Mental Health - The Bloodline with Blood Cancer United Podcast

Mental Health - The Bloodline with Blood Cancer United Podcast

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Mental Health - The Bloodline with Blood Cancer United Podcast episodes

  • Navigating Challenges as They Come: Resilience for Caregivers

    What happens when a resilience expert becomes the caregiver? When a loved one is diagnosed with blood cancer, you’re suddenly balancing fear, advocacy, and everyday life all at once. 

    In this episode, we sit down with Karen Reivich, PhD, a resilience expert, caregiver, and wife of a lymphoma survivor. Karen opens up about the reality of supporting her husband through treatment and a clinical trial, sharing invaluable lessons on managing uncertainty, accepting help, and caring for yourself while caring for someone you love.

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    CLICK HERE to participate in our episode survey.

    Mentioned on this episode: 

    • Caregiver support
    • Caregiver Workbook
    • Caregiver Chat
    • Clinical Trial Support Center
    • Additional Blood Cancer United Support Resources: 

      • Information Specialists 
      • Free Nutrition Consultations
      • Nutrition Handbook for Parents Free telephone/web patient programs 
      • SHARE web series
      • Online videos
      • Free booklets 
      • Young Adult Resources
      • Young Adult Online Chat
      • Support groups 
      • Patient Community
      • Medical Debt Case Management Program
      • Financial support
      • Survivorship Workbook
      • Advocacy and Public Policy
      • Mental Health Resources
      • The post Navigating Challenges as They Come: Resilience for Caregivers first appeared on The Bloodline with Blood Cancer United Podcast.

        56 min
      • A Parent’s Guide to Childhood Cancer: Support, Advocacy, and Hope
        Laura DeKraker Lang-Ree

        When a child is diagnosed with cancer, parents are suddenly expected to manage medications, appointments, treatment decisions, family life, and overwhelming emotions, often all at once.

        In this episode, we speak with Laura DeKraker Lang-Ree, pediatric cancer parent, advocate, and author of The Cancer Parent’s Handbook, about the practical guidance she wishes every family received from day one. Laura shares powerful insights from her family’s journey after her three-year-old daughter was diagnosed with acute lymphoblastic leukemia (ALL). She offers actionable guidance on child advocacy, trusting parental instincts, engaging siblings, and maintaining normalcy during treatment. Additionally, Laura explores strategies for helping children thrive post-treatment, providing crucial hope and support for families facing some of their hardest days.

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        Mentioned on this episode: 

        • Dare to Dream
        • PedAL trial
        • Navigating Blood Cancer for Children and Teens
        • The Cancer Parent’s Handbook: What Your Oncologist Doesn’t Have Time To Tell You
        • Pediatric acute lymphoblastic leukemia (ALL)
        • Pediatric acute myeloid leukemia (AML)
        • Caregiver support
        • Caregiver Workbook
        • Pediatric AML survivor? Share your health data to help future research
        • Additional Blood Cancer United Support Resources: 

          • Information Specialists 
          • Free Nutrition Consultations
          • Nutrition Handbook for Parents Free telephone/web patient programs 
          • Clinical Trial Support Center
          • SHARE web series
          • Online videos
          • Free booklets 
          • Young Adult Resources
          • Young Adult Online Chat
          • Support groups 
          • Patient Community
          • Medical Debt Case Management Program
          • Financial support
          • Survivorship Workbook
          • Advocacy and Public Policy
          • Mental Health Resources
          • The post A Parent’s Guide to Childhood Cancer: Support, Advocacy, and Hope first appeared on The Bloodline with Blood Cancer United Podcast.

            44 min
          • The Bloodline Live!: Redefining Resilience
            Samuel Brotkin, PhD, Chelsea Kaye, LCSW and Elissa Baldwin

            Recorded onsite at CancerCon®, a young adult cancer conference presented by Stupid Cancer®, we talk about what resilience really means after a cancer diagnosis, and why it’s not about always being “strong.”

             Join us alongside Sam Brotkin, PhD, a clinical psychologist at Bull City Behavioral Health and Chelsea Kaye, LCSW, an Information Specialist at Blood Cancer United. In this episode, we share compassionate, practical strategies for building lifelong resilience. Learn how to manage expectations, find trusted support, and give yourself grace exactly where you are today.

            Although this discussion comes from a young adult cancer conference, the insights shared are relevant across all ages and experiences.

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            CLICK HERE to participate in our episode survey.

