MyMacDLife - Macular Degeneration Podcast

In this inspiring episode, Sam Seavey shares his journey living with low vision and how he uses humor, advocacy, and assistive tools to navigate life with an invisible disability. From his low-vision-themed merchandise to the practical uses of a white cane for identification, Sam offers insights into the challenges and triumphs of the visually impaired. Tune in for a conversation that sheds light on invisible disabilities and offers hope for overcoming them​.

In this thought-provoking episode of My MACD Life, Sam Seavey shares a glimpse into the future of assistive technology for the visually impaired. From advancements in battery technology and wearable devices to groundbreaking innovations like contact lenses with video magnification and robotic guide dogs, Sam discusses the transformative potential of these developments. He also provides heartfelt advice for those newly experiencing vision loss, emphasizing resilience, system-building, and learning from others in the community. Tune in for a hopeful and forward-looking discussion on the tools and mindset needed to navigate visual impairment​

In this episode of My MACD Life, we dive into the critical issue of affordability for assistive technology devices with guest Sam Seavey. With an unemployment rate of 80% among the visually impaired community, Sam addresses the burning question: why are these devices so expensive? He shares valuable insights into the economics of assistive technology and practical solutions to make these essential tools accessible. From personal grants and nonprofit support to holiday discounts and vocational rehabilitation programs, Sam offers actionable advice to help individuals and families navigate financial challenges. Tune in for expert tips and resources that bring hope and independence to those living with macular degeneration.

Sam Seavey explores the economics behind assistive technology and the challenges posed by the so-called "blind tax." He highlights the transformative impact of devices like wearable magnifiers and text-to-speech tools while discussing the significant financial barriers many face. This episode dives deep into how these essential tools are priced and what can be done to make them more accessible​

In this episode, Sam Seavey walks us through his process of evaluating assistive devices for the visually impaired. From white canes to talking watches, he tests products in real-life scenarios and gathers insights from experts to provide honest reviews. Learn about the latest innovations in assistive technology and how they’re making a difference for the visually impaired community​

Discover how Sam Seavey built The Blind Life, a YouTube channel dedicated to reviewing assistive technology and sharing tips for living with low vision. With over 50,000 subscribers and 700 videos, Sam shares how he produces content, advocates for the blind community, and helps others navigate their journeys. Get inspired by his determination to make information accessible and empowering​

Sam Seavey shares his personal experience with Stargardt's disease, a rare inherited form of macular degeneration. From genetic inheritance to the challenges of growing up with a sibling who shares the condition, Sam provides a heartfelt and informative look at life with Stargardt's. This episode is a must-listen for anyone wanting to understand this unique condition​

In this inspiring episode of My MACD Life, Sam Seavey, founder of The Blind Life YouTube channel, shares his journey with Stargardt's disease and his mission to empower others with visual impairments. Sam discusses the evolution of assistive technology, tips for overcoming daily challenges, and the importance of determination in adapting to vision loss. From innovative devices to personal strategies, Sam’s story and insights remind us that living a fulfilling life is possible with the right mindset and tools. Tune in for a conversation filled with practical advice and hope for the visually impaired community​

Dr. Daniel Jones shares his personal journey into neuroscience, inspired by growing up in a bilingual household with a deaf parent. This episode dives into how adaptability in the brain connects to his work in macular degeneration research, showcasing the power of determination and the courage to face scientific and personal challenges​

This episode explores the findings of the Mosaic study, which examined the impact of Geographic Atrophy (GA) on patients and caregivers. Dr. Daniel Jones discusses the emotional and functional burdens of GA, highlighting how caregiving relationships often deepen through love and support despite the challenges. Gain insights into how this research shapes better care for those living with GA​