Neuroverse by Groktopus

At the time of this recording, this show is entirely unsponsored and without ads. It is listener-supported. Will you support us? For only a dollar a month, you can show your support as a fan of the show. For five dollars a month, you can be an Official Patron. And as a show of gratitude, you'll have access to new episodes several days before everybody else. You can learn more about the show and how to support it on our Patreon page.

Host: Magnus Hedemark

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Guest: Laura McConnell

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Music: 

• "Backed Vibes Clean" by Kevin MacLeod

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At the time of this recording, this show is entirely unsponsored and without ads. It is listener-supported. Will you support us? For only a dollar a month, you can show your support as a fan of the show. For five dollars a month, you can be an Official Patron. And as a show of gratitude, you'll have access to new episodes several days before everybody else. You can learn more about the show and how to support it on our Patreon page.

Host: Magnus Hedemark

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Guest: Jeff Ulrich

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• Midroll
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Music: 

• "Backed Vibes Clean" by Kevin MacLeod

Patreon status:

• I put out a call for Patrons, and you put us over the top! The podcast is now covering its own hosting costs. Operating costs are currently around $26 per month. Patrons are contributing about $94 after Patreon fees and taxes. I've been using the extra to re-invest back into the show, like paying to have the logo commissioned.
• Become a Patron and get early access to new episodes while supporting the show.
• We've also trying live streaming for Patrons ($5+ tier) but have some kinks to work out.
• I have used some of the pledge money to have our Groktopus mascot created and Podcast cover art.
• Order of the Tentacle ($50+ per month):
  • &Diverse Foundation
• Holy grail: professional transcripts of all episodes. Automated tools don't work well, so this requires real labor. We're not close to this yet.
• I've got most of the gear now to make YouTube versions of our interviews. In another month or two at this rate I should be able to spring for video editing software to get some Neurodiversity content out there on video to complement the podcasting.

Show notes:

• This episode was recorded a little while back. This and the next one are coming out after a long delay. Thanks for your patience!
• Watch this episode on YouTube!
• Jeff came out as #ActuallyAutistic in September, having just found out in January.
• Interesting story to tell about life pre-diagnosis.
• First year of processing diagnosis & moving forward.
• Can the journey of late life Autism diagnosis be supported like those in a recovery program? 
• Even if you're expecting & looking forward to the diagnosis, the experience of receiving it from essentially a stranger can be jarring.
• We talk a bit about the Autistic community, how it can be a scary community sometimes... if you don't use the right words, have the right point of view, the community can turn on its own kind. Can we get better at this? Can we show each other more grace, give each other room for different paths?
• Diagnosis can be a catalyst to becoming a better human being through understanding, reflection, introspection, iteration, adaptation, etc.

At the time of this recording, this show is entirely unsponsored and without ads. It is listener-supported. Will you support us? For only a dollar a month, you can show your support as a fan of the show. For five dollars a month, you can be an Official Patron. And as a show of gratitude, you'll have access to new episodes several days before everybody else. You can learn more about the show and how to support it on our Patreon page.

Host: Magnus Hedemark

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Guest: Haley Moss, ESQ

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• Home Page
• Spectrumly Speaking podcast

Music: 

• "Backed Vibes Clean" by Kevin MacLeod

Patreon status:

• I put out a call for Patrons, and you put us over the top! The podcast is now covering its own hosting costs. Operating costs are currently around $26 per month. Patrons are contributing about $94 after Patreon fees and taxes. I've been using the extra to re-invest back into the show, like paying to have the logo commissioned.
• Become a Patron and get early access to new episodes while supporting the show.
• We've also trying live streaming for Patrons ($5+ tier) but have some kinks to work out.
• I have used some of the pledge money to have our Groktopus mascot created and Podcast cover art.
• Order of the Tentacle ($50+ per month):
  • &Diverse Foundation
• Holy grail: professional transcripts of all episodes. Automated tools don't work well, so this requires real labor. We're not close to this yet.
• I've got most of the gear now to make YouTube versions of our interviews. In another month or two at this rate I should be able to spring for video editing software to get some Neurodiversity content out there on video to complement the podcasting.

