MIB Agents OsteoBites and osTEAo

Paul Malley is President of Aging with Dignity, a national non-profit organization based in Tallahassee, Florida, with a mission to help individuals and their families receive the care they want in case of a serious illness.

As President of Aging with Dignity, Malley coordinates the national Five Wishes advance care planning program. Created by Jim Towey, founder of Aging with Dignity and former legal counsel to Mother Teresa of Calcutta, Five Wishes is an easy-to-use legal document that addresses important medical issues as well as personal, emotional and spiritual matters at the end of life. More than 35 million Americans have turned to Five Wishes as their preferred tool to make their wishes known and to discuss their preferences with their family and doctor before a health crisis. More than 40,000 partner groups (hospitals, hospices, places of worship, employers, community organizations) make up the growing network of organizations that distribute Five Wishes in communities across the country.

Paul Malley and the work of Aging with Dignity have been featured in national media including the CBS, NBC, and ABC evening news, CNN, MSNBC, NBC Today Show, Good Morning America, USA Today, The Wall Street Journal, The New York Times, Newsweek, Time, and Consumer Reports.

Malley has spoken about aging issues and advance care planning to organizations such as the US Departments of State and Justice, The Johns Hopkins University School of Medicine, The National Naval Medical Center at Bethesda, Florida Department of Education and Executive Office of the Governor, Delta Airlines, 3M, The National Foundation of Women Legislators, Employee Benefits Management Forum and the Alliance for Work/Life Progress.

Malley has also contributed to the efforts of several aging advocacy groups to improve state policy on advance care planning. He was appointed by Gov. Jeb Bush to the 2005 White House Conference on Aging.

Paul Malley’s Email:  [email protected]

Dr. Abha Gupta discusses "Fertility Preservation in Osteosarcoma Patients" with Junior Board Members Kara, Valerie, and Alexis. We talk about it ALL. 

Dr. Abha Gupta received her MD at the University of Toronto.  She completed her pediatrics residency at Yale New Haven Children’s Hospital (New Haven, CT) and Children’s Hospital of Eastern Ontario (Ottawa) before moving back to Toronto to complete her fellowship in pediatric hematology/oncology at The Hospital for Sick Children.  To complement her training, Dr. Gupta completed a one-year fellowship in Adolescent and Young Adult Oncology with a focus on sarcoma at Princess Margaret Cancer Centre.   She is currently cross-appointed as a staff oncologist at both The Hospital for Sick Children (Solid Tumor Section) and Princess Margaret Cancer Center. She is the Medical Director of the Adolescent and Young Adult Oncology Program at Princess Margaret and Medical Director of the Canadian Sarcoma Research and Clinical Collaboration (CanSaRCC).

What We Do at MIB Agents: PROGRAMS: ✨ End-of-Life MISSIONS ✨ Gamer Agents ✨ Agent Writers ✨ Prayer Agents ✨ Healing Hearts Bereaved Parent Support ✨ Ambassador Agents - Peer Support EDUCATION for physicians, researchers and families: ✨ OsteoBites, weekly webinar & podcast with thought leaders and innovators in Osteosarcoma ✨ MIB Book: Osteosarcoma: From our Families to Yours RESEARCH: ✨ Annual MIB FACTOR Research Conference ✨ Funding $100,000 annually for OS research ✨ MIB Testing & Research Directory ✨ The Osteosarcoma Project partner with Broad Institute of MIT and Harvard ... Kids are still dying with 40+ year old treatments.   Help us MakeItBetter. 🔗 https://www.mibagents.org​✨✨SUBSCRIBE for all the Osteosarcoma Intel

In this weeks Osteobites we join Dr. Andy Livingston & Dr. Nancy Gordon as they share their discussion and leading-edge research about how "Hydroxychloroquine and "self-eating" works with Osteosarcoma." After a short presentation on this research, they take questions from attendees. It's a can't miss Osteobites.  

