Non-Hodgkin lymphoma - The Bloodline with Blood Cancer United Podcast

Non-Hodgkin lymphoma - The Bloodline with Blood Cancer United Podcast

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Non-Hodgkin lymphoma - The Bloodline with Blood Cancer United Podcast episodes

  • Navigating Challenges as They Come: Resilience for Caregivers

    What happens when a resilience expert becomes the caregiver? When a loved one is diagnosed with blood cancer, you’re suddenly balancing fear, advocacy, and everyday life all at once. 

    In this episode, we sit down with Karen Reivich, PhD, a resilience expert, caregiver, and wife of a lymphoma survivor. Karen opens up about the reality of supporting her husband through treatment and a clinical trial, sharing invaluable lessons on managing uncertainty, accepting help, and caring for yourself while caring for someone you love.

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    CLICK HERE to participate in our episode survey.

    Mentioned on this episode: 

    • Caregiver support
    • Caregiver Workbook
    • Caregiver Chat
    • Clinical Trial Support Center
    • Additional Blood Cancer United Support Resources: 

      • Information Specialists 
      • Free Nutrition Consultations
      • Nutrition Handbook for Parents Free telephone/web patient programs 
      • SHARE web series
      • Online videos
      • Free booklets 
      • Young Adult Resources
      • Young Adult Online Chat
      • Support groups 
      • Patient Community
      • Medical Debt Case Management Program
      • Financial support
      • Survivorship Workbook
      • Advocacy and Public Policy
      • Mental Health Resources
      • The post Navigating Challenges as They Come: Resilience for Caregivers first appeared on The Bloodline with Blood Cancer United Podcast.

        56 min
      • Finding Each Other Along the Way: A Cancer Love Story
        Kim and Josh Woda

        Two college students. Two lymphoma diagnoses. One unexpected love story.

        In this episode, we speak with Kim and Josh Woda, who were both diagnosed with Hodgkin lymphoma while attending college. They share how they navigated school during treatment, coped with relapse and stem cell transplant, found support in the cancer community, and unexpectedly found each other. Their story is a powerful reminder that connection, understanding, and hope can appear when you least expect it.

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        CLICK HERE to participate in our episode survey.

        Mentioned on this episode: 

        • Young Adult Resources
        • Young Adult Online Chat
        • Young Adult Cancer Organizations
        • Support groups 
        • Patient Community
        • CancerCare®
        • Hodgkin lymphoma
        • Allogeneic stem cell transplant
        • Additional Blood Cancer United Support Resources: 

          • Information Specialists 
          • Clinical Trial Support Center
          • Free Nutrition Consultations
          • Free telephone/web patient programs 
          • SHARE web series
          • Online videos
          • Free booklets 
          • Caregiver support
          • Caregiver Workbook
          • Medical Debt Case Management Program
          • Financial support
          • Survivorship Workbook
          • Advocacy and Public Policy
          • Mental Health Resources
          • Episode supported by Kyowa Kirin Pharmaceutical Development Inc and Merck & Co.

            The post Finding Each Other Along the Way: A Cancer Love Story first appeared on The Bloodline with Blood Cancer United Podcast.

            52 min
          • Making Your Voice Count: The Power of Patient Advocacy

            Behind every policy is a patient, caregiver, or family whose story helped make change possible.

            In this episode, we speak with Andrea Sanchez and Becki Chandler, volunteer advocates with Blood Cancer United, about the power of patient voices in shaping public policy. Drawing from their own family experiences with blood cancer, they discuss issues ranging from medical debt and insurance coverage to clinical trial access and research funding and explain how patients and caregivers can make their voices heard.

            Learn why sharing your story matters and how personal experiences help lawmakers see that patients are more than numbers on a page. Behind every statistic is a real person, a unique story, and a family impacted by blood cancer.

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            CLICK HERE to participate in our episode survey.