            Mentioned on this episode: 

            • Information Specialists 
            • Young Adult Resources
            • Young Adult Online Chat
            • Bobby’s Coaches
            • Stupid Cancer
            • The Bloodline Live: Emphasizing the Patient Voice in Young Adult Cancer Care – featuring Dr. Abby Rosenberg 
            • Additional Blood Cancer United Support Resources: 

              • Financial support
              • Free Nutrition Consultations
              • Clinical Trial Support Center
              • Free telephone/web patient programs 
              • SHARE web series
              • Online videos
              • Free booklets 
              • Patient Community
              • Support groups 
              • Caregiver support
              • Caregiver Workbook
              • Survivorship Workbook
              • Advocacy and Public Policy
              • Mental Health Resources
              • Episode supported by Merck & Co., Inc.

                The post The Bloodline Live!: Redefining Resilience first appeared on The Bloodline with Blood Cancer United Podcast.

                22 min
              • Hope Meets Healing: Simple Practices for Stress Relief
                Ann Grace MacMullan, C-IAYT

                In this episode, we sit down with Ann Grace MacMullan, Director of Integrative Wellness at the International Waldenstrӧm’s Macroglobulinemia Foundation (IWMF), to explore how wellness can become a powerful part of life after a cancer diagnosis. Ann Grace shares practical, calming techniques, including breathing exercises, “Bee’s Breath”, and guided meditation, that you can do anywhere to reduce stress and feel more grounded. We’ll also dive into what integrative wellness really means, why it matters for blood cancer patients, and how concepts like the “self-care sandwich” can help you start and end your day with intention.

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                CLICK HERE to participate in our episode survey.

                Mentioned on this episode: 

                • Integrative oncology
                • Palliative care
                • How Do I Use Breathing To Manage Anxiety?
                • IWMF wellness videos
                • Integrative Oncology podcast episode
                • International Waldenstrom’s Macroglobulinemia Foundation (IWMF)
                • Additional Blood Cancer United Support Resources: 

                  • Free Nutrition Consultations
                  • Information Specialists 
                  • Financial support
                  • Clinical Trial Support Center
                  • Online Chat
                  • Free telephone/web patient programs 
                  • Free booklets 
                  • Young Adult Resources
                  • Support groups 
                  • Caregiver support 
                  • Caregiver Workbook
                  • Survivorship Workbook
                  • Advocacy and Public Policy
                  • Patient Community
                  • Mental Health Resources
                  • Episode supported by Merck & Co., Inc.

                    The post Hope Meets Healing: Simple Practices for Stress Relief first appeared on The Bloodline with Blood Cancer United Podcast.

                    46 min
                  • Joy, Hope, and Healing Beyond a Cancer Diagnosis
                    Dianne Callahan

                    In this episode, we speak with Dianne Callahan, four-time cancer survivor, best-selling author, speaker, and patient advocate. Dianne shares her experiences with non-Hodgkin lymphoma and breast cancer, stem cell transplant, and survivorship while highlighting the importance of advocacy, joy, and intention in life after diagnosis. From her work with fundraising campaigns to legislative advocacy on Capitol Hill, Dianne offers inspiring insights on resilience, hope, and the power of living intentionally.

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                    CLICK HERE to participate in our episode survey.

                    Mentioned on this episode: 

                    • Non-Hodgkin lymphoma
                    • Stem cell transplantation
                    • Allogeneic stem cell transplantation animated video
                    • NMDP (formerly Be The Match)
                    • Light The Night
                    • Visionaries of the Year
                    • Team In Training
                    • Advocacy and Public Policy
                    • Caregiver support 
                    • Caregiver Workbook
                    • Mental Health Resources
                    • Additional LLS Support Resources: 

                      • Free Nutrition Consultations
                      • Information Specialists 
                      • Free telephone/web patient programs 
                      • Free booklets 
                      • LLS Clinical Trial Support Center
                      • Financial support
                      • Young Adult Resources
                      • Support groups 
                      • Survivorship Workbook
                      • LLS Community 
                      • Supported by Genentech, A Member of the Roche Group.

                        The post Joy, Hope, and Healing Beyond a Cancer Diagnosis first appeared on The Bloodline with Blood Cancer United Podcast.

                        52 min
                      • Joy, Hope, and Healing Beyond a Cancer Diagnosis
                        Dianne Callahan

                        In this episode, we speak with Dianne Callahan, four-time cancer survivor, best-selling author, speaker, and patient advocate. Dianne shares her experiences with non-Hodgkin lymphoma and breast cancer, stem cell transplant, and survivorship while highlighting the importance of advocacy, joy, and intention in life after diagnosis. From her work with fundraising campaigns to legislative advocacy on Capitol Hill, Dianne offers inspiring insights on resilience, hope, and the power of living intentionally.

