In this episode, Kerri Fitzgerald sits down with Jahkori Dopwell Hall at The Glaucoma Foundation offices in New York City to talk about his experience with primary congenital glaucoma, a progressive vision condition he was diagnosed with at just 6 months old. Jahkori never let his vision challenges interrupt his dream of becoming an artist. Jahkori talks about a teacher who inspired him, the family that supported him, and how he turned his passion into a career.

Key Highlights:

• Hear how Jahkori Dopwell Hall’s family first learned he had glaucoma.
• Learn why Jahkori became interested in art.
• Hear about how Jahkori turned his passion for art into a career and a business venture.

• Be inspired by Jahkori's work with The Glaucoma Foundation, where he serves as an Ambassador and an example of what a young person with glaucoma can accomplish.

Connect with Jahkori Dopwell Hall: https://www.jahkoridopwellhall.org/ https://www.tiktok.com/@mr.jahko https://www.instagram.com/jah_kori/ https://www.youtube.com/@Mr.Jahko_

Learn more about The Glaucoma Foundation: https://glaucomafoundation.org/

About My Hero 360: At My Hero 360, we honor, celebrate, and connect heroes worldwide. By sharing their stories, we aim to inspire and provide hope for humanity. Follow us to hear more incredible stories of unsung heroes who make a difference in the world.

Support My Hero 360:

https://myhero360.com/ https://www.instagram.com/myhero.360/ https://www.tiktok.com/@myhero.360

Listen to Our Heroes’ Stories:

Spotify: https://open.spotify.com/show/1LnJ9ce28OkweYcopCZx2L?si=ae174fd84ef44334

Amazon Music: https://music.amazon.com/podcasts/aa426e78-fb79-4978-8851-d5aab25cf951/my-hero-360

Subscribe to this channel for more inspirational stories.

In this episode, Kerri Fitzgerald speaks with Dean Salmon and Stacey Carpenter-Salmon, parents to two children who were diagnosed with a rare genetic condition called Alagille syndrome. Stacey later found out that she had Alagille syndrome, as well as some extended family members.

Dean and Stacey give advice for other parents and families helping a loved one through a health journey and talk about how impactful it was to find a community of families who could understand this condition first-hand. Dean and Stacey offer important advice to advocate for your loved one and to take time to relish the simple moments with family. 

Key Highlights: 

• Hear how Dean and Stacey came to learn that their children had Alagille syndrome. 
• Learn about how the condition affects Stacey and her two children in very different ways. 
• Hear about how Dean and Stacey found a community in the Alagille Syndrome Alliance, connecting with others who could truly understand how their lives have been impacted. 
• Be inspired by Dean and Stacey's recommendation to focus on the important people in life rather than “the stuff.” 

Learn more about the Cholestatic Liver Disease Summit:  

www.liverdiseasesummit.org  

Learn more about the Alagille Syndrome Alliance: 

https://alagille.org/  

About My Hero 360: At My Hero 360, we honor, celebrate, and connect heroes worldwide. By sharing their stories, we aim to inspire and provide hope for humanity. Follow us to hear more incredible stories of unsung heroes who make a difference in the world.  

Support My Hero 360: 

https://myhero360.com/  

https://www.instagram.com/myhero.360/   

https://www.tiktok.com/@myhero.360   

Listen to Our Heroes’ Stories: 

Spotify: https://open.spotify.com/show/1LnJ9ce28OkweYcopCZx2L?si=ae174fd84ef44334 

Amazon Music: https://music.amazon.com/podcasts/aa426e78-fb79-4978-8851-d5aab25cf951/my-hero-360  

Subscribe to this channel for more inspirational stories. 

In this episode, Kerri Fitzgerald speaks with Dr. Megan Melody, an oncologist at Tampa General Hospital. Filmed at the 2025 Society of Hematologic Oncology (SOHO) Annual Meeting, Dr. Melody talks about the types of rare cancers patients can have, how an accurate diagnosis is paramount, and how societies like SOHO advance the research and development of treatment and care for patients affected by cancer.  

Key Highlights: 

• Hear about the work Dr. Megan Melody does in the oncology field. 

• Learn why Dr. Melody supports patients' decision to get a second opinion. 

• Hear Dr. Melody’s advice for patients facing a cancer diagnosis. 

• Be inspired by the work that Dr. Melody, SOHO, and other clinicians and researchers in the field do to advance patient care and outcomes. 

