Just us for another throwback episode of Muscle Owl Talks from December 2016! We discussed employment and disability, from a muscular dystrophy perspective. Featuring Vivek and Sulaiman.

 

"That sense of being able to work, the sense of feeling valued, it is so important."

Here's a throwback episode of our Muscle Owl Talks video show from December 2016!

 

Peter and Jon Hastie discuss the importance of adults with Duchenne (of all ages!) getting access to treatment.

Here's a throwback episode of Muscle Owl Talks from November 2016! We discussed muscular dystrophy and life expectancy with Vivek and Jon Hastie.

 

"If you outlive the age that they say you're going to live, you can feel lost!"

 

Using life expectancy for muscular dystrophy conditions? What do we think of it? Jon Hastie and Vivek discuss how talking life expectancy can often be unhelpful for Duchenne patients, and Michaela muses on her own experiences with SMA.

"I don't think we realize how commonplace this is. And it is quite commonplace. We need to question where people's legal protections are from this." Join us in Muscle Owl Talks Episode 21 as we discuss the threats of care homes to people with a disability.

"There is so much focus on us living longer lives, but if we don't have the right care, and if nobody is accountable, then what is the point?" Vivek discusses the latest All Party Parliamentary Group for neuromuscular care, which was hosted by Muscular Dystrophy UK. Muscle Owl Talks Episode 18 is OUT NOW!

In October 2016, we welcomed Jon Hastie onto the show for the first time, and discussed his charity DMD Pathfinders. We also spoke on how people with Duchenne can inspire each other!

Here is our Muscle Owl Talks episode 16 for your listening ears!

Back in July 2016, Muscular Dystrophy UK hosted an All Party Parliamentary Group on Physiotherapy. One of our co-editors, Vivek, gave a speech on his experiences of physio, as a young man with Duchenne muscular dystrophy. Here is the Muscle Owl Talks episode we followed up with immediately afterwards, as we spoke of our own experiences, and how we think health care should lead.

We look back to episode 11 of Muscle Owl Talks, which concluded our discussion on ableism in society.

"Being talked to like you're not like everybody else is just tiring, but at the same time, you don't want to be mean to people."

"People are so afraid to say the wrong thing that they'll often say nothing."

 

What are you views on ableism?

Are some newspaper articles ABLEIST?! What is ableism?! We're throwing way back to episode 9 of Muscle Owl Talks with the first half of our ableism introductory chat from 2016.

An AMAZING new episode of Muscle Owl Talks from last year! We discussed Zoe's debacle on a train, and Michaela and Sara keep us entertained with their experiences.