MND Matters by the MND Association

Steph and Nick talk to Sue Lodge, who is living with MND, to find out why she banked her voice following her diagnosis. She shares what it means to her family and reveals some of the special phrases she uses her banked voice to say. They’re also joined by Richard Cave, the MND Association’s Speech and Language Therapist to discuss the how, when and why of voice banking.

You can find more information about voice banking on our website.

With thanks to the Ian Karten Charitable Trust for the support which enabled us to increase access to voice banking equipment and to Credit Suisse which funded our voice banking pilot scheme.

In this episode volunteers Liz Groundland, Mark Gately and Julia Peckham join Steph and Nick to mark Volunteers Week 2021. The Association is proud to have more than 12,500 volunteers supporting people living with and affected by MND. Liz, Mark and Julia discuss their volunteering roles and why they wanted to get involved.

If you would be interested in volunteering for the MND Association you can find details on our website.

Views and opinions expressed by guests on MND Matters do not necessarily represent those of the MND Association. We make every effort to ensure the information we share is accurate. We welcome comments, suggestions or corrections. Please email [email protected].

Please consult your health and social care professional for medical advice in relation to your particular circumstances.

This podcast is owned by the MND Association. Registered Charity no. 294354.

With thanks to The Netherby Trust for generously supporting the training of new volunteer Association Visitors.

Steph and Nick speak to 22-year-old Megan Donoher, whose Dad was diagnosed with MND in April 2020. Megan gives a moving account of the impact his diagnosis has had on her family and the tailored support she’s received from the Association's children and young person's service. They're joined by Laura Willix, Children and Young Person's Development Manager at the MND Association.

With thanks to / funding acknowledgements: Nick Smith Foundation and the James Milner Foundation.

Views and opinions expressed by guests on MND Matters do not necessarily represent those of the MND Association. We make every effort to ensure the information we share is accurate. We welcome comments, suggestions or corrections. Please email [email protected]. Please consult your health and social care professional for medical advice in relation to your particular circumstances.

This podcast is owned by the MND Association. Registered Charity no. 294354.

Steph and Nick speak to 22-year-old Megan Donoher, whose Dad was diagnosed with MND in April 2020. Megan gives a moving account of the impact his diagnosis has had on her family and the tailored support she’s received from the Association's children and young person's service. They're joined by Laura Willix, Children and Young Person's Development Manager at the MND Association.

Release W/C 26 April.

We're joined by Leeds Rhino's Director of Rugby, legend, and friend of Rob Burrow, Kevin Sinfield. In December 2020, Kevin and his team ran an incredible 7 marathons in 7 days, dubbed the 7 in 7 Challenge, in honour of Rob and to raise money for the MND Association. They raised a staggering £2.7 million. Kev shares how it went, how important it is to support people like Rob and how the money he raised will be spent. We're also joined by Jonathan Griffiths, a big rugby league fan who is living with MND.

Views and opinions expressed by guests on MND Matters do not necessarily represent those of the MND Association. We make every effort to ensure the information we share is accurate. We welcome comments, suggestions or corrections. Please email [email protected]. Please consult your health and social care professional for medical advice in relation to your particular circumstances.

This podcast is owned by the MND Association. Registered Charity no. 294354.

Welcome to the launch of the Motor Neurone Disease (MND) Association's brand new podcast - MND Matters. In our first episode, former Leeds Rhinos star, Kevin Sinfield, talks to us about raising £2.2 million for the MND Association in honour of his best mate, Rob Burrow. We're also joined by rugby league fan, Jonathan, who is living with motor neurone disease and shares what it has been like to see greater awareness of MND thanks to the efforts of Rob and Kevin.

Full release 01.04.21.