Show notes:

• Episode 8 got corrupted partway through and I left it out there as-is. The first part of the episode is fine and then it was gone. I had recorded Episode 9 on the same day before discovering the corrupted SD card so that episode is lost forever.
• The loss of great content did make me kind of tail spin into a dark place. It took a little while to come back from that and start recording again.
• There is a video of Episode 10 (this one!) and once I figure out how to edit that, I will put it on the new YouTube channel.
• Haley is back at home in her own apartment after living with her parents for 7 months for the pandemic.
• Haley has a book coming out, maybe in Spring 2021. Stay tuned and we'll have her back to announce it.
• Shall we burn massive quantities of blue puzzle pieces in effigy?
• Haley talks about her experience being featured on the Today Show.
• Trains! Woo woo! We need some wholesome train content on the show.
• Slight burning at the expense of "people without Autism" and comparisons to robots. We love our allistic friends, though!
• "Non-compliance is a social skill."
• Autism cause vaccines, not the other way around.
• Discussed plans for Autistic world domination.
• Why Haley can't stand Love on the Spectrum.
• Documentary producers will piece together a version of you that may or may not actually/accurately represent you.
• Being manipulated by documentary film makers to force things that aren't true, like relationships.
• How to be a very public advocate while protecting your private life.
• The hurtfulness of strangers calling us "inspirational". See Stella Young's TeD talk on "Inspiration Porn".
• Interdependence in the Autistic community... we don't talk enough about it, so we make some time for that here & now.
• What is "independence" and is it even realistic? Interdependence is totally normal, but watch out for co-dependence.
• This episode launches the concept of the Haley Cinematic Universe. There's a lot that goes on in the lives of a public advocate that does not happen in the public eye. It's just for friends & loved ones.
• Haley clarifies she's not an optimist so much as an idealist. 
• What would a livable support community look like for people with disabilities? And who should / should not be allowed to live there? Could this be a better alternative to group homes or institutions?
• The disability hierarchy is very very real.
• The ups and downs of disclosure, how parents of disabled people advocate very differently than first-person disabled people, and why representation matters to avoid unintended consequences & discrimination.
• Voting by mail... vs early voting, the ins & outs, ups & downs.
• Politics... US 2020 election transcends politics. Trump supporters are going to be offended.
• The Republican party has moved far away from protecting disabled Americans since passing the ADA.
• Only one candidate (Biden) has a plan for protecting disabled folks. It's not a perfect policy, but at least they are thinking about it.
• The realization that Joe Biden might have been pandering to the Autistic vote his whole career by riding Amtrak regularly, endorsing it, and even reading the magazine. We're going to invite Joe to appear on the podcast.
• Twitter people mentioned on the show that you should follow:
  • @ElectionBabe
  • @Reese__P
  • @SenhorRaposa
  • @slooterman
  • @EricMGarcia
  • @RyanHendry94
  • @helenrottier
  • @lilririah
• Technical glitch near the end... Zoom problems! But we recovered!
• I'm a just a little cod in a big machine.

NOTICE: This audio file was corrupted partway through and part of the episode was lost. I'm profoundly sorry for this. I'll work to resolve the problem before the next episode is published. The original source files were corrupted so I'm afraid there is no way to recover this content.

At the time of this recording, this show is entirely unsponsored and without ads. It is listener-supported. Will you support us? For only a dollar a month, you can show your support as a fan of the show. For five dollars a month, you can be an Official Patron. And as a show of gratitude, you'll have access to new episodes several days before everybody else. You can learn more about the show and how to support it on our Patreon page.

Host: Magnus Hedemark

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Guest: Rhi Lloyd-Williams

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• Home Page

Music: 

• "Backed Vibes Clean" by Kevin MacLeod

Swag:

• Redbubble has stickers, shirts, all kinds of things. This directly supports the show.

Patreon status:

• I put out a call for Patrons, and you put us over the top! The podcast is now covering its own hosting costs. Operating costs are currently around $26 per month. Patrons are contributing $102 per month ($87 comes back to the show after Patreon fees and taxes).
• Become a Patron and get early access to new episodes while supporting the show.
• We're also trying live streaming for Patrons ($5+ tier)
• I have used some of the pledge money to have our Groktopus mascot created and Podcast cover art.
• Order of the Tentacle ($50+ per month):
  • &Diverse Foundation
• Holy grail: professional transcripts of all episodes. Automated tools don't work well, so this requires real labor. We're not close to this yet.

