On today's episode Marcus speaks to Caitlin Clark, a Registered Dietitian about supporting the care of her Dad, about their experience before, during and following a RIG (Radiologically Inserted Gastrostomy) placement.

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We are dedicated to providing innovative solutions to the patient safety issues surrounding nasogastric (NG) tube misplacement. 

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Website: www.ngpodglobal.com 

Twitter: https://twitter.com/NGPODGLOBAL 

Facebook: https://www.facebook.com/NGPodGlobal

Linkedin: https://uk.linkedin.com/company/ngpod-global-limited

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Marcus’ Social Links: 

Twitter: https://twitter.com/MarcusNGPOD1

Linkedin: https://www.linkedin.com/in/marcusineson/

On today's episode Marcus speaks to Caitlin Clark, a Registered Dietitian about supporting the care of her Dad, about their experience before, during and following a RIG (Radiologically Inserted Gastrostomy) placement. 

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We are dedicated to providing innovative solutions to the patient safety issues surrounding nasogastric (NG) tube misplacement.  

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Website: www.ngpodglobal.com  

Twitter: https://twitter.com/NGPODGLOBAL  

Facebook: https://www.facebook.com/NGPodGlobal

Linkedin: https://uk.linkedin.com/company/ngpod-global-limited

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Marcus’ Social Links:  

Twitter: https://twitter.com/MarcusNGPOD1

Linkedin: https://www.linkedin.com/in/marcusineson/ 

#PatientSafety #NasogastricTube #NGTube

The Nil By Mouth Foodie was founded in 2020 by passionate chef Loretta and professional photographer Amy who teamed up to create a unique platform combining plant based gluten free recipes, sharing Loretta's life story and educating on living with multiple chronic illnesses.

On this week's episode of the NGPODCAST we welcome our first celebrity guest, Loretta Harmes AKA the Nil by Mouth Foodie. Loretta is no longer able to eat or drink and is fed through a nasogastric/nasojejunal tube and a Pickman line through her heart. Despite this she has not let it come between her love and passion for cooking that she developed from a young age.

Loretta's story to diagnosis went viral and in April the BBC wrote a story on the Nil By Mouth Foodie's relentless journey. You can read the full story here https://www.bbc.co.uk/news/stories-56688582

Links

BBC New's Story - Nil by Mouth Foodie: the Chef that will never eat again

https://www.bbc.co.uk/news/stories-56688582

Website http://www.thenilbymouthfoodie.com 

Overnight oats that Marcus tried to recreate http://www.thenilbymouthfoodie.com/tiramisu-overnight-oats/

The Nil By Mouth Social Links

Instagram https://www.instagram.com/the.nil.by.mouth.foodie/

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About NGPod Global

We are dedicated to providing innovative solutions to the patient safety issues surrounding nasogastric (NG) tube misplacement.

Website: www.ngpodglobal.com

Twitter: https://twitter.com/NGPODGLOBAL 

Facebook: https://www.facebook.com/NGPodGlobal/ 

Linkedin: https://www.linkedin.com/company/ngpo... 

Marcus’s Social Links:

Twitter: https://twitter.com/MarcusNGPOD1 

Linkedin: https://www.linkedin.com/in/marcusine...

Georgie Adams joins us from Royal Devon & Exeter NHS Trust to discuss this from a nutriional perspective as her trust has recently migrated to EPIC, a fully digital electronic patient record system.

Georgie Is currently Lead Clinical Nurse Specialist - Nutrition Support & intestinal Failure Service at Royal Devon & Exeter NHS Trust and is also Media and Communications Officer for the National Nurse Nutrition Group (NNNG).

01:46 You have recent experience of implementing EPIC, how did you feel when the decision was made to transition to EPIC in your Trust?

03:50 Was it relatively straightforward for you to transition over to a fully digital patient record system?

11:35 With hindsight, do you have any tips for other people or Trusts that are about to go through the implementation?

16:15 You've been through all of that preparation and what it was like on 'Go Live' day, what was it like in the period immediately after starting the new system and again is there anything you would say to prepare people for Day 1 and beyond?

22:14 Now you are using the system what are the benefits you are seeing as a multi-disciplinary nutrition support team?

24:01 Is there anything else that has changed from a multi-disciplinary team perspective?

25:52 Putting your NNNG hat on, what do you think the opportunity for Electronic patient record systems are for Nutrition support teams to support and enable more uniform delivery of care nationally?

29:26 As a leader in a Trust have you been able to customise EPIC dashboards so far and how is it working for you so far? Georgie explains what the EPIC system dashboard is like from here device and the wealth of information provided about a patient

33:35 You mentioned a virtual conference for the NNNG, what are the plans for this year and how can people get involved?

36:50 If someone listening isnt a member of the NNNG, why should they join and HOW do they join?

