ME/CFS / Long Covid is an ever changing journey and we never know where it will take us. We can do the best we can and no more; After that, we must try to find as much life along the way as possible, knowing that it is fleeting like all else; It slips through our fingers the moment we try to hold onto it. But as it slips through our fingers we don’t need to despair because we know we will find new life around the next bend. There is always new life, nothing ever stays the same. Not our weakest, most horrific living nightmares or our life affirming reprieves from the void.

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