                        DOWNLOAD TRANSCRIPT
                        CLICK HERE to participate in our episode survey.

                        Mentioned on this episode: 

                        • Non-Hodgkin lymphoma
                        • Stem cell transplantation
                        • Allogeneic stem cell transplantation animated video
                        • NMDP (formerly Be The Match)
                        • Light The Night
                        • Visionaries of the Year
                        • Team In Training
                        • Advocacy and Public Policy
                        • Caregiver support 
                        • Caregiver Workbook
                        • Mental Health Resources
                        • Additional LLS Support Resources: 

                          • Free Nutrition Consultations
                          • Information Specialists 
                          • Free telephone/web patient programs 
                          • Free booklets 
                          • LLS Clinical Trial Support Center
                          • Financial support
                          • Young Adult Resources
                          • Support groups 
                          • Survivorship Workbook
                          • LLS Community
                          • Supported by Genentech, A Member of the Roche Group.

                            The post Joy, Hope, and Healing Beyond a Cancer Diagnosis first appeared on The Bloodline with LLS.

                            52 min
                          • LIVE! At SHARE: Emotional Wellness in Survivorship
                            Julie Larson, LCSW
                            Simantinee Roy, Matt Hunt, Alfredo Martinez, and Casey Kang

                            The cancer experience isn’t just physical—it’s deeply emotional.

                            Join us for this special episode recorded onsite while filming our SHARE Project video series, exploring emotional well-being in cancer survivorship. Listen in as four blood cancer survivors share how their diagnoses impacted their mental health and what helped them cope. Key Opinion Leader, psychotherapist Julie Larson, LCSW, then joins us to discuss signs of emotional distress, the role of therapy, and how resilience and support can shape the healing journey.

                            DOWNLOAD TRANSCRIPT
                            CLICK HERE to participate in our episode survey.

                            Mentioned on this episode: 

                            • SHARE Project Video Series
                            • Young Adult Resources
                            • YAconnect: Young Adults Living with Blood Cancer Online Chat
                            • Mental Health Resources
                            • How Do I Use Breathing To Manage Anxiety
                            • Additional LLS Support Resources: 

                              • Free Nutrition Consultations
                              • Information Specialists 
                              • Financial support
                              • Free telephone/web patient programs 
                              • LLS Clinical Trial Support Center
                              • Advocacy and Public Policy
                              • Free booklets 
                              • LLS Online Chat
                              • Support groups 
                              • Caregiver support 
                              • Caregiver Workbook
                              • Survivorship Workbook
                              • LLS Community
                              • The post LIVE! At SHARE: Emotional Wellness in Survivorship first appeared on The Bloodline with Blood Cancer United Podcast.

                                45 min
                              • Exercise and Cancer: Celebration That You CAN
                                Shernan Holtan, MD
                                Paul Rothweiler
                                Joe Grey

                                Exercise, or simply moving the body, can be an important part of cancer recovery, both physically and emotionally. In this episode, Dr. Shernan Holtan of Roswell Park Comprehensive Cancer Center and blood cancer survivors, Paul Rothweiler and Joe Grey, share about a clinical trial they developed to introduce a personalized strength training program to patients and caregivers.

                                Dr. Holtan highlights the benefits of strength training for all patients, while Paul and Joe share how exercise has aided their physical and emotional recovery during and after their treatments. For patients and survivors who may be fearful or nervous about starting an exercise program, this episode is for you!

                                DOWNLOAD TRANSCRIPT
                                CLICK HERE to participate in our episode survey.

                                Mentioned on this episode: 

                                • Mental Health
                                • Let’s Talk About Stem Cell Transplantation: Benefits and Side Effects podcast episode
                                • Quality-of-Life: Managing Cancer-Related Fatigue podcast episode
                                • Powerful Benefits – article on clinical trial
                                • Survivorship Resources
                                • Exercise, Fitness and Workout Tips and Advice (aarp.org)
                                • Strength Training At Home: 15 Exercises for a Full-Body Workout (today.com)
                                • A 30-day strength training routine — no equipment required (nbcnews.com)
                                • 5 Strength Training Workouts (for Beginners) | Nerd Fitness
                                • Additional LLS Support Resources: 

                                  • Information Specialists 
                                  • Free Nutrition Consultations
                                  • Financial support
                                  • Free telephone/web patient programs 
                                  • Free booklets 
                                  • Young Adult Resources
                                  • Online chats 
                                  • LLS Community 
                                  • Clinical Trial Support Center
                                  • Support groups 
                                  • Caregiver support 
                                  • Caregiver Workbook
                                  • Patti Robinson Kaufmann First Connection Program®
                                  • Advocacy and Public Policy
                                  • Survivorship Workbook
                                  • Support for this episode is provided by Genentech, a member of the Roche Group.