Show notes:

• Where have we been? Depression is a $!#@*.
• I'm privately podcasting at work during the week, possibly with more listeners! Similar kind of show, but aimed at coworkers.
• Adjustment to show release cadence.

At the time of this recording, this show is entirely unsponsored and without ads. It is listener-supported. Will you support us? For only a dollar a month, you can show your support as a fan of the show. For five dollars a month, you can be an Official Patron. And as a show of gratitude, you'll have access to new episodes several days before everybody else. You can learn more about the show and how to support it on our Patreon page.

Host: Magnus Hedemark

• Twitter
• Instagram

Guest: Haley Moss, ESQ

• Twitter
• Home Page
• Spectrumly Speaking podcast

Music: 

• "Backed Vibes Clean" by Kevin MacLeod

Patreon status:

• I put out a call for Patrons recently, and you put us over the top! The podcast is now covering its own hosting costs. Hosting costs are currently just under $20 per month. Patrons are contributing $47 per month ($38.80 comes back to the show after Patreon fees).
• Become a Patron and get early access to new episodes while supporting the show.
• I will use some of the pledge money to have our Groktopus mascot created and Podcast cover art.
• I will start researching costs for professionally done episode transcripts. That will be the next goal.

Show notes:

At the time of this recording, this show is entirely unsponsored and without ads. It is listener-supported. Will you support us? For only a dollar a month, you can show your support as a fan of the show. For five dollars a month, you can be an Official Patron. And as a show of gratitude, you'll have access to new episodes several days before everybody else. You can learn more about the show and how to support it on our Patreon page.

Host: Magnus Hedemark

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Guest: Crystal Rapoza, from Autistic Bodybuilding

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• Home Page
• Podcast
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• YouTube
• Blog

Music: 

• "Backed Vibes Clean" by Kevin MacLeod

Patreon status:

• I put out a call for Patrons in the last episode, and you put us over the top! The podcast is now covering its own hosting costs. Hosting costs are currently just under $20 per month. Patrons are contributing $27 per month.
• Patrons ($5+ per month): Chris Peters, Dr. Nicole Radziwill, Bob Galen, David Colburn, Jen Emira
• Friends of the podcast ($1-$4.99 per month): Grayson Brewer, Lisa Tomey
• Become a Patron and get early access to new episodes while supporting the show.
• I will start researching costs for professionally done episode transcripts. That will be the next goal.

Show notes:

At the time of this recording, this show is entirely unsponsored and without ads. It is listener-supported. Will you support us? For only a dollar a month, you can show your support as a fan of the show. For five dollars a month, you can be an Official Patron. And as a show of gratitude, you'll have access to new episodes several days before everybody else. You can learn more about the show and how to support it on our Patreon page.

Host: Magnus Hedemark

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• Instagram

Guest: Emmanuel

• Twitter
• Neuroclastic
• cashapp: $thebluemaverick
• Buy Emmanuel a coffee.

Music: 

• "Backed Vibes Clean" by Kevin MacLeod

Patreon status:

• I put out a call for Patrons recently, and you put us over the top! The podcast is now covering its own hosting costs. Hosting costs are currently just under $20 per month. Patrons are contributing $27 per month.
• Patrons ($5+ per month): Chris Peters, Dr. Nicole Radziwill, Bob Galen, David Colburn, Jen Emira
• Friends of the podcast ($1-$4.99 per month): Grayson Brewer, Lisa Tomey
• Become a Patron and get early access to new episodes while supporting the show.
• I will start researching costs for professionally done episode transcripts. That will be the next goal.

Show notes:

• Neuroclastic
• Atlanta Self-Advocacy Network Women's Collective
• Learn Educate Adapt Prepare (LEAP Eaton Academy)
• Autism Community vs Autistic Community

We missed out on last week's episode due to some last-minute trouble scheduling the guest. No backup plan emerged. Wouldn't you know it, we had challenges scheduling this week's guest, too. But rather than miss another episode, I'm going to take this opportunity to talk a little bit about why I started this podcast, and what I'm going to try doing to make the episodes come out more regularly.