            Mentioned on this episode: 

            • Blood Cancer United Advocacy and Office of Public Policy – sign up for volunteer advocacy or sharing your voice here
            • Medical Debt Case Management Program
            • Financial support
            • Accelerating Kids Access to Care Act
            • Dare to Dream
            • Blood Cancer United Scholarship program
            • Blood Cancer Care Close to Home vlog episode
            • National Institutes of Health (NIH)
            • Advocating for Yourself: Insurance, Finances, and Your Rights podcast episode 
            • Additional Blood Cancer United Support Resources: 

              • Information Specialists 
              • Clinical Trial Support Center
              • Young Adult Resources
              • Young Adult Online Chat
              • Free Nutrition Consultations
              • Free telephone/web patient programs 
              • SHARE web series
              • Online videos
              • Free booklets 
              • Patient Community
              • Caregiver support
              • Caregiver Workbook
              • Support groups 
              • Survivorship Workbook
              • Mental Health Resources
              • The post Making Your Voice Count: The Power of Patient Advocacy first appeared on The Bloodline with Blood Cancer United Podcast.

                56 min
              • Diffuse Large B-Cell Lymphoma (DLBCL): Breaking Down an Aggressive Lymphoma
                Jonathon Cohen, MD, MS

                When you hear the word “aggressive,” it can feel overwhelming, but in diffuse large B-cell lymphoma (DLBCL), it can also point to something encouraging – a potential cure.

                In this episode, we speak with Dr. Jonathon Cohen, of Winship Cancer Institute in Atlanta, GA, about what a DLBCL diagnosis really means, from how this common type of non-Hodgkin lymphoma is identified to current treatment options and emerging therapies. We explain what patients and families need to know about side effects. We also look at new treatments, including CAR T-cell therapy and bispecific antibodies, and the importance of open communication with your care team.

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                CLICK HERE to participate in our episode survey.

                Mentioned on this episode: 

                • Diffuse large B-cell lymphoma
                • CAR T-cell therapy
                • Stem cell transplantation
                • Bispecific antibodies (immunotherapy fact sheet)
                • Clinical Trial Support Center
                • Additional Blood Cancer United Support Resources: 

                  • Information Specialists 
                  • Young Adult Resources
                  • Young Adult Online Chat
                  • Financial support
                  • Free Nutrition Consultations
                  • Free telephone/web patient programs 
                  • SHARE web series
                  • Online videos
                  • Free booklets 
                  • Patient Community
                  • Support groups 
                  • Caregiver support
                  • Caregiver Workbook
                  • Survivorship Workbook
                  • Advocacy and Public Policy
                  • Mental Health Resources
                  • Episode supported by Genmab US, Inc.

                    The post Diffuse Large B-Cell Lymphoma (DLBCL): Breaking Down an Aggressive Lymphoma first appeared on The Bloodline with Blood Cancer United Podcast.

                    39 min
                  • Cutaneous T-Cell Lymphoma (CTCL): Illuminating a Brighter Path Forward
                    Stefan Barta, MD, MS

                    Cutaneous T‑cell lymphoma (CTCL) is a rare condition that often raises important questions for patients and families.

                    In this episode, we sit down with Dr. Stefan Barta, of the University of Pennsylvania, to bring clarity to what CTCL is, how it’s diagnosed, and what patients can expect from staging and treatment. Dr. Barta breaks down the differences between CTCL subtypes, explains why diagnosing someone can take time, and shares the most up-to-date therapies, including skin directed treatments, immunotherapies, and emerging clinical trial options. Most importantly, he offers reassurance for those newly diagnosed: “The future is absolutely bright… there is a lot of hope for our patients with CTCL.”

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                    CLICK HERE to participate in our episode survey.

                    Mentioned on this episode: 

                    • Cutaneous T-cell lymphoma
                    • Cutaneous Lymphoma Foundation
                    • Clinical Trial Support Center
                    • Additional Blood Cancer United Support Resources: 

                      • Free Nutrition Consultations
                      • Information Specialists 
                      • Financial support
                      • Online Chat
                      • Free telephone/web patient programs 
                      • Free booklets 
                      • Young Adult Resources
                      • Support groups 
                      • Caregiver support 
                      • Caregiver Workbook
                      • Survivorship Workbook
                      • Advocacy and Public Policy
                      • Patient Community
                      • Mental Health Resources
                      • Episode supported by Kyowa Kirin, Inc. and Cutaneous Lymphoma Foundation.

                        The post Cutaneous T-Cell Lymphoma (CTCL): Illuminating a Brighter Path Forward first appeared on The Bloodline with Blood Cancer United Podcast.