Georgie Adams's Social Links

Linkedin https://www.linkedin.com/in/georgie-georgina-adams-716148105/

Twitter https://twitter.com/georgieadams47

Royal Devon and Exeter Social Links

Website https://www.rdehospital.nhs.uk

Twitter https://twitter.com/RDEhospitals

NNNG (NATIONAL NURSE NUTRITION GROUP) Links

Their new shiny website https://nnng.org.uk

Membership registration info https://nnng.org.uk/join-us/

Twitter https://twitter.com/NNNGUK

Linkedin https://www.linkedin.com/company/national-nurses-nutrition-group/

More information can be found on the EPIC system here: https://www.epic.com/software

This weeks episode is part of the NGPODCAST® partnership with PINNT to support their #LetsTalkAboutHAN campaign, by talking to people that use Artificial Nutrition  This week we are joined by Leanne Goodlad who is 22 years old and from the Shetland Islands. She is a university student studying for a law degree at Dundee University   Leanne has been using enteral feeding through a nasogastric tube and then a nasojejunal tube since 2019.

Time Stamps  

01:40 Can you tell us how you came to be on enteral feeding?   

03:55 You've been using NG/NJ tubes now for 18 months is it the plan to use tubes long term?  

05:40 whats it like using an NJ all the time? Are there any issues?   

09:38 It must be a shock when you woke up and was told during sedation you kicked him in the face!?  

10:52 When you were placing tubes on yourself did you do the pH test to determine placement?   

11:34 You mentioned about other issues with your feeding tube with people quick to judge you on what your feeding tube is for?   

13:49 You said you are trying to move to overnight feeds, are you hoping that you will feel less encumbered with that arrangement?  

15:49 Leanne talks about her jobs at university and the issues she had not being able to go back to work in her old job at a supermarket due to the timing of her feed   

21:25 Leanne and Marcus talk about how the majority of celebrations and university events are centred around food and drink and how difficult it is not being able to take part  

25:48 are you going back to university to finish your final year?   

27:14 How has PINNT helped you since you have been a member?

This weeks episode is part of the NGPODCAST® partnership with PINNT to support their #LetsTalkAboutHAN campaign, by talking to people that use Artificial Nutrition  We are joined by Don Colley, a PINNT member who uses enteral  nutrition via a gastrostomy to deal with his nutrition and hydration needs.   Don has been treated for GI problems since he was 14, which for him means before the NHS even existing, as he is 90 years old. Despite this, Don has had a very interesting and varied life and he has always been a problem solver, he continues this with his enteral feeding by designing and 3D printing solutions to the problems he is facing.

Nichola Crust is a National Investigator at the Healthcare Safety Investigation Branch, Registered General Nurse in the NHS 28 years and also a GenerationQ fellow.   

Nichola has worked at a strategic level in a variety of healthcare settings spanning primary and secondary care.  Her roles have included professional nurse leadership and mentoring of nursing teams, mobilisation of new services including service and workforce redesign, and training and education in incident investigation. Nichola has developed clinical governance systems in both primary and secondary care, established systems for identifying risks and has worked collaboratively with national bodies relating to healthcare. Nichola has extensive teaching experience and specialist understanding of supporting patients and families through the investigation process. Her key qualities are empathy, ability to build rapport and ability to influence. Before joining HSIB, Nichola was a Head of Nursing, Quality and Safety for the NHS Leicester, Leicestershire and Rutland Alliance.   

Nichola joined the Healthcare Safety Investigation Branch (HSIB) in March 2017 as a National Investigator. She works closely with patients and their families and carers, healthcare staff, trusts, hospitals and other healthcare providers. Nichola was the HSIB representative on the CQC Never Events Thematic Review expert advisory group. The National Safety Investigator role interested her because it has a focus on leadership and quality improvement and Nichola has a real desire and enthusiasm for leading and influencing improvement work which will directly impact on patient safety. Nichola has completed the Health Foundation’s GenerationQ leadership and quality improvement programme and holds an MSc in Leadership (Quality Improvement). Nichola continues to meet with her Action Learning Set following completion of the GenerationQ programme. Nichola reflects on the benefits of Action Learning Sets as a way of reflecting and learning from real life problems and our actions from what happens to us, and around us. They are an opportunity to ask difficult questions, discuss sensitive issues and allow time to question, understand and reflect, to gain insights and consider how to act in the future, sharing learning in a supportive environment.

