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New Report Suggests Racial Disparities for Communities of Color in Obtaining Services for Georgia's Waiver Waitlists
Families of adults with developmental disabilities (DD) often find themselves as primary caregivers because they do not want the relative to be institutionalized and alternative options are not always readily available.
Individuals with DD who have been referred to a nursing home or other institutional level of care, may be eligible for home and community-based services (HCBS) through Georgia’s Medicaid program that would allow them to live at home.
But qualifying for these benefits doesn’t always ensure that the person with the disability will receive them in a timely manner. Sometimes people may meet the criteria to receive Medicaid services under a waiver program but will be placed on a waiting list to actually receive a waiver. Funding for Georgia's New Option Waiver Program (NOW) and Comprehensive Supports Waiver Program (COMP) is limited and only a certain number of people can receive services based on available funds. This means there are nearly always people on the waiting lists for the HCBS waivers.
A report released in October of 2023 by New Disabled South, a nonprofit that says it is “building a coalition of disability justice activists, advocates and organizations in the South,” used data provided by the state of Georgia to indicate that there is racial bias in approving funds to individuals on the waitlist. In New Disabled South’s report, “Uncovering Disparities in Georgia’s HCBS Waiver Waitlist,” the introduction to the executive summary points out that “troubling disparities have emerged in the distribution and utilization of [HCBS] waivers, with stark disparities in access and availability based on race.“
The Georgia Council on Developmental Disabilities (GCDD) is driven by its Five Year Strategic Plan goals to improve services and supports for people with intellectual and other developmental disabilities (I/DD). The Council, charged with creating systems change for individuals with developmental disabilities and family members, will work through various advocacy and capacity building activities to build a more interdependent, self-sufficient, and integrated and included disability community across Georgia.
This project was supported, in part by grant number 2001GASCDD-03, from the U.S. Administration for Community Living, Department of Health and Human Services, Washington, D.C. 20201. Grantees undertaking projects with government sponsorship are encouraged to express freely their findings and conclusions. Points of view or opinions do not, therefore, necessarily represent official ACL policy.
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By Georgia Council on Developmental DisabilitiesFamilies of adults with developmental disabilities (DD) often find themselves as primary caregivers because they do not want the relative to be institutionalized and alternative options are not always readily available.
Individuals with DD who have been referred to a nursing home or other institutional level of care, may be eligible for home and community-based services (HCBS) through Georgia’s Medicaid program that would allow them to live at home.
But qualifying for these benefits doesn’t always ensure that the person with the disability will receive them in a timely manner. Sometimes people may meet the criteria to receive Medicaid services under a waiver program but will be placed on a waiting list to actually receive a waiver. Funding for Georgia's New Option Waiver Program (NOW) and Comprehensive Supports Waiver Program (COMP) is limited and only a certain number of people can receive services based on available funds. This means there are nearly always people on the waiting lists for the HCBS waivers.
A report released in October of 2023 by New Disabled South, a nonprofit that says it is “building a coalition of disability justice activists, advocates and organizations in the South,” used data provided by the state of Georgia to indicate that there is racial bias in approving funds to individuals on the waitlist. In New Disabled South’s report, “Uncovering Disparities in Georgia’s HCBS Waiver Waitlist,” the introduction to the executive summary points out that “troubling disparities have emerged in the distribution and utilization of [HCBS] waivers, with stark disparities in access and availability based on race.“
The Georgia Council on Developmental Disabilities (GCDD) is driven by its Five Year Strategic Plan goals to improve services and supports for people with intellectual and other developmental disabilities (I/DD). The Council, charged with creating systems change for individuals with developmental disabilities and family members, will work through various advocacy and capacity building activities to build a more interdependent, self-sufficient, and integrated and included disability community across Georgia.
This project was supported, in part by grant number 2001GASCDD-03, from the U.S. Administration for Community Living, Department of Health and Human Services, Washington, D.C. 20201. Grantees undertaking projects with government sponsorship are encouraged to express freely their findings and conclusions. Points of view or opinions do not, therefore, necessarily represent official ACL policy.