                        39 min
                      • Hope Meets Healing: Simple Practices for Stress Relief
                        Ann Grace MacMullan, C-IAYT

                        In this episode, we sit down with Ann Grace MacMullan, Director of Integrative Wellness at the International Waldenstrӧm’s Macroglobulinemia Foundation (IWMF), to explore how wellness can become a powerful part of life after a cancer diagnosis. Ann Grace shares practical, calming techniques, including breathing exercises, “Bee’s Breath”, and guided meditation, that you can do anywhere to reduce stress and feel more grounded. We’ll also dive into what integrative wellness really means, why it matters for blood cancer patients, and how concepts like the “self-care sandwich” can help you start and end your day with intention.

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                        CLICK HERE to participate in our episode survey.

                        Mentioned on this episode: 

                        • Integrative oncology
                        • Palliative care
                        • How Do I Use Breathing To Manage Anxiety?
                        • IWMF wellness videos
                        • Integrative Oncology podcast episode
                        • International Waldenstrom’s Macroglobulinemia Foundation (IWMF)
                        • Additional Blood Cancer United Support Resources: 

                          • Free Nutrition Consultations
                          • Information Specialists 
                          • Financial support
                          • Clinical Trial Support Center
                          • Online Chat
                          • Free telephone/web patient programs 
                          • Free booklets 
                          • Young Adult Resources
                          • Support groups 
                          • Caregiver support 
                          • Caregiver Workbook
                          • Survivorship Workbook
                          • Advocacy and Public Policy
                          • Patient Community
                          • Mental Health Resources
                          • Episode supported by Merck & Co., Inc.

                            The post Hope Meets Healing: Simple Practices for Stress Relief first appeared on The Bloodline with Blood Cancer United Podcast.

                            46 min
                          • The Big Picture on Non-Hodgkin Lymphoma: Treatments, Trends, and Tomorrow
                            Jean Koff, MD, MSc

                            Non-Hodgkin lymphoma (NHL) can sound overwhelming, but what does it really mean for patients and families? In this episode, we speak to Dr. Jean Koff of Winship Cancer Institute of Emory University, who breaks down the big picture of NHL: what it is, how it’s an umbrella term for multiple subtypes, and what today’s treatments and tomorrow’s innovations could mean for you. From understanding subtypes and staging to exploring options like watchful waiting, chemotherapy, and cutting-edge immunotherapies, we cover what matters most: knowledge, clarity, and hope.

                            DOWNLOAD TRANSCRIPT
                            CLICK HERE to participate in our episode survey.

                            Mentioned on this episode: 

                            • Non-Hodgkin lymphoma
                            • The Lymphoma Guide
                            • Lugano staging system
                            • Immunotherapy fact sheet
                            • CAR T-cell therapy
                            • Allogeneic stem cell transplantation
                            • Clinical Trial Support Center
                            • Online NHL Chat
                            • Additional Blood Cancer United Support Resources: 

                              • Free Nutrition Consultations
                              • Information Specialists 
                              • Financial support
                              • Free telephone/web patient programs 
                              • Free booklets 
                              • Young Adult Resources
                              • Support groups 
                              • Caregiver support 
                              • Caregiver Workbook
                              • Survivorship Workbook
                              • Advocacy and Public Policy
                              • Patient Community
                              • Mental Health Resources
                              • Supported by AbbVie Inc. and Genentech, A Member of the Roche Group.

                                The post The Big Picture on Non-Hodgkin Lymphoma: Treatments, Trends, and Tomorrow first appeared on The Bloodline with Blood Cancer United Podcast.

                                45 min
                              • MRD Explained: What it Means for You and Your Care
                                John Burke, MD

                                MRD (minimal/measurable residual disease) testing is changing the way doctors understand and monitor blood cancers.  In this episode, we talk with Dr. John Burke of the Rocky Mountain Cancer Center about how MRD testing works, what the results mean to patients and their care teams, and how ongoing clinical research is helping shape more personalized and hopeful approaches to treatment. 

                                DOWNLOAD TRANSCRIPT
                                CLICK HERE to participate in our episode survey.