LINKS   

Link to HSIB report on the Placement of nasogastric tubes  https://www.hsib.org.uk/documents/268/HSIB_Placement_of_nasogastric_tubes_Report_V07.pdf Link to HSIB website  https://www.hsib.org.uk/investigations-cases/placement-nasogastric-tubes/final-report/ 

HSIB Social Links 

Linkedin: HSIB https://www.linkedin.com/company/healthcare-safety-investigation-branch/

Nichola Crust https://www.linkedin.com/in/nichola-crust-1164a121/  

About NGPod Global 

We are dedicated to providing innovative solutions to the patient safety issues surrounding nasogastric (NG) tube misplacement.  ------------------------- 

 Website: www.ngpodglobal.com  

Twitter: https://twitter.com/NGPODGLOBAL  

Facebook: https://www.facebook.com/NGPodGlobal/  

Linkedin: https://www.linkedin.com/company/ngpo...  

SUBSCRIBE to our YouTube Channel: https://youtube.com/channel/UC7SARs_5...​

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Marcus’s Social Links:  

Twitter: https://twitter.com/MarcusNGPOD1 

yLinkedin: https://www.linkedin.com/in/marcusine...

In this week's episode of the #NGPODCAST we are breaking new ground by featuring someone who uses enteral feeding to share their journey and that of their family. As part of @Pinnt's  (the leading UK Charity supporting people who use artificial nutrition) new "Let's talk about HAN" (Home Artificial Nutrition) campaign, your host Marcus Ineson talks to Gary and Colette Taylor. Back in 2016, Gary went to his doctors following a football injury to his groin, following a head to toe examination they found a lump in his neck. He had previous issues with his tonsils but subsequent scans discovered the lump was actually a tumour. We follow their story from the initial identification of Gary's condition to starting long term enteral nutrition, recovery, and subsequent tremendous achievements breaking records.

Time Stamps

01:40 Gary can you tell us what happened to you up to the point when you had your operation that ended up with you needing long term enteral nutrition?

09:55 Colette explains what happened to her and the kids whilst they were waiting for the diagnosis and treatment, how that felt, and how they arranged a wedding in three weeks

16:00 Gary straight after the operation you were told you required feeding for 6 weeks through a nasogastric tube, is that how it turned out?

18:30 Colette how was that period of recovery like for you seeing Gary immediately post op and then over the next few weeks?

24: 40 Gary tells Marcus the motivation around how he likes to look at photographs during dark times, to see how far he has come and what he can achieve

27:07 When you were getting ready for Gary to be discharged, Colette how were you prepared by the hospital team and how did you prepare the family for that?

31:03 Colette and Gary give healthcare professionals some advice on how they can improve the patient experience in complex feeding conditions

36:00 Gary how did the preparation for discharge go, and when you got home how did that feel for you?

39:08 How did it feel for you Colette that Gary felt that way when he returned home?

41:40 Gary you are a keen sportsman, how did you set back off to getting into sport?

[shout out to Macmillan Cancer Support - https://www.macmillan.org.uk]

44:00 Colette explains how they feel (and what they have to prepare) when venturing out of the house

49:35 THE FAMOUS PINNT TOILET ROLL STORY

51:01 What's it like when you go out to a restaurant?

52:36 A lot of celebrations are resolved around food and drinking, do you do those things differently? (Some great tips in here - how Colette got Gary involved at Christmas.. think wooden sprouts)

54:00 You both talk about how Gary first got involved in sports again, WHICH ACCOUNT IS TRUE??

55:21 Gary talks about his achievements to date

57:00 People might see all these challenges Gary, but what goes into these challenges planning wise in terms of logistics and nutritional intake? 60:00 Your dietitian and nutrition nurse actually came running with you didn't they, what did they (and you Gary) learn from this?

61:43 When Gary said he was going to do the London Marathon Colette what did you think?

66:45 What is the next big challenge Gary?

67:44 Can you tell us what PINNT has done and what PINNT means for you since the start of your journey?

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About NGPod Global We are dedicated to providing innovative solutions to the patient safety issues surrounding nasogastric (NG) tube misplacement.

Hill Dickinson are an international firm of market leading legal experts specialising in all aspects of commercial law, from non-contentious advisory and transactional work, through to all forms of commercial litigation and arbitration.

With offices in the UK, mainland Europe and Asia, they provide services across three broad business groups; Business service groups, Marine Trade & Energy, and Health.

We are proud to welcome lawyers Monia Sood and Elizabeth Wallace who are both part of the health team at Hill Dickinson’s Manchester office.

Monia is a legal director in the health litigation team in Manchester, specialising in clinical negligence claims instructed on behalf of the NHS Resolution. She is instructed by the NHS Resolution to act on behalf of NHS trusts dealing primarily with clinical negligence cases. In addition, she regularly lectures to clients on a mix of healthcare topics including Duty of Candour, complaints, preparing witness statements, record keeping and preparing for trial. Monia also leads on arranging the firm’s NHS Resolution claims and patient safety forums inviting experts and representatives from the NHS Resolution to discuss topical issues and facilitates the North West Litigation Group meetings.