Connect with SOHO:  

https://www.sohoonline.org/ 

https://sohoinsider.com/  

https://www.youtube.com/@SocietyofHemOnc  

https://www.instagram.com/socofhemonc/  

https://www.linkedin.com/company/societyofhemonc  

About My Hero 360: At My Hero 360, we honor, celebrate, and connect heroes worldwide. By sharing their stories, we aim to inspire and provide hope for humanity. Follow us to hear more incredible stories of unsung heroes who make a difference in the world. 

Support My Hero 360: 

https://myhero360.com/  

https://www.instagram.com/myhero.360/   

https://www.tiktok.com/@myhero.360   

Listen to Our Heroes’ Stories: 

Spotify: https://open.spotify.com/show/1LnJ9ce28OkweYcopCZx2L?si=ae174fd84ef44334 

Amazon Music:  https://music.amazon.com/podcasts/aa426e78-fb79-4978-8851-d5aab25cf951/my-hero-360  

Subscribe to this channel for more inspirational stories.  

In this episode, Kerri Fitzgerald sits down with Michelle Hammer, founder and creator of Schizophrenic.NYC. Michelle lives with schizophrenia and uses social media to educate others about mental illness and schizophrenia in particular. Michelle credits her support system, her participation in a college sports team, and a personalized treatment regimen for allowing her to live a full and successful life. A true New Yorker, Michelle uses her voice and platform to advocate for others living with mental illness and implores people to have empathy for those who are homeless in New York City. 

Key Highlights: 

• Be inspired by Michelle's advocacy for individuals with mental illness and the homeless. 

Connect with Michelle Hammer: 

https://www.schizophrenic.nyc/ 

https://www.instagram.com/schizophrenic.nyc/  

https://www.youtube.com/channel/UCR5_ez7c5rhC6mIpcs6tAWg  

About My Hero 360: At My Hero 360, we honor, celebrate, and connect heroes worldwide. By sharing their stories, we aim to inspire and provide hope for humanity. Follow us to hear more incredible stories of unsung heroes who make a difference in the world. 

Support My Hero 360: 

https://myhero360.com/  

https://www.instagram.com/myhero.360/   

https://www.tiktok.com/@myhero.360   

Listen to Our Heroes’ Stories: 

Spotify: https://open.spotify.com/show/1LnJ9ce28OkweYcopCZx2L?si=ae174fd84ef44334 

Amazon Music: https://music.amazon.com/podcasts/aa426e78-fb79-4978-8851-d5aab25cf951/my-hero-360  

Subscribe to this channel for more inspirational stories. 

In this episode, Kerri Fitzgerald talks with Brittany Brinson, a PICU nurse whose son wound up in her hospital ward due to a rare genetic liver condition called progressive familial intrahepatic cholestasis or PFIC. For 3 months after her son Corbin was born, Brittany searched for answers about her son’s health, often dismissed by others in the medical community. After his symptoms worsened and he landed in the hospital with a brain bleed, the family finally got much-needed answers. Brittany shares her family’s story and explains why healthcare workers also need support.

Key Highlights:

• Hear why Brittany Brinson first had concerns about her son’s health.
• Learn about Corbin’s rare genetic liver condition PFIC and the impacts of this condition.
• Hear how connecting with others and speaking at the recent Cholestatic Liver Disease Summit was an important experience for Brittany and her family.
• Be inspired by Brittany’s nonprofit, Moved by Their Compassion, which seeks to provide resources for healthcare providers.

Learn more about Moved by Their Compassion: https://movedbytheircompassion.org/

Learn more about the Cholestatic Liver Disease Summit: www.liverdiseasesummit.org

Learn more about PFIC Network: https://www.pfic.org/

About My Hero 360: At My Hero 360, we honor, celebrate, and connect heroes worldwide. By sharing their stories, we aim to inspire and provide hope for humanity. Follow us to hear more incredible stories of unsung heroes who make a difference in the world.