Hosted by: Ann Graham OsteoWarrior and Executive Director of MIB Agents

Youtube Video of this episode: https://youtu.be/OZKi0wxt9ns

What We Do at MIB Agents: 

PROGRAMS: 

✨ End-of-Life MISSIONS 

✨ Gamer Agents

✨ Agent Writers 

✨ Prayer Agents 

✨ Healing Hearts Bereaved Parent Support 

✨ Ambassador Agents - Peer Support EDUCATION for physicians, researchers and families:

✨ OsteoBites, weekly webinar & podcast with thought leaders and innovators in Osteosarcoma 

✨ MIB Book: Osteosarcoma: From our Families to Yours RESEARCH:

 Help us MakeItBetter. 

🔗 https://www.mibagents.org

Osteosarcoma Update from Dr. Huang - 2019 OutSmarting Osteosarcoma recipient

Dr. Huang is back on OSTEOBites to give us an update on his research funded by OutSmarting Osteosarcoma 2019. Don't miss this exciting new episode, plus who doesn't love Dr. Huang?   

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OsteoBites Welcomes Junior Board Members to discuss "Four OsteoWarriors' Perspectives".  

Dr. Jiwa is a practicing General Practitioner, Editor-in-Chief at the Journal Of Health Design, and an Associate Dean and Professor at the Melbourne Clinical School at the University of Notre Dame.   

MIB Agents Osteosarcoma OsteoBites S2 Ep 18: Richard Gorlick, MD & Yifei Wang, MD “Antibody Drug Conjugates for Osteosarcoma”

EDUCATION for physicians, researchers and families:

RESEARCH:

Kids are still dying with 40+ year old treatments. Help us MakeItBetter.

MIB Agents OsteoBites S2 Ep 17: Lara Davis, MD, OHSU Knight Cancer Institute “New Osteosarcoma Clinical Trials”

Guest Information:

Lara Davis, MD graduated from Wellesley College and then went on to receive her medical degree from OHSU. After training in a dual Internal Medicine and Pediatrics residency program at Harvard, she returned to Portland to complete a combined Adult and Pediatric Oncology fellowship with a focus on Adolescents and Young Adults (AYAs). Dr. Davis joined the faculty at OHSU in 2013, where she is a member of the Knight Cancer Institute with dual appointments in the Division of Medical Oncology and Pediatric Hematology/Oncology. She focuses exclusively on sarcoma in both the clinic and in the laboratory.

LINKS

✨ End-of-Life MISSIONS

✨ Gamer Agents

✨ Agent Writers

✨ Prayer Agents

✨ Healing Hearts Bereaved Parent Support

✨ Ambassador Agents - Peer Support

EDUCATION for physicians, researchers and families:

✨ OsteoBites, weekly webinar & podcast with thought leaders and innovators in Osteosarcoma

✨ MIB Book: Osteosarcoma: From our Families to Yours

RESEARCH:

✨ Annual MIB FACTOR Research Conference

✨ Funding $100,000 annually for OS research

✨ MIB Testing & Research Directory

✨ The Osteosarcoma Project partner with Broad Institute of MIT and Harvard

...

Kids are still dying with 40+ year old treatments. Help us MakeItBetter.

🔗 https://www.mibagents.org

✨✨SUBSCRIBE for all the Osteosarcoma Intel ✨✨

MIB Agents OsteoBites S2 Ep 16:  Julie Lanford, MPH, RD, CSO, LDN a Registered Dietician who will be sharing her expertise on “Nutrition & Cancer Truths & Myths”

Julie received her degree in Biology from North Carolina State University and her Masters in public health nutrition from The University of North Carolina at Chapel Hill.

She is a registered dietitian, licensed nutritionist and board-certified specialist in oncology nutrition with 15 years experience.  She can be found on her website CancerDietitian.com  which translates evidence-based nutrition guidelines for everyday life.

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MIB Agents OsteoBites S2 Ep 15:  Katie Greenzang, MD, EdM from Dana-Farber Cancer Institute/Boston Children’s and Harvard Medical School. Dr. Greenzang will be talking about, “What’s Next?  Osteosarcoma Survivorship”.