePark21, this is a space where honesty meets optimism, and everyday moments matter just as much as the big ones.
This week we have Parkinson’s Advocate, Blogger, speaker and all around good guy, Darryn Wright! AKA “Punk Rock Parkinson’s”. Darryn talks about what drove him to Advocacy, his favorite moments at the WPC, and speaks candidly about his struggles with Parkinson’s apathy and depression.
Darryn’s Bio-
Darryn Wright is a Parkinson’s advocate, content creator, and the voice behind Punk Rock Parkinson’s. Diagnosed with Young Onset Parkinson’s Disease in 2015, Darryn has spent more than a decade learning how to live with—and push back against—a disease that doesn’t play by the rules.
Through advocacy, speaking, and his Punk Rock Parkinson’s platform, Darryn uses humor, honesty, and a little punk-rock attitude to talk about the realities of Parkinson’s that often get overlooked. His mission is simple: educate yourself, advocate for yourself, find your community, and never let Parkinson’s have the last word.
You can connect with Darryn through these platforms:
@PunkRockParkinsons on TikTok ; @Punk_Rock_PD on Instagram
The mimofit website:
https://mimo.fit/
Use Darryn’s Discount code “punkrockparkinsons5” and save!
* * * * * * * * * * * * * * * * *
Want to know more about Parkinson’s Disease? You will find great resources at the Parkinson’s Foundation website or by calling their hotline below:
1-800-4PD-INFO (1-800-473-4636)
www.parkinson.org
If you have a question or suggestion for the podcast, or would like me to speak at an event, you can reach me at [email protected] . You can also check out my website www.markinthepark21.com or my LinkedIN page www.linkedin.com/in/markmilow
Thank you for listening! Please Like, Subscribe and tell a friend if you enjoyed the show!
Music by James Wigley 👏
Special thanks to my BFF Nikki ❤️
And to the one who helped me find light in the darkness, I will always be thankful!
#Parkinsons #Tenacity #YOPD #Inspiration #Resilience #Hope #Fun #WPC #DadJoke
Welcome to Mark In The Park — a podcast about life, not just Parkinson’s. Hosted by Mark Milow, aka MarkInThePark21, this is a space where honesty meets optimism, and everyday moments matter just as much as the big ones.
This week we have Parkinson’s Advocate, artist, speaker and Rock Steady Boxing lover Jennifer Crowder! Jennifer talks about the profound physical and social benefits of Rock Steady Boxing, and how Art plays an important part of her life. We also talk about the distinction between Success and Greatness, as well as the power of words spoken intentionally. You will love it!
Jennifer’s Bio-
Jennifer Crowder is a writer, artist, speaker, and passionate advocate for individuals living with Young Onset Parkinson’s disease. Through her storytelling, creative work, and public speaking, she raises awareness of the unique challenges faced by those diagnosed at a younger age, shedding light on both the emotional journey and the realities of daily life with Parkinson’s.
A dedicated voice in the Parkinson’s community, Jennifer regularly participates in discussions, interviews, and podcasts to educate, inspire, and connect with others affected by the disease. She is the creator of two community-focused initiatives: the podcast Jenn and Darryn Are Degenerates and the Parkinson’s Artisans art show. While both projects are currently paused as she develops strategies for their long-term sustainability and growth, they remain a reflection of her commitment to fostering connection, creativity, and support within the Parkinson’s community.
Jennifer also serves on the APDA Voices of Parkinson’s Council, where she contributes her perspective and experience to help advance awareness, advocacy, and support for people living with Parkinson’s disease.
You can connect with Jennifer through these platforms:
Tiktok- ShakyBaker
Substack - ShakyWriter
Instagram- ShakyCarver
AMERICAN PARKINSON DISEASE ASSOCIATION TO HOST FOURTH ANNUAL VIRTUAL PARKINSON’S CONFERENCE | American Parkinson Disease Association https://share.google/EiUPOo01TeRs31f14
Jennifer will be speaking here!
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Want to know more about Parkinson’s Disease? You will find great resources at the Parkinson’s Foundation website or by calling their hotline below:
1-800-4PD-INFO (1-800-473-4636)
www.parkinson.org
If you have a question or suggestion for the podcast, or would like me to speak at an event, you can reach me at [email protected] . You can also check out my website www.markinthepark21.com or my LinkedIN page www.linkedin.com/in/markmilow
Thank you for listening! Please Like, Subscribe and tell a friend if you enjoyed the show!
Music by James Wigley 👏
Special thanks to my BFF Nikki ❤️
And to the one who helped me find light in the darkness, I will always be thankful!
#Parkinsons #Tenacity #YOPD #Inspiration #Resilience #Hope #Fun #WPC #DadJoke
Welcome to Mark In The Park — a podcast about life, not just Parkinson’s. Hosted by Mark Milow, aka MarkInThePark21, this is a space where honesty meets optimism, and everyday moments matter just as much as the big ones.
