People who have Parkinson's disease live with symptoms such as tremor, stiffness, lack of balance and slurred speech.
In Canberra, they have been campaigning for a specialist nurse who would make home visits, similar to positions already working in other jurisdictions.
The ACT government says work is underway to create a Parkinson's nurse position through the Brindabella Day Service at the University of Canberra Hospital, but a start date has not been confirmed.
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