Migraine Magic

Today we talk with Polly about her Ocular Migraine attacks, the aura she experiences, and how she manages attacks at work and home. Polly also shares her difficult journey with chronic nerve pain resulting from radiation damage. Discover her strategies for managing at work and during times of high pain. She's got some great tips for managing your pain at bedtime, for staying positive, and on how to be kind and give yourself some leeway when times are rough. Join us now!

Music by Lyndon Wesley
www.lyndonwesley.com

Have you ever thought about the language that we use to describe migraine disease and life with migraine? Are there words and terms that are better to use than others? How about the images we use to portray migraine? And why is it important to think about the language and images we use? 

Lucky for us, the Coalition for Headache and Migraine Patients (CHAMP) has produced a Headache & Migraine Disease Language & Image Guide to set us on the right path and help us use language and images that will reduce stigma and advocate for us. Join me as I talk through the guide and discuss why and how language and imagery can be so important. 

Music by Lyndon Wesley
www.lyndonwesley.com

This week on the Podcast we talk with Adriane Dellorco, founder of the Yoga for Migraine Facebook group and owner of www.yogamigraine.com . A former teacher and dance instructor, Adriane has been a yoga practitioner for most of her life. But it was when her migraine attacks turned chronic that she moved her career from the hectic world of dance to the more meditative and restorative world of yoga. 

Join us as Adriane talks about how she adapts yoga to make it suitable for those with migraine, to learn about the forms of yoga you can practice even on high pain days, and to find out how yoga practice can even be adapted to be done in bed. Best of all, Adriane will tell us all about her free Better Sleep Challenge that she's got coming up from June 22 - 26. 

You can also join her FB group Yoga for Migraine or sign up at www.yogamigraine.com for more details. 

Music by Lyndon Wesley
www.lyndonwesley.com

Have you ever heard someone say "unless you've had a migraine you can't understand what it feels like"?

Although it may be true, it's not the most helpful statement to build empathy for a condition that is often difficult to understand. So this week on the Migraine Magic podcast, we're addressing this with two stories to help you understand what life might be like if you were living with migraine. You'll experience two different realities, and all you have to do is sit back, open your heart and enjoy the ride. Then be sure to let us know what you think!

For anyone who struggled through COVID or struggles with depression, it does come with a trigger warning.

Lifeline 131114

Music by Lyndon Wesley
www.lyndonwesley.com

Join us today as we talk with well-known migraine advocate, Carl Cincinnato. A familiar face as co-host of the Migraine World Summit, Carl's joining us to talk about the important work that Migraine & Headache Australia is doing on behalf of patients.

We discuss: 

• Migraine & Headache Australia's advocacy work with government, including recent submissions and breakthroughs; 
• the information they supply to patients and carers through the National Headache Register and Migraine & Headache Awareness events; 
• Australian Neuroscience research they sponsor.

Carl gives us insight into Migraine & Headache Australia's partnerships with overseas organisations that are helping advance the cause for patients here in Australia. We also talk about this year's partnership with a new campaign to coincide with the U.S.'s Migraine Awareness Month.

And because I know you're all wondering, we sneak in a question about the Migraine World Summit and get a few interviewing tips for all of us interviewers out there.

Join us now!

Music by: Lyndon Wesley
www.lyndonwesley.com
Instagram: @Songcity
Facebook: www.facebook.com/SongCity

Migraine & Headache Australia
https://headacheaustralia.org.au/
Brain Foundation
https://brainfoundation.org.au/

National Headache Register
https://headacheaustralia.org.au/headache-register-why-register/

Shades for Migraine
https://www.shadesformigraine.org/

Research funded by Brain Foundation (Migraine & Headache Australia)
https://brainfoundation.org.au/brain-foundation-research/
https://headacheaustralia.org.au/where-does-your-money-go/

World Migraine Summit
http://www.migraineworldsummit.com?afmc=dp

Today we talk with Mathew Brown, a former Elite Athlete and Paralympic Qualifier about his life living with Hydrocephalus. 

Hydrocephalus is a condition where cerebrospinal fluid builds up in the ventricle cavities in the brain. Learn how Mathew's condition is managed, and gain some joy for your day from his energy to make the most of life, even when it comes to taking some crazy risks sometimes. Did we mention skydiving....? 

You'll also get insight into his unique Crocisms - something to help everyone get through their day a little bit easier. We talk everything from volcanic migraines to brain operations, ventricle shunts, depression, pets, life mottos and sport for kids. Join us now!

What do beer, hemp and a nun have in common?
Today we are discussing the life of Hildegard von Bingen (otherwise known as Saint Hildegard) and her extraordinary visions which many have attributed to migraine.
What do you think? Listen in and find out.

Brooklyn Museum, Elizabeth A. Sackler Center for Feminist Art. “Hildegarde of Bingen.”

McClory, Robert. “Hildegard of Bingen: No Ordinary Saint.” National Catholic Reporter, March 24, 2012

Meares, Hadley. “The Medieval Prophetess Who Used Her Visions to Criticize the Church.” Atlas Obscura, July 13, 2016

PBS Frontline. “Hildegard’s Scivias.” 

Songfacts. Für Hildegard Von Bingen

Wikipedia. “Scivias.” Last modified October 23, 2018

In this episode we discuss some of the many aids that can assist with light sensitivity: 

- FL-41 glasses;
- Avulux glasses;
- Irlen glasses;
- Blue light glasses;
- Maui Jim sunglasses;
- Computer anti-glare filters, and more!

We also put out a call-out for assistance with the intro and outro the podcast, and give you a hint about what fun things we've got planned for our business launch to coincide with Migraine Awareness Month in June. 

Did you know the Allay Lamp emits a very narrow band of green light that generates smaller electrical signals in the eye and brain? By calming your brain, the Allay Lamp eases the head pain experienced with migraine attacks and allows you to function even when your eyes are super sensitive to light.

Join us on the #MigraineMagic Podcast as we discuss exactly what the lamp is and does with Dr. Rami Burstein and Ajay Kori, co-founders of Allay Lamp . We'll find out how it works, what types of migraines it helps with, whether it's safe for kids, and how you can get one. 

We'll even find out what's coming next in green light technology! 

Has light ever hurt your eyes? Have you felt blinded going out into bright sunlight or passing the headlights of an oncoming car? This week's podcast is all about light sensitivity. What causes photophobia and photosensitivity? And is today's modern lighting affecting our health? The short answer is, "Yes". Join us and find out why in this week's podcast!

Links
Anna Levin - Incandescent: We need to talk about light
http://www.annalevinwriting.co.uk/

World Migraine Summit - Dr Rami Burstein - The Science of Light Sensitivity and How to Manage It
https://migraineworldsummit.com/talk/the-science-of-light-sensitivity-and-how-to-manage-it/

Allay lamp
https://allaylamp.com/