This week we have my friend, Parkinson’s Advocate extraordinaire Donna Parkhurst, talking about her diagnosis, how she got into advocacy, and why we need more focus on women with Parkinson’s Disease. I know you will love this interview!
Donna’s Bio-
Donna Parkhurst is the creator of Moved by Parkinson's, where she shares honest, hope-filled, evidence-based content to help people navigate life with Parkinson's disease. Diagnosed with young-onset Parkinson's at age 51, Donna has become a trusted voice in the Parkinson's community by combining her personal experience with a passion for educating and encouraging others to live well despite life's unexpected challenges.
She serves as a Parkinson's Foundation Ambassador, PMD Alliance Ambassador, and member of the Young Onset Parkinson's Network Advisory Council. Donna is also a certified Integrative Nutrition Health Coach and menopause specialist with a heart for helping people thrive in midlife and beyond.
Through social media, speaking, and advocacy, Donna is committed to raising awareness, combating misinformation, and reminding others that while Parkinson's changes life, it doesn't have to define it. She lives in Washington State with her husband, David, and believes that hope, purpose, and joy can coexist with even the most difficult diagnoses.
You can connect with Donna hrough these platforms:www.donnaparkhurst.com
Facebook: Facebook
Instagram:@movedbyparkinsons
TikTok: @movedbyparkinsons
YouTube: https://youtube.com/@movedbyparkinsons?si=MVeJJMgAm80D-1wz
Welcome to Mark In The Park — a podcast about life, not just Parkinson’s. Hosted by Mark Milow, aka MarkInThePark21, this is a space where honesty meets optimism, and everyday moments matter just as much as the big ones.
This week we have my friend, Parkinson’s Advocate and Speech-Language Pathologist Amy Chrest on to talk about the lived experience of depression with Parkinson’s Disease.
Amy’s Bio-
Amy Chrest is a medical Speech-Language Pathologist who has spent her life’s career helping others how to find their words and voice as well as providing assessments and interventions for dysphagia (swallowing problems). At the age of 48, Amy was diagnosed with Young Onset Parkinson’s disease herself, and is now experiencing this disease not only from the lense of a clinician, but also as a patient. Amy immediately decided to use her unique experiences to become an advocate to break the stigmas of Parkinson’s disease and of mental health needs. In addition to working in an inpatient rehab hospital as an SLP, Amy is a Research Advocate with the Parkinson’s Foundation and a policy advocate with the Michael J. Fox Foundation and the Parkinson’s Foundation. Amy was invited to the first ever Michael J. Fox Foundation’s Social Media Summit for Influencers and Advocates and is dedicated to her ongoing advocacy for the advancement of research and breaking stigmas around Parkinson’s disease and mental health.
Amy Chrest - @Achrest on TikTok ; @AmyStrongAF on Instagram
* * * * * * * * * * * * * * * * *
Want to know more about Parkinson’s Disease? You will find great resources at the Parkinson’s Foundation website or by calling their hotline below:
1-800-4PD-INFO (1-800-473-4636)
www.parkinson.org
If you have a question or suggestion for the podcast, or would like me to speak at an event, you can reach me at [email protected] . You can also check out my website www.markinthepark21.com or my LinkedIN page www.linkedin.com/in/markmilow
Thank you for listening! Please Like, Subscribe and tell a friend if you enjoyed the show!
Music by James Wigley 👏
Special thanks to my BFF Nikki ❤️
And to the one who helped me find light in the darkness, I will always be thankful!
#Parkinsons #Tenacity #YOPD #Inspiration #Resilience #Hope #Fun #WPC #DadJoke
Welcome to Mark In The Park — a podcast about life, not just Parkinson’s. Hosted by Mark Milow, aka MarkInThePark21, this is a space where honesty meets optimism, and everyday moments matter just as much as the big ones.
This week we have a guest panel to talk about the recent World Parkinson Congress.
What went well? What could be done better next time? We also share our favorite moments as well as the funniest memories! So grab a beverage, sit back, and enjoy!
Panelists:
Ruby Rendon - @rruby26 on TikTok ; @rubi_rubi26 on Instagram
Darryn Wright - LinkedIn , @PunkRockParkinsons on TikTok ; @Punk_Rock_PD on Instagram
Jennifer Crowder - @ShakyBaker on TikTok ; ShakyCarver on Instagram
Tracy McBee - @SnarkyMommy65 on TikTok ; @SnarkyParkyMommy on Instagram
Adrian Mireles - @AdrianPDWarrior on TikTok
* * * * * * * * * * * * * * * * *
Want to know more about Parkinson’s Disease? You will find great resources at the Parkinson’s Foundation website or by calling their hotline below:
1-800-4PD-INFO (1-800-473-4636)
www.parkinson.org
If you have a question or suggestion for the podcast, or would like me to speak at an event, you can reach me at [email protected] . You can also check out my website www.markinthepark21.com or my LinkedIn page www.linkedin.com/in/markmilow
Thank you for listening! Please Like, Subscribe and tell a friend if you enjoyed the show!
Music by James Wigley 👏
Special thanks to my BFF Nikki ❤️
And to the one who helped me find light in the darkness, I will always be thankful!
