Movers and Shakers: a podcast about life with Parkinson's

This week, we're issuing a special episode to remember the life of John Stapleton, who died last week. We were privileged to have John join us in the pub earlier this year to discuss his life, career and PD journey. From getting pecked off our screen's by Rod Hull's intemperate Emu to making a film about his diagnosis with his award-winning documentarian son Nick, John led an extraordinary life. In this episode, we reflect on what made him a great presenter and a superb advocate for people with Parkinson's, and replay our conversation with him.

Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.

Produced and edited by Nick Hilton for Podot.

Sound mixing by Ewan Cameron.

Music by Alex Stobbs.

Artwork by Till Lukat.

PR by Sally Jones.

Hosted on Acast. See acast.com/privacy for more information.

Parkinsonism is the term used to refer to a group of conditions – like multiple system atrophy (MSA), progressive supranuclear palsy (PSP), corticobasal degeneration (CBD) and Lewy Body Dementia – which resemble Parkinson's in some of their symptoms. To discuss these sibling conditions, the Movers & Shakers are joined at the pub by guests from across the spectrum who share their stories – often very uplifting – about learning to live with the new realities brought on by their illnesses.

Sponsored by Albion Chambers.

Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.

Produced and edited by Nick Hilton for Podot.

Sound mixing by Ewan Cameron.

Music by Alex Stobbs.

Hosted on Acast. See acast.com/privacy for more information.

The Movers and Shakers are back in the pub after a relaxing summer. Oh, who are we kidding? It's been a frantic struggle to get the #ParkyCharter petition to 100k signatories but we – which is to say: you – did it! Now we're kicking off the new series with a look at Gillian's big news. She's had the brand new produodopa pump installed. But is it the blessing its champions suggest? Or do the downsides outweigh the positives? To discuss, we're joined by international expert Professor Camille Carroll, as well as hearing some testimony from other users.

Sponsored by Albion Chambers.

Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.

Produced and edited by Nick Hilton for Podot.

Sound mixing by Ewan Cameron.

Music by Alex Stobbs.

Hosted on Acast. See acast.com/privacy for more information.

Our final profile of this summer series has a very particular set of skills... Jagdeep Aujla is a London-born karate champion and martial arts enthusiast who, since his Parkinson's diagnosis, has established the Dopamine Warriors Boxing Club. Jagdeep joins the Movers & Shakers in the pub and shows all the resilience you'd expect from the Bruce Lee of PD – but also some cheering optimism about embracing the challenges of the condition and fighting through.

Sponsored by Boardwave, who support Cure Parkinson's.

Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.

Produced and edited by Nick Hilton for Podot.

Sound mixing by Ewan Cameron.

Music by Alex Stobbs.

Hosted on Acast. See acast.com/privacy for more information.

Our profile this week is of a Parky on a mission: Alison Anderson who is, as you listen to this episode, cycling across America to raise money for Cure Parkinson's. This isn't Alison's first marathon bike ride, she's previously zoomed across Southeast Asia, raising money and awareness. An inspiration for both her athletic endeavour and fundraising prowess, Alison is living, cycling proof that Parkinson's doesn't have to stop you in your tracks!

You can still sponsor Alison's bike ride across America – go here to send your support!

Sponsored by Boardwave, who support Cure Parkinson's.

Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.

Produced and edited by Nick Hilton for Podot.

Sound mixing by Ewan Cameron.

Music by Alex Stobbs.

Hosted on Acast. See acast.com/privacy for more information.

This Wednesday, our titanic campaign to reach 100,000 signatures on the Parky Charter petition reached its climax. After a marathon effort involving Gillian commandeering EasyJet planes, the Judge haranguing cricket-goers at Lords, and an unexpected segue into TikTok virality, that target was reached. To celebrate, we gathered 80% of the Movers & Shakers at Gillian's to raise a glass of bubbly – and were delighted to be joined by some very special guests who had gone the extra mile to get signatures!

Don't stop signing Parky Charter petition! You can do so by going to ParkyPetition.com!

Sponsored by Boardwave, who support Cure Parkinson's.

Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.

Produced and edited by Nick Hilton for Podot.

Sound mixing by Ewan Cameron.

Music by Alex Stobbs.

Hosted on Acast. See acast.com/privacy for more information.

In a long and varied career, John Caulcutt has worn many hats: rock musician, stockbroker, marketing man, bobsled champion, fundraising extraordinaire, and, since 2019, parky. He joins us for this, the latest in our summer interview series, to discuss a life well-lived and how he ended up a prolific philanthropist who believes that a breakthrough for PD could be just around the corner...

Don't forget to sign the Parky Charter petition by going to ParkyPetition.com!

Sponsored by Boardwave, who support Cure Parkinson's.

Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.

Produced and edited by Nick Hilton for Podot.

Sound mixing by Ewan Cameron.

Music by Alex Stobbs.

Hosted on Acast. See acast.com/privacy for more information.

This summer we'll be interviewing a handful of interesting people who are living with Parkinson's. First up: the novelist Linda Grant. Linda started life as a journalist before becoming acclaimed fiction writer who won the Women's Prize in 2000 for her novel When I Lived in Modern Times, and was shortlisted for the Booker Prize in 2008 for The Clothes on Their Backs. Here, she talks for the first time about her Parkinson's diagnosis, how it has impacted her writing, and how she plans to become (maybe) the first writer to bring to life a protagonist living with PD.

Don't forget to sign the Parky Charter petition by going to ParkyPetition.com!

Sponsored by Boardwave, who support Cure Parkinson's.

Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.

Produced and edited by Nick Hilton for Podot.

Sound mixing by Ewan Cameron.

Music by Alex Stobbs.

Hosted on Acast. See acast.com/privacy for more information.

Earlier this month, the Movers and Shakers descended on Brighton in order to drum up enthusiasm for our petition. We're looking for 100,000 signatures in order to guarantee that our Parky Charter – a list of demands/requests that would improve Parkinson's care – gets a debate in Parliament. On this special episode (during our summer break) we report back from the (very rainy) seaside, and catch-up in the Notting Hill pub to look at how the petition is progressing and launch a very special competition which could bring the show to where you – yes, you – live.

Don't forget to sign the Parky Charter petition by going to ParkyPetition.com!

Sponsored by Boardwave, who support Cure Parkinson's.

The Movers & Shakers are: Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.

Produced and edited by Nick Hilton for Podot.

Sound mixing by Ewan Cameron.

Music by Alex Stobbs.

Hosted on Acast. See acast.com/privacy for more information.

As a special extra, to round out this fifth season of Movers and Shakers, the show is coming to you live from Henley! Away from the pub (and with a live audience) the gang talk about their Parkinson's progress and are joined by a couple of special guests, representing the local area and giving you a glimpse inside Paul's brain...

Don't forget to sign the Parky Charter petition by going to ParkyPetition.com!

Sponsored by Boardwave, who support Cure Parkinson's.

Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.

Produced and edited by Nick Hilton for Podot.

Sound mixing by Ewan Cameron.

Music by Alex Stobbs.

Hosted on Acast. See acast.com/privacy for more information.