MS News & Perspectives

Nancy Davis is an entrepreneur and philanthropist best known for her signature jewelry line, Peace and Love, and her two foundations, Race to Erase MS and Cure Addiction Now. Having raised over $55 million dollars toward finding a cure for MS, the Center Without Walls (part of Race to Erase MS) offers a collaborative approach to hasten research and discovery among the world’s premier medical, scientific, and research communities.

Join them as they discuss the impact Race to Erase MS has had on the MS landscape, how DMT research and development have accelerated as a result, and how Nancy finds joy amid her own battle with MS.

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Amy Behimer is a Doctor of Pharmacy and National Board Certified Health and Wellness Coach who helps people feel healthy amid autoimmune diagnoses. Living with MS, Amy has a unique understanding of the challenges such patients face, and her coaching emphasizes physical, mental, and emotional wellness.

Join them as they discuss Amy’s own diagnosis and her decision to become a life coach. She also touches on what inspired her to help the autoimmune disease community and how others can start to make the shift from simply managing their autoimmune disease to creating autoimmune health.

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Lindsay Kelly is a certified life coach and helps people navigate unexpected life transitions. She is also a social media influencer and caregiver for her husband, Rhead, who, because of the severity of his MS, resides in assisted living.

Join them as they discuss the difficult decision to choose assisted living for Rhead, why she uses social media to elevate understanding of MS, and how her family stays close despite their unique situation.

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Charisse Litchman, MD, is co-founder and chief medical officer of BeCare Link, an AI-driven platform that helps patients take charge of their neurological health. A practicing neurologist and a former faculty member at Yale School of Medicine, Dr. Litchman leverages her expertise in medicine and advances in technology to empower patients and improve outcomes.

Listen in as they discuss what inspired Dr. Litchman to become a neurologist, her motivation behind the creation of BeCare Link, and what future developments lie ahead.

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Since his own diagnosis in 2004, Michael Weiss has dedicated himself to advocating and fundraising on behalf of MS organizations and patients. His innumerable achievements and fundraising efforts have led him to his current position as a patient ambassador and advisory board member with the non-profit organization MS4MS.

Join them as they discuss the mental and physical challenges that can accompany MS, why it’s important to be comfortable with being “not OK,” and wisdom for newly diagnosed patients.

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On the latest episode, Jenn talks with Jeremiah Robison, founder of CIONIC and its FDA-cleared Neural Sleeve — the first product to combine sensing, analysis, and augmentation into a wearable garment for mobility.

Join them as they discuss the importance of practical application when it comes to mobility devices, what differentiates the CIONIC Neural Sleeve from other functional electrical stimulation devices, and why Jeremiah is just getting started on his mission to change the landscape of wearable technology.

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UCLA basketball player Blake Arnet lost his mom, Brigitte, to MS the summer before his junior year. This tragedy left Blake and his family inspired to help fight this disease in Brigitte’s honor. His background in basketball, sports coaching, and entrepreneurial talent helped him establish Dunk MS.

Join Jenn and Blake as they discuss the profound impact of losing a parent to MS at such a young age, how grief turned to inspiration, and what exciting things everyone can expect at Dunk MS 2024 on Saturday, May 18.

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Tim Coetzee, PhD, serves as the National MS Society’s Chief Advocacy, Services, and Science Officer. In this role, he leads the organization’s state and federal advocacy, educational, and support programs for people with MS and spearheads healthcare professional engagement and training and global research programs.

Join them as they discuss the society’s many services and programs, its search for new innovators to aid in groundbreaking research, and Tim’s own commitment to finding a cure for MS.

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Daniel Ontaneda, MD, PhD, FAAN, is a staff neurologist and Director of Research for the Mellen Center for Multiple Sclerosis, part of the Neurological Institute at Cleveland Clinic.

Join them as they discuss the misdiagnosis of MS, gaps in current diagnostic criteria, and how artificial intelligence could be used to aid diagnostic accuracy.

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In June 2018, Todd went from building start-ups in Silicon Valley to becoming the primary caregiver of and patient advocate for his mom and subsequently his dad. In looking for support and resources, Todd saw a significant unmet need.

Join Jenn and Todd as they discuss the importance of creating resources solely for caregivers. They touch on what caregivers need, how they can get those needs met, and what inspired Todd to create My Care Friends — a free, comprehensive, and growing resource for caregivers, advocates, and family members.

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