#Parkinsons #Tenacity #YOPD #Inspiration #Resilience #Hope #Fun #WPC #DadJoke
Welcome to Mark In The Park — a podcast about life, not just Parkinson’s. Hosted by Mark Milow, aka MarkInThePark21, this is a space where honesty meets optimism, and everyday moments matter just as much as the big ones.
This week’s guest is Eli Pollard, Executive Director of the World Parkinson Conference (WPC), and host of the Hear,Here, Parkinson's! Podcast from the World Parkinson Coalition
Eli gives us last minute updates and information about this global phenomenon taking place May 24 - 27 here in Phoenix, AZ!
For more information on the World Parkinson’s Congress coming up May 24-27, 2026, here is the website: https://wpc2026.org/
* * * * * * * * * * * * * * * * *
Want to know more about Parkinson’s Disease? You will find great resources at the Parkinson’s Foundation website or by calling their hotline below:
1-800-4PD-INFO (1-800-473-4636)
www.parkinson.org
If you have a question or suggestion for the podcast, or would like me to speak at an event, you can reach me at [email protected] . You can also check out my website www.markinthepark21.com
Thank you for listening! Please Like, Subscribe and tell a friend if you enjoyed the show!
Music by James Wigley 👏
Special thanks to my BFF Nikki ❤️
And to the one who helped me find light in the darkness, I will always be thankful!
#Parkinsons #Tenacity #YOPD #Inspiration #Resilience #Hope #Fun #WPC #DadJoke
Welcome to Mark In The Park — a podcast about life, not just Parkinson’s. Hosted by Mark Milow, aka MarkInThePark21, this is a space where honesty meets optimism, and everyday moments matter just as much as the big ones.
This week’s guest is Melissa Livingston. She is an outspoken advocate and author who speaks passionately about the topics that matter to her. In this episode we talk about her recent health issues, Parkinson’s disease, her experience with Deep Brain Stimulation surgery (DBS), mental health, the Semi-colon project, humor in the midst of adversity and more!
Melissa’s Bio reads:
“Melissa Livingston, better known as Mel or @missmliv-is a writer, blogger, and author of Miles to Go Before I Sleep (2024), She is an empathetic voice in the young onset Parkinson’s community, centering her focus on mental health and the realities of life with Parkinson’s.
Through her blog posts and podcast episodes as a PMD Alliance Ambassador and co-host of the Living Well Starts Here podcast, she challenges outdated narratives through raw, real storytelling with her friends, people who have lived it.
The OG Creator of the viral hashtag #parkinsonslookslikeme, she’s focused on redefining what this disease actually looks like—out loud and unapologetically with the aid of PMD Alliance, YOPN, and the community at large.”
If you’d like more information about the 988 hotline, see their website:
https://988lifeline.org/
To find out more about Project Semicolon, click HERE
*************************************************
Want to know more about Parkinson’s Disease? You will find great resources at the Parkinson’s Foundation website or by calling their hotline below:
1-800-4PD-INFO (1-800-473-4636)
www.parkinson.org
If you have a question or suggestion for the podcast, or would like me to speak at an event, you can reach me at [email protected] . You can also check out my website www.markinthepark21.com
Thank you for listening! Please Like, Subscribe and tell a friend if you enjoyed the show!
Music by James Wigley 👏
Special thanks to my BFF Nikki ❤️
And to the one who helped me find light in the darkness, I will always be thankful!
#Parkinsons #Tenacity #YOPD #Inspiration #Resilience #Hope #Fun #WPC #DadJoke
Welcome to Mark In The Park — a podcast about life, not just Parkinson’s. Hosted by Mark Milow, aka MarkInThePark21, this is a space where honesty meets optimism, and everyday moments matter just as much as the big ones.
This week’s guest is World Parkinson's Conference (WPC) Insider Ruby Rendon giving us updates on things we need to know for the WPC coming in 3 weeks! We talk about Biking into Phoenix, An Arizona Diamondbacks game with our WPC Community, A movie screening and much more…
If you would like more information on the Muhammad Ali Parkinson center or to reach Ruby directly you can contact her at [email protected]
For more information on the World Parkinson’s Congress coming up May 24-27, 2026, here is the website: https://wpc2026.org/
* * * * * * * * * * * * * * * * *
Want to know more about Parkinson’s Disease? You will find great resources at the Parkinson’s Foundation website or by calling their hotline below:
1-800-4PD-INFO (1-800-473-4636)
www.parkinson.org
If you have a question or suggestion for the podcast, or would like me to speak at an event, you can reach me at [email protected] . You can also check out my website www.markinthepark21.com
Thank you for listening! Please Like, Subscribe and tell a friend if you enjoyed the show!
Music by James Wigley 👏
Special thanks to my BFF Nikki ❤️
And to the one who helped me find light in the darkness, I will always be thankful!
#Parkinsons #Tenacity #YOPD #Inspiration #Resilience #Hope #Fun #WPC #DadJoke
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