Support My Hero 360:

https://myhero360.com/ https://www.instagram.com/myhero.360/ https://www.tiktok.com/@myhero.360

Listen to Our Heroes’ Stories:

Spotify: https://open.spotify.com/show/1LnJ9ce28OkweYcopCZx2L?si=ae174fd84ef44334

Amazon Music: https://music.amazon.com/podcasts/aa426e78-fb79-4978-8851-d5aab25cf951/my-hero-360

In this episode of My Hero 360, Kerri Fitzgerald speaks with two heroes—first, Abbey Cook, the mother of two sons who were misdiagnosed for years, and second, Zach Cook, one of her sons who was just recently diagnosed with the rare genetic condition cerebrotendinous xanthomatosis (CTX). The Cook family went years without a proper diagnosis, but a new FDA-approved treatment option, coupled with the correct diagnosis, has made a big impact on their life.  

My Hero 360 would like to thank the CTX Alliance for their partnership on this interview. 

Key Highlights: 

• Hear how it took the Cook family over 30 years to get a proper diagnosis of CTX. 

• Listen to Abbey’s recommendations for parents or caregivers on how to advocate for a loved one dealing with a health issue. 

• Be inspired by Zach’s poem that puts into words how it feels to live with CTX. 

• Heed Abbey and Zach’s advice to consider rare diseases during a prolonged health journey. 

  
  

Learn more about the CTX Alliance:  

https://ctxalliance.org/  

About My Hero 360: At My Hero 360, we honor, celebrate, and connect heroes worldwide. By sharing their stories, we aim to inspire and provide hope for humanity. Follow us to hear more incredible stories of unsung heroes who make a difference in the world. 

Support My Hero 360: 

https://myhero360.com/  

https://www.instagram.com/myhero.360/   

https://www.tiktok.com/@myhero.360   

Listen To Our Heroes’ Stories: 

Spotify: https://open.spotify.com/show/1LnJ9ce28OkweYcopCZx2L?si=ae174fd84ef44334 

Amazon Music: https://music.amazon.com/podcasts/aa426e78-fb79-4978-8851-d5aab25cf951/my-hero-360  

Subscribe to this channel for more inspirational stories. 

Kerri Fitzgerald talks with Steven Lopez Sr., who was injured in a car accident, leading to a long health journey to discover he had Chiari malformation and syringomyelia, both of which put pressure on the spinal cord and result in severe pain and discomfort as well as other symptoms. Steven struggled to find a care team that was right for him and finally turned to social media to find a connection with other people who were dealing with something similar. Now, he serves as a voice for the community and uses his experience to help others as they navigate these difficult conditions. 

Key Highlights: 

• Hear how Steven Lopez Sr. went for years without a proper diagnosis. 

• Learn why surgery is not a cure-all for people like Steven. 

• Hear about how Steven has used his voice on social media to advocate for himself and others. 

• Be inspired by Steven’s partnership with Conquer Chiari to host a fundraising walk in September, coinciding with Chiari Malformation Awareness Month.  

  
  

Connect with Steven: 

https://www.instagram.com/steven_chiari_warrior/ 

https://www.tiktok.com/@steven_chiari_warrior 

Learn more about Conquer Chiari:  

https://www.conquerchiari.org/index.asp  

https://walk.conquerchiari.org/  

About My Hero 360: At My Hero 360, we honor, celebrate, and connect heroes worldwide. By sharing their stories, we aim to inspire and provide hope for humanity. Follow us to hear more incredible stories of unsung heroes who make a difference in the world. 

Support My Hero 360: 

https://myhero360.com/  

https://www.instagram.com/myhero.360/   

https://www.tiktok.com/@myhero.360   

Listen To Our Heroes’ Stories: 

Spotify: https://open.spotify.com/show/1LnJ9ce28OkweYcopCZx2L?si=ae174fd84ef44334 

Amazon Music: https://music.amazon.com/podcasts/aa426e78-fb79-4978-8851-d5aab25cf951/my-hero-360  

Subscribe to this channel for more inspirational stories. 

On this special episode, Kerri Fitzgerald sits down with Jeffrey Allen, the winner of Amazon Prime Video’s Beast Games and $10 million, the largest prize in game-show history. Jeff’s goal for joining MrBeast's reality competition was to raise awareness and funds for a rare genetic condition that his young son has—creatine transporter deficiency (CTD). Jeff talks about the journey to understanding his son’s diagnosis, how the newfound platform and notoriety have expanded the reach of his mission to find a cure for CTD, and how his two sons inspire him to be the best person and father. 

Key Highlights: 

• Hear about Jeff's quest to beat out 999 people on Amazon Prime Video’s Beast Games, a daring game show hosted by MrBeast. 

