MS News & Perspectives

Lindsay Kelly is a certified life coach and helps people navigate unexpected life transitions. She is also a social media influencer and caregiver for her husband, Rhead, who, because of the severity of his MS, resides in assisted living.

Join them as they discuss the difficult decision to choose assisted living for Rhead, why she uses social media to elevate understanding of MS, and how her family stays close despite their unique situation.

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Charisse Litchman, MD, is co-founder and chief medical officer of BeCare Link, an AI-driven platform that helps patients take charge of their neurological health. A practicing neurologist and a former faculty member at Yale School of Medicine, Dr. Litchman leverages her expertise in medicine and advances in technology to empower patients and improve outcomes.

Listen in as they discuss what inspired Dr. Litchman to become a neurologist, her motivation behind the creation of BeCare Link, and what future developments lie ahead.

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Since his own diagnosis in 2004, Michael Weiss has dedicated himself to advocating and fundraising on behalf of MS organizations and patients. His innumerable achievements and fundraising efforts have led him to his current position as a patient ambassador and advisory board member with the non-profit organization MS4MS.

Join them as they discuss the mental and physical challenges that can accompany MS, why it’s important to be comfortable with being “not OK,” and wisdom for newly diagnosed patients.

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On the latest episode, Jenn talks with Jeremiah Robison, founder of CIONIC and its FDA-cleared Neural Sleeve — the first product to combine sensing, analysis, and augmentation into a wearable garment for mobility.

Join them as they discuss the importance of practical application when it comes to mobility devices, what differentiates the CIONIC Neural Sleeve from other functional electrical stimulation devices, and why Jeremiah is just getting started on his mission to change the landscape of wearable technology.

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UCLA basketball player Blake Arnet lost his mom, Brigitte, to MS the summer before his junior year. This tragedy left Blake and his family inspired to help fight this disease in Brigitte’s honor. His background in basketball, sports coaching, and entrepreneurial talent helped him establish Dunk MS.

Join Jenn and Blake as they discuss the profound impact of losing a parent to MS at such a young age, how grief turned to inspiration, and what exciting things everyone can expect at Dunk MS 2024 on Saturday, May 18.

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Tim Coetzee, PhD, serves as the National MS Society’s Chief Advocacy, Services, and Science Officer. In this role, he leads the organization’s state and federal advocacy, educational, and support programs for people with MS and spearheads healthcare professional engagement and training and global research programs.

Join them as they discuss the society’s many services and programs, its search for new innovators to aid in groundbreaking research, and Tim’s own commitment to finding a cure for MS.

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Daniel Ontaneda, MD, PhD, FAAN, is a staff neurologist and Director of Research for the Mellen Center for Multiple Sclerosis, part of the Neurological Institute at Cleveland Clinic.

Join them as they discuss the misdiagnosis of MS, gaps in current diagnostic criteria, and how artificial intelligence could be used to aid diagnostic accuracy.

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In June 2018, Todd went from building start-ups in Silicon Valley to becoming the primary caregiver of and patient advocate for his mom and subsequently his dad. In looking for support and resources, Todd saw a significant unmet need.

Join Jenn and Todd as they discuss the importance of creating resources solely for caregivers. They touch on what caregivers need, how they can get those needs met, and what inspired Todd to create My Care Friends — a free, comprehensive, and growing resource for caregivers, advocates, and family members.

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Award-winning actress Jamie-Lynn Sigler talks openly about living with multiple sclerosis, including her diagnosis at age 20 and her decision to keep it a secret for 16 years. She also shares what surprised her most once her diagnosis became public.

Neuroimmunologist, Dr. Sharon Stoll is both a practicing neurologist and scientist, creating the first intrathecal baclofen pump for severe MS-related spasticity. Dr. Stoll discusses symptom management and healthy living with MS and reveals something of her own strategies for the first time.

Join them for a candid discussion about overcoming everyday challenges and celebrating oneself in the midst of living with a chronic illness.

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After her MS diagnosis, Julie Stamm made it her mission to educate, support, and advocate for others battling chronic illnesses. After the birth of her son in 2016, Julie shifted her focus to supporting the children of parents with a chronic illness. Her children’s book entitled “Some Days: A Tale of Love, Ice Cream, and My Mom’s Chronic Illness” was created to normalize differing abilities and amplify how each of us can thrive in spite of our challenges.

Join them as they discuss Julie’s inspiration to normalize disability for children, her follow-up to her children’s book, and how she lives well with MS.

Join the conversation on our MS forums: www.multiplesclerosisnewstoday.com/forums/

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