                                    The post Exercise and Cancer: Celebration That You CAN first appeared on The Bloodline with Blood Cancer United Podcast.

                                    46 min
                                  • LIVE! At IWMF: Living with Waldenström Macroglobulinemia
                                    Alissa Huston, MD
                                    Julie Larson, LCSW
                                    Shirley D’Sa, MD, FRCP, FRCPath

                                    For patients with chronic blood cancers, such as Waldenström Macroglobulinemia (WM), quality of life is a main priority. Physical and emotional side effects of the disease or treatment may present several challenges for patients and caregivers.  

                                    In this episode, we were onsite at the International Waldenström‘s Macroglobulinemia Foundation’s 2024 IWMF Educational Forum in Renton, WA.  Elissa met with experts who discussed how integrative oncology, wellness, mental health, and peripheral neuropathy affects WM patients and their caregivers.

                                    While this episode focuses on WM, the topics discussed are relevant to all types of cancer. We encourage you to listen and learn! 

                                    DOWNLOAD TRANSCRIPT
                                    CLICK HERE to participate in our episode survey.

                                    Mentioned on this episode: 

                                    • Waldenström Macroglobulinemia Fact Sheet
                                    • International Waldenström ‘s Macroglobulinemia Foundation (IWMF)
                                    • Integrative Medicine and Complimentary Therapies Fact Sheet
                                    • Mental Health
                                    • Peripheral Neuropathy
                                    • American Society of Clinical Oncology (ASCO)
                                    • Society for Integrative Oncology (SIO)
                                    • Nation Comprehensive Cancer Network (NCCN)
                                    • Side effect management
                                    • Additional LLS Support Resources: 

                                      • Information Specialists 
                                      • Free Nutrition Consultations
                                      • Financial support
                                      • Free telephone/web patient programs 
                                      • Free booklets 
                                      • Young Adult Resources
                                      • Online chats 
                                      • LLS Community 
                                      • Clinical Trial Support Center
                                      • Support groups 
                                      • Caregiver support 
                                      • Caregiver Workbook
                                      • Patti Robinson Kaufmann First Connection Program®
                                      • Advocacy and Public Policy
                                      • Survivorship Workbook
                                      • The post LIVE! At IWMF: Living with Waldenström Macroglobulinemia first appeared on The Bloodline with Blood Cancer United Podcast.

                                        47 min
                                      • Live Your Life: Navigating Mental Health and Chronic Lymphocytic Leukemia (CLL)
                                        Teresa Altemeyer

                                        Join us on a heartfelt journey woven by support and education, as we speak to Teresa Altemeyer, who was diagnosed with chronic lymphocytic leukemia in 2009. In this episode, Teresa shares her experience with CLL from diagnosis through long-term survivorship. On the advice of her doctor, she went out to live her life, and found herself supporting other blood cancer patients and survivors in doing the same. Despite her own physical and mental health struggles with this disease, she shares beautiful advice learned along the way.

                                        DOWNLOAD TRANSCRIPT
                                        CLICK HERE to participate in our episode survey.

                                        Mentioned on this episode: 

                                        • Chronic lymphocytic leukemia
                                        • Mental health resources
                                        • Minimal/Measurable Residual Disease
                                        • Clinical Trial Support Center
                                        • Financial support
                                        • Finances podcast
                                        • Shared decision making interactive program
                                        • Shared decision making for CLL podcast
                                        • Light The Night
                                        • Advocacy
                                        • Additional LLS Support Resources: 

                                          • Information Specialists 
                                          • Free Nutrition Consultations
                                          • Free telephone/web patient programs 
                                          • Free booklets 
                                          • Young Adult Resources
                                          • Caregiver support 
                                          • Caregiver Workbook
                                          • Survivorship Workbook
                                          • Online chats 
                                          • LLS Community 
                                          • Support groups 
                                          • Patti Robinson Kaufmann First Connection Program
                                          • Support for this episode provided by: AbbVie Inc.; BeiGene USA, Inc.; Genentech, Inc. & Biogen.

                                            The post Live Your Life: Navigating Mental Health and Chronic Lymphocytic Leukemia (CLL) first appeared on The Bloodline with Blood Cancer United Podcast.

                                            44 min

                                          About Mental Health - The Bloodline with Blood Cancer United Podcast

                                          From the publisher's feed

                                          A podcast for patients and caregivers