• Learn about creatine transporter deficiency (CTD), the rare genetic condition that Jeff’s son has and his mission to find a cure for CTD. 

• Hear about how Jeff has partnered with the Association for Creatine Deficiencies to make bold advancements in research and development for a treatment for CTD. 

• Be inspired by Jeff's perspective on being a father and caregiver for a son with a rare condition. 

  
  

Connect with Jeff Allen: 

https://www.legacy831.com/  

https://www.instagram.com/legacy.831/ 

https://www.youtube.com/@legacy831official  

At My Hero 360, we honor, celebrate, and connect heroes worldwide. By sharing their stories, we aim to inspire and provide hope for humanity.

Support My Hero 360: 

https://myhero360.com/  

https://www.instagram.com/myhero.360/  

https://www.tiktok.com/@myhero.360  

Listen To Our Heroes’ Stories: 

Spotify: https://open.spotify.com/show/1LnJ9ce28OkweYcopCZx2L?si=ae174fd84ef44334 

Amazon Music: https://music.amazon.com/podcasts/aa426e78-fb79-4978-8851-d5aab25cf951/my-hero-360  

In this episode of My Hero 360, Kerri Fitzgerald talks with Hillary Golden, founder of Glaucoma Coach, who uses her voice to educate and advocate for individuals with glaucoma.

Hillary went to the eye doctor for treatment for a stye but left the appointment with concerning news: she had normal tension glaucoma. Scared but determined, Hillary decided to use her knowledge and voice to help others going through a similar situation, taking her movement all the way to Congress. 

Key Highlights: 

• How Hillary Golden went to an optometrist and left with life-changing news. 

• How Hillary launched her platform Glaucoma Coach and has worked with other patient-focused organizations to keep the patient’s voice top of mind. 

• Hear about how Hillary has used her platform to advocate for patients in Washington, DC. 

Connect with Hillary Golden: 

https://glaucomacoach.com/ 

https://www.instagram.com/glaucoma_coach/  

https://www.linkedin.com/in/hillaryagolden/  

At My Hero 360, we honor, celebrate, and connect heroes worldwide. By sharing their stories, we aim to inspire and provide hope for humanity.

Support My Hero 360: 

https://myhero360.com/  

https://www.instagram.com/myhero.360/  

https://www.tiktok.com/@myhero.360  

Listen To Our Heroes’ Stories: 

• Spotify: https://open.spotify.com/show/1LnJ9ce28OkweYcopCZx2L?si=ae174fd84ef44334 

• Amazon Music: https://music.amazon.com/podcasts/aa426e78-fb79-4978-8851-d5aab25cf951/my-hero-360  

In this episode of My Hero 360, Kerri Fitzgerald speaks with Scott, founder of 4Summers, who struggled to find a diagnosis for years for his newly developed visual disturbances. After seeing multiple doctors and receiving no answers, Scott took to YouTube and other online platforms to find an answer. Soon, he found out he had Visual Snow Syndrome, a rare, little-known neurological condition that impacts vision. Determined not to let his new reality keep him down, Scott decided to launch a platform to advance the awareness of and research for this condition. 

Throughout This We Highlight: 

• How Scott finally received a Visual Snow Syndrome diagnosis. 

• Learn about his newly launched 4Summers initiative, including the upcoming Summer Solstice event taking place June 20, 2025. 

• How you can help support the goals of 4Summers through an upcoming auction. 

• Be inspired by Scott’s use of music and art to drive the mission and purpose of 4Summers. 

  
  

Connect with Scott: 

https://4smrs.com/blogs/dialed/summer-solstice-launch-event 

https://www.instagram.com/scott4summers/ 

https://www.youtube.com/@scott4summers4  

https://open.spotify.com/artist/7DRF3kkItvXGvwBzNOt3km  

At My Hero 360, we honor, celebrate, and connect heroes worldwide. By sharing their stories, we aim to inspire and provide hope for humanity.

Support My Hero 360: 

https://myhero360.com/  

https://www.instagram.com/myhero.360/  

https://www.tiktok.com/@myhero.360  

Listen To Our Heroes’ Stories: 

Spotify: https://open.spotify.com/show/1LnJ9ce28OkweYcopCZx2L?si=ae174fd84ef44334 

Amazon Music: https://music.amazon.com/podcasts/aa426e78-fb79-4978-8851-d5aab25cf951/my-hero-360