At the time of this recording, this show is entirely unsponsored and without ads. It is listener-supported. Will you support us? For only a dollar a month, you can show your support as a fan of the show. For five dollars a month, you can be an Official Patron. And as a show of gratitude, you'll have access to new episodes several days before everybody else. You can learn more about the show and how to support it on our Patreon page.

Host: Magnus Hedemark

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• Instagram

Music:

• "AcidJazz" by Kevin MacLeod

Show notes:

• Thoughts on where Neuroverse has been so far.
• Patreon: Patrons & Friends. Join us? 
• Who am I?
• Why did I start Neuroverse? What's my goal with it?
• Thoughts on where Neuroverse is going next.
• Autism + Executive (dys)function
• Spoon Theory by Christine Miserandino

At the time of this recording, this show is entirely unsponsored and without ads. It is listener-supported. Will you support us? For only a dollar a month, you can show your support as a fan of the show. For five dollars a month, you can be an Official Patron. And as a show of gratitude, you'll have access to new episodes several days before everybody else. You can learn more about the show and how to support it on our Patreon page.

Host: Magnus Hedemark

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Guest: Wesley Jackson Wade

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Show notes:

• We talk a little bit about the murder of George Floyd, a black man, by four Minneapolis police officers. The shadow of this is hanging over everyone right now. While it's only now part of the national conversation (and the world conversation), this has been the reality for black Americans for over 400 years. While we're always going to strive to share voices from diverse backgrounds, we thought it was especially important right now to elevate black voices in the Neuroverse in particular.
• Wes works as a career counselor at the NCSU Career Development Center. 
• He leads Students Moving Forward for autistic students.
• He also moonlights as a counselor for mental health, career advice, and substance abuse needs in his private practice. And he's working on his PhD.
• Students Moving Forward is about to enter its fourth year.
• SMF was co-founded with Dana Thomas, an advisor at NCSU, to help out two openly autistic students at NCSU.
• Initiatives to support a community need to be informed and advised by members of the community they serve.
• "Embrace the suck." - Military saying that means "To consciously accept or appreciate something that is extremely unpleasant but unavoidable."
• There are systemic neurotypical barriers, a type of systemic injustice, that impede all autistic people. But that factor is magnified for black autistic students.
• Kimberlé Crenshaw coined the term "intersectionality".
• Angela Davis really did a lot to build on this.
• Patricia Hill Collins did even more to push intersectionality and black feminist thought.
• Autistic students of any race had to work really hard just to get into college. But a black student who is autistic knows a lot about resilience and overcoming systemic barriers. 
• #AutismAtWork should really be #AutisticAtWork
• Dr. Jamie Pearson is doing a lot of amazing work with families who have an autistic BIPOC child. But her work is not well known. It's another place where black lives don't matter as much as they should. #BlackLivesMatter
• Very, very few are helping young autistic adults transition out of childhood supports and into professional career opportunities and more independent living.
• Nancy Forsythe at University of Maryland has been very helpful in advising on the formation of Students Moving Forward.
• People checking in on their black friends are appreciated. But it's awkward when it comes from white folks who have in the past habitually contributed to racist microaggressions.
• The shooting of Trayvon Martin flipped a switch in Wes. He saw in Trayvon someone a lot like himself.
• Unconscious bias of tests with long-form answers may select against success of students with ADHD.
• There is a history of unjust experimentation on the black population. Tuskegee, North Carolina Eugenics Board (forced sterilization). But poor white people were often a part of this, too. Why hasn't the current level of movement happened before?
• "My ADHD is an accelerant to my black experience." Double-triple-quadruple for black women.
• Wes recommends the book "High Price: A Neuroscientist's Journey of Self-Discovery That Challenges Everything You Know About Drugs and Society" by Dr. Carl Hart.
• Wes is going to create a new podcast: Peace, Love, Power. You can follow the podcast's Twitter account for updates.

At the time of this recording, this show is entirely unsponsored and without ads. It is listener-supported. Will you support us? For only a dollar a month, you can show your support as a fan of the show. For five dollars a month, you can be an Official Patron. And as a show of gratitude, you'll have access to new episodes several days before everybody else. You can learn more about the show and how to support it on our Patreon page.

Host: Magnus Hedemark

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Guest: Paul Stevenson

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