My Spoonie Sisters

Navigating Life with Grit and Grace


Listen Later

What does it mean to be a warrior? Today, I'm joined by Makenzie, a 22-year-old nursing student who embodies this term like no other. Battling Juvenile Idiopathic Arthritis since age 13, Makenzie navigates the daily struggles of her own disease while also being a champion for her son Josiah, who has Familial Cold Autoinflammatory Syndrome, and her mother, who is fighting Lupus and Rheumatoid Arthritis. She offers a candid insight into the complexities of their journeys, from the agonizing search for a diagnosis to the treatments they undergo.

Have you ever felt unheard or misunderstood in a doctor's office? Makenzie knows this feeling all too well, and she's here to emphasize the importance of standing up for yourself and your loved ones. She shares her thoughts on advocating for early detection tests for autoimmune and autoinflammatory markers at birth - a simple measure that she believes could spare others from undue suffering. 

Lastly, let's delve into Makenzie's resilience kit, her 'Spoonie Toolkit,' and how she maintains a positive outlook despite the trials she faces. We touch on the reality of parenting children with special needs, the invaluable importance of support, and maintaining a good attitude, no matter what. Whether you're personally affected by chronic illness or not, this conversation with Makenzie is sure to inspire and motivate you to face life's battles with grit and grace.

https://www.gofundme.com/f/cabrera-family-medical-funds?utm_campaign=p_cp+share-sheet&utm_medium=copy_link_all&utm_source=customer
https://linktr.ee/makenziecabrera

Send us a text


Are you living with a chronic illness and want to make your voice heard? Rare Patient Voice connects patients and caregivers with research opportunities—so you can share your experiences and get paid for your time! Your insights help drive real change in healthcare.

Let's Get Started - Rare Patient Voice

Support the show

Support:
https://rarepatientvoice.com/Myspooniesisters/
https://www.etsy.com/shop/MySpoonieSisters
https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen10)

Website:
https://myspooniesisters.com/

Discount Codes:

GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off

...more
View all episodesView all episodes
Download on the App Store

My Spoonie SistersBy Jen Weaver

  • 5
  • 5
  • 5
  • 5
  • 5

5

17 ratings


More shows like My Spoonie Sisters

View all
This Podcast Will Kill You by Exactly Right and iHeartPodcasts

This Podcast Will Kill You

16,855 Listeners

Dateline NBC by NBC News

Dateline NBC

47,886 Listeners

Wonderland on Points | Credit Card Rewards & Budget Travel by Mary Ellen and Jo

Wonderland on Points | Credit Card Rewards & Budget Travel

193 Listeners