Elizabeth is a senior associate in the healthcare team in Manchester. She specialises in inquests and also has experience in all aspects of healthcare law, including advice on complaints to NHS trusts and Court of Protection.

Elizabeth has been instructed by various NHS trusts throughout the North West to provide advice and support prior to an inquest taking place and also legal representation and advocacy at the inquest hearing itself. Elizabeth has also advised NHS trusts on patient complaint handling and lesson learning following serious patient safety incident.

Time Stamps

02:07  Can you talk us through how a case develops following a Never Event?

08:48  What happens in court?

09:53  At the end of an inquest, what are the possible outcomes in a clinical case or a Never Event case?

15:25  when the inquest is over and a claim for compensation is made, how does it proceed and would a Never Event being involved affect that process?

16: 40 If the claim goes to court, is that a more adversarial environment than it is supposed to be in the Coroners court?

18:03 Can the inquest and claim process happen at the same time?

20:23 Is there a difference in how you, or a court, treat a Never Event case?

23:13 There is a requirement in the last patient safety alert to have a named director responsible for concerning all guidance involving NGT Never Events are implemented, are there any additional implications for a Trust or individual if a NGT Never Event does occur?

25:53 Marcus discusses the HSIB Interim report. How can something like this affect a courts view of an NGT Never Event In the future?

27:30 Suppose there was a new method of improving patient safety Is available but not adopted, could that be taken into consideration for a case?

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Website: www.ngpodglobal.com

Twitter: https://twitter.com/NGPODGLOBAL

Facebook: https://www.facebook.com/NGPodGlobal/

Linkedin: https://www.linkedin.com/company/ngpo...

SUBSCRIBE to our YouTube Channel: https://youtube.com/channel/UC7SARs_5...

Marcus’s Social Links:

Twitter: https://twitter.com/MarcusNGPOD1

Linkedin: https://www.linkedin.com/in/marcusine...

What is the impact of nasogastric tube misplacement on a family?

NG Tube related Never Events continue to occur, but most healthcare professionals don’t get to see the impact on the lives of families.

For episode 4 of the NGPODCAST, we speak to our dear friend Deahna Visscher, who’s son Grant died at just 11 days old after being fed through a misplaced NG Tube, about what happened that day and what she has done since then to try and prevent other families suffering the same tragedy.

Since his death in 2008 she has been on a quest to find a solution to prevent others from experiencing the loss that she was due to a misplaced feeding tube. She has become a parent partner on the Patient Safety Committee at the hospital where Grant died at and has also become a member of the American Society of Parenteral and Enteral Nutrition (ASPEN) sub-committee NOVEL (seeking New Opportunities for Verification of Enteral tube Location).

We are also joined by Beth Lyman (MSN, RN, CNSC) who is a nurse consultant who formerly worked at Children’s Mercy Kansas City. She has been a Nutrition Support Nurse for 36 years with 26 of those years at a children’s hospital. Beth chairs the NOVEL Project (New Opportunities for Verification of Enteral tube location) which is an inter-organization, inter-disciplinary and international effort to promote best practice for NG tube placement verification (which Deahna is also a key member of).

On this week’s episode, we discuss how they got involved in the NOVEL Project, their Patient Safety Movement Foundation activities, the influence the UK has had on US NG tube safety, and how you change practice in a vast country with 52 States and a population of 331 million people.

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Timestamps

03:20 Deahna talks about what happened to the Visscher family due to NG tube misplacement

15:28 How have you taken what happened to Grant, and used it to try and reduce the risk for other families with children that are being NG tube fed?

22:00 Beth Lyman discusses the big differences between the UK and US with regards to nasogastric tube placement verification

25:34 Can you tell us about the research that NOVEL has done and what that told you about the risk of NG feeding in the United States

28:45 What was the comparison with testing nasogastric tube position out in the community?

30:45 Has the UK’s work around NG tube safety influenced practice in the UK at all? 32:58 How do you think having the patient/family/carer voice in has influenced the debate and help change in practice be progressed?

38:16 the US has a population of 331 million and 52 states, how do you even start changing practice on the scale you have to deal with, and what have you learned that might be useful for others that want to change practice in an area like patient safety?

Links

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Video to Deahna and Rich Visscher discussing what happened on that day and what they are doing to change practice to prevent that tragedy from occurring to other parents.

Made in conjunction with the PSMF https://www.youtube.com/watch?v=NBXw-IW5IOQ&vl=en

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Patient Safety Movement Foundation – Spotlight on Deahna Visscher, Mother of Grant Lars Visscher https://patientsafetymovement.org/blog/spotlight-on-ng-tubes/

NGPod Global Blog – International Patient Safety Advocate Deahna Visscher

SUBSCRIBE to our YouTube Channel: https://youtube.com/channel/UC7SARs_5…