                                Mentioned on this episode: 

                                • Minimal/Measurable Residual Disease (MRD) fact sheet
                                • Minimal/Measurable Residual Disease (MRD) chart
                                • CAR T-cell therapy
                                • Additional LLS Support Resources: 

                                  • Free Nutrition Consultations
                                  • Information Specialists 
                                  • Free telephone/web patient programs 
                                  • Clinical Trial Support Center
                                  • Advocacy and Public Policy
                                  • Free booklets 
                                  • Financial support
                                  • Young Adult Resources
                                  • Support groups 
                                  • Survivorship Workbook
                                  • Community
                                  • Caregiver support 
                                  • Caregiver Workbook
                                  • Mental Health Resources
                                  • Supported by Adaptive Biotechnologies Corporation and Allogene Therapeutics.

                                    The post MRD Explained: What it Means for You and Your Care first appeared on The Bloodline with Blood Cancer United Podcast.

                                    36 min
                                  • Joy, Hope, and Healing Beyond a Cancer Diagnosis
                                    Dianne Callahan

                                    In this episode, we speak with Dianne Callahan, four-time cancer survivor, best-selling author, speaker, and patient advocate. Dianne shares her experiences with non-Hodgkin lymphoma and breast cancer, stem cell transplant, and survivorship while highlighting the importance of advocacy, joy, and intention in life after diagnosis. From her work with fundraising campaigns to legislative advocacy on Capitol Hill, Dianne offers inspiring insights on resilience, hope, and the power of living intentionally.

                                    DOWNLOAD TRANSCRIPT
                                    CLICK HERE to participate in our episode survey.

                                    Mentioned on this episode: 

                                    • Non-Hodgkin lymphoma
                                    • Stem cell transplantation
                                    • Allogeneic stem cell transplantation animated video
                                    • NMDP (formerly Be The Match)
                                    • Light The Night
                                    • Visionaries of the Year
                                    • Team In Training
                                    • Advocacy and Public Policy
                                    • Caregiver support 
                                    • Caregiver Workbook
                                    • Mental Health Resources
                                    • Additional LLS Support Resources: 

                                      • Free Nutrition Consultations
                                      • Information Specialists 
                                      • Free telephone/web patient programs 
                                      • Free booklets 
                                      • LLS Clinical Trial Support Center
                                      • Financial support
                                      • Young Adult Resources
                                      • Support groups 
                                      • Survivorship Workbook
                                      • LLS Community 
                                      • Supported by Genentech, A Member of the Roche Group.

                                        The post Joy, Hope, and Healing Beyond a Cancer Diagnosis first appeared on The Bloodline with Blood Cancer United Podcast.

                                        52 min
                                      • Joy, Hope, and Healing Beyond a Cancer Diagnosis
                                        Dianne Callahan

                                        In this episode, we speak with Dianne Callahan, four-time cancer survivor, best-selling author, speaker, and patient advocate. Dianne shares her experiences with non-Hodgkin lymphoma and breast cancer, stem cell transplant, and survivorship while highlighting the importance of advocacy, joy, and intention in life after diagnosis. From her work with fundraising campaigns to legislative advocacy on Capitol Hill, Dianne offers inspiring insights on resilience, hope, and the power of living intentionally.

                                        DOWNLOAD TRANSCRIPT
                                        CLICK HERE to participate in our episode survey.

                                        Mentioned on this episode: 

                                        • Non-Hodgkin lymphoma
                                        • Stem cell transplantation
                                        • Allogeneic stem cell transplantation animated video
                                        • NMDP (formerly Be The Match)
                                        • Light The Night
                                        • Visionaries of the Year
                                        • Team In Training
                                        • Advocacy and Public Policy
                                        • Caregiver support 
                                        • Caregiver Workbook
                                        • Mental Health Resources
                                        • Additional LLS Support Resources: 

                                          • Free Nutrition Consultations
                                          • Information Specialists 
                                          • Free telephone/web patient programs 
                                          • Free booklets 
                                          • LLS Clinical Trial Support Center
                                          • Financial support
                                          • Young Adult Resources
                                          • Support groups 
                                          • Survivorship Workbook
                                          • LLS Community
                                          • Supported by Genentech, A Member of the Roche Group.

                                            The post Joy, Hope, and Healing Beyond a Cancer Diagnosis first appeared on The Bloodline with LLS.

                                            52 min

                                          About Non-Hodgkin lymphoma - The Bloodline with Blood Cancer United Podcast

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                                          A podcast for patients and caregivers